Title: Your electronic health record (EHR): The facts

URL: https://allofus.nih.gov/sites/default/files/AoU_electronic_health_record_Eng.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Your electronic health record (EHR): The facts," detailing what an electronic health record is, why it is important, how the All of Us Research Program will keep the data safe, and why people should join the program.

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Subject:   Engagement

Title: Wisconsin | Join All of Us

URL: https://www.joinallofus.org/wisconsin/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Wisconsin," detailing the All of Us Research Program in Wisconsin, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Who Can Join? | Join All of Us

URL: https://www.joinallofus.org/who-can-join/

Collection: All of Us Research Program web archive

Description: Website, titled "Who Can Join?" describing who can participate in the All of Us Research Program.

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Subject:   General Sources

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_general_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_africanam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_asianam_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/aou_nat_brochure_hispanic_community.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is the general brochure for the All of Us Research Program and gives a brief overview of the program, answers frequently asked questions, and has some contact information.

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Subject:   Engagement

Title: What is the All of Us Research Program?

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_Gradient_GeneralBrochure.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "What is the All of Us Research Program?" This is a general brochure with information on the All of Us Research Program. The brochure answers frequently asked questions along with general questions about the program.

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Subject:   Engagement

Title: What Participants Share | Join All of Us

URL: https://www.joinallofus.org/what-participants-share/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Share," detailing instructions on getting started with the All of Us Research Program, what the program requires from participants, and what they can expect to receive once their samples have been processed.

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Subject:   General Sources

Title: What Participants Receive | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Receive," describing what participants will learn from donating their data, including but not limited to information about ones DNA, monetary compensation, and other future benefits.

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Subject:   General Sources

Title: We’re calling on one million people to lead the way toward better health.

URL: https://allofus.nih.gov/sites/default/files/all_of_us_program_faq_one_pager.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "We’re calling on one million people to lead the way toward better health." This is a general informative sheet or flyer for the All of Us Research Program. It answers general questions about the program and what precision medicine is.

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Subject:   Engagement

Title: Waianae Coast Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/waianae/

Collection: All of Us Research Program web archive

Description: Website, titled "Waianae Coast Comprehensive Health Center," detailing the Waianae Coast Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Waianae Coast Comprehensive Health Center.

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Subject:   General Sources

Title: Viruses & Vaccines

URL: https://virusinfo.joinallofus.org/

Collection: All of Us Research Program web archive

Description: Official All of Us Research Program website, titled "Viruses & Vaccines," detailing various viruses and vaccines. The page relates the biology of viruses and how to stop the spread of them.

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Subject:   COVID-19

Title: Virtual Health Programs | All of Us

URL: https://allofus.nnlm.gov/vhp/

Collection: All of Us Research Program web archive

Description: Website, titled "Virtual Health Programs," that lists upcoming and previous virtual events organized by NNLM. These events are created and distributed to inform individuals about health information.

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Subject:   Engagement

Title: VCU Wright Center for Clinical and Translational Research | Join All of Us

URL: https://www.joinallofus.org/vcu-wright-center-for-clinical-and-translational-research/

Collection: All of Us Research Program web archive

Description: Website, titled "VCU Wright Center for Clinical and Translational Research," detailing the VCU Wright Center for Clinical and Translational Research, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the VCU Wright Center for Clinical and Translational Research.

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Subject:   General Sources

Title: University of Arizona and Banner Health | Join All of Us

URL: https://www.joinallofus.org/university-of-arizona-and-banner-health/

Collection: All of Us Research Program web archive

Description: Website, titled "University of Arizona and Banner Health," detailing University of Arizona and Banner Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via University of Arizona and Banner Health.

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Subject:   General Sources

Title: UC Davis Health: A Member of All of Us California

URL: https://allofus.ucdavis.edu/en/allofusUCDavis/

Collection: All of Us Research Program web archive

Description: Website, titled "UC Davis Health: A Member of All of Us California," of the All of Us partner in California, University of California Davis Health. The site details important information for individuals looking to join the All of Us program in California. Information found on the page includes: locations, team members, events, contact information, and how to get started.

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Subject:   Participant Recruitment

Title: U.S. Department of Veterans Affairs

URL: https://www.joinallofus.org/va/

Collection: All of Us Research Program web archive

Description: Website, titled "U.S. Department of Veterans Affairs," detailing the U.S. Department of Veterans Affairs, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the U.S. Department of Veterans Affairs.

