Title: "All of Us” Aims to Expand Tribal Engagement for Precision Medicine

URL: https://healthitanalytics.com/news/all-of-us-aims-to-expand-tribal-engagement-for-precision-medicine/

Collection: All of Us Research Program web archive

Description: News article, titled "“All of Us” Aims to Expand Tribal Engagement for Precision Medicine," discussing the All of Us Research Program's desire to include Native communities. The article details how the program will handle any data submitted by Native populations before a Tribunal meeting between the program and Tribal Governments is held, along with what precautions the program will include to safegaurd any data submitted.

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Subject:   Engagement

Title: 'All of Us' research program tops 1,300 participants at Emory, continues enrollment

URL: https://news.emory.edu/stories/2019/02/all_of_us_update/index.html

Collection: All of Us Research Program web archive

Description: News article, titled "'All of Us' research program tops 1,300 participants at Emory, continues enrollment," detailing the enrollment rate of the All of Us program at Emory University, who is eligible to enroll, what faculty are involved, what the program is, and what the program plans to accomplish.

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Subject:   Engagement

Title: 10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study

URL: https://xtalks.com/10000-fitbits-will-be-distributed-as-part-of-an-nih-funded-heath-study/

Collection: All of Us Research Program web archive

Description: News article, titled "10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study," detailing the distribution of Fitbits and how the Fitbits would aid the All of Us Research program.

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Subject:   Ethics and Data Management

Title: 2018 OHRP Forum – Katherine Blizinsksy - YouTube

URL: https://www.youtube.com/watch?v=qMIIk0ziin8/

Collection: All of Us Research Program web archive

Description: Video, titled "OHRP Research Community Forum," hosted by ECU Research and Katherine Blizinsksy. The thirty minute video discusses the All of Us Program and precision medicine.

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Subject:   Engagement

Title: 2019 HHS Annual Regional Consultations Registration | Eventbrite

URL: https://www.eventbrite.com/e/2019-hhs-annual-regional-consultations-registration-60594773599/

Collection: All of Us Research Program web archive

Description: Webpage dedicated to the 2019 HHS Annual Regional Consultations event. A description of the event and individuals involved can be found on the page. The event was held to discuss tribal outreach and coordination.

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Subject:   Participant Recruitment

Title: 2022-2023 Schedule for the All of Us Research Program

URL: https://aahd.us/wp-content/uploads/2022/03/MEA-2-2022-Schedule-v2.pdf

Collection: All of Us Research Program web archive

Description: 2022-2023 Schedule for the All of Us Research Program's traveling Education and Enrollment center. The traveling center will make its way throughout the country beginning in Baltimore, MD and ending in Shreveport, LA.

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Subject:   Participant Recruitment

Title: 5/2019 NACNR - NIH All of Us Research Program/Precision Medicine Initiative - YouTube

URL: https://www.youtube.com/watch?v=_RS9qXEHoa0

Collection: All of Us Research Program web archive

Description: Video recording, titled "5/2019 NACNR - NIH All of Us Research Program/ Precision Medicine Initiative," of the National Advisory Council of Nursing Research meeting where Dr. Stephanie Devany gave an update on the All of Us Research Program.

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Subject:   Public Response

Title: 7 ways to expand diversity in precision medicine research | American Medical Association

URL: https://www.ama-assn.org/delivering-care/precision-medicine/7-ways-expand-diversity-precision-medicine-research/

Collection: All of Us Research Program web archive

Description: News article, titled "7 ways to expand diversity in precision medicine research," detailing various ways programs can add diversity into their precision medicine program. The article claims that programs need to include communities and build trust with them in order to improve diversity.

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Subject:   Engagement

Title: A Geneticist’s Dilemma

URL: https://www.washingtonpost.com/magazine/2020/11/23/many-scientists-believe-that-dna-holds-cure-disease-that-poses-problem-some-native-americans/

Collection: All of Us Research Program web archive

Description: News article, titled "A Geneticist’s Dilemma," detailing the Navajo's moratorium on genetic research due to religious reasons, the All of Us Research Program's attempts to recruit Native Americans, and a previous study where permission to use Native American data was not granted.

