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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: “Research Matters: Creating Possibilities to Achieve Health and Wellness for All of Us” — Delta Foundation: African American/Black Women Research - Education, Economics, Health

URL: https://www.deltafoundation.net/research-education/all-of-us-research-program-nih/

Collection: All of Us Research Program web archive

Description: Webpage, titled “Research Matters: Creating Possibilities to Achieve Health and Wellness for All of Us," that details the partnership between DREF (Delta Research and Educational Foundation) and All of Us. The page also details where to follow DREF on Social media.

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Subject:   Participant Recruitment

Title: goangie Instagram Video #4

URL: https://www.instagram.com/tv/CLNMxf6jAGk/

Collection: All of Us Research Program web archive

Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features an interview with Tanya about "spit-kits". The video and post is sponsored by the All of Us Research Program.

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Subject:   Engagement

Title: goangie Instagram Video #3

URL: https://www.instagram.com/tv/CK7dLNqDBf-/

Collection: All of Us Research Program web archive

Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features an interview with Shana from the Black Women's Health Imperative. The video and post is sponsored by the All of Us Research Program.

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Subject:   Engagement

Title: goangie All of Us Video #2

URL: https://www.instagram.com/tv/CK3xSSmDR8S/

Collection: All of Us Research Program web archive

Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features a second interview with Julia More Vogel, Director of the All of Us Research Program. The video and post is sponsored by the All of Us Research Program.

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Subject:   Engagement

Title: goangie All of Us Video #1

URL: https://www.instagram.com/tv/CKXDB6dDHJH/

Collection: All of Us Research Program web archive

Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features an interview with Julia More Vogel, Director of the All of Us Research Program. The video and post is sponsored by the All of Us Research Program.

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Subject:   Engagement

Title: Your electronic health record (EHR): The facts

URL: https://allofus.nih.gov/sites/default/files/AoU_electronic_health_record_Eng.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Your electronic health record (EHR): The facts," detailing what an electronic health record is, why it is important, how the All of Us Research Program will keep the data safe, and why people should join the program.

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Subject:   Engagement

Title: Work at Vanderbilt University Medical Center

URL: https://vanderbilt.taleo.net/careersection/.vu_cs/jobdetail.ftl?job=2204159&lang=en&sns_id=mailto

Collection: All of Us Research Program web archive

Description: Website, titled "Work at Vanderbilt University Medical Center," detailing a position for a Python Application Developer to work on creating a database and API for the All of Us Data and Research Center at Vanderbilt University.

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Subject:   General Sources

Title: Wondros Senior Design Researcher (Bilingual), NIH All of Us Research Program Job in Remote | Glassdoor

URL: https://www.glassdoor.com/job-listing/senior-design-researcher-qualitative-nih-all-of-us-research-program-wondros-JV_KO0,67_KE68,75.htm?jl=1007838129327

Collection: All of Us Research Program web archive

Description: Website, titled "Glassdoor -Senior Design Researcher (Bilingual), NIH All of Us Research Program," listing a remote position as a Senior Design Research for the All of Us Research Program. Information on the project, the position, and the company recruiting for the position is available on the page.

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Subject:   General Sources

Title: Wisconsin | Join All of Us

URL: https://www.joinallofus.org/wisconsin/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Wisconsin," detailing the All of Us Research Program in Wisconsin, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Will Personalized Diets Treat and Prevent Chronic Disease?

URL: https://www.pbrc.edu/news/media/2022/nutrition-for-precision-health.aspx

Collection: All of Us Research Program web archive

Description: News article, titled "Will Personalized Diets Treat and Prevent Chronic Disease?," detailing the Nutrition for Precision Health, powered by the All of Us Research Program. The program is meant to be a step towards precision nutrition with the idea that this will in turn benefit precision medicine. The article delves into how the program will work and how it is funded by the NIH Common Fund.

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Subject:   Research Projects Using Collected Data

Title: Why Does the All of Us Research Program Want samples?

URL: https://www.youtube.com/watch?v=cUpk5LXEIgk&list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV/

Collection: All of Us Research Program web archive

Description: Video recording, titled "Why Does the All of Us Research Program Want samples?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses what how bio samples from participants can help the All of Us Research Program.

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Subject:   Engagement

Title: Why Does the All of Us Research Program Want Physical Measurements?

URL: https://www.youtube.com/watch?v=Yz_GU1-Q_fk&list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV/

Collection: All of Us Research Program web archive

Description: Video recording, titled "Why Does the All of Us Research Program Want Physical Measurements?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program wants information such as height and weight.

