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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (32 Total Results)

Title: National Plan to Address Alzheimer's

URL: http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Most recent update on the National Plan to Address Alzheimer's (an intiative that came out of the National Alzheimer's Project Act in 2011), including research outcomes and action items.

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Title: Creating Memories/Dealing with Alzheimer's

URL: http://creatingmemories.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by blogger Kris, a 54 year old woman with early onset Alzheimer's. The blog was started shortly after she was diagnosed in 2003.

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Title: Watching the Lights Go Out

URL: http://davidhilfiker.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Hilfiker is a retired physician living in the Washington, DC area who was diagnosed with mild cognitive impairment in 2012. His blog details his journey with the disease and how is memory loss effects his life now.

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Title: FTD/Dementia Support Blog

URL: http://earlydementiasupport.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Howard was diagnosed with Frontotemporal Dementia nine years ago after being misdiagnosed with bipolar disorder. His blog, in existence since 2011, offers a unique voice in this area.

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Title: Emily a la Blog

URL: http://emuf.blogspot.com/search/label/Alzheimers/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a young woman in the Pacific NW. This section of her personal blog chronicles her mother's decline during her life with early-onset Alzheimer's. Her mother was diagnosed in her 50s and died in 2013.

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Title: Memories from my Life

URL: http://memoriesfrommylife.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Pat White's mother suffered from Alzheimer's for years before passing away in August 2011. Since then, White has been a caregiver advocate. The blog began in 2009 as a vehicle for White to express her thoughts on her mother's progress and the disease.

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Title: A Blog Inspired by Mom's Brain

URL: http://momsbrain.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by Emily Caldwell, whose mother has Alzheimer's. Her mother was diagnosed in 2005 and lives in a nursing home today. She has been writing the blog since 2008, and it chronicles her mother's changing state and its impact on her as a primary (and then secondary) caregiver.

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Title: What is Alzheimer's?

URL: http://nihseniorhealth.gov/alzheimersdisease/whatisalzheimersdisease/01.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Web resource from the National Institutes of Health Senior Health Center that describes Alzheimer's, its causes and prevention, treatment and diagnosis, and other aspects of the disease.

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Title: Sharing My Life With Lewy Body Dementia

URL: http://parkblog-silverfox.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by anonymous blogger "Silverfox," a retired Navy Master Chief Gunner's Mate with Lewy Body Dementia sufferer, this blog chronicles life with a lesser-known form of dementia. The decline is slow, and the blog focuses on his changing life with the disease.

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Title: Living in the Shadow of Alzheimer's

URL: http://sherizeee.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Sheri has been writing about her experiences caring for her husband with Alzheimer's since 2010. Her posts are relatively short, and often involve poetry.

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Title: Vicki's Voice: Sharing My Life With Frontotemporal Dementia

URL: http://vickisvoice.tv/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Vicki was diagnosed with Frontotemporal Dementia in 2009 and has maintained this blog since then. It chronicles her life with the disease, and her decline. Some posts are contributed by a close friend and sometimes-caregiver.

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Title: Alzheimer's Myths

URL: http://www.alz.org/alzheimers_disease_myths_about_alzheimers.asp

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Webpage debunks several popular creation myths related to Alzheimer's, with citations to journal articles about each alleged cause. These include the aluminium, flu shot, aspartame, and teeth fillings theories, among others.

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Title: Alzheimer's Association: Latest Treatments

URL: http://www.alz.org/alzheimers_disease_treatments.asp

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Resources on this page summarize the treatments currently available for Alzheimer's Disease patients, from memory loss to sleep changes.

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Title: What is Alzheimer's?

URL: http://www.alz.org/alzheimers_disease_what_is_alzheimers.asp

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Basic page from the Alzheimer's Association that describes Alzheimer's, its diagnosis and treatment, and how to identify it. Includes significant resources for sufferers and caregivers.

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Title: 2013 Alzheimer's Disease Facts and Figures

URL: http://www.alz.org/downloads/facts_figures_2013.pdf

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: 2013 report from the Alzheimer's Association that recounts facts and figures about Alzheimer's as it exists now.

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Title: Alzheimer's Association Research Center

URL: http://www.alz.org/research/overview.asp

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The research branch of the Alzheimer's Association, which publishes and funds research related to the disease.

