Built at the Internet Archive
Sites and collections from this organization are listed below. Narrow your results at left, or enter a search query below to find a collection, site, specific URL or to search the text of archived webpages.
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Collection: All of Us Research Program web archive
Description: Press release, titled "Statement on Data Security from the All of Us Research Program," detailing a security audit performed on the Research Program and the Program's response to the security audit.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Press release
Date: 2019-06-14
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners," detailing a new funding opportunity and how organizations can apply to use funds for community, researcher, or tribal engagement. Links to full details and more information are provided.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Press release
Date: 2022-06-01
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official NIH All of Us Research Program website for the program's "Data Security Policy Principles."
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Considerations for Meaningful Collaboration with Tribal Populations," which details The Tribal Collaboration Working Group Report to the All of Us Research Program Advisory Panel. The document details the health systems of Native Tribes, the purpose of the working group in trying to include Native Peoples in the All of Us Research Program, and what the inclusivity would entail.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Report
Date: 2018-04-04
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.
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Subject: Ethics and Data Management
Creator: All of Us Research Program , National Institutes of Health (U.S.)
Language: English
Type: Fact sheet
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Data Access Tiers," that details the different accessibility options and lists data use policies for the research program.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2021-08-17
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Page 1 of 1 (15 Total Results)
