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Collection: All of Us Research Program web archive
Description: Video, titled "Session 3: Older Adults & the All of Us Research Program," from NHMA and the All of Us Research Program. The third session of NHMA's Fireside Chat Series that discusses how the participation of older adults in clinical trials can impact the next generation.
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Subject: Engagement
Creator: National Hispanic Medical Association
Language: English
Type: Social media
Date: 2020-12-10
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Citizen Science and Data Literacy with All of Us California," of a webinar hosted by SciStarter. This event featured speakers from All of Us California that presented on and answer questions about data literacy, especially as it relates to the All of Us Research program, as well as a speaker from SciStarter who shared about citizen science and data literacy.
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Subject: Ethics and Data Management
Creator: SciStarter, Ramirez, Andrea, Guo, Yuqing, Satre, Zara Susan, Nickerson, Caroline
Language: English
Type: Social media
Date: 2022-05-09
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "OHRP Research Community Forum," hosted by ECU Research and Katherine Blizinsksy. The thirty minute video discusses the All of Us Program and precision medicine.
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Subject: Engagement
Creator: East Carolina University, Blizinsksy, Katherine
Language: English
Type: Social media
Date: 2018-11-28
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Mike from 95.5 learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video gives a brief detail of what people can expect by joining the program and why the All of Us Research Program wants access to Electronic Health Records (EHR).
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Dr. Darrius from WJLB learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video details how the All of Us Research Program protects data provided by participants and how long the program is aiming to last.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "All Our Voices: Record you Story," detailing the All Our Voices program and gave some examples from the program.
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Subject: Participant Recruitment
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Support Seed
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Subject: Engagement
Creator: NBCUSA H.O.P.E., Minor, Michael O., Williams, Lovoria
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "All of Us Med Research | Cronkite News," giving a brief overview of the All of Us Research Program in Arizona and how the program affects the medical field due to its diversity. The news video interviews participant Victor Avila, asking him why he decided to join the program.
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Subject: Public Response
Creator: Cronkite News
Language: English
Type: Social media
Date: 2022-04-19
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Creating New Knowledge Through the All of Us Researcher Workbench to Redress Health Disparities," of a webinar hosted by the National Minority Quality Forum. Panelists on the webinar included three doctors, one of which was part of the All of Us team while the other two utilized data sets from the All of Us Research Program, and a representative from the National Minority Quality Forum. The webinar discusses the necessity of the All of Us Research Program.
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Subject: General Sources
Creator: National Minority Quality Forum, Watson, Karriem, Actkins, Ky'Era, Moore, Scott Emory, Wartman, Gretchen Clark
Language: English
Type: Social media
Date: 2022-05-11
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Dataset Builder & Concept Sets," explaining to researchers how to use some of the different features, including the dataset builder and concept sets features, on the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Researcher Workbench, National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want samples?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses what how bio samples from participants can help the All of Us Research Program.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "About All Our Voices," detailing the All Our Voices program and gave some examples from the program.
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Subject: Participant Recruitment
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 1: Precision Medicine," from NHMA and the All of Us Research Program. The first session of NHMA's Fireside Chat Series that discusses diversity in clinical trials and how the All of Us program can benefit the Hispanic/Latino community.
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Subject: Engagement
Creator: National Hispanic Medical Association
Language: English
Type: Social media
Date: 2020-07-30
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Research Program Enrollment Journey," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish, how to join the program, and what joining the program looks like.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "5/2019 NACNR - NIH All of Us Research Program/ Precision Medicine Initiative," of the National Advisory Council of Nursing Research meeting where Dr. Stephanie Devany gave an update on the All of Us Research Program.
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Subject: Public Response
Creator: National Institutes of Health (U.S.), National Institute of Nursing Research (U.S.)
