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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting - YouTube

URL: https://www.youtube.com/watch?v=GDx42mxyAy4/

Collection: All of Us Research Program web archive

Description: Video, titled "The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting," hosted by the U.S. Department of Health and Human Services and Augusta University. The hour long video details the program's core values, the building blocks of the program, the growing network of healthcare provider organizations, the program's approach to gaining diversity, the participant portal, the program's Electronic Health Record, smart phone apps being developed for the program, and the program's data security and privacy.

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Subject:   Ethics and Data Management

Title: The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data Audit (A-18-17-09304) 06-10-2019

URL: https://oig.hhs.gov/oas/reports/region18/181709304.asp

Collection: All of Us Research Program web archive

Description: Report, titled "The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data," from the Office of Inspector General detailing their audit of the All of Us Research Program. A link to the full report is provided at the top and the page gives a basic overview of why OIG conducted the audit and what OIG found.

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Subject:   Ethics and Data Management

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