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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data Audit (A-18-17-09304) 06-10-2019

URL: https://oig.hhs.gov/oas/reports/region18/181709304.asp

Collection: All of Us Research Program web archive

Description: Report, titled "The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data," from the Office of Inspector General detailing their audit of the All of Us Research Program. A link to the full report is provided at the top and the page gives a basic overview of why OIG conducted the audit and what OIG found.

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Subject:   Ethics and Data Management

Title: Considerations for Meaningful Collaboration with Tribal Populations

URL: https://allofus.nih.gov/sites/default/files/tribal_collab_work_group_rept.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Considerations for Meaningful Collaboration with Tribal Populations," which details The Tribal Collaboration Working Group Report to the All of Us Research Program Advisory Panel. The document details the health systems of Native Tribes, the purpose of the working group in trying to include Native Peoples in the All of Us Research Program, and what the inclusivity would entail.

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Subject:   Ethics and Data Management

Title: Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance

URL: https://reporter.nih.gov/search/fNCDOd_3f0CbzjOUR4eqUg/project-details/10320454/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance.

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Subject:   Ethics and Data Management

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