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Subject:   General Sources

Title: Trans America Consortium | Join All of Us

URL: https://www.joinallofus.org/trans-america-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Trans America Consortium," detailing the Trans American Consortium that includes health care systems in Idaho, Massachusetts, Michigan, Minnesota, North Dakota, Texas, and Wisconsin that are participating in the All of Us Research Program. Information on how to join and frequently asked questions are also located on the page.

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Subject:   General Sources

Title: Thirst for Knowledge and Data Drives Army Veteran to All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/thirst-knowledge-and-data-drives-army-veteran-all-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Thirst for Knowledge and Data Drives Army Veteran to All of Us," that includes an interview/ overview of Keisha Bellamy, a nurse for the All of Us Research Program and a veteran. The interview mentions Bellamy's life story, her experiences in the military, and her involvement in the All of Us research Program.

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Subject:   General Sources

Title: The University of Texas Health Science Center at Tyler | Join All of Us

URL: https://www.joinallofus.org/the-university-of-texas-health-science-center-at-tyler/

Collection: All of Us Research Program web archive

Description: Website, titled "The University of Texas at Tyler Health Science Center," detailing The University of Texas at Tyler Health Science Center, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via The University of Texas at Tyler Health Science Center.

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Subject:   General Sources

Title: The Participant Center | Join All of Us

URL: https://www.joinallofus.org/the-participant-center/

Collection: All of Us Research Program web archive

Description: Website, titled "The Participant Center," listing partners that the All of Us Research Program works with if participants are not able to access the program through a health care provider in their area.

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Subject:   General Sources

Title: The All of Us Research Program Webinar

URL: https://us02web.zoom.us/rec/play/AlKJQ5uwDpYEdEy4ZoI2J8aGPbDCfw2APX17mCvt6Xur0Ewansqe9blzJ6sOTbOFsQL72VBKMBpWQKF3.UBdgkjKrnhPVMKTa?continueMode=true&_x_zm_rtaid=PwdaHsMdS02D_hMBbaMyjQ.1642195816352.0f3fab3ec3feb1bf40e455f7405c8233&_x_zm_rhtaid=549/

Collection: All of Us Research Program web archive

Description: Video recording of the American Academy of HIV Medicine's All of Us Webinar from February 2021.

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Subject:   Engagement

Title: Sun River Health | Join All of Us

URL: https://www.joinallofus.org/sun-river-health/

Collection: All of Us Research Program web archive

Description: Website, titled "Sun River Health," detailing Sun River Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Sun River Health.

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Subject:   General Sources

Title: Su registro electrónico de salud

URL: https://allofus.nih.gov/sites/default/files/AoU_electronic_health_record_Spanish.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Su registro electrónico de salud," detailing what an electronic health record is, why it is important, how the All of Us Research Program will keep the data safe, and why people should join the program.

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Subject:   Engagement

Title: Statement on Data Security from the All of Us Research Program | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/statement-data-security-all-us-research-program/

Collection: All of Us Research Program web archive

Description: Press release, titled "Statement on Data Security from the All of Us Research Program," detailing a security audit performed on the Research Program and the Program's response to the security audit.

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Subject:   Ethics and Data Management

Title: Stanford University School of Medicine | Join All of Us

URL: https://www.joinallofus.org/stanford-university-school-of-medicine/

Collection: All of Us Research Program web archive

Description: Website, titled "Stanford University School of Medicine," detailing the Stanford University School of Medicine's partnership with the All of Us Research Program including how to join, frequently asked questions, and researcher resources.

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Subject:   General Sources

Title: Spotlights

URL: https://www.researchallofus.org/spotlight/

Collection: All of Us Research Program web archive

Description: Website, titled "Spotlights," that links out to articles related to the All of Us Research Program. The articles are tagged as "Participant Data in Action," "Survey Insights," or "Meet the Researchers."

