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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (11 Total Results)

Title: A Blog Inspired by Mom's Brain

URL: http://momsbrain.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by Emily Caldwell, whose mother has Alzheimer's. Her mother was diagnosed in 2005 and lives in a nursing home today. She has been writing the blog since 2008, and it chronicles her mother's changing state and its impact on her as a primary (and then secondary) caregiver.

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Title: Creating Memories/Dealing with Alzheimer's

URL: http://creatingmemories.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by blogger Kris, a 54 year old woman with early onset Alzheimer's. The blog was started shortly after she was diagnosed in 2003.

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Title: Diagnosis: Alzheimer's

URL: http://www.rhondabrantley.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This blog was created by Rhonda Brantley for her husband, Bill Brantley. Bill was diagnosed in 2007 with early-onset Alzheimer's at 61 and died in 2012. Over time, the blog morphed from Bill to Rhonda posting about caregiver issues.

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Title: Emily a la Blog

URL: http://emuf.blogspot.com/search/label/Alzheimers/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by a young woman in the Pacific NW. This section of her personal blog chronicles her mother's decline during her life with early-onset Alzheimer's. Her mother was diagnosed in her 50s and died in 2013.

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Title: FTD/Dementia Support Blog

URL: http://earlydementiasupport.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Howard was diagnosed with Frontotemporal Dementia nine years ago after being misdiagnosed with bipolar disorder. His blog, in existence since 2011, offers a unique voice in this area.

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Title: Living in the Shadow of Alzheimer's

URL: http://sherizeee.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Sheri has been writing about her experiences caring for her husband with Alzheimer's since 2010. Her posts are relatively short, and often involve poetry.

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Title: Memories from my Life

URL: http://memoriesfrommylife.wordpress.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Pat White's mother suffered from Alzheimer's for years before passing away in August 2011. Since then, White has been a caregiver advocate. The blog began in 2009 as a vehicle for White to express her thoughts on her mother's progress and the disease.

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Title: Sharing My Life With Lewy Body Dementia

URL: http://parkblog-silverfox.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Written by anonymous blogger "Silverfox," a retired Navy Master Chief Gunner's Mate with Lewy Body Dementia sufferer, this blog chronicles life with a lesser-known form of dementia. The decline is slow, and the blog focuses on his changing life with the disease.

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Title: The Alzheimer Spouse

URL: http://www.thealzheimerspouse.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Joan is the wife of Sid, an Alzheimer's sufferer. She began the blog in 2007 as an outlet for herself as his primary caregiver, and a place to discuss issues unique to being an Alzheimer's patient's spouse and caregiver. Joan maintains the blog with reflections on the effect of the disease on her life.

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Title: Vicki's Voice: Sharing My Life With Frontotemporal Dementia

URL: http://vickisvoice.tv/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Blogger Vicki was diagnosed with Frontotemporal Dementia in 2009 and has maintained this blog since then. It chronicles her life with the disease, and her decline. Some posts are contributed by a close friend and sometimes-caregiver.

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Title: Watching the Lights Go Out

URL: http://davidhilfiker.blogspot.com/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Hilfiker is a retired physician living in the Washington, DC area who was diagnosed with mild cognitive impairment in 2012. His blog details his journey with the disease and how is memory loss effects his life now.

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Page 1 of 1 (11 Total Results)