Language: English
Type: Social media
Date: 2019-07-30
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want Physical Measurements?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program wants information such as height and weight.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Research Program Surveys" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program uses surveys to ask participants about their lifestyle.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Welcome to the All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video welcomes participants to the program and claims that the future of health starts with the viewer.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Notebooks & Code Snippets," explaining to researchers how to use some of the different features, including the notebooks and coding features, on the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Researcher Workbench, National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Introduction to the Researcher Workbench," detailing how to access and utilize the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Researcher Workbench, National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Rachel from 95.5 learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video gives a brief detail of what the program is and when participants can expect results from the program.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 5: Women & the All of Us Research Program," from NHMA and the All of Us Research Program. The fourth session of NHMA's Fireside Chat Series that discusses the importance of diversity and inclusion in research and how researchers can utilize the All of Us Research Hub.
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Subject: Engagement
Creator: National Hispanic Medical Association, Temkin, Sarah M., Crespo-Fierro, Michele, Correa, Nereida, Lopez, Ana Marie
Language: English
Type: Social media
Date: 2021-02-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting," hosted by the U.S. Department of Health and Human Services and Augusta University. The hour long video details the program's core values, the building blocks of the program, the growing network of healthcare provider organizations, the program's approach to gaining diversity, the participant portal, the program's Electronic Health Record, smart phone apps being developed for the program, and the program's data security and privacy.
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Subject: Ethics and Data Management
Creator: U.S. Department of Health and Human Services, Rutter, Joni
Language: English
Type: Social media
Date: 2017-08-29
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Hits the Road with Henry Pop-Ups," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish and how the program is keeping data secure. Henry, a bus used by the All of Us Research Program as a pop-up site, is shown throughout the video.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "What Is Health Research?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses how health research has been beneficial and how giving information to the All of Us Research Program can aid health research.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 4: Research & the All of Us Research Hub," from NHMA and the All of Us Research Program. The fourth session of NHMA's Fireside Chat Series that discusses the importance of diversity and inclusion in research and how researchers can utilize the All of Us Research Hub.
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Subject: Engagement
Creator: National Hispanic Medical Association, Wallin, Courtney, Roman, Adrienne, Simon, Melissa A., Lozano, Paula
Language: English
Type: Social media
Date: 2021-02-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 2: Enrolling Participants," from NHMA and the All of Us Research Program. The second session of NHMA's Fireside Chat Series that discusses ways participants can enroll into the All of Us Research Program and the benefits of enrollment.
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Subject: Engagement
Creator: National Hispanic Medical Association
Language: English
Type: Social media
Date: 2020-09-23
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Genomics and Medicine: The Impact of Individualized Medicine," endorsed by Patients Like Me and the All of Us Research Program that discusses why and how to use genomic data to create personalized approaches for patients.
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Subject: Engagement
Creator: Christine Von Raesfeld, PatientsLikeME
Language: English
Type: Social media
Date: 2022-01-14
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Destined to Be," detailing the story of friends Sabrina and Shantay and their experience with the birth of Sabrina's premature daughter.
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Subject: Participant Recruitment
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube playlist for the "All Our Voices" program. Videos on the playlist detail the program, how to join, and the benefit of joining.
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Subject: Engagement
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official All of Us YouTube playlist from Henry Ford Health. The twelve videos in the playlist answer various questions prospective participants may have about the program and include short interviews with different members of the health community.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page for the All of Us Program at Marshfield Clinic Research Institute. Videos from the channel discuss various topics, such as health issues that could be linked to DNA, mental health, etc.
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Subject: Engagement
Creator: Marshfield Clinic Research Institute
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "User Support Hub," explaining how to use the user support hub and other resources available to aid researchers in using the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Cohort Builder & Cohort Review," explaining to researchers how to use some of the different features, including the various cohort features, on the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official YouTube page for DREF that includes videos from All of Us events, news, and videos not related to All of Us, but related to DREF.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page for the All of Us Program at The University of Arizona. Videos from the channel are mainly promotional videos for the All of Us Research Program. Some videos are in English, while others are in Spanish to represent the Latinx communities in Arizona and the surrounding states.
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Subject: Engagement
Creator: University of Arizona-Banner Health, All of Us Research Program
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official All of Us Pennsylvania YouTube. The majority of videos involve Dr. Mylynda Massart answering various questions about the program. Other videos on the channel include more promotional videos for the program including testimonials.
