Title: 2022-2023 Schedule for the All of Us Research Program

URL: https://aahd.us/wp-content/uploads/2022/03/MEA-2-2022-Schedule-v2.pdf

Collection: All of Us Research Program web archive

Description: 2022-2023 Schedule for the All of Us Research Program's traveling Education and Enrollment center. The traveling center will make its way throughout the country beginning in Baltimore, MD and ending in Shreveport, LA.

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Subject:   Participant Recruitment

Title: ALL OUR VOICES: Conversations about Health & Wellness | All of Us

URL: https://allofus.nnlm.gov/storycorps/

Collection: All of Us Research Program web archive

Description: Website, titled "ALL OUR VOICES: Conversations about Health & Wellness," detailing the partnership between NNLM and StoryCorps that was created to support awareness of the All of Us Research Program. A tool kit with related materials on the ALL OUR VOICES project is available.

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Subject:   Engagement

Title: Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/achieving-principles-through-precision-medicine-initiative-data-security-policy-framework/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.

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Subject:   Ethics and Data Management

Title: Activities | Join All of Us

URL: https://www.joinallofus.org/activities/

Collection: All of Us Research Program web archive

Description: Activities website for the All of Us Research Program that includes three different games titled "Hearing," "I Spy," and "Your Unique Combination." The hearing game has the player pick five different sounds and place them in order of lowest to highest decibels. The message of the game is that everyday sounds can cause hearing damage if they are over a certain decibel. The vision game has users select a character and pick out prescription glasses based on various factors. The combination game has the player pick different factors that impact their health and put them into a jar to create their own unique combination.

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Subject:   Engagement

Title: All of Us - Gundersen - Facebook

URL: https://www.facebook.com/AllofUsGundersen/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at Gundersen Health System. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Gundersen Health System.

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Subject:   Engagement

Title: All of Us - MCHS - Facebook

URL: https://www.facebook.com/AllofUsMCHS/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at Marshfield Clinic Research Institute. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Marshfield Clinic Research Institute.

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Subject:   Engagement

Title: All of Us Awardees: Media Contacts

URL: https://allofus.nih.gov/news-events/press-kit/all-us-awardees-media-contacts/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Awardees: Media Contacts," that lists organizations associated with the All of Us Research Program as well as contact information.

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Subject:   General Sources

Title: All of Us Journey at El Mercadito de Memphis

URL: https://www.joinallofus.org/event/all-of-us-journey-at-el-mercadito-de-memphis/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at El Mercadito de Memphis," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Knoxville Zoo

URL: https://www.joinallofus.org/event/all-of-us-journey-at-knoxville-zoo/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Knoxville Zoo," detailing the All of Us traveling exhibit's stop in Knoxville. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Memphis Juneteenth Festival

URL: https://www.joinallofus.org/event/all-of-us-journey-at-memphis-juneteenth-festival/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Memphis Juneteenth Festival," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Nursing Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-nursing-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Nursing Resources," from the All of Us Research Program that provides resources, such as pamphlets and brochures, for nurses and other medical providers to learn about the program.

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Subject:   Engagement

Title: All of Us Pennsylvania

URL: https://joinallofuspa.org/

Collection: All of Us Research Program web archive

Description: The official All of Us Pennsylvania website. The website relays vital information for the All of Us Research Program in Pennsylvania, including locations, frequently asked questions, contact information, an overview of the program, and other promotional materials.

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Subject:   Participant Recruitment

Title: All of Us Physician Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-physician-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Physician Resources," from the All of Us Research Program that provides printable resources, such as business cards and note pads, for physicians. Links to other resources can be found on the page.

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Subject:   Engagement

Title: All of Us Program at the University of California San Diego

URL: https://www.facebook.com/allofusucsd/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at the University of California San Diego. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at the University of California.

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Subject:   Engagement

Title: All of Us Program at the University of Miami

URL: https://twitter.com/allofusum/

Collection: All of Us Research Program web archive

Description: Official Twitter page for the All of Us Program at the University of Miami. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at the University of Miami.

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Subject:   Engagement

Title: All of Us Programa Cientifico

URL: https://www.joinallofus.org/es/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Programa Cientifico," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This is the Spanish version of the main page is where individuals sign up to join the program.