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Subject:   Public Response

Title: A New England Enrollment Center for PMI Cohort Program

URL: https://reporter.nih.gov/project-details/9453746/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for A New England Enrollment Center for PMI Cohort Program.

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Subject:   Research Projects Using Collected Data

Title: A biomedical research program in Lex this week focuses on those underrepresented among 'All of Us'

URL: https://www.wuky.org/local-regional-news/2022-05-11/a-biomedical-research-program-in-lex-this-week-focuses-on-those-underrepresented-among-all-of-us/

Collection: All of Us Research Program web archive

Description: News article, titled "A biomedical research program in Lex this week focuses on those underrepresented among 'All of Us'," that mentions the All of Us Research Traveling Exhibition coming to Transy University. The article also mentions how the All of Us Research Program is diverse and that most research programs, historically, were not as diverse.

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Subject:   Participant Recruitment

Title: ALL OUR VOICES: Conversations about Health & Wellness

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3304

Collection: All of Us Research Program web archive

Description: Promotional Material, titled "ALL OUR VOICES: Conversations about Health & Wellness," for the ALL OUR VOICES tool kit that was created to promote awareness for the All of Us Research Program.

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Subject:   Engagement

Title: ALL OUR VOICES: Conversations about Health & Wellness | All of Us

URL: https://allofus.nnlm.gov/storycorps/

Collection: All of Us Research Program web archive

Description: Website, titled "ALL OUR VOICES: Conversations about Health & Wellness," detailing the partnership between NNLM and StoryCorps that was created to support awareness of the All of Us Research Program. A tool kit with related materials on the ALL OUR VOICES project is available.

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Subject:   Engagement

Title: ALL OUR VOICES: Conversations about Health & Wellness: Listening Event

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3531

Collection: All of Us Research Program web archive

Description: Power Point Promotional Material, titled "ALL OUR VOICES: Conversations about Health & Wellness: Listening Event," example for an event held by local libraries to promote the ALL OUR VOICES program.

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Subject:   Engagement

Title: ALL OUR VOICES: Paquete de grabación del participante

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3305

Collection: All of Us Research Program web archive

Description: Spanish Promotional Material, titled "ALL OUR VOICES: Paquete de grabación del participante," for the ALL OUR VOICES tool kit that was created to promote awareness for the All of Us Research Program.

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Subject:   Engagement

Title: About All Our Voices

URL: https://www.youtube.com/watch?v=b869CcD5VYM/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "About All Our Voices," detailing the All Our Voices program and gave some examples from the program.

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Subject:   Participant Recruitment

Title: About All of Us

URL: https://www.chc1.com/all-of-us/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Health Center, Inc. - About All of Us," of the All of Us partner in Connecticut, Community Health Center, Inc. This site gives relevant information for individuals in Connecticut wishing to join the All of Us program.

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Subject:   Participant Recruitment

Title: Access to wearables could become a social determinant of health, researchers warn | Healthcare IT News

URL: https://www.healthcareitnews.com/news/access-wearables-could-become-social-determinant-health-researchers-warn/

Collection: All of Us Research Program web archive

Description: News article, titled "Access to wearables could become a social determinant of health, researchers warn," detailing how fitness trackers/wearables have caused some issues with data collection due to lack of knowledge from users and lack of upkeep by the program sponsors.

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Subject:   Ethics and Data Management

Title: Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/achieving-principles-through-precision-medicine-initiative-data-security-policy-framework/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.

