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Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page is where individuals sign up to join the program.
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Subject: Participant Recruitment
Creator: National Institutes of Health (U.S.)
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Facebook page of the All of Us Research Program at University of Miami. Posts on the page mainly revolve around events hosted by the partner and encouragements to join the program.
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Subject: Engagement
Creator: University of Miami Miller School of Medicine, All of Us Research Program
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Twitter page for the All of Us Program at the University of Miami. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at the University of Miami.
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Subject: Engagement
Creator: University of Miami Miller School of Medicine, All of Us Research Program
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "All of Us Research Program Marks Third Anniversary with Remarkable Progress in Recruitment," detailing the All of Us program at the University of Miami after three years of operation, how to enroll, and what the program has achieved and plans to achieve.
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Subject: Engagement
Creator: University of Miami Miller School of Medicine, Hill, Kai
Language: English
Type: News article
Date: 2021-07-30
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, title "The All of Us Research Program Launches National Research Database in Partnership with the Miller School," detailing the All of Us research Program at the University on Miami, including specific faculty attached to the program. How to get involved with the program either as a participant or a researcher is also mentioned in the article.
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Subject: Ethics and Data Management
Creator: University of Miami Miller School of Medicine
Language: English
Type: News article
Date: 2020-10-21
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "All of Us Research Program Gears Up for An Interactive Experience," that gives an update on the All of Us program at the University of Miami. The update includes new data results participants are able to receive from the All of Us program.
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Subject: Engagement
Creator: University of Miami Miller School of Medicine, Garcia, Joey
Language: English
Type: News article
Date: 2021-12-02
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Emory University - All of Us Research Program," dedicated to the All of Us partner in Georgia, Emory University. The site gives a brief overview of the All of Us Research Program and Emory University's involvement. Locations of the All of Us program in the Atlanta area and events are also present on the website.
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Subject: Participant Recruitment
Creator: Emory University
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Twitter page for the All of Us Program at Emory University. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Emory University.
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Subject: Engagement
Creator: Emory University
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Facebook page of the All of Us Research Program at Emory University. Posts on the page mainly revolve around events hosted by the partner and encouragements to join the program.
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Subject: Engagement
Creator: Emory University
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NIH selects Emory to join national precision medicine research effort," detailing Emory University's involvement with the All of Us Research Program, who at the university will be involved with the program, and there institutions through the country that are involved in the program.
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Subject: Engagement
Creator: Emory University
Language: English
Type: News article
Date: 2017-08-30
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "'All of Us' research program tops 1,300 participants at Emory, continues enrollment," detailing the enrollment rate of the All of Us program at Emory University, who is eligible to enroll, what faculty are involved, what the program is, and what the program plans to accomplish.
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Subject: Engagement
Creator: Emory University
Language: English
Type: News article
Date: 2019-02-27
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Nationwide All of Us research database now available to Emory researchers, part of a beta test," detailing how the researchers at Emory University were granted access to the nationwide All of Us workbench. The article also mentions how researchers can use the data in reference to Covid-19 as well as a brief overview of the All of Us program at Emory University.
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Subject: Ethics and Data Management
Creator: Emory University
Language: English
Type: News article
Date: 2020-07-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official All of Us YouTube playlist from Henry Ford Health. The twelve videos in the playlist answer various questions prospective participants may have about the program and include short interviews with different members of the health community.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Henry Ford Health - All of Us Research Program," that relates information on the All of Us program and Henry Ford Health's involvement. Information provided includes locations, frequently asked questions, how to join, event information, and other news related to the program.
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Subject: General Sources
Creator: Henry Ford Health System
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "Fitbit Bring-Your-Own Device (BYOD): Participants can now link their Fitbit accounts to the program to share additional data for research," detailing how individuals can connect their Fitbit to the All of Us research program.
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Subject: Ethics and Data Management
Creator: Henry Ford Health System
Language: English
Type: News article
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "Genetic Counseling Resource," detailing Henry Ford Health's Genetic Counseling program through the All of Us Research Program. The page describes how the counseling program came to fruition, what it offers, and what the future of the program looks like.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: News article
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Banner Health - All of Us Research Program," dedicated to the All of Us partner in Arizona, Banner Health at The University of Arizona. The site gives a brief overview of the All of Us Research Program and Banner Health's involvement. Locations of the All of Us program in Arizona and Colorado plus events are also present on the website. Information on how to get involve, stay involved, and what will be done with the research can be found.
