Title: HIV/AIDS Clinical Trials | AIDSinfo

URL: http://aidsinfo.nih.gov/clinical-trials/

Collection: HIV/AIDS web archive

Description: Page on the AIDsInfo Website that connects patients with clinical trials in multiple areas of HIV/AIDS research.

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Title: NIH Clinical Center Department of Bioethics

URL: http://bioethics.nih.gov/

Collection: Bioethics web archive

Description: Website for the National Institutes of Health (NIH) Department of Bioethics. The site features the department's research, publications, and training materials, and provides information on staff and alumni, department services, fellowship opportunities and relevant resources.

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Title: Interagency Pain Research Coordinating Committee

URL: http://iprcc.nih.gov/

Collection: Opioid Epidemic web archive

Description: Website for the National Institutes of Health (NIH) Interagency Pain Research Coordinating Committee (IPRCC). It includes the latest news and links to the 2018 NIH Pain Consortium Symposium registration page. The IPRCC is a federal advisory committee created to enhance pain research efforts and promote collaboration across the government.

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Title: What is Alzheimer's?

URL: http://nihseniorhealth.gov/alzheimersdisease/whatisalzheimersdisease/01.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Web resource from the National Institutes of Health Senior Health Center that describes Alzheimer's, its causes and prevention, treatment and diagnosis, and other aspects of the disease.

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Title: Pain Consortium

URL: http://painconsortium.nih.gov/

Collection: Opioid Epidemic web archive

Description: Website for the National Institutes of Health's (NIH) Pain Consortium, which was established to enhance pain research and promote collaboration among researchers across the many NIH Institutes and Centers that have programs and activities addressing pain.

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Title: Ebola Outbreak 2014: Information Resources

URL: http://sis.nlm.nih.gov/dimrc/ebola_2014.html

Collection: Global Health Events web archive

Description: Page titled, "Ebola Outbreak 2014: Information Resources," on the US Department of Health and Human Services (HHS) Disaster Information Management Research Center website. The page features resources on the disease and the outbreak.

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Title: The CoRonavIruS Health Impact Survey (CRISIS)

URL: http://www.crisissurvey.org/download/

Collection: Global Health Events web archive

Description: The CRISIS Survey is designed to enable researchers and care providers to examine the extent and impact of life changes induced by the COVID-19 epidemic on the mental health and behavior of individuals and families across diverse international settings. This data may enable the identification of pre-, peri, and post-COVID-19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID-19 and its sequelae. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Download surveys in PDF or Word Format, via GitHub, or via REDCap.

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Title: Alzheimer's Disease Education and Referral Center: Treatment

URL: http://www.nia.nih.gov/alzheimers/topics/treatment/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This page from ADEAR (an NIH component) delves into various treatment and medication options, and includes numerous resources and fact sheets for referral.

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Title: Understanding Ebola and Marburg | NIH: National Institute of Allergy and Infectious Diseases

URL: http://www.niaid.nih.gov/topics/ebolaMarburg/understandingEbola/

Collection: Global Health Events web archive

Description: Page on the National Institute of Allergy and Infectious Diseases (NIAID) website dedicated to Ebola and Marburg. The page links to pages providing more information on the virus, including an overview, causes of disease, how it is transmitted, symptoms, diagnosis, and treatment and prevention.

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Title: Ebola/Marburg

URL: http://www.niaid.nih.gov/topics/ebolamarburg/

Collection: Global Health Events web archive

Description: Page titled, "Ebola/Marburg," on the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases (NIAID) website. The page provides basic information on Ebola as well as relevant research and news stories.

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Title: Ebola/Marburg Research

URL: http://www.niaid.nih.gov/topics/ebolamarburg/research/

Collection: Global Health Events web archive

Description: Page on the National Institute of Allergy and Infectious Diseases (NIAID) website dedicated to Ebola and Marburg. The page focuses on answering why studying the two viruses are priorities for NIAID and how the organization is addressing the topic. It also provides short summaries on the status of vaccine development, diagnostics, treatment, long-term health effects, featured research and the latest news.

