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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (86 Total Results)

Title: Will Personalized Diets Treat and Prevent Chronic Disease?

URL: https://www.pbrc.edu/news/media/2022/nutrition-for-precision-health.aspx

Collection: All of Us Research Program web archive

Description: News article, titled "Will Personalized Diets Treat and Prevent Chronic Disease?," detailing the Nutrition for Precision Health, powered by the All of Us Research Program. The program is meant to be a step towards precision nutrition with the idea that this will in turn benefit precision medicine. The article delves into how the program will work and how it is funded by the NIH Common Fund.

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Subject:   Research Projects Using Collected Data

Title: Wearables are too expensive for groups underrepresented in medical research - The Verge

URL: https://www.theverge.com/2022/4/26/23042928/wearables-health-data-research-expense-nih/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearables are too expensive for groups underrepresented in medical research," detailing how a study found the majority of individuals using wearables are wealthy and/or Caucasian. The article relates the involvement of the All of Us Research Program in the study and how the main reason why minority participants did not use wearables was due to costs and lack of knowledge.

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Subject:   Ethics and Data Management

Title: Wearable device data need to represent all of us - STAT

URL: https://www.statnews.com/2022/04/25/wearable-device-data-need-to-represent-all-of-us/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearable device data need to represent all of us," that discusses the use of wearable devices in the All of Us Research Program. **ARTICLE BEHIND A PAYWALL**

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Subject:   Ethics and Data Management

Title: Two PAs Use Genetics and Precision Medicine to Provide Answers and Develop Plans for Patients - AAPA

URL: https://www.aapa.org/news-central/2021/12/two-pas-use-genetics-and-precision-medicine-to-provide-answers-and-develop-plans-for-patients/

Collection: All of Us Research Program web archive

Description: News article, titled "Two PAs Use Genetics and Precision Medicine to Provide Answers and Develop Plans for Patients," detailing how the All of Us program has impacted how PAs work with their patients.

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Subject:   Participant Recruitment

Title: The NIH Launches Its Ambitious Million-Person Genetic Survey | WIRED

URL: https://www.wired.com/story/all-of-us-launches/

Collection: All of Us Research Program web archive

Description: News article, titled "The NIH Launches Its Ambitious Million-Person Genetic Survey," from Wired detailing the launch of the All of Us Research Program. The article calls into question the use of genetic data and how in an age of privacy, one could feel vulnerable donating their genetic data. the article also relays more information on the All of Us Research Program itself.

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Subject:   Public Response

Title: The All of Us Research Program Launches National Research Database in Partnership with the Miller School - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-study-at-miller-school-launches-national-research-database/

Collection: All of Us Research Program web archive

Description: News article, title "The All of Us Research Program Launches National Research Database in Partnership with the Miller School," detailing the All of Us research Program at the University on Miami, including specific faculty attached to the program. How to get involved with the program either as a participant or a researcher is also mentioned in the article.

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Subject:   Ethics and Data Management

Title: The All of Us Research Program - Milwaukee Courier Weekly Newspaper

URL: https://milwaukeecourieronline.com/index.php/2022/05/06/the-all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: News article, titled "The All of Us Research Program," describing a medical health conference panel led by the All of Us Research Program in Wisconsin.

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Subject:   Public Response

Title: Technology considerations to promote inclusion, equity and diversity in clinical research - MedCity News

URL: https://medcitynews.com/2022/04/technology-considerations-to-promote-inclusion-equity-and-diversity-in-clinical-research/

Collection: All of Us Research Program web archive

Description: News article, titled "Technology considerations to promote inclusion, equity and diversity in clinical research," discussing how the pandemic and technology have impacted research programs. This includes having a wider demographic and research area due to technological advancements and the increase in technology use among minorities. The All of Us Research Program is mentioned in that the program has pointed out how lack of inclusion has caused disparities in medicine.

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Subject:   COVID-19

Title: Stevens Institute of Technology: Stevens Professor Leverages Power of Artificial Intelligence to Make Sense of Medical Data with the Goal to Improve Human Health – India Education | Latest Education News | Global Educational News | Recent Educational News

URL: https://indiaeducationdiary.in/stevens-institute-of-technology-stevens-professor-leverages-power-of-artificial-intelligence-to-make-sense-of-medical-data-with-the-goal-to-improve-human-health-%E2%80%AF/

Collection: All of Us Research Program web archive

Description: News article, titled "Stevens Institute Of Technology: Stevens Professor Leverages Power Of Artificial Intelligence To Make Sense Of Medical Data With The Goal To Improve Human Health," discussing Samantha Kleinberg's research on blood glucose levels and her work with Nutrition for Precision Health, powered by the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Social determinants of health may help predict sepsis readmission | Healthcare IT News

URL: https://www.healthcareitnews.com/news/social-determinants-health-may-help-predict-sepsis-readmission/

Collection: All of Us Research Program web archive

Description: News report, titled "Social determinants of health may help predict sepsis readmission," detailing how Researchers from the University of California, San Diego found that factors such as lack of insurance, economic instability and poor transportation to obtain care were associated with a 30-day readmission. The study utilized a data set from the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Science Wants Your Data | FiveThirtyEight

URL: https://fivethirtyeight.com/features/science-wants-your-data/

Collection: All of Us Research Program web archive

Description: News article, titled "Science Wants Your Data," detailing the All of Us program and some of the issues the program may encounter, such as finding enough participants, training researchers in utilizing data only on NIH servers, and security issues. The article concludes with specific questions the author feels participants should ask of the program.

