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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (55 Total Results)

Title: 10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study

URL: https://xtalks.com/10000-fitbits-will-be-distributed-as-part-of-an-nih-funded-heath-study/

Collection: All of Us Research Program web archive

Description: News article, titled "10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study," detailing the distribution of Fitbits and how the Fitbits would aid the All of Us Research program.

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Subject:   Ethics and Data Management

Title: Citizen Science and Data Literacy with All of Us California - YouTube

URL: https://www.youtube.com/watch?v=ruqiv_vf834/

Collection: All of Us Research Program web archive

Description: Video, titled "Citizen Science and Data Literacy with All of Us California," of a webinar hosted by SciStarter. This event featured speakers from All of Us California that presented on and answer questions about data literacy, especially as it relates to the All of Us Research program, as well as a speaker from SciStarter who shared about citizen science and data literacy.

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Subject:   Ethics and Data Management

Title: Dataset Builder & Concept Sets - YouTube

URL: https://www.youtube.com/watch?v=cUuDKUxjQoo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Dataset Builder & Concept Sets," explaining to researchers how to use some of the different features, including the dataset builder and concept sets features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Notebooks & Code Snippets - YouTube

URL: https://www.youtube.com/watch?v=NvMWBlVyyUU/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Notebooks & Code Snippets," explaining to researchers how to use some of the different features, including the notebooks and coding features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Introduction to the Researcher Workbench - YouTube

URL: https://www.youtube.com/watch?v=NTLJtwLcavo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Introduction to the Researcher Workbench," detailing how to access and utilize the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting - YouTube

URL: https://www.youtube.com/watch?v=GDx42mxyAy4/

Collection: All of Us Research Program web archive

Description: Video, titled "The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting," hosted by the U.S. Department of Health and Human Services and Augusta University. The hour long video details the program's core values, the building blocks of the program, the growing network of healthcare provider organizations, the program's approach to gaining diversity, the participant portal, the program's Electronic Health Record, smart phone apps being developed for the program, and the program's data security and privacy.

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Subject:   Ethics and Data Management

Title: User Support Hub

URL: https://www.youtube.com/embed/Ni4PEJVbmSk/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "User Support Hub," explaining how to use the user support hub and other resources available to aid researchers in using the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Cohort Builder & Cohort Review

URL: https://www.youtube.com/embed/G6_GG2CJ9mA/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Cohort Builder & Cohort Review," explaining to researchers how to use some of the different features, including the various cohort features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Vibrent Health to Launch Integrated Platform for Ancillary Studies in Large-Cohort Digital Health Research - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-to-launch-integrated-platform-for-ancillary-studies-in-large-cohort-digital-health-research/

Collection: All of Us Research Program web archive

Description: Press release, titled "Vibrant Health to Launch Integrated Platform for Ancillary Studies in Large-Cohort Digital Health Research," detailing Vibrant Health's database and its use in NIH's All of Us Research Program. The Press release also gives a brief introduction to the company.

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Subject:   Ethics and Data Management

Title: Vibrent Health creates participant advisory board to advocate for participant experience, diversity and accessibility, supporting NIH’s All of Us research program - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-creates-participant-advisory-board-to-advocate-for-participant-experience-diversity-and-accessibility-supporting-nihs-all-of-us-research-program/

Collection: All of Us Research Program web archive

Description: Press release, titled "Vibrant Health creates participant advisory board to advocate for participant experience, diversity and accessibility, supporting NIH’s All of Us research program," detailing the Participant Advisory Board in how it will help participants of the All of Us Research Program and who the member of the Participant Advisory Board are.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Releases Genomic Data to Researchers, Combined with Participant-Generated Data Collected on Vibrent Health’s Digital Health Research Platform - Vibrent

URL: https://www.vibrenthealth.com/all-of-us-research-program-releases-genomic-data-to-researchers-combined-with-participant-generated-data-collected-on-vibrent-healths-digital-health-research-platform%ef%bf%bc/

Collection: All of Us Research Program web archive

Description: Press release, titled "All of Us Research Program Releases Genomic Data to Researchers, Combined with Participant-Generated Data Collected on Vibrant Health’s Digital Health Research Platform," detailing past issues with genomic data collection, specifically in collecting within minorities. The Press release also details Vibrant Health's involvement with the All of Us Research Program, as well as giving some details on Vibrant Health.