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Subject:   Ethics and Data Management

Title: Activities | Join All of Us

URL: https://www.joinallofus.org/activities/

Collection: All of Us Research Program web archive

Description: Activities website for the All of Us Research Program that includes three different games titled "Hearing," "I Spy," and "Your Unique Combination." The hearing game has the player pick five different sounds and place them in order of lowest to highest decibels. The message of the game is that everyday sounds can cause hearing damage if they are over a certain decibel. The vision game has users select a character and pick out prescription glasses based on various factors. The combination game has the player pick different factors that impact their health and put them into a jar to create their own unique combination.

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Subject:   Engagement

Title: Adaptive Platform for Personalized Engagement

URL: https://reporter.nih.gov/project-details/9228561/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Adaptive Platform for Personalized Engagement.

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Subject:   Research Projects Using Collected Data

Title: All Of Us - AAPA

URL: https://www.aapa.org/research/all-of-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us - AAPA," on the American Academy of PAs website that gives an overview of the All of Us project and contains links to informational material.

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Subject:   Participant Recruitment

Title: All Of Us Research Program

URL: https://allofus.ucsd.edu/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program - UCSD," dedicated to the All of Us partner in California, University of California Sand Diego. The site gives relevant information for individuals in the San Diego area wishing to join the All of Us program, including participating locations and blood bank locations.

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Subject:   Participant Recruitment

Title: All Our Voices

URL: https://www.youtube.com/playlist?list=PLqD5hvMO4a9dKPsx_1XgYEhCCliPv7tVK

Collection: All of Us Research Program web archive

Description: YouTube playlist for the "All Our Voices" program. Videos on the playlist detail the program, how to join, and the benefit of joining.

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Subject:   Engagement

Title: All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM, National Library of Medicine

URL: https://nnlm.gov/civicrm-event/479/

Collection: All of Us Research Program web archive

Description: Event site, titled "All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM," that provides details for a webinar class to help individuals learn about the ALL OUR VOICES tool kit. Contacts, details, and a brief overview on the ALL OUR VOICES program are readily available.

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Subject:   Engagement

Title: All Our Voices: Record you Story

URL: https://www.youtube.com/watch?v=iNU5eHd2ai0/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "All Our Voices: Record you Story," detailing the All Our Voices program and gave some examples from the program.

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Subject:   Participant Recruitment

Title: All of Us

URL: https://www.nnlm.gov/initiatives/all-of-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us," from the National Library of Medicine initiatives website. This page gives a brief overview of the All of Us Research Program and links to resources about the program.

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Subject:   General Sources

Title: All of Us (initiative) - Wikipedia

URL: https://en.wikipedia.org/w/index.php?title=All_of_Us_(initiative)&oldid=1095657643/

Collection: All of Us Research Program web archive

Description: Wikipedia entry for the All of Us Research Program. The entry includes information on the program's core values, who can join, what data is collected, budget information, partner information, responses to the program, and the program's progress.

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Subject:   General Sources

Title: All of Us - Gundersen - Facebook

URL: https://www.facebook.com/AllofUsGundersen/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at Gundersen Health System. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Gundersen Health System.

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Subject:   Engagement

Title: All of Us - MCHS - Facebook

URL: https://www.facebook.com/AllofUsMCHS/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at Marshfield Clinic Research Institute. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Marshfield Clinic Research Institute.

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Subject:   Engagement

Title: All of Us - News - AAHD

URL: https://aahd.us/initiatives/all-of-us-research-program/all-of-us-news/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us - News," from the American Association on Health and Disability website. This page gives links to news and details the Disability Community Partner Project. A definition on precision medicine and details on the All of Us project are also present.

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Subject:   Participant Recruitment

Title: All of Us Arizona - Facebook

URL: https://www.facebook.com/AllofUsAZ/

Collection: All of Us Research Program web archive

Description: Official Facebook page of the All of Us Research Program at The University of Arizona. Posts on the page mainly revolve around events hosted by the partner and details on how to join the program.

