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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: Research Projects Directory – All of Us Research Hub

URL: https://www.researchallofus.org/research-projects-directory/

Collection: All of Us Research Program web archive

Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.

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Subject:   Research Projects Using Collected Data

Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Frequently Asked Questions

URL: https://www.researchallofus.org/frequently-asked-questions/

Collection: All of Us Research Program web archive

Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.

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Subject:   General Sources

Title: COVID-19 Research Initiatives

URL: https://www.researchallofus.org/discover/covid-19-research-initiatives/

Collection: All of Us Research Program web archive

Description: Website, titled "COVID-19 Research Initiatives," spotlighting the All of Us Research Program's various research methods for COVID-19 including The COPE Survey, Electronic Health Record Data, COVID-19 Antibody study, and other support for COVID-19 research.

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Subject:   COVID-19

Title: COPE Survey - All of Us Research Hub

URL: https://www.researchallofus.org/data-tools/survey-explorer/cope-survey/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.

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Subject:   COVID-19

Title: Data Methods

URL: https://www.researchallofus.org/data-tools/methods/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Methods," detailing the four different methodologies the All of Us Research Program uses to collect data. Links to other data protocols and methods are found at the bottom of the page.

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Subject:   General Sources

Title: Data Sources

URL: https://www.researchallofus.org/data-tools/data-sources/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Sources," detailing the various ways the All of Us Research Program collects data, including electronic health records, bio samples and bioassays, surveys, physical measurements, and wearables.

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Subject:   General Sources

Title: All of Us Research Hub

URL: https://www.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.

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Subject:   Research Projects Using Collected Data

Title: All of Us

URL: https://www.nnlm.gov/initiatives/all-of-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us," from the National Library of Medicine initiatives website. This page gives a brief overview of the All of Us Research Program and links to resources about the program.

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Subject:   General Sources

Title: Wisconsin | Join All of Us

URL: https://www.joinallofus.org/wisconsin/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Wisconsin," detailing the All of Us Research Program in Wisconsin, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Who Can Join? | Join All of Us

URL: https://www.joinallofus.org/who-can-join/

Collection: All of Us Research Program web archive

Description: Website, titled "Who Can Join?" describing who can participate in the All of Us Research Program.

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Subject:   General Sources

Title: What Participants Share | Join All of Us

URL: https://www.joinallofus.org/what-participants-share/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Share," detailing instructions on getting started with the All of Us Research Program, what the program requires from participants, and what they can expect to receive once their samples have been processed.

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Subject:   General Sources

Title: Medicine and Your DNA | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/medicine-and-your-dna/

Collection: All of Us Research Program web archive

Description: Website, titled "Medicine and Your DNA, "listing all of the genes that the All of Us Research Program looks at to give results about how DNA may affect how bodies processes medicine.

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Subject:   General Sources

Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Collection: All of Us Research Program web archive

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: What Participants Receive | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Receive," describing what participants will learn from donating their data, including but not limited to information about ones DNA, monetary compensation, and other future benefits.

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Subject:   General Sources

Title: Waianae Coast Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/waianae/

Collection: All of Us Research Program web archive

Description: Website, titled "Waianae Coast Comprehensive Health Center," detailing the Waianae Coast Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Waianae Coast Comprehensive Health Center.

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Subject:   General Sources

Title: VCU Wright Center for Clinical and Translational Research | Join All of Us

URL: https://www.joinallofus.org/vcu-wright-center-for-clinical-and-translational-research/

Collection: All of Us Research Program web archive

Description: Website, titled "VCU Wright Center for Clinical and Translational Research," detailing the VCU Wright Center for Clinical and Translational Research, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the VCU Wright Center for Clinical and Translational Research.

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Subject:   General Sources

Title: U.S. Department of Veterans Affairs

URL: https://www.joinallofus.org/va/

Collection: All of Us Research Program web archive

Description: Website, titled "U.S. Department of Veterans Affairs," detailing the U.S. Department of Veterans Affairs, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the U.S. Department of Veterans Affairs.

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Subject:   General Sources

Title: University of Arizona and Banner Health | Join All of Us

URL: https://www.joinallofus.org/university-of-arizona-and-banner-health/

Collection: All of Us Research Program web archive

Description: Website, titled "University of Arizona and Banner Health," detailing University of Arizona and Banner Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via University of Arizona and Banner Health.