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Subject:   Public Response

Title: Returning value to research participants through digital health tools

URL: https://digitaltrials.scripps.edu/returning-value-to-research-participants-through-digital-health-tools/

Collection: All of Us Research Program web archive

Description: News article, titled "Returning value to research participants through digital health tools," detailing how to return value to research participants including via mobile health resources. The All of Us Research Program's app is mentioned in the article and a guide to using the app has been provided.

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Subject:   Ethics and Data Management

Title: Research Roundup: Data Expansion Bolsters Trove of COVID-19 Data

URL: https://allofus.nih.gov/news-events/announcements/research-roundup-data-expansion-bolsters-trove-covid-19-data/

Collection: All of Us Research Program web archive

Description: News article, titled "Research Roundup: Data Expansion Bolsters Trove of COVID-19 Data," detailing the released COVID-19 dataset, which includes information about vaccines. Information about new file types and tools is also present in the article.

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Subject:   COVID-19

Title: Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program

URL: https://www.ala.org/news/press-releases/2019/03/public-library-association-national-network-libraries-medicine-join/

Collection: All of Us Research Program web archive

Description: News Report, titled "Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program," announcing that the Public Library Association would be extending their partnership with the All of Us Research Program by supporting public libraries to increase health literacy, address health research inequities, and strengthen community partnerships with health advocates and providers.

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Subject:   General Sources

Title: PAs: Get Involved in Genetics to Help Patients - AAPA

URL: https://www.aapa.org/news-central/2020/12/pas-get-involved-in-genetics-to-help-patients/

Collection: All of Us Research Program web archive

Description: News article, titled "PAs: Get Involved in Genetics to Help Patients," detailing one PAs involvement in genetic work, how this genetic work has aided patients, and how to get involved in All of Us.

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Subject:   Participant Recruitment

Title: PAs Say Genetics and Genomics Key to Patient Diagnosis and Treatment - AAPA

URL: https://www.aapa.org/news-central/2021/03/pas-say-genetics-and-genomics-key-to-patient-diagnosis-and-treatment/

Collection: All of Us Research Program web archive

Description: News article, titled "PAs Say Genetics and Genomics Key to Patient Diagnosis and Treatment," details the benefits of precision medicine while promoting the All of Us program.

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Subject:   Public Response

Title: Nutrition for Precision Health | UC Davis Nutrition Department

URL: https://nutrition.ucdavis.edu/news/nutrition-precision-health/

Collection: All of Us Research Program web archive

Description: News article, titled "Nutrition for Precision Health: New study to inform more personalized nutrition recommendations," detailing the UC Davis Precision Nutrition program whose goal is to use data to develop algorithms that can predict how people may respond to foods and diet patterns and to use this information to prevent or treat conditions related to nutrition.

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Subject:   Research Projects Using Collected Data

Title: Newsletters | Join All of Us

URL: https://www.joinallofus.org/newsletters/

Collection: All of Us Research Program web archive

Description: Newsletters page from the official All of Us website that give updates to the project. Newsletters found on this site are organized by date of publication.

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Subject:   General Sources

Title: News & Events - Banner Health

URL: https://www.allofusaz.org/news-events/

Collection: All of Us Research Program web archive

Description: Website, titled "News & Events - Banner Health," that is part of the broader All of Us Website from the partner at the University of Arizona. This site is dedicated to events and news surrounding the All of Us Program at the University of Arizona.

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Subject:   Research Projects Using Collected Data

Title: New evidence of early SARS-CoV-2 infections in the United States

URL: https://www.sciencedaily.com/releases/2021/06/210615132106.htm

Collection: All of Us Research Program web archive

Description: News article, titled "New evidence of early SARS-CoV-2 infections in the United States," detailing how blood samples collected from All of Us participants prove that Covid-19 had infected people earlier than reported in some states.

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Subject:   COVID-19

Title: New Evidence Shows COVID-19 Was in US Weeks Before Thought | The Scientist Magazine®

URL: https://www.the-scientist.com/news-opinion/new-evidence-shows-covid-19-was-in-us-weeks-before-thought-68906/

Collection: All of Us Research Program web archive

Description: News article, titled "New Evidence Shows COVID-19 Was in US Weeks Before Thought," detailing how the All of Us program tested samples for COVID-19 and found that some samples tested positive before the first official positive case.

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Subject:   COVID-19

Title: New Data Release: Filling Out the Pandemic Picture

URL: https://allofus.nih.gov/news-events/announcements/new-data-release-filling-out-pandemic-picture/

Collection: All of Us Research Program web archive

Description: News article, titled "New Data Release: Filling Out the Pandemic Picture," announcing new data released as part of the All of Us Research Program. Data released during this batch pertains to information gathered from the COPE survey and Fitbit products. The article gives more detail about the collection of Fitbit data and mentions that vaccination data will not be available immediately due to security.