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Subject:   Engagement

Title: All of Us Awardees: Media Contacts

URL: https://allofus.nih.gov/news-events/press-kit/all-us-awardees-media-contacts/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Awardees: Media Contacts," that lists organizations associated with the All of Us Research Program as well as contact information.

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Subject:   General Sources

Title: All of Us Data Browser

URL: https://databrowser.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Data browser," that is part of the All of Us Research Program Hub. The Data browser allows for individuals to view publicly available data collected by the All of Us Research Program. Data collected is broken down into different subjects.

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Subject:   Ethics and Data Management

Title: All of Us Emory - Facebook

URL: https://www.facebook.com/allofusemory/

Collection: All of Us Research Program web archive

Description: Official Facebook page of the All of Us Research Program at Emory University. Posts on the page mainly revolve around events hosted by the partner and encouragements to join the program.

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Subject:   Engagement

Title: All of Us Events | Eventbrite

URL: https://www.eventbrite.com/o/all-of-us-43880507353/

Collection: All of Us Research Program web archive

Description: Eventbrite schedule for All of Us Anniversary Game Show events held in various cities in Wisconsin.

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Subject:   Engagement

Title: All of Us Hits the Road with Henry Pop-Ups

URL: https://www.youtube.com/watch?v=EjeeSY335Rs&list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV/

Collection: All of Us Research Program web archive

Description: Video recording, titled "All of Us Hits the Road with Henry Pop-Ups," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish and how the program is keeping data secure. Henry, a bus used by the All of Us Research Program as a pop-up site, is shown throughout the video.

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Subject:   Engagement

Title: All of Us Journey at El Mercadito de Memphis

URL: https://www.joinallofus.org/event/all-of-us-journey-at-el-mercadito-de-memphis/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at El Mercadito de Memphis," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Knoxville Zoo

URL: https://www.joinallofus.org/event/all-of-us-journey-at-knoxville-zoo/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Knoxville Zoo," detailing the All of Us traveling exhibit's stop in Knoxville. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Memphis Juneteenth Festival

URL: https://www.joinallofus.org/event/all-of-us-journey-at-memphis-juneteenth-festival/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Memphis Juneteenth Festival," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us MKE - Home

URL: https://www.facebook.com/AllofUsMKE/?ref=page_internal/

Collection: All of Us Research Program web archive

Description: The official All of Us Milwaukee, Wisconsin Facebook page that shares information about the All of Us Program in Milwaukee. Information relates to events, webinars, and general information regarding health.

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Subject:   Engagement

Title: All of Us Med Research | Cronkite News

URL: https://www.youtube.com/watch?v=fAjXh4BKaAQ/

Collection: All of Us Research Program web archive

Description: Video, titled "All of Us Med Research | Cronkite News," giving a brief overview of the All of Us Research Program in Arizona and how the program affects the medical field due to its diversity. The news video interviews participant Victor Avila, asking him why he decided to join the program.

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Subject:   Public Response

Title: All of Us Minority Student Research Symposium Informational Video

URL: https://player.vimeo.com/video/538835734

Collection: All of Us Research Program web archive

Description: Video recording for the Minority Student Research Symposium, titled "All of Us Minority Student Research Symposium Informational Video," highlighting what people hope the All of Us Research Program will accomplish and giving an overview of the program. The video also delves into how communities can get involved.

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Subject:   Engagement

Title: All of Us Nursing Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-nursing-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Nursing Resources," from the All of Us Research Program that provides resources, such as pamphlets and brochures, for nurses and other medical providers to learn about the program.

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Subject:   Engagement

Title: All of Us Pennsylvania

URL: https://joinallofuspa.org/

Collection: All of Us Research Program web archive

Description: The official All of Us Pennsylvania website. The website relays vital information for the All of Us Research Program in Pennsylvania, including locations, frequently asked questions, contact information, an overview of the program, and other promotional materials.