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Subject:   Engagement

Title: Who Can Join? | Join All of Us

URL: https://www.joinallofus.org/who-can-join/

Collection: All of Us Research Program web archive

Description: Website, titled "Who Can Join?" describing who can participate in the All of Us Research Program.

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Subject:   General Sources

Title: What should I know about using my Fitbit device with the All of Us Research Program?

URL: https://help.fitbit.com/articles/en_US/Help_article/2427.htm

Collection: All of Us Research Program web archive

Description: The official Fitbit website with information related to using a Fitbit for the All of Us Research Program titled "What should I know about using my Fitbit device with the All of Us Research Program?"

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Subject:   Ethics and Data Management

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_general_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_africanam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_asianam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_hispanic_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_Gradient_GeneralBrochure.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is a general brochure with information on the All of Us Research Program. The brochure answers frequently asked questions along with general questions about the program.

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Subject:   Engagement

Title: What Participants Share | Join All of Us

URL: https://www.joinallofus.org/what-participants-share/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Share," detailing instructions on getting started with the All of Us Research Program, what the program requires from participants, and what they can expect to receive once their samples have been processed.

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Subject:   General Sources

Title: What Participants Receive | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Receive," describing what participants will learn from donating their data, including but not limited to information about ones DNA, monetary compensation, and other future benefits.

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Subject:   General Sources

Title: What Is Health Research?

URL: https://www.youtube.com/watch?v=ClhB5X1uU-A&list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV/

Collection: All of Us Research Program web archive

Description: Video recording, titled "What Is Health Research?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses how health research has been beneficial and how giving information to the All of Us Research Program can aid health research.

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Subject:   Engagement

Title: We’re calling on one million people to lead the way toward better health.

URL: https://allofus.nih.gov/sites/default/files/all_of_us_program_faq_one_pager.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "We’re calling on one million people to lead the way toward better health." This is a general informative sheet or flyer for the All of Us Research Program. It answers general questions about the program and what precision medicine is.

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Subject:   Engagement

Title: Welcome to the All of Us Research Program

URL: https://www.youtube.com/watch?v=QH_PBf8qjH4&list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV&index=2/

Collection: All of Us Research Program web archive

Description: Video recording, titled "Welcome to the All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video welcomes participants to the program and claims that the future of health starts with the viewer.

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Subject:   Engagement

Title: Wearables are too expensive for groups underrepresented in medical research - The Verge

URL: https://www.theverge.com/2022/4/26/23042928/wearables-health-data-research-expense-nih/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearables are too expensive for groups underrepresented in medical research," detailing how a study found the majority of individuals using wearables are wealthy and/or Caucasian. The article relates the involvement of the All of Us Research Program in the study and how the main reason why minority participants did not use wearables was due to costs and lack of knowledge.

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Subject:   Ethics and Data Management

Title: Wearable device data need to represent all of us - STAT

URL: https://www.statnews.com/2022/04/25/wearable-device-data-need-to-represent-all-of-us/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearable device data need to represent all of us," that discusses the use of wearable devices in the All of Us Research Program. **ARTICLE BEHIND A PAYWALL**

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Subject:   Ethics and Data Management

Title: Waianae Coast Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/waianae/

Collection: All of Us Research Program web archive

Description: Website, titled "Waianae Coast Comprehensive Health Center," detailing the Waianae Coast Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Waianae Coast Comprehensive Health Center.

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Subject:   General Sources

Title: Viruses & Vaccines

URL: https://virusinfo.joinallofus.org/

Collection: All of Us Research Program web archive

Description: Official All of Us Research Program website, titled "Viruses & Vaccines," detailing various viruses and vaccines. The page relates the biology of viruses and how to stop the spread of them.

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Subject:   COVID-19

Title: Virtual Health Programs | All of Us

URL: https://allofus.nnlm.gov/vhp/

Collection: All of Us Research Program web archive

Description: Website, titled "Virtual Health Programs," that lists upcoming and previous virtual events organized by NNLM. These events are created and distributed to inform individuals about health information.

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Subject:   Engagement

Title: Vibrent Health to Launch Integrated Platform for Ancillary Studies in Large-Cohort Digital Health Research - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-to-launch-integrated-platform-for-ancillary-studies-in-large-cohort-digital-health-research/

Collection: All of Us Research Program web archive

Description: Press release, titled "Vibrant Health to Launch Integrated Platform for Ancillary Studies in Large-Cohort Digital Health Research," detailing Vibrant Health's database and its use in NIH's All of Us Research Program. The Press release also gives a brief introduction to the company.