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Subject:   Ethics and Data Management

Title: Wearables are too expensive for groups underrepresented in medical research - The Verge

URL: https://www.theverge.com/2022/4/26/23042928/wearables-health-data-research-expense-nih/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearables are too expensive for groups underrepresented in medical research," detailing how a study found the majority of individuals using wearables are wealthy and/or Caucasian. The article relates the involvement of the All of Us Research Program in the study and how the main reason why minority participants did not use wearables was due to costs and lack of knowledge.

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Subject:   Ethics and Data Management

Title: Wearable device data need to represent all of us - STAT

URL: https://www.statnews.com/2022/04/25/wearable-device-data-need-to-represent-all-of-us/

Collection: All of Us Research Program web archive

Description: News article, titled "Wearable device data need to represent all of us," that discusses the use of wearable devices in the All of Us Research Program. **ARTICLE BEHIND A PAYWALL**

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Subject:   Ethics and Data Management

Title: I handed over my genetic data to the NIH. Here's why you should, too

URL: https://www.statnews.com/2018/06/13/entrusted-my-genetic-data-nih/

Collection: All of Us Research Program web archive

Description: News article, titled " I handed over my genetic data to the NIH. Here's why you should, too," written by the former Director of the All of Us Program, detailing his opinion on why people should participate in the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine

URL: https://www.scripps.edu/news-and-events/press-room/2021/20210224-aou-fitbit-study.html

Collection: All of Us Research Program web archive

Description: Press release, titled "Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine," detailing the use of Fitbit devices within the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Data User Code of Conduct

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_User_Code_of_Conduct_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.

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Subject:   Ethics and Data Management

Title: Framework for Access to All of Us Data Resources v1.1

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_Access_Framework_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.

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Subject:   Ethics and Data Management

Title: Data User Appeals Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_User_Appeals_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.

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Subject:   Ethics and Data Management

Title: Policy on Stigmatizing Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Stigmatizing_Research_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Publication and Presentation Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Publication_and_Presentation_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.

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Subject:   Ethics and Data Management

Title: Policy on Ethical Conduct of Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Ethical_Principles_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Data and Statistics Dissemination Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Data_and_Statistics_Dissemination_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Data Access Tiers

URL: https://www.researchallofus.org/data-tools/data-access/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Access Tiers," that details the different accessibility options and lists data use policies for the research program.

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Subject:   Ethics and Data Management

Title: Giant study poses DNA data-sharing dilemma

URL: https://www.nature.com/articles/525016a#change-history/

Collection: All of Us Research Program web archive

Description: Article, titled "Giant study poses DNA data-sharing dilemma," discussing how the All of Us Research Program will release it's data to participants and researchers. The article also discusses the experience of Eric Dishman, the first head of the All of Us Research Program, with precision medicine.

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Subject:   Ethics and Data Management

Title: Fitbit wearables will help power NIH's All of Us Research Program

URL: https://www.mobihealthnews.com/content/fitbit-wearables-will-help-power-nihs-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Article, titled "Fitbit wearables will help power NIH's All of Us Research Program," discussing Fitbit's partnership with the All of Us Research Program. The article gives a brief history of the All of Us Research Program and mentions some of the program's other partners.

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Subject:   Ethics and Data Management

Title: All of Us Research Program LGBTQ+ Data Privacy and Security

URL: https://www.joinallofus.org/themes/custom/jaou/etc/pdfs/data_privacy_infographic.pdf

Collection: All of Us Research Program web archive

Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.