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Subject:   Research Projects Using Collected Data

Title: Southern | Join All of Us

URL: https://www.joinallofus.org/southern/

Collection: All of Us Research Program web archive

Description: Website, titled "Southern All of Us Network," detailing the Southern All of Us Network that includes health care systems in Alabama, Louisiana, and Mississippi that are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Southeast | Join All of Us

URL: https://www.joinallofus.org/southeast/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us South East Enrollment Center," detailing the All of Us South East Enrollment Center that includes the University of Miami Miller School of Medicine, University of Florida College of Medicine, Emory University, and Morehouse School of Medicine which are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Save the Date

URL: https://allofus.nih.gov/sites/default/files/save-the-date-aou-oklahoma-agendapdf.pdf

Collection: All of Us Research Program web archive

Description: PDF of a save the date for an All of Us Research Program Listening Session and some brief information about the session.

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Subject:   Participant Recruitment

Title: San Ysidro Health | Join All of Us

URL: https://www.joinallofus.org/san-ysidro-health/

Collection: All of Us Research Program web archive

Description: Website, titled "San Ysidro Health," detailing San Ysidro Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via San Ysidro Health.

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Subject:   General Sources

Title: Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities

URL: https://allofus.nih.gov/news-events/voices-all-us/billy-caceres-benchmarks-health-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities," that includes an interview/overview of Billy A. Caceres, a researcher for the All of Us Program. The interview delves into Caceres' life story, his research, and how his experiences have affected his research.

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Subject:   General Sources

Title: Research Roundup: Data Expansion Bolsters Trove of COVID-19 Data

URL: https://allofus.nih.gov/news-events/announcements/research-roundup-data-expansion-bolsters-trove-covid-19-data/

Collection: All of Us Research Program web archive

Description: News article, titled "Research Roundup: Data Expansion Bolsters Trove of COVID-19 Data," detailing the released COVID-19 dataset, which includes information about vaccines. Information about new file types and tools is also present in the article.

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Subject:   COVID-19

Title: Research Projects Directory – All of Us Research Hub

URL: https://www.researchallofus.org/research-projects-directory/

Collection: All of Us Research Program web archive

Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.

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Subject:   Research Projects Using Collected Data

Title: Research Priorities Workshop

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2019/02/AoU%20Use%20Cases%20-%20508%20Compliant.pdf

Collection: All of Us Research Program web archive

Description: Case report, titled "Research Priorities Workshop," detailing 1110 use cases that are categorized by nine health conditions. Within these nine health conditions, the cases are further organized by seven themes.

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Subject:   Research Projects Using Collected Data

Title: Research Hub Updates

URL: https://www.researchallofus.org/research-hub-updates/

Collection: All of Us Research Program web archive

Description: Website, titled "Research Hub Updates," that links out to various newsletters and articles about the Research Hub, including the "Research Roundup."

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Subject:   General Sources

Title: Represent LGBTQ+

URL: https://www.allofusaz.org/en/lgbtq/

Collection: All of Us Research Program web archive

Description: Website, titled "Represent LGBTQ+," detailing the All of Us Research Program and it's inclusivity with the LGBTQ+ community. The site hosts numerous testimonials, details why individuals should join, and how the project is different.

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Subject:   Engagement

Title: Publication and Presentation Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Publication_and_Presentation_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.

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Subject:   Ethics and Data Management

Title: Protecting Data and Privacy | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy

Collection: All of Us Research Program web archive

Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.

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Subject:   Ethics and Data Management

Title: Program FAQs

URL: https://allofus.nih.gov/sites/default/files/all_of_us_program_faqs.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Program FAQs," listing frequently asked questions along with their answers about the All of Us Research Program.

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Subject:   Engagement

Title: Preguntas Frecuentes del Programa

URL: https://allofus.nih.gov/sites/default/files/2020-10/AoU_NAT_Preguntas-Frecuentes-de-Programa-Nacional_0.pdf

Collection: All of Us Research Program web archive

Description: PDF in Spanish, titled "Preguntas Frecuentes del Programa," listing frequently asked questions along with their answers about the All of Us Research Program.

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Subject:   Engagement

Title: Precision Medicine Traveling Exhibit | All of Us

URL: https://allofus.nnlm.gov/precision-medicine-traveling-exhibit/

Collection: All of Us Research Program web archive

Description: Website, titled "Precision Medicine Traveling Exhibit," that details the traveling exhibit produced by Network of the National Library of Medicine to promote the All of Us Research Program.