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Subject:   General Sources

Title: All of Us Publications

URL: https://www.researchallofus.org/publications/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Publications," that links out to publications that are related to or utilized the All of Us data.

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Subject:   Research Projects Using Collected Data

Title: All of Us Releases Initial COVID-19 Survey Data to Researchers | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/all-us-releases-initial-covid-19-survey-data-researchers/

Collection: All of Us Research Program web archive

Description: Press release, titled "All of Us Releases Initial Covid-19 Survey Data to Researchers," detailing an update made to the program's research workbench that allowed researchers access to Covid-19 data as well as data provided by Fitbit technology.

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Subject:   COVID-19

Title: All of Us Research Hub

URL: https://www.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program - YouTube

URL: https://www.youtube.com/c/AllofUsResearchProgram/

Collection: All of Us Research Program web archive

Description: Official YouTube page of the All of Us program that includes promotional videos, webinars, and other informational videos about the All of Us program.

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Subject:   General Sources

Title: All of Us Research Program Backgrounder

URL: https://allofus.nih.gov/news-events/press-kit/all-us-research-program-backgrounder/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Research Program Backgrounder," hosted by the National Institutes of Health answering many frequently asked questions about the All of Us Research Program as well as giving some background information on the initiative.

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Subject:   General Sources

Title: All of Us Research Program Data User Code of Conduct

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_User_Code_of_Conduct_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.

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Subject:   Ethics and Data Management

Title: All of Us Research Program LGBTQ+ Data Privacy and Security

URL: https://www.joinallofus.org/themes/custom/jaou/etc/pdfs/data_privacy_infographic.pdf

Collection: All of Us Research Program web archive

Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Overview

URL: https://allofus.nih.gov/about/program-overview

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program Overview," detailing the All of Us Research Program at a glance and explaining what precision medicine is.

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Subject:   General Sources

Title: All of Us Research Program Research Priorities Workshop

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2019/02/March%202018%20Research%20Priorities%20Workshop%20_Meeting%20Summary_.pdf

Collection: All of Us Research Program web archive

Description: Session summary, titled "All of Us Research Program Research Priorities Workshop," that gives an overview of the discussions held at the workshop. An overview of the program, goals of the workshop, panels, and keynote presentations were recorded in the summaries.

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Subject:   General Sources

Title: All of Us Research Program Seeks Input on Environmental Health Data

URL: https://allofus.nih.gov/news-events/announcements/all-us-research-program-seeks-input-environmental-health-data/

Collection: All of Us Research Program web archive

Description: News article, titled "All of Us Research Program Seeks Input on Environmental Health Data," discussing the All of Us Research Program's request for information (RFI) on integrating environmental health data into the project. The article mentions the Researcher's Workbench and how the goal is to add more data to one of the largest datasets of its kind.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program Tribal Consultation Final Report | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/all-us-research-program-tribal-consultation-final-report/

Collection: All of Us Research Program web archive

Description: Project report for the All of Us Research Program, titled "All of Us Research Program Tribal Consultation Final Report." The report details the All of Us Research Program's commitment to Tribal Nations and how the project has operated with Tribal Nations including how the project handles cultural sensitivity.

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Subject:   General Sources

Title: All of Us Research Program Tribal Consultation Report Summary | Join All of Us

URL: https://www.joinallofus.org/all-of-us-research-program-tribal-consultation-report-summary/

Collection: All of Us Research Program web archive

Description: Website, "All of Us Research Program Tribal Consultation Report Summary," detailing Tribal Sovereignty and Research Participation, Cultural Sensitivity, Data Access, Representation, Privacy, Publications and Partnerships, and what members of Tribal Communities should do in order to participate in the program.

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Subject:   Engagement

Title: All of Us Research Program Twitter

URL: https://twitter.com/AllofUsResearch/

Collection: All of Us Research Program web archive

Description: The official twitter for the All of Us Research Program that share information about the program, events taking place, and other health related information.

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Subject:   Engagement

Title: All of Us Research Program at Northwestern Medicine | The future of health begins with you

URL: https://sites.northwestern.edu/joinallofus/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program at Northwestern Medicine," of the All of Us partner in Illinois, Northwestern Medicine. The site includes information for individuals looking to join the All of Us program in Illinois. Locations, contact information, frequently asked questions, and how to join can be found on the website.