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Subject:   Ethics and Data Management

Title: Intel and Google Cloud Team with All of Us Research Program

URL: https://www.intel.com/content/www/us/en/newsroom/news/all-us-research-program.html

Collection: All of Us Research Program web archive

Description: Press release, titled "Intel and Google Cloud Team with All of Us Research Program," announcing Intel's involvement with the All of Us Research Program by providing access to researchers nationwide. The Press release delves into what the All of Us Research Program is and how Intel is helping.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Researcher Workbench | Institute for Genomic Medicine

URL: https://www.igm.columbia.edu/research-and-labs/all-us-research-program/all-us-research-program-researcher-workbench/

Collection: All of Us Research Program web archive

Description: Website, titled "Columbia University Institute for Genomic Medicine All of Us Research Program Researcher Workbench," that gives an introduction to the Program's workbench in collaboration with Columbia University Institute for Genomic Medicine.

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Subject:   Ethics and Data Management

Title: Fitbit Bring-Your-Own Device (BYOD) | Henry Ford Health - Detroit, MI

URL: https://www.henryford.com/visitors/henry-ford-all-of-us/news-and-events/fitbit-bring-your-own-device-byod/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Fitbit Bring-Your-Own Device (BYOD): Participants can now link their Fitbit accounts to the program to share additional data for research," detailing how individuals can connect their Fitbit to the All of Us research program.

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Subject:   Ethics and Data Management

Title: Access to wearables could become a social determinant of health, researchers warn | Healthcare IT News

URL: https://www.healthcareitnews.com/news/access-wearables-could-become-social-determinant-health-researchers-warn/

Collection: All of Us Research Program web archive

Description: News article, titled "Access to wearables could become a social determinant of health, researchers warn," detailing how fitness trackers/wearables have caused some issues with data collection due to lack of knowledge from users and lack of upkeep by the program sponsors.

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Subject:   Ethics and Data Management

Title: All of Us Researchers Study Disparities in Fitness Tracker Usage

URL: https://www.hcinnovationgroup.com/clinical-it/learning-health-systems-research/news/21265466/all-of-us-researchers-study-disparities-in-fitness-tracker-usage/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Researchers Study Disparities in Fitness Tracker Usage," detailing how issues in using the fitness trackers for the All of Us Research Program have occurred. Some of the issues stem from lack of knowledge from users while others stem from lack of upkeep by the program sponsors.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Presentation

URL: https://www.ga4gh.org/wp-content/uploads/12_Glazer-All-of-Us-Research-Program-GA4GH-Orlando-Oct-16.pdf

Collection: All of Us Research Program web archive

Description: Presentation, titled "Global Alliance for Genomics and Health: All of Us Research Program," held on October 16, 2017 in Orlando. The presentation covers the All of Us Project's mission, data access, timeline, and GA4GH engagement.

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Subject:   Ethics and Data Management

Title: NIH All of Us Program to Implement GA4GH Data Sharing Standards

URL: https://www.ga4gh.org/news/nih-all-of-us-program-to-implement-ga4gh-data-sharing-standards-2/

Collection: All of Us Research Program web archive

Description: News Release, titled "NIH All of Us Program to Implement GA4GH Data Sharing Standards," that details the All of Us project's standards for allowing researchers to use collected data.

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Subject:   Ethics and Data Management

Title: How Digital Technology Can Increase Diversity, Equity And Inclusion In Medical Research

URL: https://www.forbes.com/sites/forbestechcouncil/2021/05/12/how-digital-technology-can-increase-diversity-equity-and-inclusion-in-medical-research/?sh=59a10bb92f7a/

Collection: All of Us Research Program web archive

Description: News article, titled "How Digital Technology Can Increase Diversity, Equity And Inclusion In Medical Research," detailing how the advancement of technology and the fact that it is more widely available can help diversify research by including historically marginalized communities. The article points to the COVID-19 pandemic as a factor to the acceleration of digital technologies within the health sector.

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Subject:   Ethics and Data Management

Title: All of Us Researcher Workbench Demo at Columbia University on Vimeo

URL: https://vimeo.com/517308378/

Collection: All of Us Research Program web archive

Description: Video recording, titled "All of Us Researcher Workbench Demo at Columbia University," detailing the All of Us Research Program and giving an overview of the Researcher Workbench and Research Hub.