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Subject:   Engagement

Title: Policy on Stigmatizing Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Stigmatizing_Research_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Policy on Ethical Conduct of Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Ethical_Principles_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Pennsylvania | Join All of Us

URL: https://www.joinallofus.org/pennsylvania/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Pennsylvania," detailing the All of Us Research Program in Pennsylvania, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Past Events | All Of Us Research Program | University of California, Irvine

URL: https://allofus.health.uci.edu/past-events/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program: UCI Health: Past Events," of the All of Us partner in California, University of California Irvine. The site details past events held by the All of Us Research Program at the University of California Irvine.

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Subject:   Research Projects Using Collected Data

Title: Participant Technology Systems Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-technology-systems-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Technology Systems Center," hosted by the National Institutes of Health detailing what the Participant Technology Center is and what organizations host the center.

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Subject:   General Sources

Title: Participant Surveys: The Basics

URL: https://www.researchallofus.org/data-tools/survey-explorer/

Collection: All of Us Research Program web archive

Description: Website, titled "Survey Explorer," that links out to seven All of Us surveys. These surveys include: The Basics, Lifestyle, Overall Health, Personal Medical History, Health Care Access & Utilization, Family Medical History, Covid-19 Participate Experience (COPE).

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Subject:   General Sources

Title: Participant Surveys: The Basics

URL: https://www.researchallofus.org/data-tools/survey-explorer/the-basics-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: The Basics," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's basic information.

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Subject:   General Sources

Title: Participant Surveys: Personal Medical History

URL: https://www.researchallofus.org/data-tools/survey-explorer/personal-medical-history-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Personal Medical History," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's medical history.

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Subject:   General Sources

Title: Participant Surveys: Overall Health

URL: https://www.researchallofus.org/data-tools/survey-explorer/overall-health-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Overall Health," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's overall health and whether they view themselves as healthy individuals.

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Subject:   General Sources

Title: Participant Surveys: Lifestyle

URL: https://www.researchallofus.org/data-tools/survey-explorer/lifestyle-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Lifestyle," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's lifestyle including smoking habits and substance use.

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Subject:   General Sources

Title: Participant Surveys: Healthcare Access Utilization

URL: https://www.researchallofus.org/data-tools/survey-explorer/healthcare-access-utilization-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Healthcare Access Utilization ," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's healthcare decisions and how often they seek out healthcare professionals.

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Subject:   General Sources

Title: Participant Surveys: Family Medical History Survey

URL: https://www.researchallofus.org/data-tools/survey-explorer/family-medical-history-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Family Medical History Survey," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's family medical history.

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Subject:   General Sources

Title: Participant Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Center," hosted by the National Institutes of Health detailing what the Participant Center is and listing some of the locations.

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Subject:   General Sources

Title: Operational Protocol: The All of Us Research Program

URL: https://allofus.nih.gov/sites/default/files/aou_operational_protocol_v1.7_mar_2018.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Operational Protocol: The All of Us Research Program," detailing the All of Us Research Program's background, rationale, objectives, overview, recruitment, enrollment, and program procedures. The documents also delves into possible issues, risks, and benefits of the program.

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Subject:   General Sources

Title: Newsletters | Join All of Us

URL: https://www.joinallofus.org/newsletters/

Collection: All of Us Research Program web archive

Description: Newsletters page from the official All of Us website that give updates to the project. Newsletters found on this site are organized by date of publication.

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Subject:   General Sources

Title: News and Events | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "News and Events." The page hosts all of the program's announcements and lists events held. Videos, external news, testimonials, and the press kit are also available on this page.

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Subject:   General Sources

Title: News & Events - Banner Health

URL: https://www.allofusaz.org/news-events/

Collection: All of Us Research Program web archive

Description: Website, titled "News & Events - Banner Health," that is part of the broader All of Us Website from the partner at the University of Arizona. This site is dedicated to events and news surrounding the All of Us Program at the University of Arizona.

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Subject:   Research Projects Using Collected Data

Title: New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/ysabel-abreu-perseverance-humanity/

Collection: All of Us Research Program web archive

Description: Webpage, titled "New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us," that includes an interview/ overview of Ysabel Aberu, a member of the Participant Advisory Board. The interview details her life experiences that led to her involvement with the All of Us Research Program and why she is proud to be a part of the initiative.

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Subject:   General Sources

Title: New York City Consortium | Join All of Us

URL: https://www.joinallofus.org/new-york-city-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "New York City Consortium," detailing the New York City Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the New York City Consortium.

