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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

Page 1 of 1 (23 Total Results)

Title: El futuro de la salud comienza con usted

URL: https://allofus.nih.gov/sites/default/files/AoU_Become_Our_Partner_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "El futuro de la salud comienza con usted," discussing what precision medicine and the All of Us Research Program is.

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Subject:   Engagement

Title: Future of Health

URL: https://allofus.nih.gov/sites/default/files/AoU_Future_of_Health_Eng.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Future of Health," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: El futuro de la salud comienza con usted

URL: https://allofus.nih.gov/sites/default/files/AoU_Future_of_Health_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "El futuro de la salud comienza con usted," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Cómo me inscribo al Programa Científi co All of Us?

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_Flyer_HowToSignUp_SPA.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Cómo me inscribo al Programa Científi co All of Us?," detailing how to sign up for the All of Us Research Program.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_Gradient_GeneralBrochure.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is a general brochure with information on the All of Us Research Program. The brochure answers frequently asked questions along with general questions about the program.

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Subject:   Engagement

Title: Invisible No Longer

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_InvisibleNoLonger_Flyer.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Invisible No Longer," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Su registro electrónico de salud

URL: https://allofus.nih.gov/sites/default/files/AoU_electronic_health_record_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Su registro electrónico de salud," detailing what an electronic health record is, why it is important, how the All of Us Research Program will keep the data safe, and why people should join the program.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_africanam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_asianam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_general_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_hispanic_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: Save the Date

URL: https://allofus.nih.gov/sites/default/files/save-the-date-aou-oklahoma-agendapdf.pdf

Collection: All of Us Research Program web archive

Description: PDF of a save the date for an All of Us Research Program Listening Session and some brief information about the session.

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Subject:   Participant Recruitment

Title: ALL OUR VOICES: Conversations about Health & Wellness

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3304

Collection: All of Us Research Program web archive

Description: Promotional Material, titled "ALL OUR VOICES: Conversations about Health & Wellness," for the ALL OUR VOICES tool kit that was created to promote awareness for the All of Us Research Program.

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Subject:   Engagement

Title: ALL OUR VOICES: Paquete de grabación del participante

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3305

Collection: All of Us Research Program web archive

Description: Spanish Promotional Material, titled "ALL OUR VOICES: Paquete de grabación del participante," for the ALL OUR VOICES tool kit that was created to promote awareness for the All of Us Research Program.

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Subject:   Engagement

Title: How to Promote #ALLOURVOICES

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3532

Collection: All of Us Research Program web archive

Description: Promotional Material, titled "How to Promote #ALLOURVOICES," giving brief examples on how libraries can promote the ALL OUR VOICES program.

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Subject:   Engagement

Title: All of Us Research Program Presentation

URL: https://www.ga4gh.org/wp-content/uploads/12_Glazer-All-of-Us-Research-Program-GA4GH-Orlando-Oct-16.pdf

Collection: All of Us Research Program web archive

Description: Presentation, titled "Global Alliance for Genomics and Health: All of Us Research Program," held on October 16, 2017 in Orlando. The presentation covers the All of Us Project's mission, data access, timeline, and GA4GH engagement.

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Subject:   Ethics and Data Management

Title: Data and Statistics Dissemination Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Data_and_Statistics_Dissemination_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Policy on Ethical Conduct of Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Ethical_Principles_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Publication and Presentation Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Publication_and_Presentation_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.

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Subject:   Ethics and Data Management

Title: Policy on Stigmatizing Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Stigmatizing_Research_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Data User Appeals Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_User_Appeals_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.

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Subject:   Ethics and Data Management

Title: Framework for Access to All of Us Data Resources v1.1

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_Access_Framework_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Data User Code of Conduct

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_User_Code_of_Conduct_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.

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Subject:   Ethics and Data Management

Page 1 of 1 (23 Total Results)