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Subject:   General Sources

Title: Trans America Consortium | Join All of Us

URL: https://www.joinallofus.org/trans-america-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Trans America Consortium," detailing the Trans American Consortium that includes health care systems in Idaho, Massachusetts, Michigan, Minnesota, North Dakota, Texas, and Wisconsin that are participating in the All of Us Research Program. Information on how to join and frequently asked questions are also located on the page.

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Subject:   General Sources

Title: The University of Texas Health Science Center at Tyler | Join All of Us

URL: https://www.joinallofus.org/the-university-of-texas-health-science-center-at-tyler/

Collection: All of Us Research Program web archive

Description: Website, titled "The University of Texas at Tyler Health Science Center," detailing The University of Texas at Tyler Health Science Center, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via The University of Texas at Tyler Health Science Center.

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Subject:   General Sources

Title: The Participant Center | Join All of Us

URL: https://www.joinallofus.org/the-participant-center/

Collection: All of Us Research Program web archive

Description: Website, titled "The Participant Center," listing partners that the All of Us Research Program works with if participants are not able to access the program through a health care provider in their area.

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Subject:   General Sources

Title: Sun River Health | Join All of Us

URL: https://www.joinallofus.org/sun-river-health/

Collection: All of Us Research Program web archive

Description: Website, titled "Sun River Health," detailing Sun River Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Sun River Health.

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Subject:   General Sources

Title: Stanford University School of Medicine | Join All of Us

URL: https://www.joinallofus.org/stanford-university-school-of-medicine/

Collection: All of Us Research Program web archive

Description: Website, titled "Stanford University School of Medicine," detailing the Stanford University School of Medicine's partnership with the All of Us Research Program including how to join, frequently asked questions, and researcher resources.

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Subject:   General Sources

Title: Southern | Join All of Us

URL: https://www.joinallofus.org/southern/

Collection: All of Us Research Program web archive

Description: Website, titled "Southern All of Us Network," detailing the Southern All of Us Network that includes health care systems in Alabama, Louisiana, and Mississippi that are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Southeast | Join All of Us

URL: https://www.joinallofus.org/southeast/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us South East Enrollment Center," detailing the All of Us South East Enrollment Center that includes the University of Miami Miller School of Medicine, University of Florida College of Medicine, Emory University, and Morehouse School of Medicine which are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: San Ysidro Health | Join All of Us

URL: https://www.joinallofus.org/san-ysidro-health/

Collection: All of Us Research Program web archive

Description: Website, titled "San Ysidro Health," detailing San Ysidro Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via San Ysidro Health.

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Subject:   General Sources

Title: Pennsylvania | Join All of Us

URL: https://www.joinallofus.org/pennsylvania/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Pennsylvania," detailing the All of Us Research Program in Pennsylvania, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: New York City Consortium | Join All of Us

URL: https://www.joinallofus.org/new-york-city-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "New York City Consortium," detailing the New York City Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the New York City Consortium.

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Subject:   General Sources

Title: New England | Join All of Us

URL: https://www.joinallofus.org/new-england/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us New England," detailing the All of Us Research Program in New England, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: National Baptist Convention, USA, Inc.

URL: https://www.joinallofus.org/nbcusa/

Collection: All of Us Research Program web archive

Description: Website, titled "National Baptist Convention, USA, Inc.," detailing the National Baptist Convention, USA, Inc.'s partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: National Alliance for Hispanic Health (Alliance) | Join All of Us

URL: https://www.joinallofus.org/national-alliance-for-hispanic-health-alliance/

Collection: All of Us Research Program web archive

Description: Website, titled "National Alliance for Hispanic Health (Alliance)," detailing the National Alliance for Hispanic Health (Alliance)'s partnership with the All of Us Research Program including how to join and frequently asked questions.