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Subject:   Ethics and Data Management

Title: Vibrent Health powers NIH precision nutrition research project to accelerate discoveries in food and dietary patterns - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-powers-nih-precision-nutrition-research-project-to-accelerate-discoveries-in-food-and-dietary-patterns-2/

Collection: All of Us Research Program web archive

Description: Press release, titled "Vibrant Health powers NIH precision nutrition research project to accelerate discoveries in food and dietary patterns," announcing Vibrant Health's involvement with the All of Us Program's dietary health component. This component of the All of Us program is meant to create precision nutrition for individuals. The Press release details how Vibrant Health's involvement will aid the All of Us Research Program with their data collection and engagement platform.

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Subject:   Research Projects Using Collected Data

Title: Vibrent Health creates participant advisory board to advocate for participant experience, diversity and accessibility, supporting NIH’s All of Us research program - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-creates-participant-advisory-board-to-advocate-for-participant-experience-diversity-and-accessibility-supporting-nihs-all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: Press release, titled "Vibrant Health creates participant advisory board to advocate for participant experience, diversity and accessibility, supporting NIH’s All of Us research program," detailing the Participant Advisory Board in how it will help participants of the All of Us Research Program and who the member of the Participant Advisory Board are.

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Subject:   Ethics and Data Management

Title: VCU Wright Center for Clinical and Translational Research | Join All of Us

URL: https://www.joinallofus.org/vcu-wright-center-for-clinical-and-translational-research/

Collection: All of Us Research Program web archive

Description: Website, titled "VCU Wright Center for Clinical and Translational Research," detailing the VCU Wright Center for Clinical and Translational Research, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the VCU Wright Center for Clinical and Translational Research.

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Subject:   General Sources

Title: User Support Hub

URL: https://www.youtube.com/embed/Ni4PEJVbmSk/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "User Support Hub," explaining how to use the user support hub and other resources available to aid researchers in using the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: University of Arizona and Banner Health | Join All of Us

URL: https://www.joinallofus.org/university-of-arizona-and-banner-health/

Collection: All of Us Research Program web archive

Description: Website, titled "University of Arizona and Banner Health," detailing University of Arizona and Banner Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via University of Arizona and Banner Health.

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Subject:   General Sources

Title: University of Arizona - Banner Health Precision Medicine Initiative Cohort Enrollment Center

URL: https://reporter.nih.gov/project-details/9525183/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the University of Arizona - Banner Health Precision Medicine Initiative Cohort Enrollment Center.

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Subject:   Research Projects Using Collected Data

Title: United Health Group - Medical Research Assistant – Reliant Medical Group

URL: https://careers.unitedhealthgroup.com/job/15518081/

Collection: All of Us Research Program web archive

Description: Website, titled "United Health Group - Medical Research Assistant – Reliant Medical Group," detailing a position for a Medical Research Assistant in Worcester, Massachusetts. Information on the position and the hiring company are provided on the page.

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Subject:   General Sources

Title: UC Davis Health: A Member of All of Us California

URL: https://allofus.ucdavis.edu/en/allofusUCDavis/

Collection: All of Us Research Program web archive

Description: Website, titled "UC Davis Health: A Member of All of Us California," of the All of Us partner in California, University of California Davis Health. The site details important information for individuals looking to join the All of Us program in California. Information found on the page includes: locations, team members, events, contact information, and how to get started.

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Subject:   Participant Recruitment

Title: U.S. Department of Veterans Affairs

URL: https://www.joinallofus.org/va/

Collection: All of Us Research Program web archive

Description: Website, titled "U.S. Department of Veterans Affairs," detailing the U.S. Department of Veterans Affairs, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the U.S. Department of Veterans Affairs.

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Subject:   General Sources

Title: Two PAs Use Genetics and Precision Medicine to Provide Answers and Develop Plans for Patients - AAPA

URL: https://www.aapa.org/news-central/2021/12/two-pas-use-genetics-and-precision-medicine-to-provide-answers-and-develop-plans-for-patients/

Collection: All of Us Research Program web archive

Description: News article, titled "Two PAs Use Genetics and Precision Medicine to Provide Answers and Develop Plans for Patients," detailing how the All of Us program has impacted how PAs work with their patients.

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Subject:   Participant Recruitment

Title: Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel

URL: https://allofus.nih.gov/about/who-we-are/all-us-research-program-advisory-panel/tribal-collaboration-working-group/

Collection: All of Us Research Program web archive

Description: Website, titled "Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel," detailing the purpose of the Tribal Collaboration Working Group, its deliverables, and roster.

