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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: Dataset Builder & Concept Sets - YouTube

URL: https://www.youtube.com/watch?v=cUuDKUxjQoo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Dataset Builder & Concept Sets," explaining to researchers how to use some of the different features, including the dataset builder and concept sets features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: 5/2019 NACNR - NIH All of Us Research Program/Precision Medicine Initiative - YouTube

URL: https://www.youtube.com/watch?v=_RS9qXEHoa0

Collection: All of Us Research Program web archive

Description: Video recording, titled "5/2019 NACNR - NIH All of Us Research Program/ Precision Medicine Initiative," of the National Advisory Council of Nursing Research meeting where Dr. Stephanie Devany gave an update on the All of Us Research Program.

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Subject:   Public Response

Title: Notebooks & Code Snippets - YouTube

URL: https://www.youtube.com/watch?v=NvMWBlVyyUU/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Notebooks & Code Snippets," explaining to researchers how to use some of the different features, including the notebooks and coding features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Introduction to the Researcher Workbench - YouTube

URL: https://www.youtube.com/watch?v=NTLJtwLcavo/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Introduction to the Researcher Workbench," detailing how to access and utilize the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: User Support Hub

URL: https://www.youtube.com/embed/Ni4PEJVbmSk/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "User Support Hub," explaining how to use the user support hub and other resources available to aid researchers in using the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: Cohort Builder & Cohort Review

URL: https://www.youtube.com/embed/G6_GG2CJ9mA/

Collection: All of Us Research Program web archive

Description: YouTube video, titled "Cohort Builder & Cohort Review," explaining to researchers how to use some of the different features, including the various cohort features, on the Researcher Workbench for the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: All of Us Research Program - YouTube

URL: https://www.youtube.com/c/AllofUsResearchProgram/

Collection: All of Us Research Program web archive

Description: Official YouTube page of the All of Us program that includes promotional videos, webinars, and other informational videos about the All of Us program.

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Subject:   General Sources

Title: Research Projects Directory – All of Us Research Hub

URL: https://www.researchallofus.org/research-projects-directory/

Collection: All of Us Research Program web archive

Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.

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Subject:   Research Projects Using Collected Data

Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Frequently Asked Questions

URL: https://www.researchallofus.org/frequently-asked-questions/

Collection: All of Us Research Program web archive

Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.

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Subject:   General Sources

Title: COVID-19 Research Initiatives

URL: https://www.researchallofus.org/discover/covid-19-research-initiatives/

Collection: All of Us Research Program web archive

Description: Website, titled "COVID-19 Research Initiatives," spotlighting the All of Us Research Program's various research methods for COVID-19 including The COPE Survey, Electronic Health Record Data, COVID-19 Antibody study, and other support for COVID-19 research.

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Subject:   COVID-19

Title: COPE Survey - All of Us Research Hub

URL: https://www.researchallofus.org/data-tools/survey-explorer/cope-survey/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.

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Subject:   COVID-19

Title: Data Methods

URL: https://www.researchallofus.org/data-tools/methods/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Methods," detailing the four different methodologies the All of Us Research Program uses to collect data. Links to other data protocols and methods are found at the bottom of the page.

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Subject:   General Sources

Title: Data Sources

URL: https://www.researchallofus.org/data-tools/data-sources/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Sources," detailing the various ways the All of Us Research Program collects data, including electronic health records, bio samples and bioassays, surveys, physical measurements, and wearables.

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Subject:   General Sources

Title: All of Us Research Hub

URL: https://www.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.

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Subject:   Research Projects Using Collected Data

Title: All of Us

URL: https://www.nnlm.gov/initiatives/all-of-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us," from the National Library of Medicine initiatives website. This page gives a brief overview of the All of Us Research Program and links to resources about the program.

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Subject:   General Sources

Title: NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network

URL: https://www.nih.gov/news-events/news-releases/nih-forms-team-experts-chart-course-presidents-precision-medicine-initiative-research-network/

Collection: All of Us Research Program web archive

Description: News release, titled "NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network," announcing the formation of the Working Group of the Advisory Committee to the NIH Director (ACD) and listing the individuals that comprise the team. Background information on the initiative is also present in the news release.

