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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (14 Total Results)

Title: User Support Hub

URL: https://www.youtube.com/embed/Ni4PEJVbmSk/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "User Support Hub," explaining how to use the user support hub and other resources available to aid researchers in using the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Statement on Data Security from the All of Us Research Program | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/statement-data-security-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Press release, titled "Statement on Data Security from the All of Us Research Program," detailing a security audit performed on the Research Program and the Program's response to the security audit.

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Subject:   Ethics and Data Management

Title: Protecting Data and Privacy | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy

Collection: All of Us Research Program web archive

Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.

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Subject:   Ethics and Data Management

Title: Notebooks & Code Snippets - YouTube

URL: https://www.youtube.com/watch?v=NvMWBlVyyUU/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Notebooks & Code Snippets," explaining to researchers how to use some of the different features, including the notebooks and coding features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners

URL: https://allofus.nih.gov/news-events/announcements/new-funding-opportunity-all-us-research-program-seeks-engagement-and-enrollment-partners/

Collection: All of Us Research Program web archive

Description: Press release, titled "New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners," detailing a new funding opportunity and how organizations can apply to use funds for community, researcher, or tribal engagement. Links to full details and more information are provided.

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Subject:   Ethics and Data Management

Title: Introduction to the Researcher Workbench - YouTube

URL: https://www.youtube.com/watch?v=NTLJtwLcavo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Introduction to the Researcher Workbench," detailing how to access and utilize the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Dataset Builder & Concept Sets - YouTube

URL: https://www.youtube.com/watch?v=cUuDKUxjQoo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Dataset Builder & Concept Sets," explaining to researchers how to use some of the different features, including the dataset builder and concept sets features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Data Security Policy Principles

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/data-security-policy-principles/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Data Security Policy Principles."

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Subject:   Ethics and Data Management

Title: Considerations for Meaningful Collaboration with Tribal Populations

URL: https://allofus.nih.gov/sites/default/files/tribal_collab_work_group_rept.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Considerations for Meaningful Collaboration with Tribal Populations," which details The Tribal Collaboration Working Group Report to the All of Us Research Program Advisory Panel. The document details the health systems of Native Tribes, the purpose of the working group in trying to include Native Peoples in the All of Us Research Program, and what the inclusivity would entail.

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Subject:   Ethics and Data Management

Title: Cohort Builder & Cohort Review

URL: https://www.youtube.com/embed/G6_GG2CJ9mA/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Cohort Builder & Cohort Review," explaining to researchers how to use some of the different features, including the various cohort features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance

URL: https://reporter.nih.gov/search/fNCDOd_3f0CbzjOUR4eqUg/project-details/10320454/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance.

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Subject:   Ethics and Data Management

Title: All of Us Research Program LGBTQ+ Data Privacy and Security

URL: https://www.joinallofus.org/themes/custom/jaou/etc/pdfs/data_privacy_infographic.pdf

Collection: All of Us Research Program web archive

Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.

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Subject:   Ethics and Data Management

Title: All of Us Data Browser

URL: https://databrowser.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Data browser," that is part of the All of Us Research Program Hub. The Data browser allows for individuals to view publicly available data collected by the All of Us Research Program. Data collected is broken down into different subjects.

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Subject:   Ethics and Data Management

Title: Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/achieving-principles-through-precision-medicine-initiative-data-security-policy-framework/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.

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Subject:   Ethics and Data Management

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