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Title: Understanding Ebola/Marburg

URL: http://www.niaid.nih.gov/topics/ebolamarburg/understanding/

Collection: Global Health Events web archive

Description: Page on the National Institute of Allergy and Infectious Diseases (NIAID) website dedicated to Ebola and Marburg. The page links to pages providing more information on the virus, including an overview, causes of disease, how it is transmitted, symptoms, diagnosis, and treatment and prevention.

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Title: NIEHS's Health and Education: Autism page

URL: http://www.niehs.nih.gov/health/topics/conditions/autism/index.cfm

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: One of the potential causes of autism that is currently being heavily researched involves environmental factors and environmental health. The National Institute of Environment and Health Services has significant information about the work being done on its website.

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Title: HEAL Initiative | National Institutes of Health (NIH)

URL: http://www.nih.gov/heal-initiative/

Collection: Opioid Epidemic web archive

Description: Page on the National Institutes of Health (NIH) Website dedicated to the Helping to End Addiction Long-Term (HEAL) Initiative. HEAL is an aggressive trans-agency effort launched in April 2018 to speed scientific solutions to help curb the opioid crisis using well-establish NIH research and working with public and private organizations. The site includes links to resources, past events, and news and announcements.

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Title: Opioids – Digital Press Kit | National Institutes of Health (NIH)

URL: http://www.nih.gov/news-events/opioids-digital-press-kit/

Collection: Opioid Epidemic web archive

Description: Page on the National Institutes of Health (NIH) Website dedicated to the Opioids Digital Press Kit. The site, last reviewed in December 2017, includes sections on NIH funding, the NIH Pain Consortium, images, and soundbites.

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Title: Bird Flu

URL: http://www.nlm.nih.gov/medlineplus/birdflu.html

Collection: Avian Influenza A (H7N9) Virus web archive

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Title: Gripe aviar

URL: http://www.nlm.nih.gov/medlineplus/spanish/birdflu.html

Collection: Avian Influenza A (H7N9) Virus web archive

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Title: COVID-19 Response | NIH 3D Print Exchange

URL: https://3dprint.nih.gov/collections/covid-19-response/

Collection: Global Health Events web archive

Description: This collection of designs was created to support the manufacturing of personal protective equipment (PPE) or other necessary medical devices that are in short supply due to the COVID-19 outbreak. While many can be printed with a 3D printer at home or a local Maker space, the National Institutes of Health, Food and Drug Administration, Veterans Administration, America Makes (in collaboration with NIH), and the contributing creators cannot ensure the quality, safety, and efficacy of these designs when manufactured without proper quality controls and processes.

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Title: All of Us Research Program | National Institutes of Health (NIH)

URL: https://allofus.nih.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "National Institute of Health All of Us Research Program," of the National Institute of Health's informational page on All of Us and their link to the main All of Us research page.

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Subject:   General Sources

Title: All of Us Tribal Leader and Urban Indian Organization Letter

URL: https://allofus.nih.gov/about/diversity-and-inclusion/tribal-engagement/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Tribal Engagement," detailing the All of Us Research Program's collaboration with Tribal Nations including information on tribal consultation, key milestones, and funding opportunities.

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Subject:   Engagement

Title: American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study

URL: https://allofus.nih.gov/about/diversity-and-inclusion/tribal-engagement/american-indian-and-alaska-native-aian-inclusion-all-us-research-program-covid-19-serology-study/

Collection: All of Us Research Program web archive

Description: Website, "American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study," detailing the All of Us Research Program's consultation with tribal leaders about including existing AI/AN participant samples in a COVID-19 Serology Study looking for SARS-CoV-2 antibodies. Responding to tribal concerns, All of Us has decided not to include these samples and will continue focusing on finalizing consultation about the main program.

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Subject:   COVID-19

Title: All of Us Research Program Overview

URL: https://allofus.nih.gov/about/program-overview

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program Overview," detailing the All of Us Research Program at a glance and explaining what precision medicine is.