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Subject:   General Sources

Title: New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners

URL: https://allofus.nih.gov/news-events/announcements/new-funding-opportunity-all-us-research-program-seeks-engagement-and-enrollment-partners/

Collection: All of Us Research Program web archive

Description: Press release, titled "New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners," detailing a new funding opportunity and how organizations can apply to use funds for community, researcher, or tribal engagement. Links to full details and more information are provided.

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Subject:   Ethics and Data Management

Title: New England | Join All of Us

URL: https://www.joinallofus.org/new-england/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us New England," detailing the All of Us Research Program in New England, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: New Data Release: Filling Out the Pandemic Picture

URL: https://allofus.nih.gov/news-events/announcements/new-data-release-filling-out-pandemic-picture/

Collection: All of Us Research Program web archive

Description: News article, titled "New Data Release: Filling Out the Pandemic Picture," announcing new data released as part of the All of Us Research Program. Data released during this batch pertains to information gathered from the COPE survey and Fitbit products. The article gives more detail about the collection of Fitbit data and mentions that vaccination data will not be available immediately due to security.

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Subject:   COVID-19

Title: National Baptist Convention, USA, Inc.

URL: https://www.joinallofus.org/nbcusa/

Collection: All of Us Research Program web archive

Description: Website, titled "National Baptist Convention, USA, Inc.," detailing the National Baptist Convention, USA, Inc.'s partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: National Alliance for Hispanic Health (Alliance) | Join All of Us

URL: https://www.joinallofus.org/national-alliance-for-hispanic-health-alliance/

Collection: All of Us Research Program web archive

Description: Website, titled "National Alliance for Hispanic Health (Alliance)," detailing the National Alliance for Hispanic Health (Alliance)'s partnership with the All of Us Research Program including how to join and frequently asked questions.

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Subject:   General Sources

Title: NNLM All of Us Community Engagement Network | All of Us

URL: https://allofus.nnlm.gov/nnlm-all-us-community-engagement-network/

Collection: All of Us Research Program web archive

Description: Website, titled "NNLM All of Us Community Engagement Network," detailing the NNLM community and what they do, how they do it, how individuals can get involved, and giving examples of some of the areas people can help in.

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Subject:   Engagement

Title: NIH’s All of Us Research Program Releases New COVID-19 Data

URL: https://allofus.nih.gov/news-events/announcements/nihs-all-us-research-program-releases-new-covid-19-data/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH’s All of Us Research Program Releases New COVID-19 Data," announcing a new Covid-19 data set on the Researcher Workbench. With this announcement came news that new Fitbit data was also accessible. The article also details how data from the All of Us Research Program has already been utilized and how to apply for access to the data.

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Subject:   COVID-19

Title: NIH’s All of Us Research Program Releases First Genomic Dataset of Nearly 100,000 Whole Genome Sequences

URL: https://allofus.nih.gov/news-events/announcements/program-releases-first-genomic-dataset/

Collection: All of Us Research Program web archive

Description: News release, titled "NIH’s All of Us Research Program Releases First Genomic Dataset of Nearly 100,000 Whole Genome Sequences," announcing the release of genomic sequences to the All of Us Researcher Workbench for Researchers to use. Other information about the All of Us Research Program as a whole is present in the news release.

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Subject:   Research Projects Using Collected Data

Title: NIH funds genetic counseling resource ahead of million-person sequencing effort

URL: https://allofus.nih.gov/news-events/announcements/nih-funds-genetic-counseling-resource-ahead-million-person-sequencing-effort/

Collection: All of Us Research Program web archive

Description: Press release, titled "NIH funds genetic counseling resource ahead of million-person sequencing effort," detailing the All of Us Research Program's collaboration with Color, a health tech company, to provide genetic counseling for participants of the program.

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Subject:   General Sources

Title: Medicine and Your DNA | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/medicine-and-your-dna/

Collection: All of Us Research Program web archive

Description: Website, titled "Medicine and Your DNA, "listing all of the genes that the All of Us Research Program looks at to give results about how DNA may affect how bodies processes medicine.

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Subject:   General Sources

Title: Marshfield Clinic Research Institute | Twitter

URL: https://twitter.com/AllofUsMCHS/

Collection: All of Us Research Program web archive

Description: Official Twitter page for the All of Us Program at Marshfield Clinic Research Institute. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Marshfield Clinic Research Institute.

