Skip Navigation

Archive-It

Facebook iconTwitter iconWordpress icon

National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (19 Total Results)

Title: Wearables are too expensive for groups underrepresented in medical research - The Verge

URL: https://www.theverge.com/2022/4/26/23042928/wearables-health-data-research-expense-nih/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearables are too expensive for groups underrepresented in medical research," detailing how a study found the majority of individuals using wearables are wealthy and/or Caucasian. The article relates the involvement of the All of Us Research Program in the study and how the main reason why minority participants did not use wearables was due to costs and lack of knowledge.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Wearable device data need to represent all of us - STAT

URL: https://www.statnews.com/2022/04/25/wearable-device-data-need-to-represent-all-of-us/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearable device data need to represent all of us," that discusses the use of wearable devices in the All of Us Research Program. **ARTICLE BEHIND A PAYWALL**

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: The All of Us Research Program Launches National Research Database in Partnership with the Miller School - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-study-at-miller-school-launches-national-research-database/

Collection: All of Us Research Program web archive

Description: News article, title "The All of Us Research Program Launches National Research Database in Partnership with the Miller School," detailing the All of Us research Program at the University on Miami, including specific faculty attached to the program. How to get involved with the program either as a participant or a researcher is also mentioned in the article.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Returning value to research participants through digital health tools

URL: https://digitaltrials.scripps.edu/returning-value-to-research-participants-through-digital-health-tools/

Collection: All of Us Research Program web archive

Description: News article, titled "Returning value to research participants through digital health tools," detailing how to return value to research participants including via mobile health resources. The All of Us Research Program's app is mentioned in the article and a guide to using the app has been provided.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Nationwide All of Us research database now available to Emory researchers, part of a beta test

URL: https://news.emory.edu/stories/2020/07/allofus_database_available_to_emory_researchers/index.html

Collection: All of Us Research Program web archive

Description: News article, titled "Nationwide All of Us research database now available to Emory researchers, part of a beta test," detailing how the researchers at Emory University were granted access to the nationwide All of Us workbench. The article also mentions how researchers can use the data in reference to Covid-19 as well as a brief overview of the All of Us program at Emory University.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: NIH Fitbit Study Reveals Need for Diversity in Research|Health Tech Insider

URL: https://healthtechinsider.com/2022/05/06/nih-fitbit-study-reveals-need-for-diversity-in-research/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH Fitbit Study Reveals Need for Diversity in Research," detailing how the majority of participants in the All of Us Research Program who participated in the wearables study came did not come from an underrepresented background. The article mentioned how the program has claimed that since the initial study, there have been more individuals from diverse backgrounds to take part in the wearables study.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: NIH Could Improve Security Controls of All of Us Awardees, OIG says

URL: https://healthitsecurity.com/news/nih-could-improve-security-controls-of-all-of-us-awardees-oig-says/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH Could Improve Security Controls of All of Us Awardees, OIG says," detailing the OIG Security Audit Report conducted on the All of Us Research Program. The article gives a general overview of the reports and relays where the Program is lacking in its security.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: NIH All of Us Program to Implement GA4GH Data Sharing Standards

URL: https://www.ga4gh.org/news/nih-all-of-us-program-to-implement-ga4gh-data-sharing-standards-2/

Collection: All of Us Research Program web archive

Description: News Release, titled "NIH All of Us Program to Implement GA4GH Data Sharing Standards," that details the All of Us project's standards for allowing researchers to use collected data.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: I handed over my genetic data to the NIH. Here's why you should, too

URL: https://www.statnews.com/2018/06/13/entrusted-my-genetic-data-nih/

Collection: All of Us Research Program web archive

Description: News article, titled " I handed over my genetic data to the NIH. Here's why you should, too," written by the former Director of the All of Us Program, detailing his opinion on why people should participate in the All of Us Research Program.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: How Obama's Precision Medicine Initiative Will Revolutionize Healthcare

URL: https://gizmodo.com/how-obamas-precision-medicine-initiative-will-revolutio-1680866890/

