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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: Call to Action to Promote the All of Us Research Program | odr

URL: https://odr.dc.gov/AllOfUs

Collection: All of Us Research Program web archive

Description: Press release, titled "Call to Action to Promote All of Us Research Program to People with Disabilities," from the American Association on Health and Disability posted to the city of Washington D.C.'s website.

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Subject:   Participant Recruitment

Title: All of Us Wisconsin | The future of health in Wisconsin begins with All of Us Badgers!

URL: https://allofus.wisc.edu/

Collection: All of Us Research Program web archive

Description: Website, titled " All of Us Research Program - Wisconsin: University of Wisconsin-Madison," of the Wisconsin partner for the All of Us Program. The website details how Wisconsinites can join, why they should join, and has other promotional materials.

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Subject:   Participant Recruitment

Title: All of Us-UW (@AllofUsBadgers) / Twitter

URL: https://twitter.com/allofusbadgers/

Collection: All of Us Research Program web archive

Description: Official Twitter feed for the Wisconsin All of Us partner program, focusing on events hosted by the organization and local news pertaining to All of Us.

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Subject:   Participant Recruitment

Title: Communications and Engagement Partners | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/funding-and-program-partners/communications-and-engagement-partners

Collection: All of Us Research Program web archive

Description: Website, titled "Communications and Engagement Partners," from the National Institutes of Health listing all of the partners in the All of Us program and along with funding information.

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Subject:   Participant Recruitment

Title: Research Projects Directory – All of Us Research Hub

URL: https://www.researchallofus.org/research-projects-directory/

Collection: All of Us Research Program web archive

Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.

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Subject:   Research Projects Using Collected Data

Title: NIH award supports diverse researchers in All of US Research Program | BCM

URL: https://www.bcm.edu/news/nih-award-supports-diverse-researchers-in-all-of-us-research-program

Collection: All of Us Research Program web archive

Description: Press release, titled "NIH award supports diverse researchers in All of Us Research Program," that details Baylor College of Medicine's involvement and funding with NIH's All of Us Program.

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Subject:   Research Projects Using Collected Data

Title: Protecting Data and Privacy | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy

Collection: All of Us Research Program web archive

Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.

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Subject:   Ethics and Data Management

Title: I handed over my genetic data to the NIH. Here's why you should, too

URL: https://www.statnews.com/2018/06/13/entrusted-my-genetic-data-nih/

Collection: All of Us Research Program web archive

Description: News article, titled " I handed over my genetic data to the NIH. Here's why you should, too," written by the former Director of the All of Us Program, detailing his opinion on why people should participate in the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: All of Us program launches cloud-based research platform | VUMC Reporter | Vanderbilt University

URL: https://news.vumc.org/2020/06/18/all-of-us-program-launches-cloud-based-research-platform/

Collection: All of Us Research Program web archive

Description: Press release, titled "All of Us program launches cloud-based research platform," that details the All of Us program's database and how it came to be.

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Subject:   Ethics and Data Management

Title: Answers to patients’ top 5 questions on All of Us Research Program | American Medical Association

URL: https://www.ama-assn.org/delivering-care/precision-medicine/answers-patients-top-5-questions-all-us-research-program

Collection: All of Us Research Program web archive

Description: News article, titled " Answers to patients' top 5 questions on All of Us Research Program," answering what precision medicine is, who can participate in the research program, whether patients will need to change physicians, what happens if a patient is diagnosed with an illness, and what security measures are in place.

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Subject:   Public Response

Title: NIH uses dodgy PR to enroll one million Americans in its ‘All of Us’ precision medicine program |

URL: https://www.healthnewsreview.org/2018/05/nih-all-of-us-pr/

Collection: All of Us Research Program web archive

Description: News article, titled " NIH uses dodgy PR to enroll one million Americans in its 'All of Us' precision medicine program," criticizing the All of Us program's launch and relaying doctors opinions about the program.

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Subject:   Public Response

Title: All of Us Research Program | National Institutes of Health (NIH)

URL: https://allofus.nih.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "National Institute of Health All of Us Research Program," of the National Institute of Health's informational page on All of Us and their link to the main All of Us research page.

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Subject:   General Sources

Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Learn Internet Skills | All of Us

URL: https://allofus.nnlm.gov/learn-internet-skills/

Collection: All of Us Research Program web archive

Description: Website, titled "Learn Internet Skills," from the All of Us Research Program's main website that teaches individuals how to use the internet safely.