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Subject:   Engagement

Title: Trans-America Consortium of the Health Care Systems Research Network for the Precision Medicine Initiative Cohort Program

URL: https://reporter.nih.gov/project-details/9453744/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Trans-America Consortium of the Health Care Systems Research Network for the Precision Medicine Initiative Cohort Program.

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Subject:   Research Projects Using Collected Data

Title: Trans America Consortium | Join All of Us

URL: https://www.joinallofus.org/trans-america-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Trans America Consortium," detailing the Trans American Consortium that includes health care systems in Idaho, Massachusetts, Michigan, Minnesota, North Dakota, Texas, and Wisconsin that are participating in the All of Us Research Program. Information on how to join and frequently asked questions are also located on the page.

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Subject:   General Sources

Title: Traffic Box AR Experience Video

URL: https://vimeo.com/661292887/ec8d1c095b/

Collection: All of Us Research Program web archive

Description: Video, titled "Traffic Box AR Experience Video," depicting the All of Us Research Program's Traffic Box Community Connector project that called on artists to help design 17 traffic boxes in Seattle. Scanning QR codes found on the traffic boxes would send individuals to an augmented reality (AR) that helped them learn about their health.

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Subject:   Participant Recruitment

Title: Todos Juntos: All of Us Research Program

URL: https://reporter.nih.gov/project-details/9507479/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Todos Juntos: All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine

URL: https://www.scripps.edu/news-and-events/press-room/2021/20210224-aou-fitbit-study.html

Collection: All of Us Research Program web archive

Description: Press release, titled "Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine," detailing the use of Fitbit devices within the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Thirst for Knowledge and Data Drives Army Veteran to All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/thirst-knowledge-and-data-drives-army-veteran-all-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Thirst for Knowledge and Data Drives Army Veteran to All of Us," that includes an interview/ overview of Keisha Bellamy, a nurse for the All of Us Research Program and a veteran. The interview mentions Bellamy's life story, her experiences in the military, and her involvement in the All of Us research Program.

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Subject:   General Sources

Title: The University of Texas Health Science Center at Tyler | Join All of Us

URL: https://www.joinallofus.org/the-university-of-texas-health-science-center-at-tyler/

Collection: All of Us Research Program web archive

Description: Website, titled "The University of Texas at Tyler Health Science Center," detailing The University of Texas at Tyler Health Science Center, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via The University of Texas at Tyler Health Science Center.

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Subject:   General Sources

Title: The Participant Center | Join All of Us

URL: https://www.joinallofus.org/the-participant-center/

Collection: All of Us Research Program web archive

Description: Website, titled "The Participant Center," listing partners that the All of Us Research Program works with if participants are not able to access the program through a health care provider in their area.

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Subject:   General Sources

Title: The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data Audit (A-18-17-09304) 06-10-2019

URL: https://oig.hhs.gov/oas/reports/region18/181709304.asp

Collection: All of Us Research Program web archive

Description: Report, titled "The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data," from the Office of Inspector General detailing their audit of the All of Us Research Program. A link to the full report is provided at the top and the page gives a basic overview of why OIG conducted the audit and what OIG found.

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Subject:   Ethics and Data Management

Title: The NIH Launches Its Ambitious Million-Person Genetic Survey | WIRED

URL: https://www.wired.com/story/all-of-us-launches/

Collection: All of Us Research Program web archive

Description: News article, titled "The NIH Launches Its Ambitious Million-Person Genetic Survey," from Wired detailing the launch of the All of Us Research Program. The article calls into question the use of genetic data and how in an age of privacy, one could feel vulnerable donating their genetic data. the article also relays more information on the All of Us Research Program itself.

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Subject:   Public Response

Title: The Broad-LMM-Color Genome Center for All of Us

URL: https://reporter.nih.gov/project-details/9744213/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for The Broad-LMM-Color Genome Center for All of Us.

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Subject:   Research Projects Using Collected Data

Title: The Baylor-Hopkins Clinical Genomics Center for All of Us

URL: https://reporter.nih.gov/project-details/9744232/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for The Baylor-Hopkins Clinical Genomics Center for All of Us.

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Subject:   Research Projects Using Collected Data

Title: The All of Us Research Project has officially launched

URL: https://launch.joinallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page is where individuals sign up to join the program.