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Subject:   Participant Recruitment

Title: All of Us Pennsylvania - YouTube

URL: https://www.youtube.com/channel/UCBWyAiv8_V7wIVKD6PGU52w/videos/

Collection: All of Us Research Program web archive

Description: The official All of Us Pennsylvania YouTube. The majority of videos involve Dr. Mylynda Massart answering various questions about the program. Other videos on the channel include more promotional videos for the program including testimonials.

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Subject:   Engagement

Title: All of Us Physician Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-physician-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Physician Resources," from the All of Us Research Program that provides printable resources, such as business cards and note pads, for physicians. Links to other resources can be found on the page.

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Subject:   Engagement

Title: All of Us Program at the University of California San Diego

URL: https://www.facebook.com/allofusucsd/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at the University of California San Diego. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at the University of California.

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Subject:   Engagement

Title: All of Us Program at the University of Miami

URL: https://twitter.com/allofusum/

Collection: All of Us Research Program web archive

Description: Official Twitter page for the All of Us Program at the University of Miami. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at the University of Miami.

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Subject:   Engagement

Title: All of Us Programa Cientifico

URL: https://www.joinallofus.org/es/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Programa Cientifico," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This is the Spanish version of the main page is where individuals sign up to join the program.

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Subject:   General Sources

Title: All of Us Publications

URL: https://www.researchallofus.org/publications/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Publications," that links out to publications that are related to or utilized the All of Us data.

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Subject:   Research Projects Using Collected Data

Title: All of Us Releases Initial COVID-19 Survey Data to Researchers | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/all-us-releases-initial-covid-19-survey-data-researchers/

Collection: All of Us Research Program web archive

Description: Press release, titled "All of Us Releases Initial Covid-19 Survey Data to Researchers," detailing an update made to the program's research workbench that allowed researchers access to Covid-19 data as well as data provided by Fitbit technology.

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Subject:   COVID-19

Title: All of Us Research Archives – Montage Marketing Group

URL: https://montagemarketinggroup.com/tag/all-of-us-research/

Collection: All of Us Research Program web archive

Description: Website, displaying all of the articles from the Montage Marketing Group's website that have the "All of Us Research" tag.

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Subject:   Participant Recruitment

Title: All of Us Research Hub

URL: https://www.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Hub: Data Browser Tool

URL: https://player.vimeo.com/video/538837195

Collection: All of Us Research Program web archive

Description: Video recording for the Minority Student Research Symposium, titled "All of Us Research Hub: Data Browser Tool," detailing what the Data Browser Tool is and how researchers can use it.

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Subject:   Engagement

Title: All of Us Research Mini-Grant Program

URL: https://www.aacnnursing.org/Policy-Advocacy/View/ArticleId/23339/All-of-Us-Research-Mini-Grant-Program/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Research Mini-Grant Program," with a graphic depicting all of the Grant Recipients of the Mini-Grant Program made in partnership with the American Association of Colleges of Nursing.

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Subject:   Public Response

Title: All of Us Research Program

URL: https://www.froedtert.com/research/all-of-us/

Collection: All of Us Research Program web archive

Description: Website, titled "Froedtert & Medical College of Wisconsin - All of Us Research Program," dedicated to the All of Us partner in Wisconsin, Froedtert & Medical College of Wisconsin. The site gives relevant information for individuals in Wisconsin wishing to join the All of Us program, including enrollment locations.

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Subject:   Participant Recruitment

Title: All of Us Research Program

URL: https://dbmi.ucsd.edu/projects/all-of-us.html

Collection: All of Us Research Program web archive

Description: Project report for the All of Us Research Program at the University of California San Diego. The report gives a brief description of the project, staff involved with the project, project dates, contact information, and location information.

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Subject:   Engagement

Title: All of Us Research Program

URL: https://www.tiktok.com/@peridothedgehog/video/6989385834881355014

Collection: All of Us Research Program web archive

Description: Video posted on TikTok from user "peridothedgehog" detailing their experience with the All of Us Research Program and how they believe it will be beneficial. The video also mentions how the user discovered the All of Us Research Program.