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Subject:   General Sources

Title: Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel

URL: https://allofus.nih.gov/about/who-we-are/all-us-research-program-advisory-panel/tribal-collaboration-working-group/

Collection: All of Us Research Program web archive

Description: Website, titled "Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel," detailing the purpose of the Tribal Collaboration Working Group, its deliverables, and roster.

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Subject:   Engagement

Title: Biobank

URL: https://allofus.nih.gov/funding-and-program-partners/biobank/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Biobank," hosted by the National Institutes of Health detailing what a biobank is and who provides the biobank for the All of Us Research Program.

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Subject:   General Sources

Title: Communications and Engagement Partners | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/funding-and-program-partners/communications-and-engagement-partners

Collection: All of Us Research Program web archive

Description: Website, titled "Communications and Engagement Partners," from the National Institutes of Health listing all of the partners in the All of Us program and along with funding information.

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Subject:   Participant Recruitment

Title: Data and Research Center

URL: https://allofus.nih.gov/funding-and-program-partners/data-and-research-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Data and Research Center," hosted by the National Institutes of Health detailing what the data and research center is and who hosts the data and research center for the All of Us Research Program.

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Subject:   General Sources

Title: Funding Opportunities

URL: https://allofus.nih.gov/funding-and-program-partners/funding-opportunities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Funding Opportunities," hosted by the National Institutes of Health that lists current and previous funding opportunities for researchers in the All of Us Research Program.

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Subject:   General Sources

Title: Genomics Partners

URL: https://allofus.nih.gov/funding-and-program-partners/genomics-partners/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics Partners," hosted by the National Institutes of Health detailing what the genome centers will accomplish in the All of Us Research Program and listing the organizations that act as the genomic partners for the program.

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Subject:   General Sources

Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: Participant Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Center," hosted by the National Institutes of Health detailing what the Participant Center is and listing some of the locations.

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Subject:   General Sources

Title: Participant Technology Systems Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-technology-systems-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Technology Systems Center," hosted by the National Institutes of Health detailing what the Participant Technology Center is and what organizations host the center.

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Subject:   General Sources

Title: All of Us Sharable Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Sharable Resources," from the All of Us Research Program that houses free materials for the project. The majority of materials are for promotional purposes, such as images for Social media, fact sheets, and brochures. Most are available in English and Spanish with some other languages being represented as well.

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Subject:   Engagement

Title: All of Us Nursing Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-nursing-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Nursing Resources," from the All of Us Research Program that provides resources, such as pamphlets and brochures, for nurses and other medical providers to learn about the program.

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Subject:   Engagement

Title: All of Us Physician Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-physician-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Physician Resources," from the All of Us Research Program that provides printable resources, such as business cards and note pads, for physicians. Links to other resources can be found on the page.

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Subject:   Engagement

Title: News and Events | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "News and Events." The page hosts all of the program's announcements and lists events held. Videos, external news, testimonials, and the press kit are also available on this page.

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Subject:   General Sources

Title: All of Us Awardees: Media Contacts

URL: https://allofus.nih.gov/news-events/press-kit/all-us-awardees-media-contacts/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Awardees: Media Contacts," that lists organizations associated with the All of Us Research Program as well as contact information.

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Subject:   General Sources

Title: All of Us Research Program Backgrounder

URL: https://allofus.nih.gov/news-events/press-kit/all-us-research-program-backgrounder/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Research Program Backgrounder," hosted by the National Institutes of Health answering many frequently asked questions about the All of Us Research Program as well as giving some background information on the initiative.

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Subject:   General Sources

Title: Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities

URL: https://allofus.nih.gov/news-events/voices-all-us/billy-caceres-benchmarks-health-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities," that includes an interview/overview of Billy A. Caceres, a researcher for the All of Us Program. The interview delves into Caceres' life story, his research, and how his experiences have affected his research.

