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Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page is where individuals sign up to join the program.
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Subject: Participant Recruitment
Creator: National Institutes of Health (U.S.)
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "Covid-19 and All of Us," detailing what the program is doing in response to Covid-19 and what data will be collected in regards to Covid-19.
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Subject: COVID-19
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "5/2019 NACNR - NIH All of Us Research Program/ Precision Medicine Initiative," of the National Advisory Council of Nursing Research meeting where Dr. Stephanie Devany gave an update on the All of Us Research Program.
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Subject: Public Response
Creator: National Institutes of Health (U.S.), National Institute of Nursing Research (U.S.)
Language: English
Type: Social media
Date: 2019-07-30
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "All of Us Releases Initial Covid-19 Survey Data to Researchers," detailing an update made to the program's research workbench that allowed researchers access to Covid-19 data as well as data provided by Fitbit technology.
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Subject: COVID-19
Creator: National Institutes of Health (U.S.), All of Us Research Program
Type: Press release
Date: 2020-12-08
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.
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Subject: COVID-19
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "All of Us Research Program launches Covid-19 research initiatives" detailing the All of Us program's initiatives, including antibody testing, the COPE Survey, and the collection of electronic health records.
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Subject: COVID-19
Creator: National Institutes of Health (U.S.)
Type: Press release
Date: 2020-06-16
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Facebook page for DREF that includes information on All of Us events, news, and posts not related to All of Us.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Facebook (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Instagram page for DREF that includes information on All of Us events, news, and posts not related to All of Us.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled “Research Matters: Creating Possibilities to Achieve Health and Wellness for All of Us," that details the partnership between DREF (Delta Research and Educational Foundation) and All of Us. The page also details where to follow DREF on Social media.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official YouTube page for DREF that includes videos from All of Us events, news, and videos not related to All of Us, but related to DREF.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official Twitter page for DREF that includes information on All of Us events, news, and posts not related to All of Us.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "All of Us - News," from the American Association on Health and Disability website. This page gives links to news and details the Disability Community Partner Project. A definition on precision medicine and details on the All of Us project are also present.
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Subject: Participant Recruitment
Creator: American Association on Health and Disability
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "National Baptist Convention, USA Inc., H.O.P.E. HHS Partnership," that details the National Baptist Convention's involvement with the All of Us Research Program. The page hosts videos and photos from events. Various informational graphics and links to join are present.
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Subject: Participant Recruitment
Creator: National Baptist Convention of the United States of America, Health and Wellness Initiative
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Project report, titled "PRIDEnet for the All of Us Research Program," that details the projects plans to aid the All of Us program. The project is through Stanford University and the Project report includes publications related to the project.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.), Stanford University
Language: English
Type: Report
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "American Academy of HIV Medicine - All of Us Research Program Webinar," that links to the American Academy of HIV Medicine's All of Us Webinar from February 2021 and lists accompanying information for the webinar.
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Subject: Engagement
Creator: American Academy of HIV Medicine
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording of the American Academy of HIV Medicine's All of Us Webinar from February 2021.
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Subject: Engagement
Creator: All of Us Research Program
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: ZOOM
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "American Academy of HIV Medicine - All of Us Research Program Webinar," that links to the American Academy of HIV Medicine's All of Us Webinar from August 2019 and lists accompanying information for the webinar.
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Subject: Engagement
Creator: American Academy of HIV Medicine
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording of the American Academy of HIV Medicine's All of Us Webinar from August 2019.
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Subject: Engagement
Creator: American Academy of HIV Medicine
Language: English
Type: Video recording
Date: 2018-08-28
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "01 May American Academy of HIV Medicine Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine," detailing the launch of the All of Us program.
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Subject: Participant Recruitment
Creator: American Academy of HIV Medicine, Haley
Language: English
Type: Press release
Date: 2018-05-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "All of Us - AAPA," on the American Academy of PAs website that gives an overview of the All of Us project and contains links to informational material.
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Subject: Participant Recruitment
Creator: American Academy of PAs
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Two PAs Use Genetics and Precision Medicine to Provide Answers and Develop Plans for Patients," detailing how the All of Us program has impacted how PAs work with their patients.
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Subject: Participant Recruitment
Creator: American Academy of PAs, Walker, Jennifer
Language: English
Type: News article
Date: 2021-12-16
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "PAs: Get Involved in Genetics to Help Patients," detailing one PAs involvement in genetic work, how this genetic work has aided patients, and how to get involved in All of Us.