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Subject:   COVID-19

Title: Nationwide All of Us research database now available to Emory researchers, part of a beta test

URL: https://news.emory.edu/stories/2020/07/allofus_database_available_to_emory_researchers/index.html

Collection: All of Us Research Program web archive

Description: News article, titled "Nationwide All of Us research database now available to Emory researchers, part of a beta test," detailing how the researchers at Emory University were granted access to the nationwide All of Us workbench. The article also mentions how researchers can use the data in reference to Covid-19 as well as a brief overview of the All of Us program at Emory University.

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Subject:   Ethics and Data Management

Title: NYC Consortium Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine | NYP

URL: https://www.nyp.org/news/nyc-consortium-nih-in-launch-the-all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: News article, titled "NYC Consortium Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine," that details the launch of the All of Us Research Program in New York and features some of the participating organizations. Basic information about the program, including goals of the program are mentioned throughout the article.

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Subject:   Engagement

Title: NIH’s All of Us program aims to increase diversity in medical research

URL: https://cronkitenews.azpbs.org/2022/04/19/all-of-us-qa/

Collection: All of Us Research Program web archive

Description: News article, titled "Arizonans enroll in All of Us program to increase diversity in medical research," detailing the All of Us Research Program in Arizona, how the program differs from other research initiatives, what the data collected will be used for, and what securities are in place to protect participants.

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Subject:   Public Response

Title: NIH’s All of Us Research Program Releases New COVID-19 Data

URL: https://allofus.nih.gov/news-events/announcements/nihs-all-us-research-program-releases-new-covid-19-data/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH’s All of Us Research Program Releases New COVID-19 Data," announcing a new Covid-19 data set on the Researcher Workbench. With this announcement came news that new Fitbit data was also accessible. The article also details how data from the All of Us Research Program has already been utilized and how to apply for access to the data.

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Subject:   COVID-19

Title: NIH’s All of Us Research Program Releases First Genomic Dataset of Nearly 100,000 Whole Genome Sequences

URL: https://allofus.nih.gov/news-events/announcements/program-releases-first-genomic-dataset/

Collection: All of Us Research Program web archive

Description: News release, titled "NIH’s All of Us Research Program Releases First Genomic Dataset of Nearly 100,000 Whole Genome Sequences," announcing the release of genomic sequences to the All of Us Researcher Workbench for Researchers to use. Other information about the All of Us Research Program as a whole is present in the news release.

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Subject:   Research Projects Using Collected Data

Title: NIH's Huge All of Us Research Program Launches This Weekend | Fortune

URL: https://fortune.com/2018/05/04/enrollment-for-the-nihs-landmark-all-of-us-genetic-precision-medicine-project-begins-this-weekend/

Collection: All of Us Research Program web archive

Description: News article, titled "Enrollment for the NIH’s Ambitious ‘All of Us’ Precision Medicine Project Begins This Weekend," announcing that the All of Us Research Program was beginning enrollment on Sunday, May 6th, 2018.

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Subject:   Public Response

Title: NIH's All of Us Research Program releases first genomic dataset of nearly 100,000 whole genome sequences

URL: https://www.sciencedaily.com/releases/2022/03/220317193203.htm

Collection: All of Us Research Program web archive

Description: News article, titled "NIH's All of Us Research Program releases first genomic dataset of nearly 100,000 whole genome sequences," detailing a new set of data released with about 50 percent of the data coming from individuals who come from racial or ethnic groups that have previously been underrepresented in research.

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Subject:   Research Projects Using Collected Data

Title: NIH “All of Us” Program Takes on Study of COVID Among Racial Minorities

URL: https://dailynurse.com/nih-all-of-us-program-takes-on-study-of-covid-among-racial-minorities/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH “All of Us” Program Takes on Study of COVID Among Racial Minorities," detailing how the All of Us Research Program has incorporated surveys about COVID-19 and how minorities were impacted by COVID-19.

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Subject:   COVID-19

Title: NIH wants 1 million to share DNA and their health habits for science

URL: https://www.usatoday.com/story/news/health/2018/05/01/national-institutes-health-wants-1-million-share-their-dna-and-their-health-habits-science/568121002/

Collection: All of Us Research Program web archive

Description: News article, titled "National Institutes of Health wants 1 million to share their DNA and their health habits for science," detailing the launch of the All of Us Research Program, what the program is, and what the program aims to do. **SAME AS A PREVIOUS ARTICLE**

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Subject:   Engagement

Title: NIH uses dodgy PR to enroll one million Americans in its ‘All of Us’ precision medicine program |

URL: https://www.healthnewsreview.org/2018/05/nih-all-of-us-pr/

Collection: All of Us Research Program web archive

Description: News article, titled " NIH uses dodgy PR to enroll one million Americans in its 'All of Us' precision medicine program," criticizing the All of Us program's launch and relaying doctors opinions about the program.

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Subject:   Public Response

Title: NIH selects Emory to join national precision medicine research effort

URL: https://news.emory.edu/stories/2017/08/zwick_seec_network/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH selects Emory to join national precision medicine research effort," detailing Emory University's involvement with the All of Us Research Program, who at the university will be involved with the program, and there institutions through the country that are involved in the program.