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Subject:   General Sources

Title: Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler

URL: https://allofus.nih.gov/news-events/voices-all-us/building-bridges-better-health-joyce-ann-bell-winkler/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler," that includes an interview/ overview of Joyce Ann Bell Winkler, a participant ambassador for the All of Us Research Program. The interview details Winkler's personal experiences, including her childhood, and her experience with the All of Us Research Program. Her testimony details what the program is like and why others should join the program.

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Subject:   General Sources

Title: Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark

URL: https://allofus.nih.gov/news-events/voices-all-us/connecting-social-environment-health-outcomes-to-pinpoint-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark," that includes an interview/ overview of Cheryl R. Clark, a researcher for the All of Us Research Program. The interview mentions Clark's personal experiences, her work with the All of Us Research Program, and how the two intersect.

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Subject:   General Sources

Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

Title: Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research

URL: https://allofus.nih.gov/news-events/voices-all-us/survival-resilience-power-mentorship-research/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research," that includes an interview/overview of Atiya Shahid, a Minority Student Research Symposium Scholar. The interview mentions Shahid's life story, her research, and her experiences with the All of Us Research Program.

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Subject:   General Sources

Title: Thirst for Knowledge and Data Drives Army Veteran to All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/thirst-knowledge-and-data-drives-army-veteran-all-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Thirst for Knowledge and Data Drives Army Veteran to All of Us," that includes an interview/ overview of Keisha Bellamy, a nurse for the All of Us Research Program and a veteran. The interview mentions Bellamy's life story, her experiences in the military, and her involvement in the All of Us research Program.

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Subject:   General Sources

Title: New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/ysabel-abreu-perseverance-humanity/

Collection: All of Us Research Program web archive

Description: Webpage, titled "New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us," that includes an interview/ overview of Ysabel Aberu, a member of the Participant Advisory Board. The interview details her life experiences that led to her involvement with the All of Us Research Program and why she is proud to be a part of the initiative.

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Subject:   General Sources

Title: Protecting Data and Privacy | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy

Collection: All of Us Research Program web archive

Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.

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Subject:   Ethics and Data Management

Title: Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/achieving-principles-through-precision-medicine-initiative-data-security-policy-framework/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.

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Subject:   Ethics and Data Management

Title: Data Security Policy Principles

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/data-security-policy-principles/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Data Security Policy Principles."

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Subject:   Ethics and Data Management

Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Digital Health Literacy | All of Us

URL: https://allofus.nnlm.gov/digital-health-literacy/

Collection: All of Us Research Program web archive

Description: Website, titled "Digital Health Literacy," detailing what digital health literacy is and provides resources to learn about digital health and why it is important.

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Subject:   Engagement

Title: Engagement Resources Library | All of Us

URL: https://allofus.nnlm.gov/engagement-resources/

Collection: All of Us Research Program web archive

Description: Website, titled "Engagement Resource Library," that provides resources from NLM, NNLM, and All of Us that can be used by sub awardees and partner libraries to engage with their communities about digital literacy, health literacy, and the NIH All of Us Research Program.

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Subject:   Engagement

Title: Genomics: A Revolution in Health and Disease Discovery | All of Us

URL: https://allofus.nnlm.gov/genomics-book-reading-club-kit/

Collection: All of Us Research Program web archive

Description: Website, titled "Genomics: A Revolution in Health and Disease Discovery," detailing one a ready-to-use reading club kit curated by the Network of the National Library of Medicine. The kit contains materials related to "Genomics: A Revolution in Health and Disease Discovery," including a recorded talk with the authors. Additional films and resources are present on the page.

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Subject:   Engagement

Title: Human Genetics Film Kits | All of Us

URL: https://allofus.nnlm.gov/human-genetics-film-kits/

Collection: All of Us Research Program web archive

Description: Website, titled "Human Genetics Film Kits," detailing the film kits curated by the Network of the National Library of Medicine and their contents. The film kits are designed to support public libraries in raising scientific literacy and awareness of precision medicine. Through attending screenings of the films and participating in related discussions, library patrons will learn about human genetics and the advance of precision medicine.