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Subject:   Engagement

Title: NNLM All of Us Community Engagement Network | All of Us

URL: https://allofus.nnlm.gov/nnlm-all-us-community-engagement-network/

Collection: All of Us Research Program web archive

Description: Website, titled "NNLM All of Us Community Engagement Network," detailing the NNLM community and what they do, how they do it, how individuals can get involved, and giving examples of some of the areas people can help in.

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Subject:   Engagement

Title: Digital Health Literacy | All of Us

URL: https://allofus.nnlm.gov/digital-health-literacy/

Collection: All of Us Research Program web archive

Description: Website, titled "Digital Health Literacy," detailing what digital health literacy is and provides resources to learn about digital health and why it is important.

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Subject:   Engagement

Title: Engagement Resources Library | All of Us

URL: https://allofus.nnlm.gov/engagement-resources/

Collection: All of Us Research Program web archive

Description: Website, titled "Engagement Resource Library," that provides resources from NLM, NNLM, and All of Us that can be used by sub awardees and partner libraries to engage with their communities about digital literacy, health literacy, and the NIH All of Us Research Program.

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Subject:   Engagement

Title: Precision Medicine Traveling Exhibit | All of Us

URL: https://allofus.nnlm.gov/precision-medicine-traveling-exhibit/

Collection: All of Us Research Program web archive

Description: Website, titled "Precision Medicine Traveling Exhibit," that details the traveling exhibit produced by Network of the National Library of Medicine to promote the All of Us Research Program.

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Subject:   Engagement

Title: Human Genetics Film Kits | All of Us

URL: https://allofus.nnlm.gov/human-genetics-film-kits/

Collection: All of Us Research Program web archive

Description: Website, titled "Human Genetics Film Kits," detailing the film kits curated by the Network of the National Library of Medicine and their contents. The film kits are designed to support public libraries in raising scientific literacy and awareness of precision medicine. Through attending screenings of the films and participating in related discussions, library patrons will learn about human genetics and the advance of precision medicine.

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Subject:   Engagement

Title: Genomics: A Revolution in Health and Disease Discovery | All of Us

URL: https://allofus.nnlm.gov/genomics-book-reading-club-kit/

Collection: All of Us Research Program web archive

Description: Website, titled "Genomics: A Revolution in Health and Disease Discovery," detailing one a ready-to-use reading club kit curated by the Network of the National Library of Medicine. The kit contains materials related to "Genomics: A Revolution in Health and Disease Discovery," including a recorded talk with the authors. Additional films and resources are present on the page.

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Subject:   Engagement

Title: Virtual Health Programs | All of Us

URL: https://allofus.nnlm.gov/vhp/

Collection: All of Us Research Program web archive

Description: Website, titled "Virtual Health Programs," that lists upcoming and previous virtual events organized by NNLM. These events are created and distributed to inform individuals about health information.

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Subject:   Engagement

Title: ALL OUR VOICES: Conversations about Health & Wellness | All of Us

URL: https://allofus.nnlm.gov/storycorps/

Collection: All of Us Research Program web archive

Description: Website, titled "ALL OUR VOICES: Conversations about Health & Wellness," detailing the partnership between NNLM and StoryCorps that was created to support awareness of the All of Us Research Program. A tool kit with related materials on the ALL OUR VOICES project is available.

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Subject:   Engagement

Title: ALL OUR VOICES: Conversations about Health & Wellness

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3304

Collection: All of Us Research Program web archive

Description: Promotional Material, titled "ALL OUR VOICES: Conversations about Health & Wellness," for the ALL OUR VOICES tool kit that was created to promote awareness for the All of Us Research Program.

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Subject:   Engagement

Title: ALL OUR VOICES: Paquete de grabación del participante

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3305

Collection: All of Us Research Program web archive

Description: Spanish Promotional Material, titled "ALL OUR VOICES: Paquete de grabación del participante," for the ALL OUR VOICES tool kit that was created to promote awareness for the All of Us Research Program.

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Subject:   Engagement

Title: ALL OUR VOICES: Conversations about Health & Wellness: Listening Event

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3531

Collection: All of Us Research Program web archive

Description: Power Point Promotional Material, titled "ALL OUR VOICES: Conversations about Health & Wellness: Listening Event," example for an event held by local libraries to promote the ALL OUR VOICES program.

