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Archived since: Aug, 2023
Description:
A selective collection of nearly 100 web resources archived by the National Library of Medicine beginning in 2023 related to rare diseases as a public health concern. The collection includes websites of government and non-government organizations with topics including rare disease research, advocacy work, drug and treatment development, patient experiences, and support networks. The collection focuses on rare diseases broadly and does not contain resources about individual diseases. Archived websites are primarily in English. NLM will continue to develop, review, describe, and add content to the collection.
Subject: Government - US Federal, Science & Health, Genetic diseases, Chromosome disorders, Genetic medicine , Precision medicine
Group: Thematic and Event-Based Collections
Collector: National Library of Medicine (U.S.)
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