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Subject:   Engagement

Title: Learn Internet Skills | All of Us

URL: https://allofus.nnlm.gov/learn-internet-skills/

Collection: All of Us Research Program web archive

Description: Website, titled "Learn Internet Skills," from the All of Us Research Program's main website that teaches individuals how to use the internet safely.

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Subject:   Engagement

Title: NNLM All of Us Community Engagement Network | All of Us

URL: https://allofus.nnlm.gov/nnlm-all-us-community-engagement-network/

Collection: All of Us Research Program web archive

Description: Website, titled "NNLM All of Us Community Engagement Network," detailing the NNLM community and what they do, how they do it, how individuals can get involved, and giving examples of some of the areas people can help in.

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Subject:   Engagement

Title: Precision Medicine Traveling Exhibit | All of Us

URL: https://allofus.nnlm.gov/precision-medicine-traveling-exhibit/

Collection: All of Us Research Program web archive

Description: Website, titled "Precision Medicine Traveling Exhibit," that details the traveling exhibit produced by Network of the National Library of Medicine to promote the All of Us Research Program.

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Subject:   Engagement

Title: ALL OUR VOICES: Conversations about Health & Wellness | All of Us

URL: https://allofus.nnlm.gov/storycorps/

Collection: All of Us Research Program web archive

Description: Website, titled "ALL OUR VOICES: Conversations about Health & Wellness," detailing the partnership between NNLM and StoryCorps that was created to support awareness of the All of Us Research Program. A tool kit with related materials on the ALL OUR VOICES project is available.

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Subject:   Engagement

Title: Virtual Health Programs | All of Us

URL: https://allofus.nnlm.gov/vhp/

Collection: All of Us Research Program web archive

Description: Website, titled "Virtual Health Programs," that lists upcoming and previous virtual events organized by NNLM. These events are created and distributed to inform individuals about health information.

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Subject:   Engagement

Title: A Study to Evaluate the Safety, Reactogenicity, and Effectiveness of mRNA-1273 Vaccine in Adolescents 12 to <18 Years Old to Prevent COVID-19 - Full Text View - ClinicalTrials.gov

URL: https://clinicaltrials.gov/ct2/show/NCT04649151/

Collection: Global Health Events web archive

Description: Website from U.S. National Library of Medicine, regarding clinical trials for vaccines in adolescents 12 to 18 years old to prevent COVID-19

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Title: ACTIV-6: COVID-19 Study of Repurposed Medications - ClinicalTrials.gov

URL: https://clinicaltrials.gov/ct2/show/NCT04885530

Collection: Global Health Events web archive

Description: Webpage from the U.S. National Library of Medicine for Clinicaltrials.gov, a resource providing patients, families, professionals, and researchers access to publicly shared clinical trials. This page provides information about a COVID-19 study of repurposed medications used to reduce symptoms for those with mild to moderate cases of COVID-19.

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Title: Home | NIH COVID-19 Research

URL: https://covid19.nih.gov/

Collection: Global Health Events web archive

Description: Website from National Institutes of Health regarding finding effective treatments for SARS-CoV-2 variants

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Title: NIH COVID-19 Communities Responding Together

URL: https://covid19community.nih.gov/

Collection: Global Health Events web archive

Description: Website from the National Institutes of Health, "Community Engagement Alliance (CEAL) Against COVID-19 Disparities", with information and resources for communities of color.

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Title: All of Us Data Browser

URL: https://databrowser.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Data browser," that is part of the All of Us Research Program Hub. The Data browser allows for individuals to view publicly available data collected by the All of Us Research Program. Data collected is broken down into different subjects.

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Subject:   Ethics and Data Management

Title: Open-Access Data and Computational Resources to Address COVID-19 | Data Science at NIH

URL: https://datascience.nih.gov/covid-19-open-access-resources

Collection: Global Health Events web archive

Description: COVID-19 open-access data and computational resources are being provided by federal agencies, including the National Institutes of Health (NIH); public consortia; and private entities. These resources are freely available to researchers, and this web page will be updated as more information becomes available.