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Subject:   General Sources

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Collection: All of Us Research Program web archive

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: FiftyForward | Join All of Us

URL: https://www.joinallofus.org/fiftyforward/

Collection: All of Us Research Program web archive

Description: Website, titled "FiftyForward," detailing the FiftyForward's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: All of Us Journey at Memphis Juneteenth Festival

URL: https://www.joinallofus.org/event/all-of-us-journey-at-memphis-juneteenth-festival/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Memphis Juneteenth Festival," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Knoxville Zoo

URL: https://www.joinallofus.org/event/all-of-us-journey-at-knoxville-zoo/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Knoxville Zoo," detailing the All of Us traveling exhibit's stop in Knoxville. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at El Mercadito de Memphis

URL: https://www.joinallofus.org/event/all-of-us-journey-at-el-mercadito-de-memphis/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at El Mercadito de Memphis," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Programa Cientifico

URL: https://www.joinallofus.org/es/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Programa Cientifico," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This is the Spanish version of the main page is where individuals sign up to join the program.

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Subject:   General Sources

Title: Eau Claire Cooperative Health Center | Join All of Us

URL: https://www.joinallofus.org/eau-claire-cooperative-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Cooperative Health," detailing Cooperative Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cooperative Health.

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Subject:   General Sources

Title: Delta Research and Educational Foundation (DREF) | Join All of Us

URL: https://www.joinallofus.org/delta-research-and-educational-foundation-dref/

Collection: All of Us Research Program web archive

Description: Website, titled "Delta Research and Educational Foundation (DREF)," detailing the DREF's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Coronavirus | Join All of Us

URL: https://www.joinallofus.org/coronavirus/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Covid-19 and All of Us," detailing what the program is doing in response to Covid-19 and what data will be collected in regards to Covid-19.

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Subject:   COVID-19

Title: Community Health Center, Inc. | Join All of Us

URL: https://www.joinallofus.org/community-health-center-inc/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Health Center, Inc.," detailing Community Health Center, Inc., their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Community Health Center, Inc.

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Subject:   General Sources

Title: Community Engagement Partners | Join All of Us

URL: https://www.joinallofus.org/community-engagement-partners/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Engagement Partners," listing organizations that tell their communities what the All of Us Research Program is and how to join.

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Subject:   General Sources

Title: Cherokee Health Systems | Join All of Us

URL: https://www.joinallofus.org/cherokee-health-systems/

Collection: All of Us Research Program web archive

Description: Website, titled "Cherokee Health Systems," detailing Cherokee Health Systems, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cherokee Health Systems.

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Subject:   General Sources

Title: Champions | Join All of Us

URL: https://www.joinallofus.org/champions/

Collection: All of Us Research Program web archive

Description: Website, titled "Champions," listing the All of Us champions who support the mission and goals of the All of Us Research Program by sharing information on the program with their communities to help raise awareness.

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Subject:   General Sources

Title: California | Join All of Us

URL: https://www.joinallofus.org/california/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us California," detailing the All of Us Research Program in California, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Asian Health Coalition | Join All of Us

URL: https://www.joinallofus.org/asian-health-coalition/

Collection: All of Us Research Program web archive

Description: Website, titled "Asian Health Coalition," detailing the Asian Health Coalition's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: All of Us Research Program Tribal Consultation Report Summary | Join All of Us

URL: https://www.joinallofus.org/all-of-us-research-program-tribal-consultation-report-summary/

Collection: All of Us Research Program web archive

Description: Website, "All of Us Research Program Tribal Consultation Report Summary," detailing Tribal Sovereignty and Research Participation, Cultural Sensitivity, Data Access, Representation, Privacy, Publications and Partnerships, and what members of Tribal Communities should do in order to participate in the program.

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Subject:   Engagement

Title: American Association on Health and Disability | Join All of Us

URL: https://www.joinallofus.org/aahd/

Collection: All of Us Research Program web archive

Description: Website, titled "American Association on Health and Disability," detailing the American Association on Health and Disability's partnership with the All of Us Research Program including testimonials, how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Database search results of the All of Us Research Program

URL: https://reporter.nih.gov/search/241kAtaCN06DT7hoxibUOw/projects/

Collection: All of Us Research Program web archive

Description: Database for the National Institute of Health's research project called RePORTER. Search results of the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: NIH All of Us Research Program Partnership

URL: https://nnlm.gov/workbook-allofus/

Collection: All of Us Research Program web archive

Description: Website, titled "NIH All of Us Research Program Partnership," that is designed to provide publicly available information about the partnership between NNLM and All of Us to assist in preparing the grant application for the Network of the National Library of Medicine (NNLM) All of Us Program Center (U24) cooperative agreement that posted on July 12, 202The NNLM All of Us National Program Center (NAPC) will serve as the coordinating center for the engagement, programs, partnerships, activities, and training offered by NNLM in support of the All of Us Research Program.

