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National Library of Medicine
Rare Diseases web archive

Rare Diseases web archive

Collected by: National Library of Medicine

Archived since: Aug, 2023

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Sites for this collection are listed below. Narrow your results at left, or enter a search query below to find a site, specific URL or to search the text of archived webpages.

Page 1 of 1 (94 Total Results)

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URL: http://GENOME.GOV

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Title: Alexion

URL: https://alexion.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Alliance for Regenerative Medicine

URL: https://alliancerm.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Amicus Therapeutics | Advancing Therapies to Treat Rare Diseases

URL: https://amicusrx.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Official Home Page of the Apellis Pharmaceuticals Corporate Site | Apellis Pharmaceuticals

URL: https://apellis.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Blog | Probably Genetic

URL: https://blog.probablygenetic.com/

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Language: English

Type: Blog

Collector: National Library of Medicine (U.S.)

Title: Home - Despite Pain

URL: https://despitepain.com/

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Language: English

Type: Blog

Collector: National Library of Medicine (U.S.)

Title: Rare Disease Podcast — Once Upon A Gene

URL: https://effieparks.com/blog

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Enzyvant

URL: https://enzyvant.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: EveryLife Foundation

URL: https://everylifefoundation.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Genetic Alliance

URL: https://geneticalliance.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

URL: https://geneticspolicy.nccrcg.org/

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Title: Global Genes

URL: https://globalgenes.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Know Rare

URL: https://knowrare.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Leadiant Biosciences

URL: https://leadiant.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Medunik USA

URL: https://medunikusa.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Midwest Genetics Collaborative – Midwest Genetics Collaborative

URL: https://midwestgenetics.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

URL: https://nationalfamilycenter.org/

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Title: Therapeutics for Rare and Neglected Diseases (TRND) | National Center for Advancing Translational Sciences

URL: https://ncats.nih.gov/trnd

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

URL: https://nccrcg.org/

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Title: Home - NYMAC - Regional Genetics Network

URL: https://nymacgenetics.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Our Odyssey

URL: https://ourodyssey.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rallybio

URL: https://rallybio.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: RARE-X – Patient's Data Powering Progress

URL: https://rare-x.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Unique | Understanding Rare Chromosome and Gene Disorders

URL: https://rarechromo.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Collective

URL: https://rarecollective.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Home - Genetic and Rare Diseases Information Center

URL: https://rarediseases.info.nih.gov/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: National Organization for Rare Disorders (NORD)

URL: https://rarediseases.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: NORD Rare Diseases

URL: https://rarediseases.org/nord-en-espanol/

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Language: Spanish

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Genomes Project

URL: https://raregenomes.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Home | RareGuru

URL: https://rareguru.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: RareGuru Blog | RareGuru

URL: https://rareguru.com/blog

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Language: English

Type: Blog

Collector: National Library of Medicine (U.S.)

Title: Rare Mamas

URL: https://raremamas.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Patient Voice

URL: https://rarepatientvoice.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rareshare

URL: https://rareshare.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: RUN

URL: https://rareundiagnosed.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: RaDaR

URL: https://registries.ncats.nih.gov/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: NORD Running for Rare

URL: https://runningforrare.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Sidewalks and Stairwells – Finding My Strength on the Road to Disability

URL: https://sidewalksandstairwells.com/

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Language: English

Type: Blog

Collector: National Library of Medicine (U.S.)

Title: Southeast Regional Genetics Network (SERN) | Improving health equity and outcomes in individuals with genetic conditions

URL: https://southeastgenetics.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Spoonful of Stripes – Zebra stripes and every day life.

URL: https://spoonfulofstripes.wordpress.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Travere Therapeutics

URL: https://travere.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Undiagnosed Diseases Network

URL: https://undiagnosed.hms.harvard.edu/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: AllStripes | Advance research for your rare disease

URL: https://www.allstripes.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Blog posts by and for the rare community | AllStripes

URL: https://www.allstripes.com/blogs

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Language: English

Type: Blog

Collector: National Library of Medicine (U.S.)

Title: ANGEL AID

URL: https://www.angelaidcares.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Asklepion Pharmaceuticals, LLC -

URL: https://www.asklepionpharm.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Avalo Therapeutics, Inc. (AVTX)

URL: https://www.avalotx.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Home | beyondthediagnosis

URL: https://www.beyondthediagnosis.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Clinical-stage Biopharmaceutical Company | Biohaven

URL: https://www.biohaven.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: CENTOGENE – The Rare Disease Company: centogene.com

URL: https://www.centogene.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Cure Rare Disease

URL: https://www.cureraredisease.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Emmaus Medical, Inc.