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Subject:   Engagement

Title: Marshfield Clinic Research Institute - All of Us Research Program

URL: https://www.marshfieldresearch.org/allofus

Collection: All of Us Research Program web archive

Description: Website, titled "Marshfield Clinic Research Institute: All of Us," dedicated to the All of Us partner in Wisconsin, Marshfield Clinic Research Institute. The site gives relevant information for individuals in Wisconsin wishing to join the All of Us program.

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Subject:   Participant Recruitment

Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

Title: Learn Internet Skills | All of Us

URL: https://allofus.nnlm.gov/learn-internet-skills/

Collection: All of Us Research Program web archive

Description: Website, titled "Learn Internet Skills," from the All of Us Research Program's main website that teaches individuals how to use the internet safely.

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Subject:   Engagement

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: Journey and Events | Join All of Us

URL: https://www.joinallofus.org/journey-and-events/

Collection: All of Us Research Program web archive

Description: Website, titled "Journey and Events," that links out to future and past event pages.

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Subject:   Engagement

Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: Invisible No Longer

URL: https://allofus.nih.gov/sites/default/files/AoU_NAT_InvisibleNoLonger_Flyer.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Invisible No Longer," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: Human Genetics Film Kits | All of Us

URL: https://allofus.nnlm.gov/human-genetics-film-kits/

Collection: All of Us Research Program web archive

Description: Website, titled "Human Genetics Film Kits," detailing the film kits curated by the Network of the National Library of Medicine and their contents. The film kits are designed to support public libraries in raising scientific literacy and awareness of precision medicine. Through attending screenings of the films and participating in related discussions, library patrons will learn about human genetics and the advance of precision medicine.

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Subject:   Engagement

Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Home | Join All of Us

URL: https://www.joinallofus.org/

Collection: All of Us Research Program web archive

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Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Collection: All of Us Research Program web archive

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Collection: All of Us Research Program web archive

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: Go Angie | All of Us Research

URL: https://go.joinallofus.org/Angie/

Collection: All of Us Research Program web archive

Description: Website linking to the All of Us Research Program's app in the Google Play and Apple app stores.

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Subject:   Engagement

Title: Genomics: A Revolution in Health and Disease Discovery | All of Us

URL: https://allofus.nnlm.gov/genomics-book-reading-club-kit/

Collection: All of Us Research Program web archive

Description: Website, titled "Genomics: A Revolution in Health and Disease Discovery," detailing one a ready-to-use reading club kit curated by the Network of the National Library of Medicine. The kit contains materials related to "Genomics: A Revolution in Health and Disease Discovery," including a recorded talk with the authors. Additional films and resources are present on the page.

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Subject:   Engagement

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: Genomics Partners

URL: https://allofus.nih.gov/funding-and-program-partners/genomics-partners/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics Partners," hosted by the National Institutes of Health detailing what the genome centers will accomplish in the All of Us Research Program and listing the organizations that act as the genomic partners for the program.

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Subject:   General Sources

Title: Future of Health

URL: https://allofus.nih.gov/sites/default/files/AoU_Future_of_Health_Eng.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Future of Health," of a advertisement flyer for the All of Us Research Program.

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Subject:   Engagement

Title: Funding Opportunities

URL: https://allofus.nih.gov/funding-and-program-partners/funding-opportunities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Funding Opportunities," hosted by the National Institutes of Health that lists current and previous funding opportunities for researchers in the All of Us Research Program.

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Subject:   General Sources

Title: Frequently Asked Questions

URL: https://www.researchallofus.org/frequently-asked-questions/

Collection: All of Us Research Program web archive

Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.

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Subject:   General Sources

Title: Framework for Access to All of Us Data Resources v1.1

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_Access_Framework_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.

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Subject:   Ethics and Data Management

Title: FiftyForward | Join All of Us

URL: https://www.joinallofus.org/fiftyforward/

Collection: All of Us Research Program web archive

Description: Website, titled "FiftyForward," detailing the FiftyForward's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: FAQ: Minority Student Research Symposium

URL: https://vepimg.b8cdn.com/uploads/vjfnew/6735/content/files/1642585851msrs-faq-1-pdf1642585851.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "FAQ: Minority Student Research Symposium," answering nineteen questions about the Minority Student Research Symposium.

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Subject:   General Sources