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Subject: Engagement
Creator: University of Pittsburgh Clinical and Translational Science Institute
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page of the All of Us program that includes promotional videos, webinars, and other informational videos about the All of Us program.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Dore, Jimmy
Language: English
Type: Social media
Social Media Host: Trends Map
Collector: National Library of Medicine (U.S.)
Keyword: Social Dimensions
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: TikTok (Electronic resource)
Language: English
Type: Social media
Collector: National Library of Medicine (U.S.)
Keyword: Social Dimensions
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Benjamin, Hovey
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Social Dimensions, Prevention and Control/Risk Management
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: World Health Organization
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Social Dimensions, Prevention and Control/Risk Management
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Arena, Jazon
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Vaccines, Social Dimensions, Health Facilities, Patient Treatment and Experience, Vulnerable Populations, Pre-existing Medical Conditions
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Hoying, Scott, 1991-
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Scientists in the Public Eye/Scientific Advisors, Anthony Fauci, Social Dimensions
Collection: All of Us Research Program web archive
Description: Video posted on TikTok from user "peridothedgehog" detailing their experience with the All of Us Research Program and how they believe it will be beneficial. The video also mentions how the user discovered the All of Us Research Program.
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Subject: Public Response
Creator: peridothedgehog
Language: English
Type: Social media
Date: 2021-07-26
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: TikTok
Collector: National Library of Medicine (U.S.)
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Sioux, Nia, Fauci, Anthony S., 1940-
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Prevention and Control/Risk Management, Vaccines, Scientists in the Public Eye/Scientific Advisors, Misinformation
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Finney, Mia, Fauci, Anthony S., 1940-
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Prevention and Control/Risk Management, Vaccines, Scientists in the Public Eye/Scientific Advisors, Misinformation
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Matt and Abby, Fauci, Anthony S., 1940-
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Prevention and Control/Risk Management, Vaccines, Scientists in the Public Eye/Scientific Advisors
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: International Federation of Red Cross and Red Crescent Societies
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Social Dimensions
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Stevens, Ajay
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Social Dimensions
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Power, DeStorm
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Social Dimensions
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Blankenbiller, Megan Alexandra
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Patient Treatment and Experience, Personal Narratives, Vaccines
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Blankenbiller, Megan Alexandra
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Patient Treatment and Experience, Personal Narratives
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Blankenbiller, Megan Alexandra
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Patient Treatment and Experience, Personal Narratives, Vaccines, Prevention and Control/Risk Management, Social Dimensions
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Blankenbiller, Megan Alexandra
Language: English
Type: Social media
Social Media Host: TikTok (Electronic resource)
Collector: National Library of Medicine (U.S.)
Keyword: Patient Treatment and Experience, Health Policy Advocacy
Collection: Global Health Events web archive
Description: Topic page on Reddit centered on the Coronavirus, which includes posts by numerous users on current event stories associated with the worldwide COVID-19 outbreak. A majority of the posts center on the United States.
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Reddit (Firm)
Language: English
Type: Social media
Collector: National Library of Medicine (U.S.)
Keyword: Prevention and Control/Risk Management, Social Dimensions, Misinformation
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Measles infected 34,000 in Europe in two months, says WHO," by u/dont_read_usernames published on the r/worldnews subreddit on the Reddit website. The forum discusses a World Health Organization (WHO) report stating how many individuals have been infected with the measles virus in just two months throughout Europe due in large part to vaccine hesitancy.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Europe
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Germany's health minister proposes a $2,790 anti-vaxxer charge. The country's health minister also suggests banning unvaccinated children from daycares," by u/mepper published on the r/worldnews subreddit on the Reddit website. The forum discusses Germany's health policy proposals in the wake of a worldwide measles resurgence due in large part to vaccine hesitancy.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Germany
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Three babies infected with measles in The Netherlands, two were too young to be vaccinated, another should have been vaccinated but wasn't," published on the Reddit website by the user jessewender123. The post links to the related article.