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Subject:   Participant Recruitment

Title: The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting - YouTube

URL: https://www.youtube.com/watch?v=GDx42mxyAy4/

Collection: All of Us Research Program web archive

Description: Video, titled "The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting," hosted by the U.S. Department of Health and Human Services and Augusta University. The hour long video details the program's core values, the building blocks of the program, the growing network of healthcare provider organizations, the program's approach to gaining diversity, the participant portal, the program's Electronic Health Record, smart phone apps being developed for the program, and the program's data security and privacy.

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Subject:   Ethics and Data Management

Title: The All of Us Research Program Webinar

URL: https://us02web.zoom.us/rec/play/AlKJQ5uwDpYEdEy4ZoI2J8aGPbDCfw2APX17mCvt6Xur0Ewansqe9blzJ6sOTbOFsQL72VBKMBpWQKF3.UBdgkjKrnhPVMKTa?continueMode=true&_x_zm_rtaid=PwdaHsMdS02D_hMBbaMyjQ.1642195816352.0f3fab3ec3feb1bf40e455f7405c8233&_x_zm_rhtaid=549/

Collection: All of Us Research Program web archive

Description: Video recording of the American Academy of HIV Medicine's All of Us Webinar from February 2021.

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Subject:   Engagement

Title: The All of Us Research Program Launches National Research Database in Partnership with the Miller School - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-study-at-miller-school-launches-national-research-database/

Collection: All of Us Research Program web archive

Description: News article, title "The All of Us Research Program Launches National Research Database in Partnership with the Miller School," detailing the All of Us research Program at the University on Miami, including specific faculty attached to the program. How to get involved with the program either as a participant or a researcher is also mentioned in the article.

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Subject:   Ethics and Data Management

Title: The All of Us Research Program - Milwaukee Courier Weekly Newspaper

URL: https://milwaukeecourieronline.com/index.php/2022/05/06/the-all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: News article, titled "The All of Us Research Program," describing a medical health conference panel led by the All of Us Research Program in Wisconsin.

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Subject:   Public Response

Title: Technology to Empower Changes in Health (TECH) Network Participant Technologies Center

URL: https://reporter.nih.gov/project-details/9355302/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Technology to Empower Changes in Health (TECH) Network Participant Technologies Center.

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Subject:   Research Projects Using Collected Data

Title: Technology considerations to promote inclusion, equity and diversity in clinical research - MedCity News

URL: https://medcitynews.com/2022/04/technology-considerations-to-promote-inclusion-equity-and-diversity-in-clinical-research/

Collection: All of Us Research Program web archive

Description: News article, titled "Technology considerations to promote inclusion, equity and diversity in clinical research," discussing how the pandemic and technology have impacted research programs. This includes having a wider demographic and research area due to technological advancements and the increase in technology use among minorities. The All of Us Research Program is mentioned in that the program has pointed out how lack of inclusion has caused disparities in medicine.

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Subject:   COVID-19

Title: Team Scientist in Rockville, Maryland, United States

URL: https://careers.leidos.com/jobs/9727597-team-scientist/

Collection: All of Us Research Program web archive

Description: Website, titled "Leidos - Team Scientist," detailing a Team Scientist position in Rockville, Maryland. Qualifications, benefits, job description, and information about Leidos is provided on the page.

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Subject:   General Sources

Title: Sun River Health | Join All of Us

URL: https://www.joinallofus.org/sun-river-health/

Collection: All of Us Research Program web archive

Description: Website, titled "Sun River Health," detailing Sun River Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Sun River Health.

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Subject:   General Sources

Title: Su registro electrónico de salud

URL: https://allofus.nih.gov/sites/default/files/AoU_electronic_health_record_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Su registro electrónico de salud," detailing what an electronic health record is, why it is important, how the All of Us Research Program will keep the data safe, and why people should join the program.

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Subject:   Engagement

Title: Study would like your DNA | wwltv.com

URL: https://www.wwltv.com/video/news/health/study-would-like-your-dna/289-f7344a06-7092-4c32-8f43-3a602490214f/

Collection: All of Us Research Program web archive

Description: News video, titled "Study would like your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience.

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Subject:   Engagement

Title: StoryCorps D.I.Y.: All Our Voices

URL: https://diy.storycorps.org/courses/storycorps-diy-all-our-voices/

Collection: All of Us Research Program web archive

Description: Website, titled "StoryCorps D.I.Y.: All Our Voices," that allows libraries and organizations to promote discussing health by creating a virtual community where individuals share their stories and discussions.