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Title: The Search for Alzheimer's Causes and Risk Factors

URL: http://www.alz.org/research/science/alzheimers_disease_causes.asp

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Web resource summarizing the known causes and risk factors for Alzheimer's. The page contain several videos (embedded) explaining the implications of each.

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Title: Help with Alzheimer's

URL: http://www.alzheimers.gov/help.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Page from alzheimers.gov about how to find and select an Alzheimer's caregiver or caregiver team. Includes many resources regarding eldercare in America.

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Title: How to Plan and Pay Ahead

URL: http://www.alzheimers.gov/how_to_pay.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Page from alzheimers.gov that deals with the financial and legal aspects of Alzheimer's care and treatment.

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Title: Alzheimer's Disease and Caregiving

URL: http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=567

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Page from the Family Caregiver Alliance, a non-profit organization that provides information and support for caregivers to people with all varieties of illnesses. Includes information and guidelines about what might be appropriate care in every stage of the disease.

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Title: Healthy Brain Initiative Roadmap

URL: http://www.cdc.gov/aging/pdf/2013-healthy-brain-initiative.pdf

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Initial report from the Health Brain Initiative that lays out a roadmap for Alzheimer's research from 2013-2018. Also contains extensive cited resources that would be of potential interest to researchers.

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Title: CDC Features: Alzheimer's

URL: http://www.cdc.gov/features/alzheimers/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: CDC website that discusses Alzheimer's. Includes many resources from NIH and other government and non-governmental entities regarding caregiving, signs and symptoms, and other aspects of the disease.

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Title: Alzheimer's Prevention Initiative

URL: http://www.endalznow.org/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: An online registry that promotes and publicizes Alzheimer's prevention trials at various medical institutions. Also includes some resources.

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Title: News & Highlights

URL: http://www.nia.nih.gov/alzheimers/news/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Press releases related to research conducted at the National Institute on Aging related to Alzheimer's.

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Title: 2011-2012 Alzheimer's Disease Progress Report

URL: http://www.nia.nih.gov/alzheimers/publication/2011-2012-alzheimers-disease-progress-report/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Report summarizing the progress made in the field of Alzheimer's research over the year and the next priorities.

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Title: About Alzheimer's Disease: Causes

URL: http://www.nia.nih.gov/alzheimers/topics/alzheimers-basics/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Web resource from the National Institute on Aging that delves into the current understanding of Alzheimer's causes.

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Title: Alzheimer's Disease Education and Referral Center: Treatment

URL: http://www.nia.nih.gov/alzheimers/topics/treatment/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This page from ADEAR (an NIH component) delves into various treatment and medication options, and includes numerous resources and fact sheets for referral.

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Title: Preventing Alzheimer's Disease

URL: http://www.nia.nih.gov/sites/default/files/preventing_alzheimers_disease_0.pdf

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Pamphlet published by the National Institute on Aging about current theories and methods to minimize Alzheimer's risk.

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Title: NY Times Health Guides: Alzheimer's

URL: http://www.nytimes.com/health/guides/disease/alzheimers-disease/overview.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Health guide from the NY Times that includes information about what causes Alzheimer's Disease, with helpful graphics and commentary. Well cited.

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Title: Dietary Guidelines for Alzheimer's Prevention

URL: http://www.pcrm.org/health/reports/dietary-guidelines-for-alzheimers-prevention/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Web resource from the Physician's Committee for Responsible Medicine (a DC-based non-profit that advocates for the ethical practice of medicine) that gives recommendations for a diet designed to minimize the risk of Alzheimer's Disease. Well-cited to peer-reviewed literature.

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Title: Diagnosis: Alzheimer's

URL: http://www.rhondabrantley.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This blog was created by Rhonda Brantley for her husband, Bill Brantley. Bill was diagnosed in 2007 with early-onset Alzheimer's at 61 and died in 2012. Over time, the blog morphed from Bill to Rhonda posting about caregiver issues.

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Title: The Alzheimer Spouse

URL: http://www.thealzheimerspouse.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Joan is the wife of Sid, an Alzheimer's sufferer. She began the blog in 2007 as an outlet for herself as his primary caregiver, and a place to discuss issues unique to being an Alzheimer's patient's spouse and caregiver. Joan maintains the blog with reflections on the effect of the disease on her life.

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Page 1 of 1 (32 Total Results)