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Subject:   General Sources

Title: All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM, National Library of Medicine

URL: https://nnlm.gov/civicrm-event/479/

Collection: All of Us Research Program web archive

Description: Event site, titled "All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM," that provides details for a webinar class to help individuals learn about the ALL OUR VOICES tool kit. Contacts, details, and a brief overview on the ALL OUR VOICES program are readily available.

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Subject:   Engagement

Title: The All of Us Research Project has officially launched

URL: https://launch.joinallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page is where individuals sign up to join the program.

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Subject:   Participant Recruitment

Title: Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)

URL: https://grants.nih.gov/grants/guide/rfa-files/RFA-LM-21-002.html

Collection: All of Us Research Program web archive

Description: Website, titled "Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)," hosted by the Department of Health and Human Services that details the funding available for the All of Us Research Program and how to apply for it.

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Subject:   General Sources

Title: Go Angie | All of Us Research

URL: https://go.joinallofus.org/Angie/

Collection: All of Us Research Program web archive

Description: Website linking to the All of Us Research Program's app in the Google Play and Apple app stores.

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Subject:   Engagement

Title: All of Us Data Browser

URL: https://databrowser.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Data browser," that is part of the All of Us Research Program Hub. The Data browser allows for individuals to view publicly available data collected by the All of Us Research Program. Data collected is broken down into different subjects.

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Subject:   Ethics and Data Management

Title: Virtual Health Programs | All of Us

URL: https://allofus.nnlm.gov/vhp/

Collection: All of Us Research Program web archive

Description: Website, titled "Virtual Health Programs," that lists upcoming and previous virtual events organized by NNLM. These events are created and distributed to inform individuals about health information.

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Subject:   Engagement

Title: ALL OUR VOICES: Conversations about Health & Wellness | All of Us

URL: https://allofus.nnlm.gov/storycorps/

Collection: All of Us Research Program web archive

Description: Website, titled "ALL OUR VOICES: Conversations about Health & Wellness," detailing the partnership between NNLM and StoryCorps that was created to support awareness of the All of Us Research Program. A tool kit with related materials on the ALL OUR VOICES project is available.

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Subject:   Engagement

Title: Precision Medicine Traveling Exhibit | All of Us

URL: https://allofus.nnlm.gov/precision-medicine-traveling-exhibit/

Collection: All of Us Research Program web archive

Description: Website, titled "Precision Medicine Traveling Exhibit," that details the traveling exhibit produced by Network of the National Library of Medicine to promote the All of Us Research Program.

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Subject:   Engagement

Title: NNLM All of Us Community Engagement Network | All of Us

URL: https://allofus.nnlm.gov/nnlm-all-us-community-engagement-network/

Collection: All of Us Research Program web archive

Description: Website, titled "NNLM All of Us Community Engagement Network," detailing the NNLM community and what they do, how they do it, how individuals can get involved, and giving examples of some of the areas people can help in.

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Subject:   Engagement

Title: Learn Internet Skills | All of Us

URL: https://allofus.nnlm.gov/learn-internet-skills/

Collection: All of Us Research Program web archive

Description: Website, titled "Learn Internet Skills," from the All of Us Research Program's main website that teaches individuals how to use the internet safely.

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Subject:   Engagement

Title: Human Genetics Film Kits | All of Us

URL: https://allofus.nnlm.gov/human-genetics-film-kits/

Collection: All of Us Research Program web archive

Description: Website, titled "Human Genetics Film Kits," detailing the film kits curated by the Network of the National Library of Medicine and their contents. The film kits are designed to support public libraries in raising scientific literacy and awareness of precision medicine. Through attending screenings of the films and participating in related discussions, library patrons will learn about human genetics and the advance of precision medicine.

