Built at the Internet Archive
Sites and collections from this organization are listed below. Narrow your results at left, or enter a search query below to find a collection, site, specific URL or to search the text of archived webpages.
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Collection: All of Us Research Program web archive
Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Presentation, titled "Global Alliance for Genomics and Health: All of Us Research Program," held on October 16, 2017 in Orlando. The presentation covers the All of Us Project's mission, data access, timeline, and GA4GH engagement.
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Subject: Ethics and Data Management
Creator: Global Alliance for Genomics & Health
Language: English
Type: Publication
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2021-08-17
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Page 1 of 1 (8 Total Results)