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Subject:   Engagement

Title: NIH opens nationwide enrollment for huge precision medicine initiative

URL: https://www.statnews.com/2018/05/01/nih-precision-medicine-all-of-us-enrollment/

Collection: All of Us Research Program web archive

Description: Article, titled "NIH opens nationwide enrollment for huge precision medicine initiative," detailing the nationwide launch of the All of Us Research Program. The article discusses the beta run of the project and how some people may be apprehensive towards given their genetic data to a government program.

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Subject:   General Sources

Title: NIH launches COVID-19 tracking initiatives through 'All of Us' precision medicine program

URL: https://www.beckershospitalreview.com/innovation/nih-launches-covid-19-tracking-initiatives-through-all-of-us-precision-medicine-program.html

Collection: All of Us Research Program web archive

Description: Article, titled "NIH launches COVID-19 tracking initiatives through 'All of Us' precision medicine program," detailing how the All of Us Research Program plans to test newer participants for COVID-19 and the new COVID-19 surveys available to participants.

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Subject:   COVID-19

Title: NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network

URL: https://www.nih.gov/news-events/news-releases/nih-forms-team-experts-chart-course-presidents-precision-medicine-initiative-research-network/

Collection: All of Us Research Program web archive

Description: News release, titled "NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network," announcing the formation of the Working Group of the Advisory Committee to the NIH Director (ACD) and listing the individuals that comprise the team. Background information on the initiative is also present in the news release.

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Subject:   General Sources

Title: NIH awards $170 million for precision nutrition study | National Institutes of Health (NIH)

URL: https://www.nih.gov/news-events/news-releases/nih-awards-170-million-precision-nutrition-study/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH awards $170 million for precision nutrition study," announcing new funding opportunities for a nutrition study hosted by the All of Us Research Program. Information about the NIH Common Fund, the All of Us Research Program, and the NIH as a whole is provided.

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Subject:   Research Projects Using Collected Data

Title: NIH announces national enrollment date for All of Us Research Program to advance precision medicine

URL: https://www.nih.gov/news-events/news-releases/nih-announces-national-enrollment-date-all-us-research-program-advance-precision-medicine/

Collection: All of Us Research Program web archive

Description: News Release, titled "NIH announces national enrollment date for All of Us Research Program to advance precision medicine," announcing the official enrollment date for the All of Us Research Program. The news release notes that prior to this national enrollment, there was a beta test to prepare for the program. Information on what the program includes, such as surveys, is mentioned throughout the news release.

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Subject:   General Sources

Title: NIH Musters Million-Person Study to Track Covid’s Spread

URL: https://news.bloomberglaw.com/health-law-and-business/nih-musters-million-person-study-to-track-covids-spread/

Collection: All of Us Research Program web archive

Description: Article, titled "NIH Musters Million-Person Study to Track Covid’s Spread," detailing how NIH plans to use the All of Us Research Program to see how COVID-19 affected different groups of people. The article also mentions the COVID-19 surveys available to participants.

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Subject:   COVID-19

Title: NIH Launching Nutrition for Precision Health Program

URL: https://www.hcinnovationgroup.com/clinical-it/genomics-precision-medicine/article/21253913/nih-launching-nutrition-for-precision-health-program/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH Launching Nutrition for Precision Health Program," announcing the new Precision Health Program, hosted by the All of Us Research Program. The article mentions an interview held with Holly Nicastro, Ph.D., M.P.H., a coordinator of Nutrition for Precision Health. In the interview, Nicastro mentions how the All of Us Research Program's infrastructure is a good fit for precision nutritional research. Nicastro also discusses the different modules of the program and how certain aspects will work.

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Subject:   Research Projects Using Collected Data

Title: NIH Fitbit Study Reveals Need for Diversity in Research|Health Tech Insider

URL: https://healthtechinsider.com/2022/05/06/nih-fitbit-study-reveals-need-for-diversity-in-research/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH Fitbit Study Reveals Need for Diversity in Research," detailing how the majority of participants in the All of Us Research Program who participated in the wearables study came did not come from an underrepresented background. The article mentioned how the program has claimed that since the initial study, there have been more individuals from diverse backgrounds to take part in the wearables study.

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Subject:   Ethics and Data Management

Title: NIH Could Improve Security Controls of All of Us Awardees, OIG says

URL: https://healthitsecurity.com/news/nih-could-improve-security-controls-of-all-of-us-awardees-oig-says/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH Could Improve Security Controls of All of Us Awardees, OIG says," detailing the OIG Security Audit Report conducted on the All of Us Research Program. The article gives a general overview of the reports and relays where the Program is lacking in its security.

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Subject:   Ethics and Data Management

Title: NIH All of Us project tops 270,000 sign-ups and on track to enroll 1M participants by 2024

URL: https://www.fiercehealthcare.com/tech/nih-all-us-project-tops-270-000-sign-ups-goal-enrolling-1m-participants-by-2024/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH All of Us project tops 270,000 sign-ups and on track to enroll 1M participants by 2024," detailing the success of the All of Us Research Program in recruiting over 270,000 participants with more to come. The article delves into some of the issues with recruitment, such as not being able to include people in rural areas far away from partner locations.