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Subject:   Participant Recruitment

Title: All of Us Research Program: UCI Health

URL: https://allofus.health.uci.edu/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program: UCI Health," of the All of Us partner in California, University of California Irvine. The site details important information for individuals looking to join the All of Us program in California. Information found on the page includes: locations, past events, and a link to the research hub.

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Subject:   Participant Recruitment

Title: All of Us Sharable Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Sharable Resources," from the All of Us Research Program that houses free materials for the project. The majority of materials are for promotional purposes, such as images for Social media, fact sheets, and brochures. Most are available in English and Spanish with some other languages being represented as well.

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Subject:   Engagement

Title: All of Us Wisconsin | The future of health in Wisconsin begins with All of Us Badgers!

URL: https://allofus.wisc.edu/

Collection: All of Us Research Program web archive

Description: Website, titled " All of Us Research Program - Wisconsin: University of Wisconsin-Madison," of the Wisconsin partner for the All of Us Program. The website details how Wisconsinites can join, why they should join, and has other promotional materials.

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Subject:   Participant Recruitment

Title: All of Us at the University of Miami - Facebook

URL: https://www.facebook.com/AllofUsUM/?ref=page_internal/

Collection: All of Us Research Program web archive

Description: Official Facebook page of the All of Us Research Program at University of Miami. Posts on the page mainly revolve around events hosted by the partner and encouragements to join the program.

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Subject:   Engagement

Title: All of Us: Center for Health Information Partnerships: Feinberg School of Medicine: Northwestern University

URL: https://www.feinberg.northwestern.edu/sites/chip/our-projects/projects/all-of-us.html

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us: Center for Health Information Partnerships," that gives a brief explanation of the All of Us Project and Northwestern Medicine's involvement.

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Subject:   Engagement

Title: AllofUsAZ - YouTube

URL: https://www.youtube.com/channel/UCsiYqxMhL5B405zLErAW-wg/videos/

Collection: All of Us Research Program web archive

Description: Official YouTube page for the All of Us Program at The University of Arizona. Videos from the channel are mainly promotional videos for the All of Us Research Program. Some videos are in English, while others are in Spanish to represent the Latinx communities in Arizona and the surrounding states.

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Subject:   Engagement

Title: American Association on Health and Disability | Join All of Us

URL: https://www.joinallofus.org/aahd/

Collection: All of Us Research Program web archive

Description: Website, titled "American Association on Health and Disability," detailing the American Association on Health and Disability's partnership with the All of Us Research Program including testimonials, how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study

URL: https://allofus.nih.gov/about/diversity-and-inclusion/tribal-engagement/american-indian-and-alaska-native-aian-inclusion-all-us-research-program-covid-19-serology-study/

Collection: All of Us Research Program web archive

Description: Website, "American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study," detailing the All of Us Research Program's consultation with tribal leaders about including existing AI/AN participant samples in a COVID-19 Serology Study looking for SARS-CoV-2 antibodies. Responding to tribal concerns, All of Us has decided not to include these samples and will continue focusing on finalizing consultation about the main program.

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Subject:   COVID-19

Title: Asian Health Coalition | Join All of Us

URL: https://www.joinallofus.org/asian-health-coalition/

Collection: All of Us Research Program web archive

Description: Website, titled "Asian Health Coalition," detailing the Asian Health Coalition's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research

URL: https://allofus.nih.gov/news-events/voices-all-us/survival-resilience-power-mentorship-research/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research," that includes an interview/overview of Atiya Shahid, a Minority Student Research Symposium Scholar. The interview mentions Shahid's life story, her research, and her experiences with the All of Us Research Program.

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Subject:   General Sources

Title: Banner Health | All of Us Research Program UArizona-Banner Health

URL: https://www.allofusaz.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Banner Health - All of Us Research Program," dedicated to the All of Us partner in Arizona, Banner Health at The University of Arizona. The site gives a brief overview of the All of Us Research Program and Banner Health's involvement. Locations of the All of Us program in Arizona and Colorado plus events are also present on the website. Information on how to get involve, stay involved, and what will be done with the research can be found.

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Subject:   Participant Recruitment

Title: Biobank

URL: https://allofus.nih.gov/funding-and-program-partners/biobank/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Biobank," hosted by the National Institutes of Health detailing what a biobank is and who provides the biobank for the All of Us Research Program.