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Subject: Participant Recruitment
Creator: American Academy of PAs
Language: English
Type: News article
Date: 2020-12-10
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Colorado PAs Spotlight All of Us Research Program," highlighting the All of Us program by having CAPA Director-at-Large Kendra Glassman, PA-C, answer questions regarding the program.
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Subject: Public Response
Creator: American Academy of PAs
Language: English
Type: News article
Date: 2021-09-16
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "PAs Say Genetics and Genomics Key to Patient Diagnosis and Treatment," details the benefits of precision medicine while promoting the All of Us program.
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Subject: Public Response
Creator: American Academy of PAs, Denne, Eileen
Language: English
Type: News article
Date: 2021-04-04
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "All of Us Research Mini-Grant Program," with a graphic depicting all of the Grant Recipients of the Mini-Grant Program made in partnership with the American Association of Colleges of Nursing.
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Subject: Public Response
Creator: American Association of Colleges of Nursing
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Newsletters page from the official All of Us website that give updates to the project. Newsletters found on this site are organized by date of publication.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Type: News article
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Community Health Center, Inc. - About All of Us," of the All of Us partner in Connecticut, Community Health Center, Inc. This site gives relevant information for individuals in Connecticut wishing to join the All of Us program.
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Subject: Participant Recruitment
Creator: Community Health Center Inc.
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Instagram for All of Us in partnership with Community Health Center, Inc.
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Subject: Engagement
Creator: Community Health Center Inc.
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Instagram (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News Release, titled "NIH All of Us Program to Implement GA4GH Data Sharing Standards," that details the All of Us project's standards for allowing researchers to use collected data.
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Subject: Ethics and Data Management
Creator: Global Alliance for Genomics & Health
Language: English
Type: News article
Date: 2018-05-11
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Presentation, titled "Global Alliance for Genomics and Health: All of Us Research Program," held on October 16, 2017 in Orlando. The presentation covers the All of Us Project's mission, data access, timeline, and GA4GH engagement.
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Subject: Ethics and Data Management
Creator: Global Alliance for Genomics & Health
Language: English
Type: Publication
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Jackson-Hinds Comprehensive Health Center: All of Us," dedicated to the All of Us partner in Mississippi, Jackson Hinds Comprehensive Health Center. The site gives relevant information for individuals in Mississippi wishing to join the All of Us program.
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Subject: Participant Recruitment
Creator: Jackson-Hinds Comprehensive Health Center
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Case report, titled "Research Priorities Workshop," detailing 1110 use cases that are categorized by nine health conditions. Within these nine health conditions, the cases are further organized by seven themes.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Report
Date: 2018-10-08
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Session summary, titled "All of Us Research Program Research Priorities Workshop," that gives an overview of the discussions held at the workshop. An overview of the program, goals of the workshop, panels, and keynote presentations were recorded in the summaries.
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Subject: General Sources
Creator: All of Us Research Program, Hamlet, Michelle, Collins, Francis S., Dishman, Eric, Simon, Greg, Patrick-Lake, Bray, Wei, Gina, Wheeler, Scott
Language: English
Type: Report
Date: 2018-03-21-23
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Research Hub Updates," that links out to various newsletters and articles about the Research Hub, including the "Research Roundup."
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "OHRP Research Community Forum," hosted by ECU Research and Katherine Blizinsksy. The thirty minute video discusses the All of Us Program and precision medicine.
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Subject: Engagement
Creator: East Carolina University, Blizinsksy, Katherine
Language: English
Type: Social media
Date: 2018-11-28
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting," hosted by the U.S. Department of Health and Human Services and Augusta University. The hour long video details the program's core values, the building blocks of the program, the growing network of healthcare provider organizations, the program's approach to gaining diversity, the participant portal, the program's Electronic Health Record, smart phone apps being developed for the program, and the program's data security and privacy.
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Subject: Ethics and Data Management
Creator: U.S. Department of Health and Human Services, Rutter, Joni
Language: English
Type: Social media
Date: 2017-08-29
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Publications," that links out to publications that are related to or utilized the All of Us data.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Spotlights," that links out to articles related to the All of Us Research Program. The articles are tagged as "Participant Data in Action," "Survey Insights," or "Meet the Researchers."
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Intel and Google Cloud Team with All of Us Research Program," announcing Intel's involvement with the All of Us Research Program by providing access to researchers nationwide. The Press release delves into what the All of Us Research Program is and how Intel is helping.