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Subject:   Ethics and Data Management

Title: Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance

URL: https://reporter.nih.gov/search/fNCDOd_3f0CbzjOUR4eqUg/project-details/10320454/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance.

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Subject:   Ethics and Data Management

Title: The All of Us Research Program Launches National Research Database in Partnership with the Miller School - InventUM | University of Miami Miller School of Medicine

URL: https://physician-news.umiamihealth.org/all-of-us-study-at-miller-school-launches-national-research-database/

Collection: All of Us Research Program web archive

Description: News article, title "The All of Us Research Program Launches National Research Database in Partnership with the Miller School," detailing the All of Us research Program at the University on Miami, including specific faculty attached to the program. How to get involved with the program either as a participant or a researcher is also mentioned in the article.

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Subject:   Ethics and Data Management

Title: Digital Health Literacy: Why It’s Important and How to Improve It

URL: https://patientengagementhit.com/features/digital-health-literacy-why-its-important-and-how-to-improve-it/

Collection: All of Us Research Program web archive

Description: News article, titled "Digital Health Literacy: Why It’s Important and How to Improve It," that discusses digital health literacy and how to improve it, such as having access to digital health tools and better Wi-Fi. The article also mentions the consequences of not being literate in digital health and how to screen for low digital health literacy.

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Subject:   Ethics and Data Management

Title: The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data Audit (A-18-17-09304) 06-10-2019

URL: https://oig.hhs.gov/oas/reports/region18/181709304.asp

Collection: All of Us Research Program web archive

Description: Report, titled "The National Institutes of Health Could Improve Its Monitoring To Ensure That an Awardee of the All of Us Research Program Had Adequate Cybersecurity Controls To Protect Participants' Sensitive Data," from the Office of Inspector General detailing their audit of the All of Us Research Program. A link to the full report is provided at the top and the page gives a basic overview of why OIG conducted the audit and what OIG found.

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Subject:   Ethics and Data Management

Title: All of Us program launches cloud-based research platform | VUMC Reporter | Vanderbilt University

URL: https://news.vumc.org/2020/06/18/all-of-us-program-launches-cloud-based-research-platform/

Collection: All of Us Research Program web archive

Description: Press release, titled "All of Us program launches cloud-based research platform," that details the All of Us program's database and how it came to be.

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Subject:   Ethics and Data Management

Title: Nationwide All of Us research database now available to Emory researchers, part of a beta test

URL: https://news.emory.edu/stories/2020/07/allofus_database_available_to_emory_researchers/index.html

Collection: All of Us Research Program web archive

Description: News article, titled "Nationwide All of Us research database now available to Emory researchers, part of a beta test," detailing how the researchers at Emory University were granted access to the nationwide All of Us workbench. The article also mentions how researchers can use the data in reference to Covid-19 as well as a brief overview of the All of Us program at Emory University.

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Subject:   Ethics and Data Management

Title: Arizona man hopes to help national research program diversify health care system

URL: https://ktar.com/story/5075532/arizona-man-hopes-to-help-national-research-program-diversify-health-care-system/

Collection: All of Us Research Program web archive

Description: News article, titled "Arizona man hopes to help national research program diversify health care system," discussing a gay, HIV-positive man's decision to join the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Fitbit, Inc. - National Institutes of Health Launches Fitbit Project as First Digital Health Technology Initiative in Landmark All of Us Research Program

URL: https://investor.fitbit.com/press-releases/press-release-details/2019/National-Institutes-of-Health-Launches-Fitbit-Project-as-First-Digital-Health-Technology-Initiative-in-Landmark-All-of-Us-Research-Program/default.aspx

Collection: All of Us Research Program web archive

Description: Press release, titled "National Institutes of Health Launches Fitbit Project as First Digital Health Technology Initiative in Landmark All of Us Research Program," detailing the All of Us Research Program's intended plans to utilize Fitbits for gathering data from participants.

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Subject:   Ethics and Data Management

Title: What should I know about using my Fitbit device with the All of Us Research Program?