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Subject:   General Sources

Title: NIH awards $170 million for precision nutrition study | National Institutes of Health (NIH)

URL: https://www.nih.gov/news-events/news-releases/nih-awards-170-million-precision-nutrition-study/

Collection: All of Us Research Program web archive

Description: News article, titled "NIH awards $170 million for precision nutrition study," announcing new funding opportunities for a nutrition study hosted by the All of Us Research Program. Information about the NIH Common Fund, the All of Us Research Program, and the NIH as a whole is provided.

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Subject:   Research Projects Using Collected Data

Title: NIH announces national enrollment date for All of Us Research Program to advance precision medicine

URL: https://www.nih.gov/news-events/news-releases/nih-announces-national-enrollment-date-all-us-research-program-advance-precision-medicine/

Collection: All of Us Research Program web archive

Description: News Release, titled "NIH announces national enrollment date for All of Us Research Program to advance precision medicine," announcing the official enrollment date for the All of Us Research Program. The news release notes that prior to this national enrollment, there was a beta test to prepare for the program. Information on what the program includes, such as surveys, is mentioned throughout the news release.

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Subject:   General Sources

Title: All of Us Research Program launches COVID-19 research initiatives | National Institutes of Health (NIH)

URL: https://www.nih.gov/news-events/news-releases/all-us-research-program-launches-covid-19-research-initiatives/

Collection: All of Us Research Program web archive

Description: Press release, titled "All of Us Research Program launches Covid-19 research initiatives" detailing the All of Us program's initiatives, including antibody testing, the COPE Survey, and the collection of electronic health records.

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Subject:   COVID-19

Title: NIDCD is working with All of Us Research Program to advance precision medicine | NIDCD

URL: https://www.nidcd.nih.gov/news/2022/nidcd-working-all-us-research-program-advance-precision-medicine/

Collection: All of Us Research Program web archive

Description: Press release, titled "NIDCD is working with All of Us Research Program to advance precision medicine," detailing the All of Us Research Program and The National Institute on Deafness and Other Communication Disorders (NIDCD) partnership with the program.

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Subject:   Research Projects Using Collected Data

Title: Wisconsin | Join All of Us

URL: https://www.joinallofus.org/wisconsin/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Wisconsin," detailing the All of Us Research Program in Wisconsin, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Who Can Join? | Join All of Us

URL: https://www.joinallofus.org/who-can-join/

Collection: All of Us Research Program web archive

Description: Website, titled "Who Can Join?" describing who can participate in the All of Us Research Program.

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Subject:   General Sources

Title: What Participants Share | Join All of Us

URL: https://www.joinallofus.org/what-participants-share/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Share," detailing instructions on getting started with the All of Us Research Program, what the program requires from participants, and what they can expect to receive once their samples have been processed.

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Subject:   General Sources

Title: Medicine and Your DNA | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/medicine-and-your-dna/

Collection: All of Us Research Program web archive

Description: Website, titled "Medicine and Your DNA, "listing all of the genes that the All of Us Research Program looks at to give results about how DNA may affect how bodies processes medicine.

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Subject:   General Sources

Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Collection: All of Us Research Program web archive

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: What Participants Receive | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Receive," describing what participants will learn from donating their data, including but not limited to information about ones DNA, monetary compensation, and other future benefits.

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Subject:   General Sources

Title: Waianae Coast Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/waianae/

Collection: All of Us Research Program web archive

Description: Website, titled "Waianae Coast Comprehensive Health Center," detailing the Waianae Coast Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Waianae Coast Comprehensive Health Center.

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Subject:   General Sources

Title: VCU Wright Center for Clinical and Translational Research | Join All of Us

URL: https://www.joinallofus.org/vcu-wright-center-for-clinical-and-translational-research/

Collection: All of Us Research Program web archive

Description: Website, titled "VCU Wright Center for Clinical and Translational Research," detailing the VCU Wright Center for Clinical and Translational Research, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the VCU Wright Center for Clinical and Translational Research.