Collection: All of Us Research Program web archive

Description: Article, titled "How Obama's Precision Medicine Initiative Will Revolutionize Healthcare," discussing Obama's State of the Union speech in which he announced the Precision Medicine Initiative. The article discusses what is meant by precision medicine, what kind of approach the initiative will take, and what some of the challenges to the program may be.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: How Digital Technology Can Increase Diversity, Equity And Inclusion In Medical Research

URL: https://www.forbes.com/sites/forbestechcouncil/2021/05/12/how-digital-technology-can-increase-diversity-equity-and-inclusion-in-medical-research/?sh=59a10bb92f7a/

Collection: All of Us Research Program web archive

Description: News article, titled "How Digital Technology Can Increase Diversity, Equity And Inclusion In Medical Research," detailing how the advancement of technology and the fact that it is more widely available can help diversify research by including historically marginalized communities. The article points to the COVID-19 pandemic as a factor to the acceleration of digital technologies within the health sector.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Giant study poses DNA data-sharing dilemma

URL: https://www.nature.com/articles/525016a#change-history/

Collection: All of Us Research Program web archive

Description: Article, titled "Giant study poses DNA data-sharing dilemma," discussing how the All of Us Research Program will release it's data to participants and researchers. The article also discusses the experience of Eric Dishman, the first head of the All of Us Research Program, with precision medicine.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Fitbit wearables will help power NIH's All of Us Research Program

URL: https://www.mobihealthnews.com/content/fitbit-wearables-will-help-power-nihs-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Article, titled "Fitbit wearables will help power NIH's All of Us Research Program," discussing Fitbit's partnership with the All of Us Research Program. The article gives a brief history of the All of Us Research Program and mentions some of the program's other partners.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Fitbit Bring-Your-Own Device (BYOD) | Henry Ford Health - Detroit, MI

URL: https://www.henryford.com/visitors/henry-ford-all-of-us/news-and-events/fitbit-bring-your-own-device-byod/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Fitbit Bring-Your-Own Device (BYOD): Participants can now link their Fitbit accounts to the program to share additional data for research," detailing how individuals can connect their Fitbit to the All of Us research program.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Digital Health Literacy: Why It’s Important and How to Improve It

URL: https://patientengagementhit.com/features/digital-health-literacy-why-its-important-and-how-to-improve-it/

Collection: All of Us Research Program web archive

Description: News article, titled "Digital Health Literacy: Why It’s Important and How to Improve It," that discusses digital health literacy and how to improve it, such as having access to digital health tools and better Wi-Fi. The article also mentions the consequences of not being literate in digital health and how to screen for low digital health literacy.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Arizona man hopes to help national research program diversify health care system

URL: https://ktar.com/story/5075532/arizona-man-hopes-to-help-national-research-program-diversify-health-care-system/

Collection: All of Us Research Program web archive

Description: News article, titled "Arizona man hopes to help national research program diversify health care system," discussing a gay, HIV-positive man's decision to join the All of Us Research Program.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: All of Us Researchers Study Disparities in Fitness Tracker Usage

URL: https://www.hcinnovationgroup.com/clinical-it/learning-health-systems-research/news/21265466/all-of-us-researchers-study-disparities-in-fitness-tracker-usage/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Researchers Study Disparities in Fitness Tracker Usage," detailing how issues in using the fitness trackers for the All of Us Research Program have occurred. Some of the issues stem from lack of knowledge from users while others stem from lack of upkeep by the program sponsors.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: Access to wearables could become a social determinant of health, researchers warn | Healthcare IT News

URL: https://www.healthcareitnews.com/news/access-wearables-could-become-social-determinant-health-researchers-warn/

Collection: All of Us Research Program web archive

Description: News article, titled "Access to wearables could become a social determinant of health, researchers warn," detailing how fitness trackers/wearables have caused some issues with data collection due to lack of knowledge from users and lack of upkeep by the program sponsors.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Title: 10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study

URL: https://xtalks.com/10000-fitbits-will-be-distributed-as-part-of-an-nih-funded-heath-study/

Collection: All of Us Research Program web archive

Description: News article, titled "10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study," detailing the distribution of Fitbits and how the Fitbits would aid the All of Us Research program.

Loading Wayback Capture Info...

Loading video data...

Subject:   Ethics and Data Management

Page 1 of 1 (19 Total Results)