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Title: Zika Virus Health Information Resources

URL: https://disasterinfo.nlm.nih.gov/dimrc/zikavirus.html

Collection: Global Health Events web archive

Description: Page on the US Department of Health and Human Services (HHS) Disaster Information Management Research Center website featuring a list of resources on the Zika virus.

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Title: Health Effects from the Collapse of the World Trade Center | NLM

URL: https://disasterinfo.nlm.nih.gov/wtc-hazards/

Collection: September 11: Health Effects and Policy web archive

Description: Web page, titled "Health Effects from the Collapse of the World Trade Center," prepared by the Disaster Information Management Research Center. The site contains links to federal disaster studies, health reports, health program sites, environmental analyses, bibliographies, and other resources.

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Title: Sexual & Gender Minority Research Office | DPCPSI

URL: https://dpcpsi.nih.gov/sgmro/

Collection: Women's Health web archive

Description: Website from National Institutes of Health Sexual and Gender Minority Research Office.

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Title: What Are Genome Editing and CRISPR-Cas9?

URL: https://ghr.nlm.nih.gov/primer/genomicresearch/genomeediting/

Collection: Bioethics web archive

Description: Page on the Genetics Home Reference website maintained by the National Library of Medicine (NLM) dedicated to genome editing and CRISPR-Cas9.

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Title: Go Angie | All of Us Research

URL: https://go.joinallofus.org/Angie/

Collection: All of Us Research Program web archive

Description: Website linking to the All of Us Research Program's app in the Google Play and Apple app stores.

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Subject:   Engagement

Title: Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)

URL: https://grants.nih.gov/grants/guide/rfa-files/RFA-LM-21-002.html

Collection: All of Us Research Program web archive

Description: Website, titled "Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)," hosted by the Department of Health and Human Services that details the funding available for the All of Us Research Program and how to apply for it.

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Subject:   General Sources

Title: Coronavirus Disease 2019 (COVID-19): Information for NIH Applicants and Recipients of NIH Funding | grants.nih.gov

URL: https://grants.nih.gov/policy/natural-disasters/corona-virus.htm

Collection: Global Health Events web archive

Description: Report from the National Institutes of Health (NIH) titled, "Coronavirus Disease 2019 (COVID-19): Information for NIH Applicants and Recipients of NIH Funding." The NIH is providing information and guidance for the grant funding recipients to help the continuation of research and facilitate grant funding.

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Title: In Their Own Words

URL: https://history.nih.gov/NIHInOwnWords/

Collection: HIV/AIDS web archive

Description: Website for the National Institute of Health (NIH) project, In Their Own Words. The site features a compilation of NIH Researchers' recollections on the early years of AIDS.

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Title: HIVinfo | Information on HIV/AIDS Treatment, Prevention and Research | NIH

URL: https://hivinfo.nih.gov/

Collection: HIV/AIDS web archive

Description: Website from the NIH providing "an online resource offering up-to-date HIV/AIDS information to the general consumer, people with HIV/AIDS, people recently diagnosed and those who care for them."

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Title: infoSIDA | Información sobre el tratamiento y los ensayos clínicos del VIH/SIDA

URL: https://infosida.nih.gov/

Collection: HIV/AIDS web archive

Description: Website for information on HIV sponsored by the National Institute of Health (NIH) in Spanish.

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Title: The All of Us Research Project has officially launched

URL: https://launch.joinallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page is where individuals sign up to join the program.

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Subject:   Participant Recruitment

Title: National COVID Cohort Collaborative (N3C) | National Center for Advancing Translational Sciences

URL: https://ncats.nih.gov/n3c/

Collection: Global Health Events web archive

Description: Website from National Institutes of Health National Center for Advancing Translational Sciences regarding National COVID Cohort Collaborative (N3C), gives links for additional resources, program FAQs, key metrics dashboard, etc.