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Subject:   General Sources

Title: U.S. Department of Veterans Affairs

URL: https://www.joinallofus.org/va/

Collection: All of Us Research Program web archive

Description: Website, titled "U.S. Department of Veterans Affairs," detailing the U.S. Department of Veterans Affairs, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the U.S. Department of Veterans Affairs.

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Subject:   General Sources

Title: University of Arizona and Banner Health | Join All of Us

URL: https://www.joinallofus.org/university-of-arizona-and-banner-health/

Collection: All of Us Research Program web archive

Description: Website, titled "University of Arizona and Banner Health," detailing University of Arizona and Banner Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via University of Arizona and Banner Health.

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Subject:   General Sources

Title: Trans America Consortium | Join All of Us

URL: https://www.joinallofus.org/trans-america-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Trans America Consortium," detailing the Trans American Consortium that includes health care systems in Idaho, Massachusetts, Michigan, Minnesota, North Dakota, Texas, and Wisconsin that are participating in the All of Us Research Program. Information on how to join and frequently asked questions are also located on the page.

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Subject:   General Sources

Title: All of Us Research Program LGBTQ+ Data Privacy and Security

URL: https://www.joinallofus.org/themes/custom/jaou/etc/pdfs/data_privacy_infographic.pdf

Collection: All of Us Research Program web archive

Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.

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Subject:   Ethics and Data Management

Title: The University of Texas Health Science Center at Tyler | Join All of Us

URL: https://www.joinallofus.org/the-university-of-texas-health-science-center-at-tyler/

Collection: All of Us Research Program web archive

Description: Website, titled "The University of Texas at Tyler Health Science Center," detailing The University of Texas at Tyler Health Science Center, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via The University of Texas at Tyler Health Science Center.

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Subject:   General Sources

Title: The Participant Center | Join All of Us

URL: https://www.joinallofus.org/the-participant-center/

Collection: All of Us Research Program web archive

Description: Website, titled "The Participant Center," listing partners that the All of Us Research Program works with if participants are not able to access the program through a health care provider in their area.

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Subject:   General Sources

Title: Sun River Health | Join All of Us

URL: https://www.joinallofus.org/sun-river-health/

Collection: All of Us Research Program web archive

Description: Website, titled "Sun River Health," detailing Sun River Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Sun River Health.

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Subject:   General Sources

Title: Stanford University School of Medicine | Join All of Us

URL: https://www.joinallofus.org/stanford-university-school-of-medicine/

Collection: All of Us Research Program web archive

Description: Website, titled "Stanford University School of Medicine," detailing the Stanford University School of Medicine's partnership with the All of Us Research Program including how to join, frequently asked questions, and researcher resources.

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Subject:   General Sources

Title: Southern | Join All of Us

URL: https://www.joinallofus.org/southern/

Collection: All of Us Research Program web archive

Description: Website, titled "Southern All of Us Network," detailing the Southern All of Us Network that includes health care systems in Alabama, Louisiana, and Mississippi that are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Southeast | Join All of Us

URL: https://www.joinallofus.org/southeast/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us South East Enrollment Center," detailing the All of Us South East Enrollment Center that includes the University of Miami Miller School of Medicine, University of Florida College of Medicine, Emory University, and Morehouse School of Medicine which are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: San Ysidro Health | Join All of Us

URL: https://www.joinallofus.org/san-ysidro-health/

Collection: All of Us Research Program web archive

Description: Website, titled "San Ysidro Health," detailing San Ysidro Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via San Ysidro Health.

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Subject:   General Sources

Title: Pennsylvania | Join All of Us

URL: https://www.joinallofus.org/pennsylvania/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Pennsylvania," detailing the All of Us Research Program in Pennsylvania, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Newsletters | Join All of Us

URL: https://www.joinallofus.org/newsletters/

Collection: All of Us Research Program web archive

Description: Newsletters page from the official All of Us website that give updates to the project. Newsletters found on this site are organized by date of publication.

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Subject:   General Sources

Title: New York City Consortium | Join All of Us

URL: https://www.joinallofus.org/new-york-city-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "New York City Consortium," detailing the New York City Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the New York City Consortium.