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Subject:   Engagement

Title: Listening Event Flyer Template

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3480

Collection: All of Us Research Program web archive

Description: Promotional Material, titled "Listening Event Flyer Template," in Power Point format that gives two flyer templates for libraries to advertise their ALL OUR VOICE Listening Event.

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Subject:   Engagement

Title: How to Promote #ALLOURVOICES

URL: https://lor.nnlm.gov/op/op.Download_Share.php?documentid=3532

Collection: All of Us Research Program web archive

Description: Promotional Material, titled "How to Promote #ALLOURVOICES," giving brief examples on how libraries can promote the ALL OUR VOICES program.

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Subject:   Engagement

Title: All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM, National Library of Medicine

URL: https://nnlm.gov/civicrm-event/479/

Collection: All of Us Research Program web archive

Description: Event site, titled "All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM," that provides details for a webinar class to help individuals learn about the ALL OUR VOICES tool kit. Contacts, details, and a brief overview on the ALL OUR VOICES program are readily available.

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Subject:   Engagement

Title: StoryCorps Archive: All Our Voices

URL: https://archive.storycorps.org/communities/all-our-voices/

Collection: All of Us Research Program web archive

Description: Website, titled "StoryCorps Archive: All Our Voices," hosted by StoryCorps where individuals could upload their interviews about the All of Us Research Program.

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Subject:   Engagement

Title: StoryCorps D.I.Y.: All Our Voices

URL: https://diy.storycorps.org/courses/storycorps-diy-all-our-voices/

Collection: All of Us Research Program web archive

Description: Website, titled "StoryCorps D.I.Y.: All Our Voices," that allows libraries and organizations to promote discussing health by creating a virtual community where individuals share their stories and discussions.

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Subject:   Engagement

Title: All Our Voices

URL: https://www.youtube.com/playlist?list=PLqD5hvMO4a9dKPsx_1XgYEhCCliPv7tVK

Collection: All of Us Research Program web archive

Description: YouTube playlist for the "All Our Voices" program. Videos on the playlist detail the program, how to join, and the benefit of joining.

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Subject:   Engagement

Title: About All Our Voices

URL: https://www.youtube.com/watch?v=b869CcD5VYM/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "About All Our Voices," detailing the All Our Voices program and gave some examples from the program.

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Subject:   Participant Recruitment

Title: All Our Voices: Record you Story

URL: https://www.youtube.com/watch?v=iNU5eHd2ai0/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "All Our Voices: Record you Story," detailing the All Our Voices program and gave some examples from the program.

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Subject:   Participant Recruitment

Title: Destined to Be

URL: https://www.youtube.com/watch?v=2iBNcI8519c/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Destined to Be," detailing the story of friends Sabrina and Shantay and their experience with the birth of Sabrina's premature daughter.

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Subject:   Participant Recruitment

Title: Libraries working with All of Us to advance digital health literacy: Partnerships supporting US health

URL: https://www.thenationshealth.org/content/51/9/11.2/

Collection: All of Us Research Program web archive

Description: News Report, titled "Libraries working with All of Us to advance digital health literacy: Partnerships supporting US health" detailing how the All of Us research program partnered with libraries to release tools and information that would help individuals learn about digital health. The report briefly details the tools provided by the program and how these tools aid with digital health literacy.

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Subject:   General Sources

Title: NIH All of Us Research Program Partnership

URL: https://nnlm.gov/workbook-allofus/

Collection: All of Us Research Program web archive

Description: Website, titled "NIH All of Us Research Program Partnership," that is designed to provide publicly available information about the partnership between NNLM and All of Us to assist in preparing the grant application for the Network of the National Library of Medicine (NNLM) All of Us Program Center (U24) cooperative agreement that posted on July 12, 202The NNLM All of Us National Program Center (NAPC) will serve as the coordinating center for the engagement, programs, partnerships, activities, and training offered by NNLM in support of the All of Us Research Program.

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Subject:   General Sources

Title: Notice of Special Interest: Administrative Supplements to Advance Precision Medicine Using the All of Us Research Program’s Data

URL: https://grants.nih.gov/grants/guide/notice-files/NOT-PM-22-002.html

Collection: All of Us Research Program web archive

Description: Report, titled "Notice of Special Interest: Administrative Supplements to Advance Precision Medicine Using the All of Us Research Program’s Data," detailing the All of Us research program and different organizations involved with the project.