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Subject:   Engagement

Title: Genomics: A Revolution in Health and Disease Discovery | All of Us

URL: https://allofus.nnlm.gov/genomics-book-reading-club-kit/

Collection: All of Us Research Program web archive

Description: Website, titled "Genomics: A Revolution in Health and Disease Discovery," detailing one a ready-to-use reading club kit curated by the Network of the National Library of Medicine. The kit contains materials related to "Genomics: A Revolution in Health and Disease Discovery," including a recorded talk with the authors. Additional films and resources are present on the page.

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Subject:   Engagement

Title: Engagement Resources Library | All of Us

URL: https://allofus.nnlm.gov/engagement-resources/

Collection: All of Us Research Program web archive

Description: Website, titled "Engagement Resource Library," that provides resources from NLM, NNLM, and All of Us that can be used by sub awardees and partner libraries to engage with their communities about digital literacy, health literacy, and the NIH All of Us Research Program.

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Subject:   Engagement

Title: Digital Health Literacy | All of Us

URL: https://allofus.nnlm.gov/digital-health-literacy/

Collection: All of Us Research Program web archive

Description: Website, titled "Digital Health Literacy," detailing what digital health literacy is and provides resources to learn about digital health and why it is important.

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Subject:   Engagement

Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Data Security Policy Principles

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/data-security-policy-principles/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Data Security Policy Principles."

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Subject:   Ethics and Data Management

Title: Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/achieving-principles-through-precision-medicine-initiative-data-security-policy-framework/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.

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Subject:   Ethics and Data Management

Title: Protecting Data and Privacy | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy

Collection: All of Us Research Program web archive

Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.

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Subject:   Ethics and Data Management

Title: New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/ysabel-abreu-perseverance-humanity/

Collection: All of Us Research Program web archive

Description: Webpage, titled "New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us," that includes an interview/ overview of Ysabel Aberu, a member of the Participant Advisory Board. The interview details her life experiences that led to her involvement with the All of Us Research Program and why she is proud to be a part of the initiative.

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Subject:   General Sources

Title: Thirst for Knowledge and Data Drives Army Veteran to All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/thirst-knowledge-and-data-drives-army-veteran-all-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Thirst for Knowledge and Data Drives Army Veteran to All of Us," that includes an interview/ overview of Keisha Bellamy, a nurse for the All of Us Research Program and a veteran. The interview mentions Bellamy's life story, her experiences in the military, and her involvement in the All of Us research Program.

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Subject:   General Sources

Title: Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research

URL: https://allofus.nih.gov/news-events/voices-all-us/survival-resilience-power-mentorship-research/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research," that includes an interview/overview of Atiya Shahid, a Minority Student Research Symposium Scholar. The interview mentions Shahid's life story, her research, and her experiences with the All of Us Research Program.

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Subject:   General Sources

Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

Title: Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark

URL: https://allofus.nih.gov/news-events/voices-all-us/connecting-social-environment-health-outcomes-to-pinpoint-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark," that includes an interview/ overview of Cheryl R. Clark, a researcher for the All of Us Research Program. The interview mentions Clark's personal experiences, her work with the All of Us Research Program, and how the two intersect.

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Subject:   General Sources

Title: Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler

URL: https://allofus.nih.gov/news-events/voices-all-us/building-bridges-better-health-joyce-ann-bell-winkler/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler," that includes an interview/ overview of Joyce Ann Bell Winkler, a participant ambassador for the All of Us Research Program. The interview details Winkler's personal experiences, including her childhood, and her experience with the All of Us Research Program. Her testimony details what the program is like and why others should join the program.

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Subject:   General Sources

Title: Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities

URL: https://allofus.nih.gov/news-events/voices-all-us/billy-caceres-benchmarks-health-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities," that includes an interview/overview of Billy A. Caceres, a researcher for the All of Us Program. The interview delves into Caceres' life story, his research, and how his experiences have affected his research.

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Subject:   General Sources

Title: All of Us Research Program Backgrounder

URL: https://allofus.nih.gov/news-events/press-kit/all-us-research-program-backgrounder/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Research Program Backgrounder," hosted by the National Institutes of Health answering many frequently asked questions about the All of Us Research Program as well as giving some background information on the initiative.

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Subject:   General Sources

Title: All of Us Awardees: Media Contacts

URL: https://allofus.nih.gov/news-events/press-kit/all-us-awardees-media-contacts/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Awardees: Media Contacts," that lists organizations associated with the All of Us Research Program as well as contact information.