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Subject:   General Sources

Title: New England | Join All of Us

URL: https://www.joinallofus.org/new-england/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us New England," detailing the All of Us Research Program in New England, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: National Baptist Convention, USA, Inc.

URL: https://www.joinallofus.org/nbcusa/

Collection: All of Us Research Program web archive

Description: Website, titled "National Baptist Convention, USA, Inc.," detailing the National Baptist Convention, USA, Inc.'s partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: National Alliance for Hispanic Health (Alliance) | Join All of Us

URL: https://www.joinallofus.org/national-alliance-for-hispanic-health-alliance/

Collection: All of Us Research Program web archive

Description: Website, titled "National Alliance for Hispanic Health (Alliance)," detailing the National Alliance for Hispanic Health (Alliance)'s partnership with the All of Us Research Program including how to join and frequently asked questions.

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Subject:   General Sources

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Collection: All of Us Research Program web archive

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: FiftyForward | Join All of Us

URL: https://www.joinallofus.org/fiftyforward/

Collection: All of Us Research Program web archive

Description: Website, titled "FiftyForward," detailing the FiftyForward's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: All of Us Journey at Memphis Juneteenth Festival

URL: https://www.joinallofus.org/event/all-of-us-journey-at-memphis-juneteenth-festival/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Memphis Juneteenth Festival," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Knoxville Zoo

URL: https://www.joinallofus.org/event/all-of-us-journey-at-knoxville-zoo/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Knoxville Zoo," detailing the All of Us traveling exhibit's stop in Knoxville. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at El Mercadito de Memphis

URL: https://www.joinallofus.org/event/all-of-us-journey-at-el-mercadito-de-memphis/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at El Mercadito de Memphis," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Programa Cientifico

URL: https://www.joinallofus.org/es/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Programa Cientifico," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This is the Spanish version of the main page is where individuals sign up to join the program.

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Subject:   General Sources

Title: Eau Claire Cooperative Health Center | Join All of Us

URL: https://www.joinallofus.org/eau-claire-cooperative-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Cooperative Health," detailing Cooperative Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cooperative Health.

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Subject:   General Sources

Title: Delta Research and Educational Foundation (DREF) | Join All of Us

URL: https://www.joinallofus.org/delta-research-and-educational-foundation-dref/

Collection: All of Us Research Program web archive

Description: Website, titled "Delta Research and Educational Foundation (DREF)," detailing the DREF's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Coronavirus | Join All of Us

URL: https://www.joinallofus.org/coronavirus/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Covid-19 and All of Us," detailing what the program is doing in response to Covid-19 and what data will be collected in regards to Covid-19.

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Subject:   COVID-19

Title: Community Health Center, Inc. | Join All of Us

URL: https://www.joinallofus.org/community-health-center-inc/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Health Center, Inc.," detailing Community Health Center, Inc., their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Community Health Center, Inc.

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Subject:   General Sources

Title: Community Engagement Partners | Join All of Us

URL: https://www.joinallofus.org/community-engagement-partners/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Engagement Partners," listing organizations that tell their communities what the All of Us Research Program is and how to join.

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Subject:   General Sources

Title: Cherokee Health Systems | Join All of Us

URL: https://www.joinallofus.org/cherokee-health-systems/

Collection: All of Us Research Program web archive

Description: Website, titled "Cherokee Health Systems," detailing Cherokee Health Systems, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cherokee Health Systems.

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Subject:   General Sources

Title: Champions | Join All of Us

URL: https://www.joinallofus.org/champions/

Collection: All of Us Research Program web archive

Description: Website, titled "Champions," listing the All of Us champions who support the mission and goals of the All of Us Research Program by sharing information on the program with their communities to help raise awareness.