URL: https://www.emmausmedical.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: FDNA®

URL: https://www.fdna.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: GeneDx

URL: https://www.genedx.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Genomic Intelligence for Genetic Disease & Cancer

URL: https://www.genomenon.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Heartland Regional Genetics Network

URL: https://www.heartlandcollaborative.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Horizon Therapeutics

URL: https://www.horizontherapeutics.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Orphan Drugs | HRSA

URL: https://www.hrsa.gov/opa/program-requirements/orphan-drug-exclusion

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Disease Organization Connecting India & US – IndoUSrare

URL: https://www.indousrare.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Mountain States Regional Genetics Network

URL: https://www.mountainstatesgenetics.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: New England Regional Genetics Network | University of New Hampshire

URL: https://www.negenetics.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Open Treatments Foundation

URL: https://www.opentreatments.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Orphan Disease Center

URL: https://www.orphandiseasecenter.med.upenn.edu/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: PAN Foundation

URL: https://www.panfoundation.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Probably Genetic | Get answers for your symptoms

URL: https://www.probablygenetic.com/

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Language: English

Date: Website

Collector: National Library of Medicine (U.S.)

Title: PTC Therapeutics | Pioneers in Rare Disease Treatments

URL: https://www.ptcbio.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Advocacy Movement

URL: https://www.rareadvocacymovement.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Blogger

URL: https://www.rareblogger.com/

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Language: English

Type: Blog

Collector: National Library of Medicine (U.S.)

Title: Caring for Rare Disease Caregivers

URL: https://www.rarecaregivers.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Home - Rare Coalition

URL: https://www.rarecoalition.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Disease News, Perspectives & Resources - Rare Disease Advisor

URL: https://www.rarediseaseadvisor.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Disease Day

URL: https://www.rarediseaseday.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Disease Diversity Coalition (RDDC)

URL: https://www.rarediseasediversity.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: About — DISORDER: The Rare Disease Film Festival

URL: https://www.rarediseasefilmfestival.com/about2

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Disease Research

URL: https://www.rarediseaseresearch.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Diseases International

URL: https://www.rarediseasesinternational.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Home | Rare Diseases Clinical Research Network

URL: https://www.rarediseasesnetwork.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Rare Genomics Institute

URL: https://www.raregenomics.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: RAREisCommunity.com

URL: https://www.rareiscommunity.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: #Rareis Blog

URL: https://www.rareiscommunity.com/blog/

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Language: English

Type: Blog

Collector: National Library of Medicine (U.S.)

Title: Rare New England

URL: https://www.rarenewengland.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: RegenxBio

URL: https://www.regenxbio.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: ResearchMatch

URL: https://www.researchmatch.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Soligenix

URL: https://www.soligenix.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Ultragenyx

URL: https://www.ultragenyx.com/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Home - Western States Regional Genetics Network (WSRGN)

URL: https://www.westernstatesgenetics.org/

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Language: English

Type: Website

Collector: National Library of Medicine (U.S.)

Title: Intro to Genetics for Parents and School Personnel with NERGN - YouTube

URL: https://www.youtube.com/watch?v=3FmrRx-Ajvc

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Language: English

Type: Video recording

Collector: National Library of Medicine (U.S.)

Title: Genetic Conditions - YouTube

URL: https://www.youtube.com/watch?v=SCe3m9Cp5Bk

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Language: English

Type: Video recording

Collector: National Library of Medicine (U.S.)

Title: Genetics Series: Newborn Screening & Early Hearing Detection and Intervention Program (7/29/2021) - YouTube

URL: https://www.youtube.com/watch?v=XjXLWgia_Gs

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Language: English

Type: Video recording

Collector: National Library of Medicine (U.S.)

Title: Learning more about Genetic Conditions: Common Questions for a Genetics Counselor - YouTube

URL: https://www.youtube.com/watch?v=f-kSHdUxp-Y

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Language: English

Type: Video recording

Collector: National Library of Medicine (U.S.)

Title: Mitochondrial Disorders - YouTube

URL: https://www.youtube.com/watch?v=mGMkC52qc-8

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Language: English

Type: Video recording

Collector: National Library of Medicine (U.S.)

Title: Genetics Series: The Mystery in Our Genes - Why We Are Who We Are (8/4/2021) - YouTube

URL: https://www.youtube.com/watch?v=oaQeOPBbmxE

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Language: English

Type: Video recording

Collector: National Library of Medicine (U.S.)

Title: Genetics Series: Back to School Tips for Children with Special Health Needs/Disabilities (8/8/2021) - YouTube

URL: https://www.youtube.com/watch?v=r6t4sU-XCsk

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Language: English

Type: Video recording

Collector: National Library of Medicine (U.S.)

Page 1 of 1 (94 Total Results)