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Collection: All of Us Research Program web archive
Description: Video recording, titled "5/2019 NACNR - NIH All of Us Research Program/ Precision Medicine Initiative," of the National Advisory Council of Nursing Research meeting where Dr. Stephanie Devany gave an update on the All of Us Research Program.
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Subject: Public Response
Creator: National Institutes of Health (U.S.), National Institute of Nursing Research (U.S.)
Language: English
Type: Social media
Date: 2019-07-30
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "A Geneticist’s Dilemma," detailing the Navajo's moratorium on genetic research due to religious reasons, the All of Us Research Program's attempts to recruit Native Americans, and a previous study where permission to use Native American data was not granted.
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Subject: Public Response
Creator: Nash Holdings, Washington Post, Schwartz, Oscar
Language: English
Type: News article
Date: 2020-11-23
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "All of Us Med Research | Cronkite News," giving a brief overview of the All of Us Research Program in Arizona and how the program affects the medical field due to its diversity. The news video interviews participant Victor Avila, asking him why he decided to join the program.
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Subject: Public Response
Creator: Cronkite News
Language: English
Type: Social media
Date: 2022-04-19
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "All of Us Research Mini-Grant Program," with a graphic depicting all of the Grant Recipients of the Mini-Grant Program made in partnership with the American Association of Colleges of Nursing.
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Subject: Public Response
Creator: American Association of Colleges of Nursing
Language: English
Type: Website
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video posted on TikTok from user "peridothedgehog" detailing their experience with the All of Us Research Program and how they believe it will be beneficial. The video also mentions how the user discovered the All of Us Research Program.
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Subject: Public Response
Creator: peridothedgehog
Language: English
Type: Social media
Date: 2021-07-26
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: TikTok
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled " Answers to patients' top 5 questions on All of Us Research Program," answering what precision medicine is, who can participate in the research program, whether patients will need to change physicians, what happens if a patient is diagnosed with an illness, and what security measures are in place.
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Subject: Public Response
Creator: American Medical Association, Murphy, Brendan
Language: English
Type: News article
Date: 2018-02-26
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Researchers Gather Health Data For 'All Of Us'," from NPR. The article details the All of Us program and goes in depth into the process behind reading and storing samples provided by participants. Other aspects, such as perceived benefits of the program are mentioned within the article.
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Subject: Public Response
Creator: National Public Radio, Harris, Richard
Language: English
Type: News article
Date: 2017-12-31
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Colorado PAs Spotlight All of Us Research Program," highlighting the All of Us program by having CAPA Director-at-Large Kendra Glassman, PA-C, answer questions regarding the program.
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Subject: Public Response
Creator: American Academy of PAs
Language: English
Type: News article
Date: 2021-09-16
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Diversity in Research and the All of Us Research Program," detailing how women have historically been underrepresented in medical studies and calls upon women and other minorities to join the All of Us Research Program.
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Subject: Public Response
Creator: Practicing Clinicians Exchange, Gonzalez, Paola
Language: English
Type: News article
Date: 2022-05-03
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Blog post, titled "From All of Us to Precision Medicine," detailing the creation of the All of Us Research Program and Northwestern's involvement in the program. The post discusses some challenges behind the project as well as the importance of some of the terminology.
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Subject: Public Response
Creator: Northwestern Public Health Review, Zewde, Makda
Language: English
Type: Blog
Date: 2018-08-15
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Indigenous People Grill NIH on All of Us Protections," detailing pervious studies conducted on Native populations, the impact the studies had, and includes an interview with the All of Us director, Eric Dishman, explaining how the program will involve Native Tribes while protecting their privacy.
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Subject: Public Response
Creator: Relias Media, Evans, Gary
Language: English
Type: News article
Date: 2019-09-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Million-person U.S. study of genes and health stumbles over including Native American groups," detailing issues with collecting data from Native American groups mainly due to skepticism. The article mentions other criticisms of the All of Us Research Program.
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Subject: Public Response
Creator: Science.org, Kaiser, Jocelyn
Language: English
Type: News article
Date: 2019-05-29
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NIH All of Us project tops 270,000 sign-ups and on track to enroll 1M participants by 2024," detailing the success of the All of Us Research Program in recruiting over 270,000 participants with more to come. The article delves into some of the issues with recruitment, such as not being able to include people in rural areas far away from partner locations.
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Subject: Public Response
Creator: Fierce Healthcare, Landi, Heather
Language: English
Type: News article
Date: 2019-08-16
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled " NIH uses dodgy PR to enroll one million Americans in its 'All of Us' precision medicine program," criticizing the All of Us program's launch and relaying doctors opinions about the program.
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Subject: Public Response
Creator: Health News Review, Joyce, Michael
Language: English
Type: News article
Date: 2018-05-18
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Enrollment for the NIH’s Ambitious ‘All of Us’ Precision Medicine Project Begins This Weekend," announcing that the All of Us Research Program was beginning enrollment on Sunday, May 6th, 2018.
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Subject: Public Response
Creator: Fortune, Mukherjee, Sy
Language: English
Type: News article
Date: 2018-05-04
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Arizonans enroll in All of Us program to increase diversity in medical research," detailing the All of Us Research Program in Arizona, how the program differs from other research initiatives, what the data collected will be used for, and what securities are in place to protect participants.
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Subject: Public Response
Creator: Walter Cronkite School of Journalism and Mass Communication, Mellos, Kaila
Language: English
Type: News article
Date: 2022-04-19
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Nashville residents underrepresented in medical research are offering up DNA samples despite their privacy concerns," detailing the involvement of underrepresented groups in Nashville and how some have joined the All of Us Research Program even though they have some concerns with the program. The Press release also mentions how individuals can have some or all of their data included in the program. The All of Us Research Program's bus tour is mentioned in the Press release, including the next stop of the tour after Nashville.
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Subject: Public Response
Creator: Nashville Public Radio, 90.3 WPLN News, Farmer, Blake
Language: English
Type: Press release
Date: 2022-06-02
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "PAs Say Genetics and Genomics Key to Patient Diagnosis and Treatment," details the benefits of precision medicine while promoting the All of Us program.
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Subject: Public Response
Creator: American Academy of PAs, Denne, Eileen
Language: English
Type: News article
Date: 2021-04-04
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "r/AllOfUsResearch," that is a community forum where participants in the All of Us Research Program can post thoughts, comments, discussion, and articles about the program.
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Subject: Public Response
Creator: Reddit
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Science Wants Your Data," detailing the All of Us program and some of the issues the program may encounter, such as finding enough participants, training researchers in utilizing data only on NIH servers, and security issues. The article concludes with specific questions the author feels participants should ask of the program.
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Subject: Public Response
Creator: ABC News Holding Company, FiveThirtyEight, Koerth, Maggie
Language: English
Type: News article
Date: 2018-06-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "The All of Us Research Program," describing a medical health conference panel led by the All of Us Research Program in Wisconsin.
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Subject: Public Response
Creator: Courier Communications, Milwaukee Courier
Language: English
Type: News article
Date: 2022-05-06
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "The NIH Launches Its Ambitious Million-Person Genetic Survey," from Wired detailing the launch of the All of Us Research Program. The article calls into question the use of genetic data and how in an age of privacy, one could feel vulnerable donating their genetic data. the article also relays more information on the All of Us Research Program itself.
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Subject: Public Response
Creator: Wired, Monteni, Megan
Language: English
Type: News article
Date: 2018-05-06
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Page 1 of 1 (22 Total Results)