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Subject:   Engagement

Title: StoryCorps Archive: All Our Voices

URL: https://archive.storycorps.org/communities/all-our-voices/

Collection: All of Us Research Program web archive

Description: Website, titled "StoryCorps Archive: All Our Voices," hosted by StoryCorps where individuals could upload their interviews about the All of Us Research Program.

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Subject:   Engagement

Title: Stevens Institute of Technology: Stevens Professor Leverages Power of Artificial Intelligence to Make Sense of Medical Data with the Goal to Improve Human Health – India Education | Latest Education News | Global Educational News | Recent Educational News

URL: https://indiaeducationdiary.in/stevens-institute-of-technology-stevens-professor-leverages-power-of-artificial-intelligence-to-make-sense-of-medical-data-with-the-goal-to-improve-human-health-%E2%80%AF/

Collection: All of Us Research Program web archive

Description: News article, titled "Stevens Institute Of Technology: Stevens Professor Leverages Power Of Artificial Intelligence To Make Sense Of Medical Data With The Goal To Improve Human Health," discussing Samantha Kleinberg's research on blood glucose levels and her work with Nutrition for Precision Health, powered by the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Statement on Data Security from the All of Us Research Program | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/statement-data-security-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Press release, titled "Statement on Data Security from the All of Us Research Program," detailing a security audit performed on the Research Program and the Program's response to the security audit.

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Subject:   Ethics and Data Management

Title: Stanford researchers to improve LGBTQ+ health and representation

URL: https://scopeblog.stanford.edu/2021/09/09/stanford-researchers-to-improve-lgbtq-health-and-representation/

Collection: All of Us Research Program web archive

Description: Blog post, titled "Stanford researchers to improve LGBTQ+ health and representation," detailing the All of Us Research Program, the program's inclusivity for LGBTQ+ individuals, and how the NIH granted funding to two researchers for LGBTQ+ research.

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Subject:   Research Projects Using Collected Data

Title: Stanford University School of Medicine | Join All of Us

URL: https://www.joinallofus.org/stanford-university-school-of-medicine/

Collection: All of Us Research Program web archive

Description: Website, titled "Stanford University School of Medicine," detailing the Stanford University School of Medicine's partnership with the All of Us Research Program including how to join, frequently asked questions, and researcher resources.

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Subject:   General Sources

Title: Spotlights

URL: https://www.researchallofus.org/spotlight/

Collection: All of Us Research Program web archive

Description: Website, titled "Spotlights," that links out to articles related to the All of Us Research Program. The articles are tagged as "Participant Data in Action," "Survey Insights," or "Meet the Researchers."

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Subject:   Research Projects Using Collected Data

Title: Southern | Join All of Us

URL: https://www.joinallofus.org/southern/

Collection: All of Us Research Program web archive

Description: Website, titled "Southern All of Us Network," detailing the Southern All of Us Network that includes health care systems in Alabama, Louisiana, and Mississippi that are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Southern All of Us Network

URL: https://reporter.nih.gov/project-details/9512022/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Southern All of Us Network.

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Subject:   Research Projects Using Collected Data

Title: Southeast | Join All of Us

URL: https://www.joinallofus.org/southeast/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us South East Enrollment Center," detailing the All of Us South East Enrollment Center that includes the University of Miami Miller School of Medicine, University of Florida College of Medicine, Emory University, and Morehouse School of Medicine which are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: SouthEast Enrollment Center (SEEC)

URL: https://reporter.nih.gov/project-details/9512092/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the South East Enrollment Center (SEEC).

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Subject:   Research Projects Using Collected Data

Title: Social determinants of health may help predict sepsis readmission | Healthcare IT News

URL: https://www.healthcareitnews.com/news/social-determinants-health-may-help-predict-sepsis-readmission/

Collection: All of Us Research Program web archive

Description: News report, titled "Social determinants of health may help predict sepsis readmission," detailing how Researchers from the University of California, San Diego found that factors such as lack of insurance, economic instability and poor transportation to obtain care were associated with a 30-day readmission. The study utilized a data set from the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Session 5: Women & the All of Us Research Program

URL: https://www.youtube.com/watch?v=GQ0APiX9R-M/

Collection: All of Us Research Program web archive

Description: Video, titled "Session 5: Women & the All of Us Research Program," from NHMA and the All of Us Research Program. The fourth session of NHMA's Fireside Chat Series that discusses the importance of diversity and inclusion in research and how researchers can utilize the All of Us Research Hub.