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Subject: Ethics and Data Management
Creator: intel
Language: English
Type: Press release
Date: 2021-02-02
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Survey Explorer," that links out to seven All of Us surveys. These surveys include: The Basics, Lifestyle, Overall Health, Personal Medical History, Health Care Access & Utilization, Family Medical History, Covid-19 Participate Experience (COPE).
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Subject: General Sources
Creator: All of Us Research Program
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: The Basics," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's basic information.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Family Medical History Survey," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's family medical history.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Healthcare Access Utilization ," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's healthcare decisions and how often they seek out healthcare professionals.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Lifestyle," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's lifestyle including smoking habits and substance use.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Overall Health," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's overall health and whether they view themselves as healthy individuals.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Personal Medical History," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's medical history.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)," hosted by the Department of Health and Human Services that details the funding available for the All of Us Research Program and how to apply for it.
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Subject: General Sources
Creator: National Institutes of Health (U.S.), National Library of Medicine (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Data Access Tiers," that details the different accessibility options and lists data use policies for the research program.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2021-08-17
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "7 ways to expand diversity in precision medicine research," detailing various ways programs can add diversity into their precision medicine program. The article claims that programs need to include communities and build trust with them in order to improve diversity.
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Subject: Engagement
Creator: American Medical Association, Berg, Sara
Language: English
Type: News article
Date: 2020-01-30
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Journey and Events," that links out to future and past event pages.
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Subject: Engagement
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "r/AllOfUsResearch," that is a community forum where participants in the All of Us Research Program can post thoughts, comments, discussion, and articles about the program.
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Subject: Public Response
Creator: Reddit
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NIH “All of Us” Program Takes on Study of COVID Among Racial Minorities," detailing how the All of Us Research Program has incorporated surveys about COVID-19 and how minorities were impacted by COVID-19.
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Subject: COVID-19
Creator: Daily Nurse, Gold, Ashley
Language: English
Type: News article
Date: 2020-08-17
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News video, titled "Study would like your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience.
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Subject: Engagement
Creator: 4WWL-TV
Language: English
Type: Video recording
Date: 2019-04-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Tegna, Inc.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Local study seeks your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience. The transcript of the video is provided as well.
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Subject: Engagement
Creator: 4WWL-TV, Farris, Meg
Language: English
Type: News article
Date: 2019-04-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Tegna, Inc.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official twitter for the All of Us Research Program that share information about the program, events taking place, and other health related information.
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Subject: Engagement
Creator: All of Us Research Program
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study," detailing the distribution of Fitbits and how the Fitbits would aid the All of Us Research program.
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Subject: Ethics and Data Management
Creator: XTalks, Hand, Sarah
Language: English
Type: News article
Date: 2017-11-15
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Considerations for Meaningful Collaboration with Tribal Populations," which details The Tribal Collaboration Working Group Report to the All of Us Research Program Advisory Panel. The document details the health systems of Native Tribes, the purpose of the working group in trying to include Native Peoples in the All of Us Research Program, and what the inclusivity would entail.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Report
Date: 2018-04-04
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Indigenous People Grill NIH on All of Us Protections," detailing pervious studies conducted on Native populations, the impact the studies had, and includes an interview with the All of Us director, Eric Dishman, explaining how the program will involve Native Tribes while protecting their privacy.
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Subject: Public Response
Creator: Relias Media, Evans, Gary
Language: English
Type: News article
Date: 2019-09-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Science Wants Your Data," detailing the All of Us program and some of the issues the program may encounter, such as finding enough participants, training researchers in utilizing data only on NIH servers, and security issues. The article concludes with specific questions the author feels participants should ask of the program.
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Subject: Public Response
Creator: ABC News Holding Company, FiveThirtyEight, Koerth, Maggie
Language: English
Type: News article
Date: 2018-06-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Welcome to the All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video welcomes participants to the program and claims that the future of health starts with the viewer.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Research Program Surveys" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program uses surveys to ask participants about their lifestyle.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want samples?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses what how bio samples from participants can help the All of Us Research Program.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want Physical Measurements?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program wants information such as height and weight.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "What Is Health Research?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses how health research has been beneficial and how giving information to the All of Us Research Program can aid health research.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Rachel from 95.5 learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video gives a brief detail of what the program is and when participants can expect results from the program.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Mike from 95.5 learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video gives a brief detail of what people can expect by joining the program and why the All of Us Research Program wants access to Electronic Health Records (EHR).