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Subject:   General Sources

Title: Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program

URL: https://www.ala.org/news/press-releases/2019/03/public-library-association-national-network-libraries-medicine-join/

Collection: All of Us Research Program web archive

Description: News Report, titled "Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program," announcing that the Public Library Association would be extending their partnership with the All of Us Research Program by supporting public libraries to increase health literacy, address health research inequities, and strengthen community partnerships with health advocates and providers.

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Subject:   General Sources

Title: Health Literacy Month (From All of Us)

URL: https://saccenter.org/health-literacy-month-from-all-of-us/

Collection: All of Us Research Program web archive

Description: Blog post, titled "Health Literacy Month (From All of Us)," posted on the Sacramento LGBT Community Center's website discussing what health literacy is, why it is important, and how the All of Us Research Program can help with it.

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Subject:   Engagement

Title: FACT SHEET: President Obama’s Precision Medicine Initiative

URL: https://obamawhitehouse.archives.gov/the-press-office/2015/01/30/fact-sheet-president-obama-s-precision-medicine-initiative/

Collection: All of Us Research Program web archive

Description: Press release, "FACT SHEET: President Obama’s Precision Medicine Initiative," detailing the initial announcement of the Precision Medicine Initiative that would morph into the All of Us Research Program. General information about the project is included.

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Subject:   General Sources

Title: All of Us Research Program Overview

URL: https://allofus.nih.gov/about/program-overview

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program Overview," detailing the All of Us Research Program at a glance and explaining what precision medicine is.

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Subject:   General Sources

Title: Giant study poses DNA data-sharing dilemma

URL: https://www.nature.com/articles/525016a#change-history/

Collection: All of Us Research Program web archive

Description: Article, titled "Giant study poses DNA data-sharing dilemma," discussing how the All of Us Research Program will release it's data to participants and researchers. The article also discusses the experience of Eric Dishman, the first head of the All of Us Research Program, with precision medicine.

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Subject:   Ethics and Data Management

Title: How Obama's Precision Medicine Initiative Will Revolutionize Healthcare

URL: https://gizmodo.com/how-obamas-precision-medicine-initiative-will-revolutio-1680866890/

Collection: All of Us Research Program web archive

Description: Article, titled "How Obama's Precision Medicine Initiative Will Revolutionize Healthcare," discussing Obama's State of the Union speech in which he announced the Precision Medicine Initiative. The article discusses what is meant by precision medicine, what kind of approach the initiative will take, and what some of the challenges to the program may be.

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Subject:   Ethics and Data Management

Title: Fitbit wearables will help power NIH's All of Us Research Program

URL: https://www.mobihealthnews.com/content/fitbit-wearables-will-help-power-nihs-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Article, titled "Fitbit wearables will help power NIH's All of Us Research Program," discussing Fitbit's partnership with the All of Us Research Program. The article gives a brief history of the All of Us Research Program and mentions some of the program's other partners.

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Subject:   Ethics and Data Management

Title: NIH opens nationwide enrollment for huge precision medicine initiative

URL: https://www.statnews.com/2018/05/01/nih-precision-medicine-all-of-us-enrollment/

Collection: All of Us Research Program web archive

Description: Article, titled "NIH opens nationwide enrollment for huge precision medicine initiative," detailing the nationwide launch of the All of Us Research Program. The article discusses the beta run of the project and how some people may be apprehensive towards given their genetic data to a government program.

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Subject:   General Sources

Title: NIH launches COVID-19 tracking initiatives through 'All of Us' precision medicine program

URL: https://www.beckershospitalreview.com/innovation/nih-launches-covid-19-tracking-initiatives-through-all-of-us-precision-medicine-program.html

Collection: All of Us Research Program web archive

Description: Article, titled "NIH launches COVID-19 tracking initiatives through 'All of Us' precision medicine program," detailing how the All of Us Research Program plans to test newer participants for COVID-19 and the new COVID-19 surveys available to participants.

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Subject:   COVID-19

Title: NIH Musters Million-Person Study to Track Covid’s Spread

URL: https://news.bloomberglaw.com/health-law-and-business/nih-musters-million-person-study-to-track-covids-spread/

Collection: All of Us Research Program web archive

Description: Article, titled "NIH Musters Million-Person Study to Track Covid’s Spread," detailing how NIH plans to use the All of Us Research Program to see how COVID-19 affected different groups of people. The article also mentions the COVID-19 surveys available to participants.