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Subject:   Engagement

Title: Session 4: Research & the All of Us Research Hub

URL: https://www.youtube.com/watch?v=AnXNLJgGCeA/

Collection: All of Us Research Program web archive

Description: Video, titled "Session 4: Research & the All of Us Research Hub," from NHMA and the All of Us Research Program. The fourth session of NHMA's Fireside Chat Series that discusses the importance of diversity and inclusion in research and how researchers can utilize the All of Us Research Hub.

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Subject:   Engagement

Title: Session 3: Older Adults & the All of Us Research Program

URL: https://www.youtube.com/watch?v=yXuZ6MEtlBw/

Collection: All of Us Research Program web archive

Description: Video, titled "Session 3: Older Adults & the All of Us Research Program," from NHMA and the All of Us Research Program. The third session of NHMA's Fireside Chat Series that discusses how the participation of older adults in clinical trials can impact the next generation.

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Subject:   Engagement

Title: Session 2: Enrolling Participants

URL: https://www.youtube.com/watch?v=A8mhNphRyYU/

Collection: All of Us Research Program web archive

Description: Video, titled "Session 2: Enrolling Participants," from NHMA and the All of Us Research Program. The second session of NHMA's Fireside Chat Series that discusses ways participants can enroll into the All of Us Research Program and the benefits of enrollment.

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Subject:   Engagement

Title: Session 1: Precision Medicine

URL: https://www.youtube.com/watch?v=aIF2qNKx3lc/

Collection: All of Us Research Program web archive

Description: Video, titled "Session 1: Precision Medicine," from NHMA and the All of Us Research Program. The first session of NHMA's Fireside Chat Series that discusses diversity in clinical trials and how the All of Us program can benefit the Hispanic/Latino community.

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Subject:   Engagement

Title: Science Wants Your Data | FiveThirtyEight

URL: https://fivethirtyeight.com/features/science-wants-your-data/

Collection: All of Us Research Program web archive

Description: News article, titled "Science Wants Your Data," detailing the All of Us program and some of the issues the program may encounter, such as finding enough participants, training researchers in utilizing data only on NIH servers, and security issues. The article concludes with specific questions the author feels participants should ask of the program.

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Subject:   Public Response

Title: Save the Date

URL: https://allofus.nih.gov/sites/default/files/save-the-date-aou-oklahoma-agendapdf.pdf

Collection: All of Us Research Program web archive

Description: PDF of a save the date for an All of Us Research Program Listening Session and some brief information about the session.

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Subject:   Participant Recruitment

Title: San Ysidro Health | Join All of Us

URL: https://www.joinallofus.org/san-ysidro-health/

Collection: All of Us Research Program web archive

Description: Website, titled "San Ysidro Health," detailing San Ysidro Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via San Ysidro Health.

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Subject:   General Sources

Title: Rush Leads Seven Appropriation Letters Requesting Funding for Priorities Including Women’s Heart Health, Energy and Environmental Justice, and Solving Civil Rights–Era Cold Cases | Congressman Bobby L. Rush | Representing the 1st District of Illinois

URL: https://rush.house.gov/media-center/press-releases/rush-leads-seven-appropriation-letters-requesting-funding-priorities/

Collection: All of Us Research Program web archive

Description: Press release, titled "Rush Leads Seven Appropriation Letters Requesting Funding for Priorities Including Women’s Heart Health, Energy and Environmental Justice, and Solving Civil Rights–Era Cold Cases," announcing the various programs Senator Rush planned to back for the 2023 fiscal year, which included fully funding the All of Us Research Program.

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Subject:   Engagement

Title: Returning value to research participants through digital health tools

URL: https://digitaltrials.scripps.edu/returning-value-to-research-participants-through-digital-health-tools/

Collection: All of Us Research Program web archive

Description: News article, titled "Returning value to research participants through digital health tools," detailing how to return value to research participants including via mobile health resources. The All of Us Research Program's app is mentioned in the article and a guide to using the app has been provided.

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Subject:   Ethics and Data Management

Title: Retention & Community Engagement Project Manager - All of Us Research Program - Job at Mass General Brigham in Cambridge, MA

URL: https://www.milwaukeejobs.com/job/detail/66642036/Retention-Community-Engagement-Project-Manager-All-of-Us-Research-Program/

Collection: All of Us Research Program web archive

Description: Website, titled "Milwaukee Jobs - Retention & Community Engagement Project Manager - All of Us Research Program," detailing a Retention & Community Engagement Project Manager position in Cambridge, Massachusetts. A general overview of the position, responsibilities, qualifications, and other important information about the job are provided.

