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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Rare Diseases web archive

Archived since: Aug, 2023

Description:

A selective collection of nearly 100 web resources archived by the National Library of Medicine beginning in 2023 related to rare diseases as a public health concern. The collection includes websites of government and non-government organizations with topics including rare disease research, advocacy work, drug and treatment development, patient experiences, and support networks. The collection focuses on rare diseases broadly and does not contain resources about individual diseases. Archived websites are primarily in English. NLM will continue to develop, review, describe, and add content to the collection.

Subject:   Government - US Federal,  Science & Health ,  Genetic diseases Chromosome disorders,  Genetic medicine ,  Precision medicine

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