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Subject:   COVID-19

Title: Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities

URL: https://allofus.nih.gov/news-events/voices-all-us/billy-caceres-benchmarks-health-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities," that includes an interview/overview of Billy A. Caceres, a researcher for the All of Us Program. The interview delves into Caceres' life story, his research, and how his experiences have affected his research.

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Subject:   General Sources

Title: Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research

URL: https://allofus.nih.gov/news-events/voices-all-us/survival-resilience-power-mentorship-research/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research," that includes an interview/overview of Atiya Shahid, a Minority Student Research Symposium Scholar. The interview mentions Shahid's life story, her research, and her experiences with the All of Us Research Program.

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Subject:   General Sources

Title: Thirst for Knowledge and Data Drives Army Veteran to All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/thirst-knowledge-and-data-drives-army-veteran-all-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Thirst for Knowledge and Data Drives Army Veteran to All of Us," that includes an interview/ overview of Keisha Bellamy, a nurse for the All of Us Research Program and a veteran. The interview mentions Bellamy's life story, her experiences in the military, and her involvement in the All of Us research Program.

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Subject:   General Sources

Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

Title: Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark

URL: https://allofus.nih.gov/news-events/voices-all-us/connecting-social-environment-health-outcomes-to-pinpoint-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark," that includes an interview/ overview of Cheryl R. Clark, a researcher for the All of Us Research Program. The interview mentions Clark's personal experiences, her work with the All of Us Research Program, and how the two intersect.

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Subject:   General Sources

Title: Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler

URL: https://allofus.nih.gov/news-events/voices-all-us/building-bridges-better-health-joyce-ann-bell-winkler/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler," that includes an interview/ overview of Joyce Ann Bell Winkler, a participant ambassador for the All of Us Research Program. The interview details Winkler's personal experiences, including her childhood, and her experience with the All of Us Research Program. Her testimony details what the program is like and why others should join the program.

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Subject:   General Sources

Title: New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/ysabel-abreu-perseverance-humanity/

Collection: All of Us Research Program web archive

Description: Webpage, titled "New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us," that includes an interview/ overview of Ysabel Aberu, a member of the Participant Advisory Board. The interview details her life experiences that led to her involvement with the All of Us Research Program and why she is proud to be a part of the initiative.

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Subject:   General Sources

Title: NIH announces national enrollment date for All of Us Research Program to advance precision medicine

URL: https://www.nih.gov/news-events/news-releases/nih-announces-national-enrollment-date-all-us-research-program-advance-precision-medicine/

Collection: All of Us Research Program web archive

Description: News Release, titled "NIH announces national enrollment date for All of Us Research Program to advance precision medicine," announcing the official enrollment date for the All of Us Research Program. The news release notes that prior to this national enrollment, there was a beta test to prepare for the program. Information on what the program includes, such as surveys, is mentioned throughout the news release.

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Subject:   General Sources

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: Introduction to the Researcher Workbench - YouTube

URL: https://www.youtube.com/watch?v=NTLJtwLcavo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Introduction to the Researcher Workbench," detailing how to access and utilize the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Notebooks & Code Snippets - YouTube

URL: https://www.youtube.com/watch?v=NvMWBlVyyUU/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Notebooks & Code Snippets," explaining to researchers how to use some of the different features, including the notebooks and coding features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Dataset Builder & Concept Sets - YouTube

URL: https://www.youtube.com/watch?v=cUuDKUxjQoo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Dataset Builder & Concept Sets," explaining to researchers how to use some of the different features, including the dataset builder and concept sets features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Cohort Builder & Cohort Review

URL: https://www.youtube.com/embed/G6_GG2CJ9mA/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Cohort Builder & Cohort Review," explaining to researchers how to use some of the different features, including the various cohort features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: User Support Hub

URL: https://www.youtube.com/embed/Ni4PEJVbmSk/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "User Support Hub," explaining how to use the user support hub and other resources available to aid researchers in using the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: All of Us

URL: https://www.nnlm.gov/initiatives/all-of-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us," from the National Library of Medicine initiatives website. This page gives a brief overview of the All of Us Research Program and links to resources about the program.

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Subject:   General Sources

Title: Biobank

URL: https://allofus.nih.gov/funding-and-program-partners/biobank/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Biobank," hosted by the National Institutes of Health detailing what a biobank is and who provides the biobank for the All of Us Research Program.

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Subject:   General Sources

Title: Data and Research Center

URL: https://allofus.nih.gov/funding-and-program-partners/data-and-research-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Data and Research Center," hosted by the National Institutes of Health detailing what the data and research center is and who hosts the data and research center for the All of Us Research Program.