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Subject:   General Sources

Title: Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities

URL: https://allofus.nih.gov/news-events/voices-all-us/billy-caceres-benchmarks-health-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities," that includes an interview/overview of Billy A. Caceres, a researcher for the All of Us Program. The interview delves into Caceres' life story, his research, and how his experiences have affected his research.

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Subject:   General Sources

Title: Research Roundup: Data Expansion Bolsters Trove of COVID-19 Data

URL: https://allofus.nih.gov/news-events/announcements/research-roundup-data-expansion-bolsters-trove-covid-19-data/

Collection: All of Us Research Program web archive

Description: News article, titled "Research Roundup: Data Expansion Bolsters Trove of COVID-19 Data," detailing the released COVID-19 dataset, which includes information about vaccines. Information about new file types and tools is also present in the article.

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Subject:   COVID-19

Title: Research Projects Directory – All of Us Research Hub

URL: https://www.researchallofus.org/research-projects-directory/

Collection: All of Us Research Program web archive

Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.

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Subject:   Research Projects Using Collected Data

Title: Research Program: Precision Medicine, All of Us, and the LGBTQ+ Community

URL: https://lgbtbrooklyn.org/all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: Press release, titled "Research Program: Precision Medicine, All of Us, and the LGBTQ+ Community," detailing the Brooklyn Community Pride Center's partnership with the All of Us Research Program, the program, and requesting the involvement of LGBTQ+ individuals.

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Subject:   Participant Recruitment

Title: Research Priorities Workshop

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2019/02/AoU%20Use%20Cases%20-%20508%20Compliant.pdf

Collection: All of Us Research Program web archive

Description: Case report, titled "Research Priorities Workshop," detailing 1110 use cases that are categorized by nine health conditions. Within these nine health conditions, the cases are further organized by seven themes.

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Subject:   Research Projects Using Collected Data

Title: Research Hub Updates

URL: https://www.researchallofus.org/research-hub-updates/

Collection: All of Us Research Program web archive

Description: Website, titled "Research Hub Updates," that links out to various newsletters and articles about the Research Hub, including the "Research Roundup."

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Subject:   General Sources

Title: Research Coordinator I at USC

URL: https://usccareers.usc.edu/job/los-angeles/research-coordinator-i/1209/29854102192/

Collection: All of Us Research Program web archive

Description: Website, titled "Careers at USC," detailing the position of Research Coordinator for the All of Us Research Program at the University of Southern California. Information on the position, benefits, and what it is like to work at USC are present on the site.

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Subject:   General Sources

Title: Represent LGBTQ+

URL: https://www.allofusaz.org/en/lgbtq/

Collection: All of Us Research Program web archive

Description: Website, titled "Represent LGBTQ+," detailing the All of Us Research Program and it's inclusivity with the LGBTQ+ community. The site hosts numerous testimonials, details why individuals should join, and how the project is different.

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Subject:   Engagement

Title: Rally | Help researchers study the link between social environments and health

URL: https://rally.massgeneralbrigham.org/study/allofus/

Collection: All of Us Research Program web archive

Description: Website, titled "Help researchers study the link between social environments and health," that promotes the All of Us Research Program at Mass General Brigham in Massachusetts. The site gives an overview of the All of Us program, explains what the program hopes to accomplish, how participates can help, what participants may need to do, and where they are located.

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Subject:   Participant Recruitment

Title: Rachel from 95.5 learns more about All of Us Research Program

URL: https://www.youtube.com/watch?v=M-ZfhSKnqSQ&list=PLeIzx72H9_22rERi5_tlqotP6nvho_RBV/

Collection: All of Us Research Program web archive

Description: Video recording, titled "Rachel from 95.5 learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video gives a brief detail of what the program is and when participants can expect results from the program.

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Subject:   Engagement

Title: r/AllOfUsResearch

URL: https://www.reddit.com/r/AllOfUsResearch/

Collection: All of Us Research Program web archive

Description: Website, titled "r/AllOfUsResearch," that is a community forum where participants in the All of Us Research Program can post thoughts, comments, discussion, and articles about the program.

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Subject:   Public Response

Title: Publication and Presentation Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Publication_and_Presentation_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.

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Subject:   Ethics and Data Management

Title: Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program

URL: https://www.ala.org/news/press-releases/2019/03/public-library-association-national-network-libraries-medicine-join/

Collection: All of Us Research Program web archive

Description: News Report, titled "Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program," announcing that the Public Library Association would be extending their partnership with the All of Us Research Program by supporting public libraries to increase health literacy, address health research inequities, and strengthen community partnerships with health advocates and providers.

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Subject:   General Sources

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