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Subject:   General Sources

Title: News and Events | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "News and Events." The page hosts all of the program's announcements and lists events held. Videos, external news, testimonials, and the press kit are also available on this page.

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Subject:   General Sources

Title: All of Us Physician Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-physician-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Physician Resources," from the All of Us Research Program that provides printable resources, such as business cards and note pads, for physicians. Links to other resources can be found on the page.

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Subject:   Engagement

Title: All of Us Nursing Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-nursing-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Nursing Resources," from the All of Us Research Program that provides resources, such as pamphlets and brochures, for nurses and other medical providers to learn about the program.

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Subject:   Engagement

Title: All of Us Sharable Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Sharable Resources," from the All of Us Research Program that houses free materials for the project. The majority of materials are for promotional purposes, such as images for Social media, fact sheets, and brochures. Most are available in English and Spanish with some other languages being represented as well.

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Subject:   Engagement

Title: Participant Technology Systems Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-technology-systems-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Technology Systems Center," hosted by the National Institutes of Health detailing what the Participant Technology Center is and what organizations host the center.

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Subject:   General Sources

Title: Participant Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Center," hosted by the National Institutes of Health detailing what the Participant Center is and listing some of the locations.

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Subject:   General Sources

Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: Genomics Partners

URL: https://allofus.nih.gov/funding-and-program-partners/genomics-partners/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics Partners," hosted by the National Institutes of Health detailing what the genome centers will accomplish in the All of Us Research Program and listing the organizations that act as the genomic partners for the program.

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Subject:   General Sources

Title: Funding Opportunities

URL: https://allofus.nih.gov/funding-and-program-partners/funding-opportunities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Funding Opportunities," hosted by the National Institutes of Health that lists current and previous funding opportunities for researchers in the All of Us Research Program.

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Subject:   General Sources

Title: Data and Research Center

URL: https://allofus.nih.gov/funding-and-program-partners/data-and-research-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Data and Research Center," hosted by the National Institutes of Health detailing what the data and research center is and who hosts the data and research center for the All of Us Research Program.

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Subject:   General Sources

Title: Communications and Engagement Partners | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/funding-and-program-partners/communications-and-engagement-partners

Collection: All of Us Research Program web archive

Description: Website, titled "Communications and Engagement Partners," from the National Institutes of Health listing all of the partners in the All of Us program and along with funding information.

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Subject:   Participant Recruitment

Title: Biobank

URL: https://allofus.nih.gov/funding-and-program-partners/biobank/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Biobank," hosted by the National Institutes of Health detailing what a biobank is and who provides the biobank for the All of Us Research Program.

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Subject:   General Sources

Title: Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel

URL: https://allofus.nih.gov/about/who-we-are/all-us-research-program-advisory-panel/tribal-collaboration-working-group/

Collection: All of Us Research Program web archive

Description: Website, titled "Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel," detailing the purpose of the Tribal Collaboration Working Group, its deliverables, and roster.

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Subject:   Engagement

Title: All of Us Research Program Overview

URL: https://allofus.nih.gov/about/program-overview

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program Overview," detailing the All of Us Research Program at a glance and explaining what precision medicine is.

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Subject:   General Sources

Title: American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study

URL: https://allofus.nih.gov/about/diversity-and-inclusion/tribal-engagement/american-indian-and-alaska-native-aian-inclusion-all-us-research-program-covid-19-serology-study/

Collection: All of Us Research Program web archive

Description: Website, "American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study," detailing the All of Us Research Program's consultation with tribal leaders about including existing AI/AN participant samples in a COVID-19 Serology Study looking for SARS-CoV-2 antibodies. Responding to tribal concerns, All of Us has decided not to include these samples and will continue focusing on finalizing consultation about the main program.

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Subject:   COVID-19

Title: All of Us Tribal Leader and Urban Indian Organization Letter

URL: https://allofus.nih.gov/about/diversity-and-inclusion/tribal-engagement/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Tribal Engagement," detailing the All of Us Research Program's collaboration with Tribal Nations including information on tribal consultation, key milestones, and funding opportunities.

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Subject:   Engagement

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