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Subject:   General Sources

Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: Participant Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Center," hosted by the National Institutes of Health detailing what the Participant Center is and listing some of the locations.

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Subject:   General Sources

Title: Participant Technology Systems Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-technology-systems-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Technology Systems Center," hosted by the National Institutes of Health detailing what the Participant Technology Center is and what organizations host the center.

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Subject:   General Sources

Title: Genomics Partners

URL: https://allofus.nih.gov/funding-and-program-partners/genomics-partners/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics Partners," hosted by the National Institutes of Health detailing what the genome centers will accomplish in the All of Us Research Program and listing the organizations that act as the genomic partners for the program.

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Subject:   General Sources

Title: Funding Opportunities

URL: https://allofus.nih.gov/funding-and-program-partners/funding-opportunities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Funding Opportunities," hosted by the National Institutes of Health that lists current and previous funding opportunities for researchers in the All of Us Research Program.

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Subject:   General Sources

Title: All of Us Research Program LGBTQ+ Data Privacy and Security

URL: https://www.joinallofus.org/themes/custom/jaou/etc/pdfs/data_privacy_infographic.pdf

Collection: All of Us Research Program web archive

Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.

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Subject:   Ethics and Data Management

Title: Represent LGBTQ+

URL: https://www.allofusaz.org/en/lgbtq/

Collection: All of Us Research Program web archive

Description: Website, titled "Represent LGBTQ+," detailing the All of Us Research Program and it's inclusivity with the LGBTQ+ community. The site hosts numerous testimonials, details why individuals should join, and how the project is different.

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Subject:   Engagement

Title: Stanford researchers to improve LGBTQ+ health and representation

URL: https://scopeblog.stanford.edu/2021/09/09/stanford-researchers-to-improve-lgbtq-health-and-representation/

Collection: All of Us Research Program web archive

Description: Blog post, titled "Stanford researchers to improve LGBTQ+ health and representation," detailing the All of Us Research Program, the program's inclusivity for LGBTQ+ individuals, and how the NIH granted funding to two researchers for LGBTQ+ research.

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Subject:   Research Projects Using Collected Data

Title: All of Us Programa Cientifico

URL: https://www.joinallofus.org/es/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Programa Cientifico," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This is the Spanish version of the main page is where individuals sign up to join the program.

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Subject:   General Sources

Title: All of Us Sharable Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Sharable Resources," from the All of Us Research Program that houses free materials for the project. The majority of materials are for promotional purposes, such as images for Social media, fact sheets, and brochures. Most are available in English and Spanish with some other languages being represented as well.

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Subject:   Engagement

Title: All of Us Nursing Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-nursing-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Nursing Resources," from the All of Us Research Program that provides resources, such as pamphlets and brochures, for nurses and other medical providers to learn about the program.

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Subject:   Engagement

Title: All of Us Physician Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-physician-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Physician Resources," from the All of Us Research Program that provides printable resources, such as business cards and note pads, for physicians. Links to other resources can be found on the page.

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Subject:   Engagement

Title: Program FAQs

URL: https://allofus.nih.gov/sites/default/files/all_of_us_program_faqs.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Program FAQs," listing frequently asked questions along with their answers about the All of Us Research Program.

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Subject:   Engagement

Title: Preguntas Frecuentes del Programa

URL: https://allofus.nih.gov/sites/default/files/2020-10/AoU_NAT_Preguntas-Frecuentes-de-Programa-Nacional_0.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Preguntas Frecuentes del Programa," listing frequently asked questions along with their answers about the All of Us Research Program.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_general_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_africanam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_asianam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_hispanic_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: We’re calling on one million people to lead the way toward better health.

URL: https://allofus.nih.gov/sites/default/files/all_of_us_program_faq_one_pager.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "We’re calling on one million people to lead the way toward better health." This is a general informative sheet or flyer for the All of Us Research Program. It answers general questions about the program and what precision medicine is.

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Subject:   Engagement

Title: Estamos invitando a un millón de personas a formar el camino hacia una mejor salud.

URL: https://allofus.nih.gov/sites/default/files/2020-10/AoU_Preguntas-Frecuentes-de-Programa-Nacional.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Estamos invitando a un millón de personas a formar el camino hacia una mejor salud." This is a general informative sheet or flyer for the All of Us Research Program. It answers general questions about the program and what precision medicine is.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_Gradient_GeneralBrochure.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is a general brochure with information on the All of Us Research Program. The brochure answers frequently asked questions along with general questions about the program.