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Subject: Participant Recruitment
Creator: University of Arizona-Banner Health, All of Us Research Program
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "News & Events - Banner Health," that is part of the broader All of Us Website from the partner at the University of Arizona. This site is dedicated to events and news surrounding the All of Us Program at the University of Arizona.
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Subject: Research Projects Using Collected Data
Creator: University of Arizona-Banner Health, All of Us Research Program
Type: News article
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Twitter page for the All of Us Program at The University of Arizona. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at The University of Arizona.
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Subject: Engagement
Creator: University of Arizona-Banner Health
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Facebook page of the All of Us Research Program at The University of Arizona. Posts on the page mainly revolve around events hosted by the partner and details on how to join the program.
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Subject: Engagement
Creator: University of Arizona-Banner Health
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page for the All of Us Program at The University of Arizona. Videos from the channel are mainly promotional videos for the All of Us Research Program. Some videos are in English, while others are in Spanish to represent the Latinx communities in Arizona and the surrounding states.
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Subject: Engagement
Creator: University of Arizona-Banner Health, All of Us Research Program
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "All of Us Research Program," detailing the University of Arizona's involvement with the All of Us Research Program, including the initial endowment from NIH. Information about the research program and individuals from the university involved with the program can be found within the article as well.
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Subject: Engagement
Creator: University of Arizona-Banner Health
Language: English
Type: News article
Date: 2018-05-04
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official All of Us Pennsylvania website. The website relays vital information for the All of Us Research Program in Pennsylvania, including locations, frequently asked questions, contact information, an overview of the program, and other promotional materials.
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Subject: Participant Recruitment
Creator: University of Pittsburgh Clinical and Translational Science Institute, All of Us Research Program
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official All of Us Pennsylvania YouTube. The majority of videos involve Dr. Mylynda Massart answering various questions about the program. Other videos on the channel include more promotional videos for the program including testimonials.
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Subject: Engagement
Creator: University of Pittsburgh Clinical and Translational Science Institute
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official All of Us Pennsylvania Twitter. The majority of posts on the page relate to health and the importance of the All of Us Research Program. Post about the Research Program also detail how the program works.
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Subject: Engagement
Creator: University of Pittsburgh Clinical and Translational Science Institute
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Research Program Minority Student Research Symposium," dedicated to the Minority Student Research Symposium that occurred on May 22, 202Details, such as an agenda, speakers, partners, and frequently asked questions can be found on the site.
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Subject: Engagement
Creator: All of Us Southern Network
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Twitter of the Network of the National Library of Medicine All of Us Community Engagement Network. The majority of posts detail events put on by the All of Us Research program, including multiple webinars.
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Subject: Engagement
Creator: National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine," detailing the use of Fitbit devices within the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Scripps Research Institute
Language: English
Type: Press release
Date: 2021-02-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Fitbit website with information related to using a Fitbit for the All of Us Research Program titled "What should I know about using my Fitbit device with the All of Us Research Program?"
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Subject: Ethics and Data Management
Creator: Fitbit (Firm)
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "National Institutes of Health Launches Fitbit Project as First Digital Health Technology Initiative in Landmark All of Us Research Program," detailing the All of Us Research Program's intended plans to utilize Fitbits for gathering data from participants.
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Subject: Ethics and Data Management
Creator: Fitbit (Firm)
Language: English
Type: Press release
Date: 2019-01-16
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official All of Us Research Program website, titled "Viruses & Vaccines," detailing various viruses and vaccines. The page relates the biology of viruses and how to stop the spread of them.
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Subject: COVID-19
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "The NIH Launches Its Ambitious Million-Person Genetic Survey," from Wired detailing the launch of the All of Us Research Program. The article calls into question the use of genetic data and how in an age of privacy, one could feel vulnerable donating their genetic data. the article also relays more information on the All of Us Research Program itself.