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Subject:   Public Response

Title: All of Us Research Program - Miller School of Medicine

URL: https://med.miami.edu/centers-,-a-,-institutes/hihg/research-programs/%E2%80%9Call-of-us%E2%80%9D-research-program/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program - Miller School of Medicine," dedicated to the All of Us partner in Florida, University of Miami. The site gives a brief overview of the All of Us Research Program and the University of Miami's involvement.

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Subject:   Participant Recruitment

Title: All of Us Research Program - YouTube

URL: https://www.youtube.com/playlist?list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV

Collection: All of Us Research Program web archive

Description: Official All of Us YouTube playlist from Henry Ford Health. The twelve videos in the playlist answer various questions prospective participants may have about the program and include short interviews with different members of the health community.

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Subject:   Engagement

Title: All of Us Research Program - YouTube

URL: https://www.youtube.com/c/AllofUsResearchProgram/

Collection: All of Us Research Program web archive

Description: Official YouTube page of the All of Us program that includes promotional videos, webinars, and other informational videos about the All of Us program.

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Subject:   General Sources

Title: All of Us Research Program Backgrounder

URL: https://allofus.nih.gov/news-events/press-kit/all-us-research-program-backgrounder/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Research Program Backgrounder," hosted by the National Institutes of Health answering many frequently asked questions about the All of Us Research Program as well as giving some background information on the initiative.

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Subject:   General Sources

Title: All of Us Research Program Data User Code of Conduct

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_User_Code_of_Conduct_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Engagement and Retention Innovators

URL: https://reporter.nih.gov/project-details/9902060/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the All of Us Research Program Engagement and Retention Innovators.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program Enrollment Journey

URL: https://www.youtube.com/watch?v=_SO1BXFqI1k&list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV/

Collection: All of Us Research Program web archive

Description: Video recording, titled "All of Us Research Program Enrollment Journey," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish, how to join the program, and what joining the program looks like.

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Subject:   Engagement

Title: All of Us Research Program Fireside Chat Series Session 1

URL: https://www.nhmamd.org/all-of-us-research-program-fireside-chat-series-session-1

Collection: All of Us Research Program web archive

Description: Video, titled "Session 1: Precision Medicine," from NHMA and the All of Us Research Program. The first session of NHMA's Fireside Chat Series that discusses diversity in clinical trials and how the All of Us program can benefit the Hispanic/Latino community.

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Subject:   Engagement

Title: All of Us Research Program Fireside Chat Series Session 2: Enrolling Participants

URL: https://www.nhmamd.org/all-of-us-research-program-fireside-chat-series-session-2--enrolling-participants

Collection: All of Us Research Program web archive

Description: Video, titled "Session 2: Enrolling Participants," from NHMA and the All of Us Research Program. The second session of NHMA's Fireside Chat Series that discusses ways participants can enroll into the All of Us Research Program and the benefits of enrollment.

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Subject:   Engagement

Title: All of Us Research Program Fireside Chat Series Session 3: Older Adults

URL: https://www.nhmamd.org/all-of-us-research-program-fireside-chat-series-session-3-older-adults

Collection: All of Us Research Program web archive

Description: Video, titled "Session 3: Older Adults & the All of Us Research Program," from NHMA and the All of Us Research Program. The third session of NHMA's Fireside Chat Series that discusses how the participation of older adults in clinical trials can impact the next generation.

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Subject:   Engagement

Title: All of Us Research Program Fireside Chat Session 5: Women's Health

URL: https://nhma.memberclicks.net/all-of-us-research-program-fireside-chat-session-5--women-s-health

Collection: All of Us Research Program web archive

Description: Video, titled "Session 5: Women's Health," from NHMA and the All of Us Research Program. The fifth session of NHMA's Fireside Chat Series that discusses how women's health can be positively impacted by the All of Us Research Program through participation and the importance of having more women represented in the program.