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Subject:   Engagement

Title: Diversity Fact Sheet

URL: https://allofus.nih.gov/sites/default/files/Diversity%20Fact%20Sheet%20%E2%80%93%20Web%20Version_0.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Diversity Fact Sheet," detailing how diversity is important to the All of Us Research Program and how the program addresses concerns participants may have.

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Subject:   Engagement

Title: Diversity Fact Sheet

URL: https://allofus.nih.gov/sites/default/files/Diversity%20Fact%20Sheet%20%E2%80%93%20Spanish%20Web%20Version_0.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Diversity Fact Sheet," detailing how diversity is important to the All of Us Research Program and how the program addresses concerns participants may have.

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Subject:   Engagement

Title: Invisible No Longer

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_InvisibleNoLonger_Flyer.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Invisible No Longer," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Future of Health

URL: https://allofus.nih.gov/sites/default/files/AoU_Future_of_Health_Eng.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Future of Health," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Your electronic health record (EHR): The facts

URL: https://allofus.nih.gov/sites/default/files/AoU_electronic_health_record_Eng.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Your electronic health record (EHR): The facts," detailing what an electronic health record is, why it is important, how the All of Us Research Program will keep the data safe, and why people should join the program.

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Subject:   Engagement

Title: El futuro de la salud comienza con usted

URL: https://allofus.nih.gov/sites/default/files/AoU_Become_Our_Partner_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "El futuro de la salud comienza con usted," discussing what precision medicine and the All of Us Research Program is.

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Subject:   Engagement

Title: Cómo me inscribo al Programa Científi co All of Us?

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_Flyer_HowToSignUp_SPA.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Cómo me inscribo al Programa Científi co All of Us?," detailing how to sign up for the All of Us Research Program.

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Subject:   Engagement

Title: El futuro de la salud comienza con usted

URL: https://allofus.nih.gov/sites/default/files/AoU_Future_of_Health_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "El futuro de la salud comienza con usted," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Su registro electrónico de salud

URL: https://allofus.nih.gov/sites/default/files/AoU_electronic_health_record_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Su registro electrónico de salud," detailing what an electronic health record is, why it is important, how the All of Us Research Program will keep the data safe, and why people should join the program.

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Subject:   Engagement

Title: NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network

URL: https://www.nih.gov/news-events/news-releases/nih-forms-team-experts-chart-course-presidents-precision-medicine-initiative-research-network/

Collection: All of Us Research Program web archive

Description: News release, titled "NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network," announcing the formation of the Working Group of the Advisory Committee to the NIH Director (ACD) and listing the individuals that comprise the team. Background information on the initiative is also present in the news release.

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Subject:   General Sources

Title: NIH’s All of Us Research Program Releases First Genomic Dataset of Nearly 100,000 Whole Genome Sequences

URL: https://allofus.nih.gov/news-events/announcements/program-releases-first-genomic-dataset/

Collection: All of Us Research Program web archive

Description: News release, titled "NIH’s All of Us Research Program Releases First Genomic Dataset of Nearly 100,000 Whole Genome Sequences," announcing the release of genomic sequences to the All of Us Researcher Workbench for Researchers to use. Other information about the All of Us Research Program as a whole is present in the news release.

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Subject:   Research Projects Using Collected Data

Title: All of Us Journey at Memphis Juneteenth Festival

URL: https://www.joinallofus.org/event/all-of-us-journey-at-memphis-juneteenth-festival/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Memphis Juneteenth Festival," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at El Mercadito de Memphis

URL: https://www.joinallofus.org/event/all-of-us-journey-at-el-mercadito-de-memphis/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at El Mercadito de Memphis," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Knoxville Zoo

URL: https://www.joinallofus.org/event/all-of-us-journey-at-knoxville-zoo/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Knoxville Zoo," detailing the All of Us traveling exhibit's stop in Knoxville. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us (initiative) - Wikipedia

URL: https://en.wikipedia.org/w/index.php?title=All_of_Us_(initiative)&oldid=1095657643/

Collection: All of Us Research Program web archive

Description: Wikipedia entry for the All of Us Research Program. The entry includes information on the program's core values, who can join, what data is collected, budget information, partner information, responses to the program, and the program's progress.

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Subject:   General Sources

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