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Subject: Public Response
Creator: Wired, Monteni, Megan
Language: English
Type: News article
Date: 2018-05-06
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Support Seed
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Subject: Engagement
Creator: NBCUSA H.O.P.E., Minor, Michael O., Williams, Lovoria
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Columbia University Institute for Genomic Medicine All of Us Research Program Researcher Workbench," that gives an introduction to the Program's workbench in collaboration with Columbia University Institute for Genomic Medicine.
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Subject: Ethics and Data Management
Creator: Columbia University Institute for Genomic Medicine
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Researcher Workbench Demo at Columbia University," detailing the All of Us Research Program and giving an overview of the Researcher Workbench and Research Hub.
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Subject: Ethics and Data Management
Creator: Columbia University Institute for Genomic Medicine
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Vimeo (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NYC Consortium Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine," that details the launch of the All of Us Research Program in New York and features some of the participating organizations. Basic information about the program, including goals of the program are mentioned throughout the article.
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Subject: Engagement
Creator: New York Presbyterian
Language: English
Type: News article
Date: 2018-05-03
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Facebook page of the All of Us Research Program at Louisiana State University Health Sciences Center. Posts on the page mainly revolve around events hosted by the partner and encouragements to join the program.
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Subject: Engagement
Creator: Louisiana State University Health Sciences Center
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Project story, titled "Launching All of Us, A Historic Precision Medicine Initiative," that details the All of Us Research Program and explains the benefits to the project. It also details the creation of the All of Us Research Program and how it has been in development since 2016, which included information surrounding the project while it was in beta. The article ends with information on how to join the project.
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Subject: Engagement
Creator: MITRE
Language: English
Type: Report
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Partners HealthCare, Boston Medical Center Partner with NIH to Launch the All of Us Research Program," relating Partners HealthCare and Boston Medical Center's involvement with the All of Us Research Program. Key highlights of the program are mentioned within the Press release as well as where individuals could find more information.
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Subject: Engagement
Creator: Brigham and Women's Hospital
Language: English
Type: Press release
Date: 2018-05-11
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Research Program - Miller School of Medicine," dedicated to the All of Us partner in Florida, University of Miami. The site gives a brief overview of the All of Us Research Program and the University of Miami's involvement.
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Subject: Participant Recruitment
Creator: University of Miami Miller School of Medicine, John P. Hussman Institute for Human Genomics (HIHG)
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "National Institute of Health All of Us Research Program," of the National Institute of Health's informational page on All of Us and their link to the main All of Us research page.
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Subject: General Sources
Creator: National Institutes of Health (U.S.)
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page of the All of Us program that includes promotional videos, webinars, and other informational videos about the All of Us program.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "Covid-19 and All of Us," detailing what the program is doing in response to Covid-19 and what data will be collected in regards to Covid-19.
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Subject: COVID-19
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "5/2019 NACNR - NIH All of Us Research Program/ Precision Medicine Initiative," of the National Advisory Council of Nursing Research meeting where Dr. Stephanie Devany gave an update on the All of Us Research Program.
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Subject: Public Response
Creator: National Institutes of Health (U.S.), National Institute of Nursing Research (U.S.)
Language: English
Type: Social media
Date: 2019-07-30
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "All of Us Releases Initial Covid-19 Survey Data to Researchers," detailing an update made to the program's research workbench that allowed researchers access to Covid-19 data as well as data provided by Fitbit technology.
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Subject: COVID-19
Creator: National Institutes of Health (U.S.), All of Us Research Program
Type: Press release
Date: 2020-12-08
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.
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Subject: COVID-19
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "All of Us Research Program launches Covid-19 research initiatives" detailing the All of Us program's initiatives, including antibody testing, the COPE Survey, and the collection of electronic health records.
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Subject: COVID-19
Creator: National Institutes of Health (U.S.)
Type: Press release
Date: 2020-06-16
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Facebook page for DREF that includes information on All of Us events, news, and posts not related to All of Us.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Instagram page for DREF that includes information on All of Us events, news, and posts not related to All of Us.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled “Research Matters: Creating Possibilities to Achieve Health and Wellness for All of Us," that details the partnership between DREF (Delta Research and Educational Foundation) and All of Us. The page also details where to follow DREF on Social media.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official YouTube page for DREF that includes videos from All of Us events, news, and videos not related to All of Us, but related to DREF.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Twitter page for DREF that includes information on All of Us events, news, and posts not related to All of Us.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "All of Us - News," from the American Association on Health and Disability website. This page gives links to news and details the Disability Community Partner Project. A definition on precision medicine and details on the All of Us project are also present.