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Subject:   Engagement

Title: All of Us Research Program Fireside Chat: Researchers & the All of Us Research Program

URL: https://nhma.memberclicks.net/all-of-us-research-program-fireside-chat--researchers---the-all-of-us-research-program

Collection: All of Us Research Program web archive

Description: Video, titled "Session 4: Research & the All of Us Research Hub," from NHMA and the All of Us Research Program. The fourth session of NHMA's Fireside Chat Series that discusses the importance of diversity and inclusion in research and how researchers can utilize the All of Us Research Hub.

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Subject:   Engagement

Title: All of Us Research Program Fireside Chats

URL: https://www.nhmamd.org/all-of-us-research-program-fireside-chats

Collection: All of Us Research Program web archive

Description: Website, titled "NHMA/All of Us Research Program Fireside Chat Series Webinars," that links out to five webinars about the All of Us Research Program and precision medicine sponsored by the National Hispanic Medical Association.

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Subject:   Engagement

Title: All of Us Research Program Gears Up for An Interactive Experience - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-gears-up-for-an-interactive-experience/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program Gears Up for An Interactive Experience," that gives an update on the All of Us program at the University of Miami. The update includes new data results participants are able to receive from the All of Us program.

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Subject:   Engagement

Title: All of Us Research Program LGBTQ+ Data Privacy and Security

URL: https://www.joinallofus.org/themes/custom/jaou/etc/pdfs/data_privacy_infographic.pdf

Collection: All of Us Research Program web archive

Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Marks Third Anniversary with Remarkable Progress in Recruitment - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-research-program-marks-third-anniversary-with-remarkable-progress-in-recruitment/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program Marks Third Anniversary with Remarkable Progress in Recruitment," detailing the All of Us program at the University of Miami after three years of operation, how to enroll, and what the program has achieved and plans to achieve.

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Subject:   Engagement

Title: All of Us Research Program Overview

URL: https://allofus.nih.gov/about/program-overview

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program Overview," detailing the All of Us Research Program at a glance and explaining what precision medicine is.

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Subject:   General Sources

Title: All of Us Research Program Presentation

URL: https://www.ga4gh.org/wp-content/uploads/12_Glazer-All-of-Us-Research-Program-GA4GH-Orlando-Oct-16.pdf

Collection: All of Us Research Program web archive

Description: Presentation, titled "Global Alliance for Genomics and Health: All of Us Research Program," held on October 16, 2017 in Orlando. The presentation covers the All of Us Project's mission, data access, timeline, and GA4GH engagement.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Releases Genomic Data to Researchers, Combined with Participant-Generated Data Collected on Vibrent Health’s Digital Health Research Platform - Vibrent

URL: https://www.vibrenthealth.com/all-of-us-research-program-releases-genomic-data-to-researchers-combined-with-participant-generated-data-collected-on-vibrent-healths-digital-health-research-platform%ef%bf%bc/

Collection: All of Us Research Program web archive

Description: Press release, titled "All of Us Research Program Releases Genomic Data to Researchers, Combined with Participant-Generated Data Collected on Vibrant Health’s Digital Health Research Platform," detailing past issues with genomic data collection, specifically in collecting within minorities. The Press release also details Vibrant Health's involvement with the All of Us Research Program, as well as giving some details on Vibrant Health.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Research Priorities Workshop

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2019/02/March%202018%20Research%20Priorities%20Workshop%20_Meeting%20Summary_.pdf

Collection: All of Us Research Program web archive

Description: Session summary, titled "All of Us Research Program Research Priorities Workshop," that gives an overview of the discussions held at the workshop. An overview of the program, goals of the workshop, panels, and keynote presentations were recorded in the summaries.

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Subject:   General Sources

Title: All of Us Research Program Researcher Workbench | Institute for Genomic Medicine

URL: