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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (30 Total Results)

Title: A Diary of a Mom

URL: http://adiaryofamom.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: A Diary of a Mom author Jess is a Boston-area parent with two daughters, one neurotypical and one autistic. The blog chronicles her experiences raising both children with her husband and the special challenges presented by her younger daughter's autism.

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Title: Autism Daddy

URL: http://autism-daddy.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Autism Daddy, an anonymous blogger, has a 10 year old son with severe, non-verbal autism. His blog provides the unique perspective of a primary caregiver father, and the caregiver to a child with severe, "classic" autism. In addition to blogging about his son, he also writes about the effects of having a special needs child on marriage and other relationships.

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Title: Autism - Day by Day

URL: http://autismdaybyday.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a single mother in the Los Angeles area, "Autism Day By Day" chronicles her life as the caregiver to her 15 year old autistic son, Nick. The blog is from the unique perspective of the mother of a pubescent child with autism and the challenges that come along with it.

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Title: Confessions of a Teenage Aspie

URL: http://confessionsofateenageaspie.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The self-described "Aspie" (person with Asperger's) blogger is in her late teens and recently started at college. Her blog provides a front-row seat to the challenges of being a teenager with Asperger's who is just starting to live independently.

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Title: Flappiness Is…

URL: http://flappinessis.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a school media specialist with two children (one neurotypical, one with ASD), the author blogs about life with a young child on the spectrum. She also includes reviews of books and resources for parents and caregivers.

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Title: HHS Interagency Autism Coordinating Committee's Summary of Advances page

URL: http://iacc.hhs.gov/summary-advances/2012/index.shtml

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The Interagency Autism Coordinating committee is a group set up by the US Department of Health and Human Services. The report on this page indexes all of the recent research (since the committee's inception) and breaks it down into several categories for ease of use.

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Title: Just Stimming

URL: http://juststimming.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a young adult with mild autism/Asperger's, this blog features essays related to many aspects of life with autism and clearly shows the perspective of someone suffering from--and surviving--life with autism.

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Title: National Autism Association

URL: http://nationalautismassociation.org/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The National Autism Association, a parent-run 501c(3), is one of the leading autism advocacy and education groups in the nation. Their website includes information about autism writ large, treatment, and support, among other things.

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Title: National Autism Association's Causes page

URL: http://nationalautismassociation.org/about-autism/causes-of-autism/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: There are many potential causes of autism, nearly all of which are highly controversial. The National Autism Association outlines some of the most common theories, and links to other pages with potential causes.

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Title: NatKat Official Blog

URL: http://natkat921.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The NatKat blog is writing by a young woman with Autism Spectrum Disorder who began college in 2013. The blog chronicles her life as an autism patient and advocate, as well as college student and young adult.

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Title: Are You On It?

URL: http://nymag.com/news/features/autism-spectrum-2012-11/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This article from the popularNew York Magazinediscusses the expanding diagnoses of "Autism Spectrum Disorder" in long-form journalism.

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Title: Susan Senator's Blog

URL: http://susansenator.com/blog/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Susan Senator has been blogging for over five years, making her one of the most seasoned autism caretaker bloggers. Her autistic son is now in his early 20s, and her blog is from the perspective of the caregiver of a young adult with autism.

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Title: The Autism Blog

URL: http://theautismblog.seattlechildrens.org/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The autism-specific blog of Seattle Children's Hospital provides readers with an overview of ASD-related developments and provides resources for patients and caregivers.

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Title: Autism Society's About Autism page

URL: http://www.autism-society.org/about-autism/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Another of the leading American non-profits that addresses autism, the Autism Society, has extensive information about autism now, including information on symptoms, diagnosis, causes, and facts and statistics.

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Title: Autism Society Research page

URL: http://www.autism-society.org/research/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The research page of the Autism Society's website aggregates some current research around two of the more promising areas in autism research: the Treatment Guided Research Initiative, and the Environmental Health Initiative.

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Title: Autism Treatment Network

URL: http://www.autismspeaks.org//science/resources-programs/autism-treatment-network/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The Autism Treatment Network is hosted on the Autism Speaks website and includes information about treatment centers across the United States, as well as pertinent information about treatment methods and options.

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Title: Autism Speaks' What is Autism? Page

URL: http://www.autismspeaks.org/what-autism

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Autism Speaks is one of the main US-based, autism non-profits.

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Title: Autistic Hoya

URL: http://www.autistichoya.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This blog is written by a young, autistic woman about her experiences and advocacy. She is a self-advocate and deeply involved in the larger autism advocacy community.

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Title: CDC's Learn the Signs. Act Early.

URL: http://www.cdc.gov/ncbddd/actearly/index.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The CDC has recently started a campaign called "Learn the Signs. Act Early." that is meant to educate paretns and families about the early signs of autism. There is significant evidence that children who have early intervention fare much better, and getting an early diagnosis can be crucial.

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Title: CDC's Autism Spectrum Research & Tracking page

URL: http://www.cdc.gov/ncbddd/autism/research.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The research on the CDC's ASD Research & Tracking page is fed by a CDC surveillance monitoring system for relevant research tracking. It includes all of the most current research in the United States on ASD.

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Title: Dude, I'm an Aspie

URL: http://www.dudeimanaspie.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Matt Friedman is an Asperger's advocate and cartoonist. He is a young man with Asperger's, and his blog is filled with reflections on ASD policy and experiences, and his own original drawings about the subject.

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Title: The 5 Scariest Autism "Treatments"

URL: http://www.forbes.com/sites/emilywillingham/2013/10/29/the-5-scariest-autism-treatments/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This article, fromForbes, outlines some of the more dangerous and bizarre alternative treatments that some use on those with autism.

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Title: Go Team Kate

URL: http://www.goteamkate.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This blog, written by parents of an autistic girl in the UK, provides several unique features: it documents the experiences of both Kate's mother and father, and tells the detailed story of her diagnosis.

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Title: National Health Service (UK)'s Autism and Asperger's Syndrome: Causes page

URL: http://www.nhs.uk/Conditions/Autistic-spectrum-disorder/Pages/Causes.aspx

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This webpage from the UK's National Health Service lays out the potential causes of ASD in a clear and concise format.

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Title: NIEHS's Health and Education: Autism page

URL: http://www.niehs.nih.gov/health/topics/conditions/autism/index.cfm

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: One of the potential causes of autism that is currently being heavily researched involves environmental factors and environmental health. The National Institute of Environment and Health Services has significant information about the work being done on its website.

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Title: NIMH's A Parent's Guide to Autism Spectrum Disorder "What is Autism?" page

URL: http://www.nimh.nih.gov/health/publications/a-parents-guide-to-autism-spectrum-disorder/index.shtml#pub1

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This publication, put out and maintained by the National Institute of Mental Health is an excellent guide to ASD for parents.

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Title: New York Times' Autism Health Guide

URL: http://www.nytimes.com/health/guides/disease/autism/overview.html#Treatment

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: TheNew York Timeshealth guide on autism includes news stories and articles about autism published in theTimesor on its website, as well as information about treatment. The combination of journalistic views of treatment options and narratives about autism in general make it a unique source.

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Title: Center for Autism Research

URL: http://www.research.chop.edu/programs/car/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The Center for Autism Research, located at the Children's Hospital of Philadelphia, is a research institute dedicate to autism. Their page includes information about research being done both at CAR and around the country.

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Title: Organization for Autism Research

URL: http://www.researchautism.org/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The Organization for Autism Research, a non-profit founded in 2001, funds research and studies related to autism in America. Their website includes links to other agencies participating in autism research (including NIH), as well as some of the original research they have funded.

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Title: U.S. Court of Federal Claims page on Autism and Vaccines

URL: http://www.uscfc.uscourts.gov/omnibus-autism-proceeding/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: A theory that has been popular for well over a decade is that the MMR vaccine, given to young children, causes autism. After years of litigation, the United States government awarded a settlement to some people whose children may have been effected by the vaccine. This page documents the filings, facts, and other relevant information about the case.

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Page 1 of 1 (30 Total Results)