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Subject:   Public Response

Title: NIH All of Us Program to Implement GA4GH Data Sharing Standards

URL: https://www.ga4gh.org/news/nih-all-of-us-program-to-implement-ga4gh-data-sharing-standards-2/

Collection: All of Us Research Program web archive

Description: News Release, titled "NIH All of Us Program to Implement GA4GH Data Sharing Standards," that details the All of Us project's standards for allowing researchers to use collected data.

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Subject:   Ethics and Data Management

Title: Million-person U.S. study of genes and health stumbles over including Native American groups | Science | AAAS

URL: https://www.science.org/content/article/million-person-us-study-genes-and-health-stumbles-over-including-native-american-groups/

Collection: All of Us Research Program web archive

Description: News article, titled "Million-person U.S. study of genes and health stumbles over including Native American groups," detailing issues with collecting data from Native American groups mainly due to skepticism. The article mentions other criticisms of the All of Us Research Program.

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Subject:   Public Response

Title: Local study seeks your DNA | wwltv.com

URL: https://www.wwltv.com/article/news/health/local-study-seeks-your-dna/289-18c96ecc-7b9d-485c-a869-0ff438826275/

Collection: All of Us Research Program web archive

Description: News article, titled "Local study seeks your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience. The transcript of the video is provided as well.

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Subject:   Engagement

Title: Libraries working with All of Us to advance digital health literacy: Partnerships supporting US health

URL: https://www.thenationshealth.org/content/51/9/11.2/

Collection: All of Us Research Program web archive

Description: News Report, titled "Libraries working with All of Us to advance digital health literacy: Partnerships supporting US health" detailing how the All of Us research program partnered with libraries to release tools and information that would help individuals learn about digital health. The report briefly details the tools provided by the program and how these tools aid with digital health literacy.

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Subject:   General Sources

Title: Indigenous People Grill NIH on All of Us Protections | 2019-08-14 | Relias Media - Continuing Medical Education Publishing

URL: https://www.reliasmedia.com/articles/144944-indigenous-people-grill-nih-on-all-of-us-protections/

Collection: All of Us Research Program web archive

Description: News article, titled "Indigenous People Grill NIH on All of Us Protections," detailing pervious studies conducted on Native populations, the impact the studies had, and includes an interview with the All of Us director, Eric Dishman, explaining how the program will involve Native Tribes while protecting their privacy.

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Subject:   Public Response

Title: I handed over my genetic data to the NIH. Here's why you should, too

URL: https://www.statnews.com/2018/06/13/entrusted-my-genetic-data-nih/

Collection: All of Us Research Program web archive

Description: News article, titled " I handed over my genetic data to the NIH. Here's why you should, too," written by the former Director of the All of Us Program, detailing his opinion on why people should participate in the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: How Obama's Precision Medicine Initiative Will Revolutionize Healthcare

URL: https://gizmodo.com/how-obamas-precision-medicine-initiative-will-revolutio-1680866890/

Collection: All of Us Research Program web archive

Description: Article, titled "How Obama's Precision Medicine Initiative Will Revolutionize Healthcare," discussing Obama's State of the Union speech in which he announced the Precision Medicine Initiative. The article discusses what is meant by precision medicine, what kind of approach the initiative will take, and what some of the challenges to the program may be.

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Subject:   Ethics and Data Management

Title: How NIH Uses Community Health Partnership for Participant Engagement

URL: https://patientengagementhit.com/news/how-nih-uses-community-health-partnership-for-participant-engagement/

Collection: All of Us Research Program web archive

Description: News article, titled "How NIH Uses Community Health Partnership for Participant Engagement," that discusses how the All of Us Research Program engages participants. The article delves into how many of the participants come from marginalized communities that have historically been left out and how the All of Us Research Program plans to change this.

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Subject:   Engagement

Title: How Digital Technology Can Increase Diversity, Equity And Inclusion In Medical Research

URL: https://www.forbes.com/sites/forbestechcouncil/2021/05/12/how-digital-technology-can-increase-diversity-equity-and-inclusion-in-medical-research/?sh=59a10bb92f7a/

Collection: All of Us Research Program web archive

Description: News article, titled "How Digital Technology Can Increase Diversity, Equity And Inclusion In Medical Research," detailing how the advancement of technology and the fact that it is more widely available can help diversify research by including historically marginalized communities. The article points to the COVID-19 pandemic as a factor to the acceleration of digital technologies within the health sector.

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Subject:   Ethics and Data Management

Title: Gov. Ducey proclaims March 'Arizonans in Health Research Month' to celebrate All of Us UArizona-Banner milestone | University of Arizona News

URL: https://news.arizona.edu/story/gov-ducey-proclaims-march-arizonans-health-research-month-celebrate-all-us-uarizona-banner/

Collection: All of Us Research Program web archive

Description: News article, titled "Gov. Ducey proclaims March 'Arizonans in Health Research Month' to celebrate All of Us Arizona-Banner milestone," announcing that 50,000 Arizonans had joined the All of Us Research Program out of 320,000 US Citizens. The article details the All of Us Research Program and mentions the diversity of program participants.

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Subject:   Engagement

Title: Global initiatives to change wearable medical device market trends - Medical Plastics News

URL: https://www.medicalplasticsnews.com/medical-plastics-industry-insights/medical-plastics-in-digital-health-insights/global-initiatives-to-revolutionise-wearable-medical-device-/

Collection: All of Us Research Program web archive

Description: News article, titled "Global initiatives to change wearable medical device market trends," detailing the increase of medical devices due to telehealth and Covid-19. One of the three cases discussed in the article deals with how the All of Us program uses wearables to collect research data.

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Subject:   Research Projects Using Collected Data

Title: Global Research Antibodies Market Analysis Report 2022

URL: https://www.globenewswire.com/news-release/2022/05/04/2435426/0/en/Global-Research-Antibodies-Market-Analysis-Report-2022-A-Lucrative-Market-has-Emerged-Since-COVID-19-Forecast-to-2027.html

Collection: All of Us Research Program web archive

Description: News article, titled "Global Research Antibodies Market Analysis Report 2022: A Lucrative Market has Emerged Since COVID-19 - Forecast to 2027," detailing the growth in the antibody research market. The articles mentions how the market is growing, where the market is growing, and what programs are contributing to the market's growth.

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Subject:   COVID-19

Title: Giant study poses DNA data-sharing dilemma

URL: https://www.nature.com/articles/525016a#change-history/

Collection: All of Us Research Program web archive

Description: Article, titled "Giant study poses DNA data-sharing dilemma," discussing how the All of Us Research Program will release it's data to participants and researchers. The article also discusses the experience of Eric Dishman, the first head of the All of Us Research Program, with precision medicine.

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Subject:   Ethics and Data Management

Title: Genetic Counseling Resource | Henry Ford Health - Detroit, MI

URL: https://www.henryford.com/visitors/henry-ford-all-of-us/news-and-events/genetic-counseling-resource/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genetic Counseling Resource," detailing Henry Ford Health's Genetic Counseling program through the All of Us Research Program. The page describes how the counseling program came to fruition, what it offers, and what the future of the program looks like.

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Subject:   Engagement

Title: Frontiers | Reaching for Precision Healthcare in Finland via Use of Genomic Data | Genetics

URL: https://www.frontiersin.org/articles/10.3389/fgene.2022.877891/full/

Collection: All of Us Research Program web archive

Description: News article, titled "Reaching for Precision Healthcare in Finland via Use of Genomic Data," discussing how Finland has utilized genomic data in some specialty areas, but is looking to expand their system to use genomic data more. This article references the All of Us Research Program briefly as an example of what other countries are doing in comparison to Finland.

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Subject:   General Sources

Title: Fitbit wearables will help power NIH's All of Us Research Program

URL: https://www.mobihealthnews.com/content/fitbit-wearables-will-help-power-nihs-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Article, titled "Fitbit wearables will help power NIH's All of Us Research Program," discussing Fitbit's partnership with the All of Us Research Program. The article gives a brief history of the All of Us Research Program and mentions some of the program's other partners.

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Subject:   Ethics and Data Management

Title: Fitbit Bring-Your-Own Device (BYOD) | Henry Ford Health - Detroit, MI

URL: https://www.henryford.com/visitors/henry-ford-all-of-us/news-and-events/fitbit-bring-your-own-device-byod/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Fitbit Bring-Your-Own Device (BYOD): Participants can now link their Fitbit accounts to the program to share additional data for research," detailing how individuals can connect their Fitbit to the All of Us research program.

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Subject:   Ethics and Data Management

Title: Everybody’s Health Tells a Story. What’s Yours?

URL: https://www.rocketcitymom.com/everybodys-health-tells-a-story-whats-yours/

Collection: All of Us Research Program web archive

Description: News article, titled "Everybody’s Health Tells a Story. What’s Yours?," detailing precision medicine, the All of US Research Program, how to join, why to join, and answering frequently asked questions.

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Subject:   Engagement

Title: Diversity in Research and the All of Us Research Program

URL: https://practicingclinicians.com/the-exchange/diversity-in-research-and-the-all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: News article, titled "Diversity in Research and the All of Us Research Program," detailing how women have historically been underrepresented in medical studies and calls upon women and other minorities to join the All of Us Research Program.

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Subject:   Public Response

Title: Digital Screening for COVID-19 and Infectious Disease Could Prevent 8 Million Infections According to Study, At-Risk Communities May Benefit Most | Business Wire

URL: https://www.businesswire.com/news/home/20220503005305/en/Digital-Screening-for-COVID-19-and-Infectious-Disease-Could-Prevent-8-Million-Infections-According-to-Study-At-Risk-Communities-May-Benefit-Most/

Collection: All of Us Research Program web archive

Description: News article, titled "Digital Screening for COVID-19 and Infectious Disease Could Prevent 8 Million Infections According to Study, At-Risk Communities May Benefit Most," detailing how Vibrant Health's digital screening tool could have been utilized to help prevent the spread of Covid-19. Vibrant Health's digital screening tool is the same tool used by the All of Us Research Program.

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Subject:   COVID-19

Title: Digital Health Literacy: Why It’s Important and How to Improve It

URL: https://patientengagementhit.com/features/digital-health-literacy-why-its-important-and-how-to-improve-it/

Collection: All of Us Research Program web archive

Description: News article, titled "Digital Health Literacy: Why It’s Important and How to Improve It," that discusses digital health literacy and how to improve it, such as having access to digital health tools and better Wi-Fi. The article also mentions the consequences of not being literate in digital health and how to screen for low digital health literacy.

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Subject:   Ethics and Data Management

Title: Creativity and Innovation: Our 5 Favorite Projects from the Past 5 Years – Montage Marketing Group

URL: https://montagemarketinggroup.com/2022/04/21/innovative-projects-for-world-creativity-and-innovation-day/?utm_source=rss&utm_medium=rss&utm_campaign=innovative-projects-for-world-creativity-and-innovation-day

Collection: All of Us Research Program web archive

Description: News article, titled "Creativity and Innovation: Our 5 Favorite Projects from the Past 5 Years," detailing five different marketing projects, including the All of Us Research Program's Traffic Box Community Connector project that called on artists to help design 17 traffic boxes in Seattle. Scanning QR codes found on the traffic boxes would send individuals to an augmented reality (AR) that helped them learn about their health.

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Subject:   Participant Recruitment

Title: Colorado PAs Spotlight All of Us Research Program - AAPA

URL: https://www.aapa.org/news-central/2021/09/colorado-pas-spotlight-all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: News article, titled "Colorado PAs Spotlight All of Us Research Program," highlighting the All of Us program by having CAPA Director-at-Large Kendra Glassman, PA-C, answer questions regarding the program.

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Subject:   Public Response

Title: Chicago Medical Centers Join NIH to Launch 'All of Us' Research Program | Rush University

URL: https://www.rushu.rush.edu/news/chicagos-leading-medical-centers-join-nih-launch-all-us-research-program-advance-precision-medicine/

Collection: All of Us Research Program web archive

Description: News article, titled "Chicago’s leading medical centers join the NIH for launch of the All of Us Research Program to advance precision medicine," that discusses the All of Us Research Program's launch in Chicago, what the program entails, and how the program will have an impact.

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Subject:   Participant Recruitment

Title: Blood Samples Reveal SARS-CoV-2 Infections in the U.S. in Late 2019

URL: https://www.genengnews.com/news/blood-samples-reveal-sars-cov-2-infections-in-the-u-s-in-late-2019/

Collection: All of Us Research Program web archive

Description: News article, titled "Blood Samples Reveal SARS-CoV-2 Infections in the U.S. in Late 2019," detailing how the All of Us Research Program's Covid-19 antibody testing has proved that Covid-19 infected American citizens earlier than initially reported.

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Subject:   COVID-19

Title: Blood From 1 Million Americans May Offer Clues To Disease : Shots - Health News : NPR

URL: https://www.npr.org/sections/health-shots/2017/12/31/572674823/researchers-gather-health-data-for-all-of-us/

Collection: All of Us Research Program web archive

Description: News article, titled "Researchers Gather Health Data For 'All Of Us'," from NPR. The article details the All of Us program and goes in depth into the process behind reading and storing samples provided by participants. Other aspects, such as perceived benefits of the program are mentioned within the article.

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Subject:   Public Response

Title: Arizona man hopes to help national research program diversify health care system

URL: https://ktar.com/story/5075532/arizona-man-hopes-to-help-national-research-program-diversify-health-care-system/

Collection: All of Us Research Program web archive

Description: News article, titled "Arizona man hopes to help national research program diversify health care system," discussing a gay, HIV-positive man's decision to join the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Answers to patients’ top 5 questions on All of Us Research Program | American Medical Association

URL: https://www.ama-assn.org/delivering-care/precision-medicine/answers-patients-top-5-questions-all-us-research-program

Collection: All of Us Research Program web archive

Description: News article, titled " Answers to patients' top 5 questions on All of Us Research Program," answering what precision medicine is, who can participate in the research program, whether patients will need to change physicians, what happens if a patient is diagnosed with an illness, and what security measures are in place.

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Subject:   Public Response

Title: All of Us research program celebrates four years at Emory, releases first genomic dataset

URL: https://news.emory.edu/stories/2022/05/hs_all_of_us_genomic_dataset_09-05-2022/story.html

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us research program celebrates four years at Emory, releases first genomic dataset," detailing the All of Us Research Program and giving an update to the Program. The article gave a brief description on how Emory aided with the program, but mainly focused on the project overall. The diversity of the project and how researchers are able to access data from the program is mentioned.

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Subject:   Engagement

Title: All of Us program makes stops in Boulder County to build diverse health database

URL: https://www.dailycamera.com/2022/08/09/all-of-us-program-makes-stops-in-boulder-county-to-build-diverse-health-database/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us program makes stops in Boulder County to build diverse health database," detailing the All of Us's mobile exhibit stopping in Boulder Colorado.

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Subject:   Engagement

Title: All of Us Researchers Study Disparities in Fitness Tracker Usage

URL: https://www.hcinnovationgroup.com/clinical-it/learning-health-systems-research/news/21265466/all-of-us-researchers-study-disparities-in-fitness-tracker-usage/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Researchers Study Disparities in Fitness Tracker Usage," detailing how issues in using the fitness trackers for the All of Us Research Program have occurred. Some of the issues stem from lack of knowledge from users while others stem from lack of upkeep by the program sponsors.