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Subject: Participant Recruitment
Creator: American Association on Health and Disability
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "National Baptist Convention, USA Inc., H.O.P.E. HHS Partnership," that details the National Baptist Convention's involvement with the All of Us Research Program. The page hosts videos and photos from events. Various informational graphics and links to join are present.
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Subject: Participant Recruitment
Creator: National Baptist Convention of the United States of America, Health and Wellness Initiative
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Project report, titled "PRIDEnet for the All of Us Research Program," that details the projects plans to aid the All of Us program. The project is through Stanford University and the Project report includes publications related to the project.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.), Stanford University
Language: English
Type: Report
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "American Academy of HIV Medicine - All of Us Research Program Webinar," that links to the American Academy of HIV Medicine's All of Us Webinar from February 2021 and lists accompanying information for the webinar.
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Subject: Engagement
Creator: American Academy of HIV Medicine
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording of the American Academy of HIV Medicine's All of Us Webinar from February 2021.
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Subject: Engagement
Creator: All of Us Research Program
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: ZOOM
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording for the Minority Student Research Symposium, titled "All of Us Research Hub: Data Browser Tool," detailing what the Data Browser Tool is and how researchers can use it.
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Subject: Engagement
Creator: All of Us Southern Network, National Institutes of Health (U.S.)
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Vimeo (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording for the Minority Student Research Symposium, titled "All of Us Minority Student Research Symposium Informational Video," highlighting what people hope the All of Us Research Program will accomplish and giving an overview of the program. The video also delves into how communities can get involved.
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Subject: Engagement
Creator: All of Us Southern Network, National Institutes of Health (U.S.)
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Vimeo (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording for the Minority Student Research Symposium, titled "Data Matters for All of Us," discussing what health disparities are and how the All of Us Research Program can alleviate them. The video follows a data set through the All of Us Research Program and how the data set was used.
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Subject: Engagement
Creator: All of Us Southern Network, National Institutes of Health (U.S.)
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Vimeo (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Case report, titled "Research Priorities Workshop," detailing 1110 use cases that are categorized by nine health conditions. Within these nine health conditions, the cases are further organized by seven themes.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Report
Date: 2018-10-08
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Session summary, titled "All of Us Research Program Research Priorities Workshop," that gives an overview of the discussions held at the workshop. An overview of the program, goals of the workshop, panels, and keynote presentations were recorded in the summaries.
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Subject: General Sources
Creator: All of Us Research Program, Hamlet, Michelle, Collins, Francis S., Dishman, Eric, Simon, Greg, Patrick-Lake, Bray, Wei, Gina, Wheeler, Scott
Language: English
Type: Report
Date: 2018-03-21-23
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Research Hub Updates," that links out to various newsletters and articles about the Research Hub, including the "Research Roundup."
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "OHRP Research Community Forum," hosted by ECU Research and Katherine Blizinsksy. The thirty minute video discusses the All of Us Program and precision medicine.
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Subject: Engagement
Creator: East Carolina University, Blizinsksy, Katherine
Language: English
Type: Social media
Date: 2018-11-28
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting," hosted by the U.S. Department of Health and Human Services and Augusta University. The hour long video details the program's core values, the building blocks of the program, the growing network of healthcare provider organizations, the program's approach to gaining diversity, the participant portal, the program's Electronic Health Record, smart phone apps being developed for the program, and the program's data security and privacy.
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Subject: Ethics and Data Management
Creator: U.S. Department of Health and Human Services, Rutter, Joni
Language: English
Type: Social media
Date: 2017-08-29
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Publications," that links out to publications that are related to or utilized the All of Us data.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Spotlights," that links out to articles related to the All of Us Research Program. The articles are tagged as "Participant Data in Action," "Survey Insights," or "Meet the Researchers."
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Intel and Google Cloud Team with All of Us Research Program," announcing Intel's involvement with the All of Us Research Program by providing access to researchers nationwide. The Press release delves into what the All of Us Research Program is and how Intel is helping.