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Subject:   General Sources

Title: Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler

URL: https://allofus.nih.gov/news-events/voices-all-us/building-bridges-better-health-joyce-ann-bell-winkler/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler," that includes an interview/ overview of Joyce Ann Bell Winkler, a participant ambassador for the All of Us Research Program. The interview details Winkler's personal experiences, including her childhood, and her experience with the All of Us Research Program. Her testimony details what the program is like and why others should join the program.

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Subject:   General Sources

Title: COPE Survey - All of Us Research Hub

URL: https://www.researchallofus.org/data-tools/survey-explorer/cope-survey/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.

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Subject:   COVID-19

Title: COVID-19 Research Initiatives

URL: https://www.researchallofus.org/discover/covid-19-research-initiatives/

Collection: All of Us Research Program web archive

Description: Website, titled "COVID-19 Research Initiatives," spotlighting the All of Us Research Program's various research methods for COVID-19 including The COPE Survey, Electronic Health Record Data, COVID-19 Antibody study, and other support for COVID-19 research.

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Subject:   COVID-19

Title: California | Join All of Us

URL: https://www.joinallofus.org/california/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us California," detailing the All of Us Research Program in California, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Champions | Join All of Us

URL: https://www.joinallofus.org/champions/

Collection: All of Us Research Program web archive

Description: Website, titled "Champions," listing the All of Us champions who support the mission and goals of the All of Us Research Program by sharing information on the program with their communities to help raise awareness.

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Subject:   General Sources

Title: Cherokee Health Systems | Join All of Us

URL: https://www.joinallofus.org/cherokee-health-systems/

Collection: All of Us Research Program web archive

Description: Website, titled "Cherokee Health Systems," detailing Cherokee Health Systems, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cherokee Health Systems.

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Subject:   General Sources

Title: Communications and Engagement Partners | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/funding-and-program-partners/communications-and-engagement-partners

Collection: All of Us Research Program web archive

Description: Website, titled "Communications and Engagement Partners," from the National Institutes of Health listing all of the partners in the All of Us program and along with funding information.

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Subject:   Participant Recruitment

Title: Community Engagement Partners | Join All of Us

URL: https://www.joinallofus.org/community-engagement-partners/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Engagement Partners," listing organizations that tell their communities what the All of Us Research Program is and how to join.

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Subject:   General Sources

Title: Community Health Center, Inc. | Join All of Us

URL: https://www.joinallofus.org/community-health-center-inc/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Health Center, Inc.," detailing Community Health Center, Inc., their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Community Health Center, Inc.

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Subject:   General Sources

Title: Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark

URL: https://allofus.nih.gov/news-events/voices-all-us/connecting-social-environment-health-outcomes-to-pinpoint-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark," that includes an interview/ overview of Cheryl R. Clark, a researcher for the All of Us Research Program. The interview mentions Clark's personal experiences, her work with the All of Us Research Program, and how the two intersect.

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Subject:   General Sources

Title: Considerations for Meaningful Collaboration with Tribal Populations

URL: https://allofus.nih.gov/sites/default/files/tribal_collab_work_group_rept.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Considerations for Meaningful Collaboration with Tribal Populations," which details The Tribal Collaboration Working Group Report to the All of Us Research Program Advisory Panel. The document details the health systems of Native Tribes, the purpose of the working group in trying to include Native Peoples in the All of Us Research Program, and what the inclusivity would entail.

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Subject:   Ethics and Data Management

Title: Coronavirus | Join All of Us

URL: https://www.joinallofus.org/coronavirus/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Covid-19 and All of Us," detailing what the program is doing in response to Covid-19 and what data will be collected in regards to Covid-19.

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Subject:   COVID-19

Title: Cómo me inscribo al Programa Científi co All of Us?

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_Flyer_HowToSignUp_SPA.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Cómo me inscribo al Programa Científi co All of Us?," detailing how to sign up for the All of Us Research Program.

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Subject:   Engagement

Title: Data Access Tiers

URL: https://www.researchallofus.org/data-tools/data-access/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Access Tiers," that details the different accessibility options and lists data use policies for the research program.