URL: https://help.fitbit.com/articles/en_US/Help_article/2427.htm

Collection: All of Us Research Program web archive

Description: The official Fitbit website with information related to using a Fitbit for the All of Us Research Program titled "What should I know about using my Fitbit device with the All of Us Research Program?"

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Subject:   Ethics and Data Management

Title: NIH Fitbit Study Reveals Need for Diversity in Research|Health Tech Insider

URL: https://healthtechinsider.com/2022/05/06/nih-fitbit-study-reveals-need-for-diversity-in-research/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH Fitbit Study Reveals Need for Diversity in Research," detailing how the majority of participants in the All of Us Research Program who participated in the wearables study came did not come from an underrepresented background. The article mentioned how the program has claimed that since the initial study, there have been more individuals from diverse backgrounds to take part in the wearables study.

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Subject:   Ethics and Data Management

Title: NIH Could Improve Security Controls of All of Us Awardees, OIG says

URL: https://healthitsecurity.com/news/nih-could-improve-security-controls-of-all-of-us-awardees-oig-says/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH Could Improve Security Controls of All of Us Awardees, OIG says," detailing the OIG Security Audit Report conducted on the All of Us Research Program. The article gives a general overview of the reports and relays where the Program is lacking in its security.

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Subject:   Ethics and Data Management

Title: How Obama's Precision Medicine Initiative Will Revolutionize Healthcare

URL: https://gizmodo.com/how-obamas-precision-medicine-initiative-will-revolutio-1680866890/

Collection: All of Us Research Program web archive

Description: Article, titled "How Obama's Precision Medicine Initiative Will Revolutionize Healthcare," discussing Obama's State of the Union speech in which he announced the Precision Medicine Initiative. The article discusses what is meant by precision medicine, what kind of approach the initiative will take, and what some of the challenges to the program may be.

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Subject:   Ethics and Data Management

Title: Returning value to research participants through digital health tools

URL: https://digitaltrials.scripps.edu/returning-value-to-research-participants-through-digital-health-tools/

Collection: All of Us Research Program web archive

Description: News article, titled "Returning value to research participants through digital health tools," detailing how to return value to research participants including via mobile health resources. The All of Us Research Program's app is mentioned in the article and a guide to using the app has been provided.

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Subject:   Ethics and Data Management

Title: All of Us Data Browser

URL: https://databrowser.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Data browser," that is part of the All of Us Research Program Hub. The Data browser allows for individuals to view publicly available data collected by the All of Us Research Program. Data collected is broken down into different subjects.

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Subject:   Ethics and Data Management

Title: Considerations for Meaningful Collaboration with Tribal Populations

URL: https://allofus.nih.gov/sites/default/files/tribal_collab_work_group_rept.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Considerations for Meaningful Collaboration with Tribal Populations," which details The Tribal Collaboration Working Group Report to the All of Us Research Program Advisory Panel. The document details the health systems of Native Tribes, the purpose of the working group in trying to include Native Peoples in the All of Us Research Program, and what the inclusivity would entail.

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Subject:   Ethics and Data Management

Title: Data Security Policy Principles

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/data-security-policy-principles/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Data Security Policy Principles."

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Subject:   Ethics and Data Management

Title: Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/achieving-principles-through-precision-medicine-initiative-data-security-policy-framework/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.

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Subject:   Ethics and Data Management

Title: Protecting Data and Privacy | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy

Collection: All of Us Research Program web archive

Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.

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Subject:   Ethics and Data Management

Title: New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners

URL: https://allofus.nih.gov/news-events/announcements/new-funding-opportunity-all-us-research-program-seeks-engagement-and-enrollment-partners/

Collection: All of Us Research Program web archive

Description: Press release, titled "New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners," detailing a new funding opportunity and how organizations can apply to use funds for community, researcher, or tribal engagement. Links to full details and more information are provided.

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Subject:   Ethics and Data Management

Title: Statement on Data Security from the All of Us Research Program | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/statement-data-security-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Press release, titled "Statement on Data Security from the All of Us Research Program," detailing a security audit performed on the Research Program and the Program's response to the security audit.

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Subject:   Ethics and Data Management

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