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Creator: jessewender123
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Netherlands
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Page titled, "Anti-Vaccine movies disappear from Amazon after CNN Business report," by u/Arriveria published on the r/worldnews subreddit on the Reddit website on March 2, 2019. The forum links to an article published on CNN that describes Amazon's response to a report that highlighted the amount of anti-vaccination media available through Amazon and cited concerns that the company was promoting and distributing harmful content.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Page titled, "Japan suffers worst measles outbreak, 167 cases reported," by u/Za-yn posted to the r/worldnews subreddit on the Reddit website on February 21, 2019. The forum features an article published by World News Observer that discusses Japan's largest measles outbreak in ten years, and the authorities response to it. Users discussed why the outbreak is happening and the nature of vaccines.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Japan
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Father at the centre of measles outbreak didn't vaccinate children due to autism fears | CBC News," posted by u/AtotheZed on the r/worldnews subreddit on the Reddit website on February 18, 2019. The forum links to an article published on the CBC website featuring an interview with Emmanuel Bilodeau whose family is considered to be the cause of a measles outbreak in Vancouver, Canada. The Bilodeaus did not vaccinate their children due to concern over a link between vaccines and autism, which they now accept has been debunked. The post features users' comments on the perception of autism and the Anti-Vaccination Movement.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Canada
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Page titled, "Facebook is thinking about removing anti-vaccination content as backlash intensifies over the spread of misinformation on the social network," on the r/worldnews subreddit on the Reddit website. The forum features an article published by Business Insider that discusses Facebook's public statements regarding anti-vaccination rhetoric on the social media platform.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Page titled, "r/vaxxhappened," on the Reddit website. The page features a forum dedicated to conversations between anti-vaxxers and those who support vaccinations.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Opioid Epidemic web archive
Description: Post titled, "TIL that drug overdoses killed more Americans in one year than ten years of the Vietnam War," by Future Selection on the r/todayilearned forum on the Reddit Website. The page links to an article published on Penn Live that compares the number of opioid overdose deaths in 2017 with deaths from other diseases, suicides and wars. The page hosts Reddit users' comments about the article, and includes debates over drug regulation, reflections on opioid use in other places in the word as compared to the United States, conversations about the impact of this epidemic on chronic pain patients, and suggested causes of the opioid epidemic in America.
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Creator: FutureSelection
Language: English
Type: Social media
Collector: National Library of Medicine (U.S.)
Collection: Opioid Epidemic web archive
Description: Post titled, "Mega-rich family behind opioid crisis has second, secret opioid company," by ssszzzzzz on the "r/nottheonion" forum on the Reddit Website. The page links to an article published on Ars Technica that reports on the Sackler family's acquisition of a generic opioid company. The page hosts Reddit users' comments about the article, including those made by individuals undergoing Medication Assisted Therapy (MAT) for opioid addiction disorder.
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Creator: Reddit (Firm)
Language: English
Type: Social media
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Kentucky teen who sued over school ban for refusing chickenpox vaccination now has chickenpox," by u/ObserverOfReddit published on the r/news subreddit on the Reddit website on May 8, 2019. The forum discusses the chickenpox vaccine, religious objections and the effects of the virus.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Kentucky
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "GoFundMe Bans Anti-Vaxxers Who Raise Money to Spread Misinformation" and published on Reddit's website by the user randy88moss on March 23, 2019. Post links to article about Go Fund Me's ban on projects aimed at spreading false information about vaccines.
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Creator: randy88moss
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post links to article related to Italy banning unvaccinated children from schools. Originally posted by user Crankyoldhobo. Thread includes commentary from other users.
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Creator: Crankyoldhobo
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Italy
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Measles returned to Costa Rica after five years by French family who had not had vaccinations," by u/vatred posted to the r/news subreddit on the Reddit website on February 24, 2019. The forum features an article published by Independent that discusses the reintroduction of measles to Costa Rica by a foreign visitor. Users discussed the international spread of the disease, and the possibility of vaccination requirements prior to travel.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Costa Rica
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "The Netherlands is discussing possible fines for people who don't vaccinate their kids," posted by u/xxltnt on the r/news subreddit on the Reddit website on February 16, 2019. The forum links to an article published on the Nederlandse Omroep Stichting (NOS) that discusses policy proposals to encourage vaccination that are under consideration in the Netherlands. The post features users' comments on mandated vaccination.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: Netherlands
Collector: National Library of Medicine (U.S.)