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Subject:   Ethics and Data Management

Title: Data Methods

URL: https://www.researchallofus.org/data-tools/methods/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Methods," detailing the four different methodologies the All of Us Research Program uses to collect data. Links to other data protocols and methods are found at the bottom of the page.

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Subject:   General Sources

Title: Data Security Policy Principles

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/data-security-policy-principles/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Data Security Policy Principles."

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Subject:   Ethics and Data Management

Title: Data Sources

URL: https://www.researchallofus.org/data-tools/data-sources/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Sources," detailing the various ways the All of Us Research Program collects data, including electronic health records, bio samples and bioassays, surveys, physical measurements, and wearables.

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Subject:   General Sources

Title: Data User Appeals Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_User_Appeals_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.

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Subject:   Ethics and Data Management

Title: Data and Research Center

URL: https://allofus.nih.gov/funding-and-program-partners/data-and-research-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Data and Research Center," hosted by the National Institutes of Health detailing what the data and research center is and who hosts the data and research center for the All of Us Research Program.

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Subject:   General Sources

Title: Data and Statistics Dissemination Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Data_and_Statistics_Dissemination_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Delta Research and Educational Foundation (DREF) | Join All of Us

URL: https://www.joinallofus.org/delta-research-and-educational-foundation-dref/

Collection: All of Us Research Program web archive

Description: Website, titled "Delta Research and Educational Foundation (DREF)," detailing the DREF's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Digital Health Literacy | All of Us

URL: https://allofus.nnlm.gov/digital-health-literacy/

Collection: All of Us Research Program web archive

Description: Website, titled "Digital Health Literacy," detailing what digital health literacy is and provides resources to learn about digital health and why it is important.

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Subject:   Engagement

Title: Diversity Fact Sheet

URL: https://allofus.nih.gov/sites/default/files/Diversity%20Fact%20Sheet%20%E2%80%93%20Web%20Version_0.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Diversity Fact Sheet," detailing how diversity is important to the All of Us Research Program and how the program addresses concerns participants may have.

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Subject:   Engagement

Title: Diversity Fact Sheet

URL: https://allofus.nih.gov/sites/default/files/Diversity%20Fact%20Sheet%20%E2%80%93%20Spanish%20Web%20Version_0.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Diversity Fact Sheet," detailing how diversity is important to the All of Us Research Program and how the program addresses concerns participants may have.

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Subject:   Engagement

Title: Eau Claire Cooperative Health Center | Join All of Us

URL: https://www.joinallofus.org/eau-claire-cooperative-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Cooperative Health," detailing Cooperative Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cooperative Health.

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Subject:   General Sources

Title: El futuro de la salud comienza con usted

URL: https://allofus.nih.gov/sites/default/files/AoU_Become_Our_Partner_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "El futuro de la salud comienza con usted," discussing what precision medicine and the All of Us Research Program is.

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Subject:   Engagement

Title: El futuro de la salud comienza con usted

URL: https://allofus.nih.gov/sites/default/files/AoU_Future_of_Health_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "El futuro de la salud comienza con usted," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Engagement Resources Library | All of Us

URL: https://allofus.nnlm.gov/engagement-resources/

Collection: All of Us Research Program web archive

Description: Website, titled "Engagement Resource Library," that provides resources from NLM, NNLM, and All of Us that can be used by sub awardees and partner libraries to engage with their communities about digital literacy, health literacy, and the NIH All of Us Research Program.

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Subject:   Engagement

Title: Estamos invitando a un millón de personas a formar el camino hacia una mejor salud.

URL: https://allofus.nih.gov/sites/default/files/2020-10/AoU_Preguntas-Frecuentes-de-Programa-Nacional.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Estamos invitando a un millón de personas a formar el camino hacia una mejor salud." This is a general informative sheet or flyer for the All of Us Research Program. It answers general questions about the program and what precision medicine is.

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Subject:   Engagement

Title: FAQ: Minority Student Research Symposium

URL: https://vepimg.b8cdn.com/uploads/vjfnew/6735/content/files/1642585851msrs-faq-1-pdf1642585851.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "FAQ: Minority Student Research Symposium," answering nineteen questions about the Minority Student Research Symposium.