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Title: Therapeutics for Rare and Neglected Diseases (TRND) | National Center for Advancing Translational Sciences

URL: https://ncats.nih.gov/trnd

Collection: Rare Diseases web archive

Description: Website from National Center for Advancing Translational Sciences (NCATS) which is part of the U.S. Department of Health and Human Services through the National Institutes of Health. The mission of NCATS is to transform he translational process so that the new treatments and cures for disease can be delivered to patients faster.

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Title: Information for Educators on Novel Coronavirus | Science Education Partnership Award

URL: https://nihsepa.org/news/information-for-educators-on-novel-coronavirus/

Collection: Global Health Events web archive

Description: Website from the Science Education and Partnership Award, supported by the National Institute of Health, of information and resources for educators on coronavirus.

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Title: All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM, National Library of Medicine

URL: https://nnlm.gov/civicrm-event/479/

Collection: All of Us Research Program web archive

Description: Event site, titled "All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM," that provides details for a webinar class to help individuals learn about the ALL OUR VOICES tool kit. Contacts, details, and a brief overview on the ALL OUR VOICES program are readily available.

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Subject:   Engagement

Title: NIH All of Us Research Program Partnership

URL: https://nnlm.gov/workbook-allofus/

Collection: All of Us Research Program web archive

Description: Website, titled "NIH All of Us Research Program Partnership," that is designed to provide publicly available information about the partnership between NNLM and All of Us to assist in preparing the grant application for the Network of the National Library of Medicine (NNLM) All of Us Program Center (U24) cooperative agreement that posted on July 12, 202The NNLM All of Us National Program Center (NAPC) will serve as the coordinating center for the engagement, programs, partnerships, activities, and training offered by NNLM in support of the All of Us Research Program.

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Subject:   General Sources

Title: OpenData | COVID-19

URL: https://opendata.ncats.nih.gov/variant/about

Collection: Global Health Events web archive

Description: The National Center for Advancing Translational Services (NCATS) is generating a collection of datasets by screening a panel of SARS-CoV-2-related assays against all approved drugs. These datasets, as well as the assay protocols used to generate them, are being made immediately available to the scientific community on this site as these screens are completed.

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Title: Home - Genetic and Rare Diseases Information Center

URL: https://rarediseases.info.nih.gov/

Collection: Rare Diseases web archive

Description: Website from Genetic and Rare Diseases Information Center (GARD) through the National Center for Advancing Translation Sciences. GARD is a database for rare diseases where you can browse by disease. There are also links to routine data updates and collaborative data.

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Title: Zika virus infection | Disease | Overview | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program

URL: https://rarediseases.info.nih.gov/gard/12894/zika-virus-infection/resources/1

Collection: Global Health Events web archive

Description: Page on the National Institutes of Health (NIH) Genetic and Rare Diseases Information Center website dedicated to the Zika virus infection. The page includes audio recordings.

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Title: Zika virus infection | Disease | Treatment | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program

URL: https://rarediseases.info.nih.gov/gard/12894/zika-virus-infection/resources/8

Collection: Global Health Events web archive

Description: Page on the National Institutes of Health (NIH) Genetic and Rare Diseases Information Center website dedicated to the Zika virus infection. The page features audio recordings.

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Title: RECOVER: Researching COVID to Enhance Recovery

URL: https://recovercovid.org/

Collection: Global Health Events web archive

Description: Website from Recover regarding COVID-19 recovery, links to latest updates, links to resources

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Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Database search results of the All of Us Research Program

URL: https://reporter.nih.gov/search/241kAtaCN06DT7hoxibUOw/projects/

Collection: All of Us Research Program web archive

Description: Database for the National Institute of Health's research project called RePORTER. Search results of the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Say Yes! Covid Test - Say Yes! To Covid Test

URL: https://sayyescovidtest.org/

Collection: Global Health Events web archive

Description: Website called Say Yes to COVID Test, links to current communities and distribution of at-home COVID tests, list of completed communities where tests have ended

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Title: COVID-19

URL: https://tools.niehs.nih.gov/wetp/covid19worker/

Collection: Global Health Events web archive

Description: A web page curated by the National Institute of Environmental Health Sciences (NIEHS) which provides "health and safety resources for workers who may be at risk of exposure to COVID-19."