Collection: Opioid Epidemic web archive
Description: Post titled, "Kaleo Pharmaceuticals raises its opioid overdose reversal drug price by 600%," by u/needmorechickennugs on the "r/news" forum on the Reddit Website. The page links to an article published on USA Today that reports on the findings of a US. Senate investigation into Kaleo Pharmaceuticals' decision to increase the cost of its opioid reversal drug in the face of the opioid crisis. The page hosts Reddit users' comments about the article, access to opioid reversal drugs, the effectiveness and side effects of different reversal drugs, health insurance, and more.
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Creator: Reddit (Firm)
Language: English
Type: Social media
Collector: National Library of Medicine (U.S.)
Collection: HIV/AIDS web archive
Description: Page on the social media Website, Reddit, featuring the forum, /r/hivaids. The "subreddit" was founded as a support community for HIV positive individuals but transitioned into a forum for discussion on everything related to HIV. The private "subreddit" /r/BeingPOZ now functions as a support community for those living with, or affected by HIV on Reddit.
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Creator: Reddit (Firm)
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Vaccine Mandates - The Association of American Physicians and Surgeons (AAPS) have made a statement against federal vaccine mandates, in the statement they have confirmed facts which many pro-vaxxers think are conspiracies" and links to the statement by the AAPS against federally mandated vaccines.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post links to article related to Amazon pulling books that spread vaccine misinformation and books arguing that vaccines and autism are linked.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Bioethics web archive
Description: Page on the Reddit website dedicated to the r/bioethics subreddit. The forum provides a platform for users to discuss bioethical questions, research and articles.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Bioethics web archive
Description: Post titled, "What is academic and professional landscape of Bioethics like?" by u/IronMaiden4892 published on the r/askphilosophy subreddit on the Reddit website on April 8, 2018. Commenters on the post discuss the market for bioethicists.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Page titled, "r/antivax" on the Reddit website. The page features a forum dedicated to discussion of scientific information about vaccines with the aim of informing those who are hesitant to vaccinate.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Page titled, "r/VACCINES," on the Reddit website. The page features a forum dedicated to the discussion of science and evidence-based, peer-reviewed, medical information on vaccines.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Reddit thread discussing NY's elimination of religious exemptions for vaccinations due to the measles outbreak
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Geographic Location: New York
Collector: National Library of Medicine (U.S.)
Collection: HIV/AIDS web archive
Description: Post titled, "Drugs that could signal the end of HIV and AIDS are here," by u/duchessofankh on the r/UplliftingNews forum on the Reddit Website featuring an article published by the Guardian on May 2, 2019. The article discusses the results of a long term study on individuals that had fully suppressed their HIV infection with antiretroviral drugs, which found that there was no chance of transmission to their partner. The study posits that this finding could signal the end of the spread of HIV and help to tackle the stigma and discrimination that HIV positive individuals face. Users on the forum reflect on the history of the disease and the trajectory of our understanding of the virus.
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Creator: Reddit (Firm)
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "Teen who defied mother by getting vaccinated testifies before Congress," by u/BringBackParis on the r/UpliftingNews subreddit on the Reddit website. The forum features an article published on CBS News that describes Ethan Lindenberger's testimony at a Congressional Hearing on why he got vaccinated against his parents' wishes. Lindenberger's post asking for resources on how to get vaccinated without parental consent went viral on Reddit in January of 2019.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "What is the deal with Measles coming back and why is it suddenly a big deal?" by u/CineArma published on the r/OutOfTheLoop subreddit on the Reddit website on February 13, 2019. The page features a forum for Reddit users to discuss why measles cases are globally on the rise, including vaccine hesitancy, and why the disease poses a serious health threat.
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Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "My parents are kind of stupid and don't believe in vaccines. Now that I'm 18, where do I go to get vaccinated? Can I get vaccinated at my age?" by u/ethanlindenberger, later revealed to be Ethan Lindenberger, to the r/NoStupidQuestions subreddit on the Reddit website on January 7, 2019. The forum enabled Lindenberger to find resources that would help him to get vaccinated without parental consent.