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Subject: Ethics and Data Management
Creator: intel
Language: English
Type: Press release
Date: 2021-02-02
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Survey Explorer," that links out to seven All of Us surveys. These surveys include: The Basics, Lifestyle, Overall Health, Personal Medical History, Health Care Access & Utilization, Family Medical History, Covid-19 Participate Experience (COPE).
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Subject: General Sources
Creator: All of Us Research Program
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: The Basics," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's basic information.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Family Medical History Survey," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's family medical history.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Healthcare Access Utilization ," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's healthcare decisions and how often they seek out healthcare professionals.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Lifestyle," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's lifestyle including smoking habits and substance use.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Overall Health," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's overall health and whether they view themselves as healthy individuals.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Personal Medical History," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's medical history.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)," hosted by the Department of Health and Human Services that details the funding available for the All of Us Research Program and how to apply for it.
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Subject: General Sources
Creator: National Institutes of Health (U.S.), National Library of Medicine (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Data Access Tiers," that details the different accessibility options and lists data use policies for the research program.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2021-08-17
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "7 ways to expand diversity in precision medicine research," detailing various ways programs can add diversity into their precision medicine program. The article claims that programs need to include communities and build trust with them in order to improve diversity.
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Subject: Engagement
Creator: American Medical Association, Berg, Sara
Language: English
Type: News article
Date: 2020-01-30
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Journey and Events," that links out to future and past event pages.
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Subject: Engagement
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "r/AllOfUsResearch," that is a community forum where participants in the All of Us Research Program can post thoughts, comments, discussion, and articles about the program.
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Subject: Public Response
Creator: Reddit
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NIH “All of Us” Program Takes on Study of COVID Among Racial Minorities," detailing how the All of Us Research Program has incorporated surveys about COVID-19 and how minorities were impacted by COVID-19.
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Subject: COVID-19
Creator: Daily Nurse, Gold, Ashley
Language: English
Type: News article
Date: 2020-08-17
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News video, titled "Study would like your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience.
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Subject: Engagement
Creator: 4WWL-TV
Language: English
Type: Video recording
Date: 2019-04-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Tegna, Inc.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Local study seeks your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience. The transcript of the video is provided as well.
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Subject: Engagement
Creator: 4WWL-TV, Farris, Meg
Language: English
Type: News article
Date: 2019-04-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Tegna, Inc.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official twitter for the All of Us Research Program that share information about the program, events taking place, and other health related information.
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Subject: Engagement
Creator: All of Us Research Program
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study," detailing the distribution of Fitbits and how the Fitbits would aid the All of Us Research program.
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Subject: Ethics and Data Management
Creator: XTalks, Hand, Sarah
Language: English
Type: News article
Date: 2017-11-15
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Considerations for Meaningful Collaboration with Tribal Populations," which details The Tribal Collaboration Working Group Report to the All of Us Research Program Advisory Panel. The document details the health systems of Native Tribes, the purpose of the working group in trying to include Native Peoples in the All of Us Research Program, and what the inclusivity would entail.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Report
Date: 2018-04-04
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Indigenous People Grill NIH on All of Us Protections," detailing pervious studies conducted on Native populations, the impact the studies had, and includes an interview with the All of Us director, Eric Dishman, explaining how the program will involve Native Tribes while protecting their privacy.
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Subject: Public Response
Creator: Relias Media, Evans, Gary
Language: English
Type: News article
Date: 2019-09-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Science Wants Your Data," detailing the All of Us program and some of the issues the program may encounter, such as finding enough participants, training researchers in utilizing data only on NIH servers, and security issues. The article concludes with specific questions the author feels participants should ask of the program.
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Subject: Public Response
Creator: ABC News Holding Company, FiveThirtyEight, Koerth, Maggie
Language: English
Type: News article
Date: 2018-06-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Welcome to the All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video welcomes participants to the program and claims that the future of health starts with the viewer.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Research Program Surveys" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program uses surveys to ask participants about their lifestyle.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want samples?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses what how bio samples from participants can help the All of Us Research Program.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want Physical Measurements?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program wants information such as height and weight.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "What Is Health Research?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses how health research has been beneficial and how giving information to the All of Us Research Program can aid health research.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
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