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Subject:   General Sources

Title: FiftyForward | Join All of Us

URL: https://www.joinallofus.org/fiftyforward/

Collection: All of Us Research Program web archive

Description: Website, titled "FiftyForward," detailing the FiftyForward's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Framework for Access to All of Us Data Resources v1.1

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_Access_Framework_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.

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Subject:   Ethics and Data Management

Title: Frequently Asked Questions

URL: https://www.researchallofus.org/frequently-asked-questions/

Collection: All of Us Research Program web archive

Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.

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Subject:   General Sources

Title: Funding Opportunities

URL: https://allofus.nih.gov/funding-and-program-partners/funding-opportunities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Funding Opportunities," hosted by the National Institutes of Health that lists current and previous funding opportunities for researchers in the All of Us Research Program.

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Subject:   General Sources

Title: Future of Health

URL: https://allofus.nih.gov/sites/default/files/AoU_Future_of_Health_Eng.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Future of Health," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Genomics Partners

URL: https://allofus.nih.gov/funding-and-program-partners/genomics-partners/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics Partners," hosted by the National Institutes of Health detailing what the genome centers will accomplish in the All of Us Research Program and listing the organizations that act as the genomic partners for the program.

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Subject:   General Sources

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: Genomics: A Revolution in Health and Disease Discovery | All of Us

URL: https://allofus.nnlm.gov/genomics-book-reading-club-kit/

Collection: All of Us Research Program web archive

Description: Website, titled "Genomics: A Revolution in Health and Disease Discovery," detailing one a ready-to-use reading club kit curated by the Network of the National Library of Medicine. The kit contains materials related to "Genomics: A Revolution in Health and Disease Discovery," including a recorded talk with the authors. Additional films and resources are present on the page.

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Subject:   Engagement

Title: Go Angie | All of Us Research

URL: https://go.joinallofus.org/Angie/

Collection: All of Us Research Program web archive

Description: Website linking to the All of Us Research Program's app in the Google Play and Apple app stores.

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Subject:   Engagement

Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Collection: All of Us Research Program web archive

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Collection: All of Us Research Program web archive

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: Home | Join All of Us

URL: https://www.joinallofus.org/

Collection: All of Us Research Program web archive

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Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Human Genetics Film Kits | All of Us

URL: https://allofus.nnlm.gov/human-genetics-film-kits/

Collection: All of Us Research Program web archive

Description: Website, titled "Human Genetics Film Kits," detailing the film kits curated by the Network of the National Library of Medicine and their contents. The film kits are designed to support public libraries in raising scientific literacy and awareness of precision medicine. Through attending screenings of the films and participating in related discussions, library patrons will learn about human genetics and the advance of precision medicine.

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Subject:   Engagement

Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Invisible No Longer

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_InvisibleNoLonger_Flyer.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Invisible No Longer," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: Journey and Events | Join All of Us

URL: https://www.joinallofus.org/journey-and-events/

Collection: All of Us Research Program web archive

Description: Website, titled "Journey and Events," that links out to future and past event pages.

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Subject:   Engagement

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: Learn Internet Skills | All of Us

URL: https://allofus.nnlm.gov/learn-internet-skills/

Collection: All of Us Research Program web archive

Description: Website, titled "Learn Internet Skills," from the All of Us Research Program's main website that teaches individuals how to use the internet safely.

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Subject:   Engagement

Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

Title: Marshfield Clinic Research Institute - All of Us Research Program

URL: https://www.marshfieldresearch.org/allofus

Collection: All of Us Research Program web archive

Description: Website, titled "Marshfield Clinic Research Institute: All of Us," dedicated to the All of Us partner in Wisconsin, Marshfield Clinic Research Institute. The site gives relevant information for individuals in Wisconsin wishing to join the All of Us program.

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Subject:   Participant Recruitment

Title: Marshfield Clinic Research Institute | Twitter

URL: https://twitter.com/AllofUsMCHS/

Collection: All of Us Research Program web archive

Description: Official Twitter page for the All of Us Program at Marshfield Clinic Research Institute. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Marshfield Clinic Research Institute.

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Subject:   Engagement

Title: Medicine and Your DNA | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/medicine-and-your-dna/

Collection: All of Us Research Program web archive

Description: Website, titled "Medicine and Your DNA, "listing all of the genes that the All of Us Research Program looks at to give results about how DNA may affect how bodies processes medicine.

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Subject:   General Sources