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Creator: Lindenberger, Ethan
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: HIV/AIDS web archive
Description: Post titled, "IAmA straight guy with HIV. AMA," by GotTheBug on the "Ask Me Anything" forum on the social media Website, Reddit. The post features an interview with an HIV positive man who is straight.
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Creator: GotTheBug
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Vaccine Hesitancy web archive
Description: Post titled, "I'm Ethan, an 18 year old who made national headlines for getting vaccinated despite an antivaxx mother. AMA!" by Ethan Lindenberger published on the Ask Me Anything (AMA) forum on the Reddit website on February 13, 2019. Users asked Lindenberger questions related to experiences after his Reddit post asking for assistance with getting vaccinated went viral.
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Creator: Lindenberger, Ethan
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Reddit (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "r/AllOfUsResearch," that is a community forum where participants in the All of Us Research Program can post thoughts, comments, discussion, and articles about the program.
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Subject: Public Response
Collection: All of Us Research Program web archive
Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features an interview with Tanya about "spit-kits". The video and post is sponsored by the All of Us Research Program.
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Subject: Engagement
Creator: goangie
Type: Social media
Date: 2021-02-12
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features an interview with Julia More Vogel, Director of the All of Us Research Program. The video and post is sponsored by the All of Us Research Program.
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Subject: Engagement
Creator: goangie
Language: English
Type: Social media
Date: 2021-01-22
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features an interview with Shana from the Black Women's Health Imperative. The video and post is sponsored by the All of Us Research Program.
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Subject: Engagement
Creator: goangie
Type: Social media
Date: 2021-02-05
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Instagram video from user "goangie," also known as Angie Ange from "The Morning Hustle," that discusses the All of Us program and features a second interview with Julia More Vogel, Director of the All of Us Research Program. The video and post is sponsored by the All of Us Research Program.
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Subject: Engagement
Creator: goangie
Language: English
Type: Social media
Date: 2021-02-04
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: Johnson, Dwayne, 1972-
Language: English
Type: Social media
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Keyword: Personal Narratives, Patient Treatment and Experience
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: National Indian Health Board
Language: English
Type: Social media
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Keyword: Prevention and Control/Risk Management, Personal Narratives, Vulnerable Populations, Close Knit Communities
Collection: Global Health Events web archive
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Group: Coronavirus disease (COVID-19) outbreak
Creator: National Indian Health Board
Language: English
Type: Social media
Social Media Host: Instagram (Firm)
Geographic Location: Arizona
Collector: National Library of Medicine (U.S.)
Keyword: Prevention and Control/Risk Management, Social Dimensions, Personal Narratives, Vulnerable Populations, Close Knit Communities
Collection: HIV/AIDS web archive
Description: Instagram account page for Josh Robbins, an HIV/AIDS activist and founder of the HIV/AIDS activist Website and blog, "imstilljosh."
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Creator: Robbins, Josh
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Instagram page for DREF that includes information on All of Us events, news, and posts not related to All of Us.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Instagram for All of Us in partnership with Community Health Center, Inc.
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Subject: Engagement
Creator: Community Health Center Inc.
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: HIV/AIDS web archive
Description: Facebook account page for Us Helping Us, an organization committed to improving the health and well-being of black gay men through innovative programs and services. The organization is specifically focused on reducing the impact of HIV/AIDS in the black community.
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Creator: Us Helping Us, People into Living, Inc.
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: HIV/AIDS web archive
Description: Facebook account page for the Women's Collective, a community health and human service agency that provides prevention, care, and support services and advocates for girls and women. It was founded to address the needs of low income women, girls and families living with, or at risk for HIV/AIDS.
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Creator: Women's Collective
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: HIV/AIDS web archive
Description: Facebook account page for the No/AIDS Task Force in New Orleans, LA. NO/AIDS Task Force is a community-based service organization that supports men, women and families affected by HIV/AIDS in Southeastern Louisiana to reduce the spread of HIV infection. It provides services, advocates empowerment, safeguards the rights and dignity of HIV-affected individuals and provides for an enlightened public.
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Creator: Louisiana. Department of Health
Language: English
Type: Social media
Rights: This item may be under copyright protection. Please ask copyright owner for permission before publishing.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
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