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Subject:   Ethics and Data Management

Title: All of Us Research Program | The University of Arizona College of Medicine – Phoenix

URL: https://phoenixmed.arizona.edu/about/news/all-us-research-program/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program," detailing the University of Arizona's involvement with the All of Us Research Program, including the initial endowment from NIH. Information about the research program and individuals from the university involved with the program can be found within the article as well.

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Subject:   Engagement

Title: All of Us Research Program launches COVID-19 research initiatives

URL: https://www.essentiahealth.org/about/media-article-library/2020/all-of-us-research-program-launches-covid-19-research-initiative/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program launches COVID-19 research initiatives," detailing the different COVID-19 resources the All of Us program, including antibody testing, the COPE Survey, and access to electronic records.

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Subject:   COVID-19

Title: All of Us Research Program Seeks Input on Environmental Health Data

URL: https://allofus.nih.gov/news-events/announcements/all-us-research-program-seeks-input-environmental-health-data/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program Seeks Input on Environmental Health Data," discussing the All of Us Research Program's request for information (RFI) on integrating environmental health data into the project. The article mentions the Researcher's Workbench and how the goal is to add more data to one of the largest datasets of its kind.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program Marks Third Anniversary with Remarkable Progress in Recruitment - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-research-program-marks-third-anniversary-with-remarkable-progress-in-recruitment/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program Marks Third Anniversary with Remarkable Progress in Recruitment," detailing the All of Us program at the University of Miami after three years of operation, how to enroll, and what the program has achieved and plans to achieve.

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Subject:   Engagement

Title: All of Us Research Program Gears Up for An Interactive Experience - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-gears-up-for-an-interactive-experience/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program Gears Up for An Interactive Experience," that gives an update on the All of Us program at the University of Miami. The update includes new data results participants are able to receive from the All of Us program.

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Subject:   Engagement

Title: Access to wearables could become a social determinant of health, researchers warn | Healthcare IT News

URL: https://www.healthcareitnews.com/news/access-wearables-could-become-social-determinant-health-researchers-warn/

Collection: All of Us Research Program web archive

Description: News article, titled "Access to wearables could become a social determinant of health, researchers warn," detailing how fitness trackers/wearables have caused some issues with data collection due to lack of knowledge from users and lack of upkeep by the program sponsors.

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Subject:   Ethics and Data Management

Title: A biomedical research program in Lex this week focuses on those underrepresented among 'All of Us'

URL: https://www.wuky.org/local-regional-news/2022-05-11/a-biomedical-research-program-in-lex-this-week-focuses-on-those-underrepresented-among-all-of-us/

Collection: All of Us Research Program web archive

Description: News article, titled "A biomedical research program in Lex this week focuses on those underrepresented among 'All of Us'," that mentions the All of Us Research Traveling Exhibition coming to Transy University. The article also mentions how the All of Us Research Program is diverse and that most research programs, historically, were not as diverse.

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Subject:   Participant Recruitment

Title: A Geneticist’s Dilemma

URL: https://www.washingtonpost.com/magazine/2020/11/23/many-scientists-believe-that-dna-holds-cure-disease-that-poses-problem-some-native-americans/

Collection: All of Us Research Program web archive

Description: News article, titled "A Geneticist’s Dilemma," detailing the Navajo's moratorium on genetic research due to religious reasons, the All of Us Research Program's attempts to recruit Native Americans, and a previous study where permission to use Native American data was not granted.

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Subject:   Public Response

Title: 7 ways to expand diversity in precision medicine research | American Medical Association

URL: https://www.ama-assn.org/delivering-care/precision-medicine/7-ways-expand-diversity-precision-medicine-research/

Collection: All of Us Research Program web archive

Description: News article, titled "7 ways to expand diversity in precision medicine research," detailing various ways programs can add diversity into their precision medicine program. The article claims that programs need to include communities and build trust with them in order to improve diversity.

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Subject:   Engagement

Title: 10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study

URL: https://xtalks.com/10000-fitbits-will-be-distributed-as-part-of-an-nih-funded-heath-study/

Collection: All of Us Research Program web archive

Description: News article, titled "10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study," detailing the distribution of Fitbits and how the Fitbits would aid the All of Us Research program.

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Subject:   Ethics and Data Management

Title: 'All of Us' research program tops 1,300 participants at Emory, continues enrollment

URL: https://news.emory.edu/stories/2019/02/all_of_us_update/index.html

Collection: All of Us Research Program web archive

Description: News article, titled "'All of Us' research program tops 1,300 participants at Emory, continues enrollment," detailing the enrollment rate of the All of Us program at Emory University, who is eligible to enroll, what faculty are involved, what the program is, and what the program plans to accomplish.

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Subject:   Engagement

Title: "All of Us” Aims to Expand Tribal Engagement for Precision Medicine

URL: https://healthitanalytics.com/news/all-of-us-aims-to-expand-tribal-engagement-for-precision-medicine/

Collection: All of Us Research Program web archive

Description: News article, titled "“All of Us” Aims to Expand Tribal Engagement for Precision Medicine," discussing the All of Us Research Program's desire to include Native communities. The article details how the program will handle any data submitted by Native populations before a Tribunal meeting between the program and Tribal Governments is held, along with what precautions the program will include to safegaurd any data submitted.

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Subject:   Engagement

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