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Title: Home - WhenToTest

URL: https://whentotest.org/about/

Collection: Global Health Events web archive

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Title: Resources to Help Your Patients with SUD During the COVID-19 Pandemic | National Institute on Drug Abuse (NIDA)

URL: https://www.drugabuse.gov/nidamed-medical-health-professionals/resources-to-help-your-patients-sud-during-covid-19-pandemic/

Collection: Global Health Events web archive

Description: Website for the National Institute on Drug Abuse's COVID-19 resources for physicians to help patients with SUD during the pandemic, as well as general information and updates.

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Title: COVID-19 Resources | National Institute on Drug Abuse (NIDA)

URL: https://www.drugabuse.gov/related-topics/covid-19-resources/

Collection: Global Health Events web archive

Description: Website of COVID-19 resources for the National Institute on Drug Abuse, with blog posts, news updates, and other resources.

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Title: Coronavirus news and resources for global health researchers - 2019-nCoV, MERS-CoV, SARS-CoV - Fogarty International Center @ NIH

URL: https://www.fic.nih.gov/ResearchTopics/Pages/infectiousdiseases-coronavirus-cov.aspx

Collection: Global Health Events web archive

Description: Page on the Fogarty International Center website dedicated to Coronavirus news and resources for global health researchers.

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Title: Ethical, Legal and Social Implications Research Program

URL: https://www.genome.gov/Funded-Programs-Projects/ELSI-Research-Program-ethical-legal-social-implications/

Collection: Bioethics web archive

Description: Page on the National Human Genome Research Institute website dedicated to the Ethical, Legal and Social Implications (ESLI) Research Program. The ESLI Research Program was established as an integral part of the Human Genome Project (HGP) to foster basic and applied research on the ethical, legal, and social implications of genetic and genomic research.

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Title: Policy Issues in Genomics

URL: https://www.genome.gov/about-genomics/policy-issues/

Collection: Bioethics web archive

Description: Page on the National Institutes of Health's (NIH) National Human Genome Research Institute website dedicated to policy issues in genomics. The page links to individual articles on this topic.

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Title: Policy Issues in Genomics

URL: https://www.genome.gov/policyethics/

Collection: Bioethics web archive

Description: Page on the National Institutes of Health's (NIH) National Human Genome Research Institute website dedicated to policy, legal and ethical issues in genetic research. The page links to individual articles on this topic.

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Title: American Association on Health and Disability | Join All of Us

URL: https://www.joinallofus.org/aahd/

Collection: All of Us Research Program web archive

Description: Website, titled "American Association on Health and Disability," detailing the American Association on Health and Disability's partnership with the All of Us Research Program including testimonials, how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: All of Us Research Program Tribal Consultation Report Summary | Join All of Us

URL: https://www.joinallofus.org/all-of-us-research-program-tribal-consultation-report-summary/

Collection: All of Us Research Program web archive

Description: Website, "All of Us Research Program Tribal Consultation Report Summary," detailing Tribal Sovereignty and Research Participation, Cultural Sensitivity, Data Access, Representation, Privacy, Publications and Partnerships, and what members of Tribal Communities should do in order to participate in the program.

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Subject:   Engagement

Title: Asian Health Coalition | Join All of Us

URL: https://www.joinallofus.org/asian-health-coalition/

Collection: All of Us Research Program web archive

Description: Website, titled "Asian Health Coalition," detailing the Asian Health Coalition's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: California | Join All of Us

URL: https://www.joinallofus.org/california/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us California," detailing the All of Us Research Program in California, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Champions | Join All of Us

URL: https://www.joinallofus.org/champions/

Collection: All of Us Research Program web archive

Description: Website, titled "Champions," listing the All of Us champions who support the mission and goals of the All of Us Research Program by sharing information on the program with their communities to help raise awareness.

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Subject:   General Sources