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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (22 Total Results)

Title: A Diary of a Mom

URL: http://adiaryofamom.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: A Diary of a Mom author Jess is a Boston-area parent with two daughters, one neurotypical and one autistic. The blog chronicles her experiences raising both children with her husband and the special challenges presented by her younger daughter's autism.

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Title: Autism Daddy

URL: http://autism-daddy.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Autism Daddy, an anonymous blogger, has a 10 year old son with severe, non-verbal autism. His blog provides the unique perspective of a primary caregiver father, and the caregiver to a child with severe, "classic" autism. In addition to blogging about his son, he also writes about the effects of having a special needs child on marriage and other relationships.

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Title: Autism - Day by Day

URL: http://autismdaybyday.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a single mother in the Los Angeles area, "Autism Day By Day" chronicles her life as the caregiver to her 15 year old autistic son, Nick. The blog is from the unique perspective of the mother of a pubescent child with autism and the challenges that come along with it.

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Title: Confessions of a Teenage Aspie

URL: http://confessionsofateenageaspie.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The self-described "Aspie" (person with Asperger's) blogger is in her late teens and recently started at college. Her blog provides a front-row seat to the challenges of being a teenager with Asperger's who is just starting to live independently.

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Title: Creating Memories/Dealing with Alzheimer's

URL: http://creatingmemories.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by blogger Kris, a 54 year old woman with early onset Alzheimer's. The blog was started shortly after she was diagnosed in 2003.

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Title: Watching the Lights Go Out

URL: http://davidhilfiker.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Hilfiker is a retired physician living in the Washington, DC area who was diagnosed with mild cognitive impairment in 2012. His blog details his journey with the disease and how is memory loss effects his life now.

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Title: FTD/Dementia Support Blog

URL: http://earlydementiasupport.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Howard was diagnosed with Frontotemporal Dementia nine years ago after being misdiagnosed with bipolar disorder. His blog, in existence since 2011, offers a unique voice in this area.

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Title: Emily a la Blog

URL: http://emuf.blogspot.com/search/label/Alzheimers/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a young woman in the Pacific NW. This section of her personal blog chronicles her mother's decline during her life with early-onset Alzheimer's. Her mother was diagnosed in her 50s and died in 2013.

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Title: Flappiness Is…

URL: http://flappinessis.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a school media specialist with two children (one neurotypical, one with ASD), the author blogs about life with a young child on the spectrum. She also includes reviews of books and resources for parents and caregivers.

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Title: Just Stimming

URL: http://juststimming.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a young adult with mild autism/Asperger's, this blog features essays related to many aspects of life with autism and clearly shows the perspective of someone suffering from--and surviving--life with autism.

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Title: Memories from my Life

URL: http://memoriesfrommylife.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Pat White's mother suffered from Alzheimer's for years before passing away in August 2011. Since then, White has been a caregiver advocate. The blog began in 2009 as a vehicle for White to express her thoughts on her mother's progress and the disease.

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Title: A Blog Inspired by Mom's Brain

URL: http://momsbrain.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by Emily Caldwell, whose mother has Alzheimer's. Her mother was diagnosed in 2005 and lives in a nursing home today. She has been writing the blog since 2008, and it chronicles her mother's changing state and its impact on her as a primary (and then secondary) caregiver.

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Title: NatKat Official Blog

URL: http://natkat921.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: The NatKat blog is writing by a young woman with Autism Spectrum Disorder who began college in 2013. The blog chronicles her life as an autism patient and advocate, as well as college student and young adult.

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Title: Sharing My Life With Lewy Body Dementia

URL: http://parkblog-silverfox.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by anonymous blogger "Silverfox," a retired Navy Master Chief Gunner's Mate with Lewy Body Dementia sufferer, this blog chronicles life with a lesser-known form of dementia. The decline is slow, and the blog focuses on his changing life with the disease.

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Title: Living in the Shadow of Alzheimer's

URL: http://sherizeee.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Sheri has been writing about her experiences caring for her husband with Alzheimer's since 2010. Her posts are relatively short, and often involve poetry.

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Title: Susan Senator's Blog

URL: http://susansenator.com/blog/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Susan Senator has been blogging for over five years, making her one of the most seasoned autism caretaker bloggers. Her autistic son is now in his early 20s, and her blog is from the perspective of the caregiver of a young adult with autism.

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Title: Vicki's Voice: Sharing My Life With Frontotemporal Dementia

URL: http://vickisvoice.tv/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Vicki was diagnosed with Frontotemporal Dementia in 2009 and has maintained this blog since then. It chronicles her life with the disease, and her decline. Some posts are contributed by a close friend and sometimes-caregiver.

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Title: Autistic Hoya

URL: http://www.autistichoya.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This blog is written by a young, autistic woman about her experiences and advocacy. She is a self-advocate and deeply involved in the larger autism advocacy community.

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Title: Dude, I'm an Aspie

URL: http://www.dudeimanaspie.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Matt Friedman is an Asperger's advocate and cartoonist. He is a young man with Asperger's, and his blog is filled with reflections on ASD policy and experiences, and his own original drawings about the subject.

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Title: Go Team Kate

URL: http://www.goteamkate.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This blog, written by parents of an autistic girl in the UK, provides several unique features: it documents the experiences of both Kate's mother and father, and tells the detailed story of her diagnosis.

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Title: Diagnosis: Alzheimer's

URL: http://www.rhondabrantley.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This blog was created by Rhonda Brantley for her husband, Bill Brantley. Bill was diagnosed in 2007 with early-onset Alzheimer's at 61 and died in 2012. Over time, the blog morphed from Bill to Rhonda posting about caregiver issues.

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Title: The Alzheimer Spouse

URL: http://www.thealzheimerspouse.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Joan is the wife of Sid, an Alzheimer's sufferer. She began the blog in 2007 as an outlet for herself as his primary caregiver, and a place to discuss issues unique to being an Alzheimer's patient's spouse and caregiver. Joan maintains the blog with reflections on the effect of the disease on her life.

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Page 1 of 1 (22 Total Results)