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Dr. Darrius from WJLB learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video details how the All of Us Research Program protects data provided by participants and how long the program is aiming to last.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Hits the Road with Henry Pop-Ups," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish and how the program is keeping data secure. Henry, a bus used by the All of Us Research Program as a pop-up site, is shown throughout the video.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Research Program Enrollment Journey," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish, how to join the program, and what joining the program looks like.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Call to Action to Promote All of Us Research Program to People with Disabilities," from the American Association on Health and Disability posted to the city of Washington D.C.'s website.
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Subject: Participant Recruitment
Creator: District of Columbia. Office of Disability Rights
Language: English
Type: Press release
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled " All of Us Research Program - Wisconsin: University of Wisconsin-Madison," of the Wisconsin partner for the All of Us Program. The website details how Wisconsinites can join, why they should join, and has other promotional materials.
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Subject: Participant Recruitment
Creator: University of Wisconsin--Madison, All of Us Research Program
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official Twitter feed for the Wisconsin All of Us partner program, focusing on events hosted by the organization and local news pertaining to All of Us.
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Subject: Participant Recruitment
Creator: University of Wisconsin--Madison
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Twitter (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Communications and Engagement Partners," from the National Institutes of Health listing all of the partners in the All of Us program and along with funding information.
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Subject: Participant Recruitment
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "NIH award supports diverse researchers in All of Us Research Program," that details Baylor College of Medicine's involvement and funding with NIH's All of Us Program.
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Subject: Research Projects Using Collected Data
Creator: Baylor College of Medicine, Chiu, Molly
Language: English
Type: Press release
Date: 2021-09-09
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled " I handed over my genetic data to the NIH. Here's why you should, too," written by the former Director of the All of Us Program, detailing his opinion on why people should participate in the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: STAT (Health and medicine news publisher), Dishman, Eric
Language: English
Type: News article
Date: 2018-06-13
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "All of Us program launches cloud-based research platform," that details the All of Us program's database and how it came to be.
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Subject: Ethics and Data Management
Creator: Vanderbilt University. Medical Center, Govern, Paul
Language: English
Type: Press release
Date: 2020-06-18
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled " Answers to patients' top 5 questions on All of Us Research Program," answering what precision medicine is, who can participate in the research program, whether patients will need to change physicians, what happens if a patient is diagnosed with an illness, and what security measures are in place.
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Subject: Public Response
Creator: American Medical Association, Murphy, Brendan
Language: English
Type: News article
Date: 2018-02-26
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled " NIH uses dodgy PR to enroll one million Americans in its 'All of Us' precision medicine program," criticizing the All of Us program's launch and relaying doctors opinions about the program.
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Subject: Public Response
Creator: Health News Review, Joyce, Michael
Language: English
Type: News article
Date: 2018-05-18
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording for the Minority Student Research Symposium, titled "All of Us Research Hub: Data Browser Tool," detailing what the Data Browser Tool is and how researchers can use it.
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Subject: Engagement
Creator: All of Us Southern Network, National Institutes of Health (U.S.)
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Vimeo (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording for the Minority Student Research Symposium, titled "All of Us Minority Student Research Symposium Informational Video," highlighting what people hope the All of Us Research Program will accomplish and giving an overview of the program. The video also delves into how communities can get involved.
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Subject: Engagement
Creator: All of Us Southern Network, National Institutes of Health (U.S.)
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Vimeo (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording for the Minority Student Research Symposium, titled "Data Matters for All of Us," discussing what health disparities are and how the All of Us Research Program can alleviate them. The video follows a data set through the All of Us Research Program and how the data set was used.
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Subject: Engagement
Creator: All of Us Southern Network, National Institutes of Health (U.S.)
Language: English
Type: Video recording
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Vimeo (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for the Adaptive Platform for Personalized Engagement.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2017-2018
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for the Population-Scale Clinical Genomics.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2019-2024
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for The Baylor-Hopkins Clinical Genomics Center for All of Us.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2018-2023
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for The Broad-LMM-Color Genome Center for All of Us.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2018-2023
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for the Northwest Genomics Center for All of Us.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2018-2023
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for the Color's software-powered, high-touch delivery of genetic counseling sessions and pharmacogenomics consultations for return of genomic results.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2019-2024
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for the Technology to Empower Changes in Health (TECH) Network Participant Technologies Center.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2016-2022
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for the Communications Design and Development for NIH Precision Medicine Initiative Research Projects.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2016-2018
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: RePORTER Project report page for the All of Us Research Program Engagement and Retention Innovators.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: Report
Date: 2020-2025
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
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