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Subject:   General Sources

Title: California | Join All of Us

URL: https://www.joinallofus.org/california/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us California," detailing the All of Us Research Program in California, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Asian Health Coalition | Join All of Us

URL: https://www.joinallofus.org/asian-health-coalition/

Collection: All of Us Research Program web archive

Description: Website, titled "Asian Health Coalition," detailing the Asian Health Coalition's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: All of Us Research Program Tribal Consultation Report Summary | Join All of Us

URL: https://www.joinallofus.org/all-of-us-research-program-tribal-consultation-report-summary/

Collection: All of Us Research Program web archive

Description: Website, "All of Us Research Program Tribal Consultation Report Summary," detailing Tribal Sovereignty and Research Participation, Cultural Sensitivity, Data Access, Representation, Privacy, Publications and Partnerships, and what members of Tribal Communities should do in order to participate in the program.

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Subject:   Engagement

Title: American Association on Health and Disability | Join All of Us

URL: https://www.joinallofus.org/aahd/

Collection: All of Us Research Program web archive

Description: Website, titled "American Association on Health and Disability," detailing the American Association on Health and Disability's partnership with the All of Us Research Program including testimonials, how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: FAQ: Minority Student Research Symposium

URL: https://vepimg.b8cdn.com/uploads/vjfnew/6735/content/files/1642585851msrs-faq-1-pdf1642585851.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "FAQ: Minority Student Research Symposium," answering nineteen questions about the Minority Student Research Symposium.

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Subject:   General Sources

Title: Official Twitter of the Network of the National Library of Medicine All of Us Community Engagement Network

URL: https://twitter.com/nnlmAoU/

Collection: All of Us Research Program web archive

Description: Official Twitter of the Network of the National Library of Medicine All of Us Community Engagement Network. The majority of posts detail events put on by the All of Us Research program, including multiple webinars.

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Subject:   Engagement

Title: Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance

URL: https://reporter.nih.gov/search/fNCDOd_3f0CbzjOUR4eqUg/project-details/10320454/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Cloud-Based Biomedical Data Storage and Analysis: Implications for Trustworthy Governance.

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Subject:   Ethics and Data Management

Title: Database search results of the All of Us Research Program

URL: https://reporter.nih.gov/search/241kAtaCN06DT7hoxibUOw/projects/

Collection: All of Us Research Program web archive

Description: Database for the National Institute of Health's research project called RePORTER. Search results of the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: PRIDEnet for the All of Us Research Program

URL: https://reporter.nih.gov/project-details/9935325/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the PRIDEnet for the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: PRIDEnet for the All of Us Research Program | RePORTER

URL: https://reporter.nih.gov/project-details/9935325#sub-Projects/

Collection: All of Us Research Program web archive

Description: Project report, titled "PRIDEnet for the All of Us Research Program," that details the projects plans to aid the All of Us program. The project is through Stanford University and the Project report includes publications related to the project.

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Subject:   Research Projects Using Collected Data

Title: Engaging All of Us for Effective Precision Medicine

URL: https://reporter.nih.gov/project-details/9904066/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Engaging All of Us for Effective Precision Medicine.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program Engagement and Retention Innovators

URL: https://reporter.nih.gov/project-details/9902060/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the All of Us Research Program Engagement and Retention Innovators.

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Subject:   Research Projects Using Collected Data

Title: Color's software-powered, high-touch delivery of genetic counseling sessions and pharmacogenomics consultations for return of genomic results

URL: https://reporter.nih.gov/project-details/9860638/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Color's software-powered, high-touch delivery of genetic counseling sessions and pharmacogenomics consultations for return of genomic results.

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Subject:   Research Projects Using Collected Data

Title: Population-Scale Clinical Genomics

URL: https://reporter.nih.gov/project-details/9745167/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Population-Scale Clinical Genomics.

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Subject:   Research Projects Using Collected Data

Title: The Baylor-Hopkins Clinical Genomics Center for All of Us

URL: https://reporter.nih.gov/project-details/9744232/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for The Baylor-Hopkins Clinical Genomics Center for All of Us.

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Subject:   Research Projects Using Collected Data

Title: The Broad-LMM-Color Genome Center for All of Us

URL: https://reporter.nih.gov/project-details/9744213/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for The Broad-LMM-Color Genome Center for All of Us.

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Subject:   Research Projects Using Collected Data

Title: Northwest Genomics Center for All of Us

URL: https://reporter.nih.gov/project-details/9743938/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Northwest Genomics Center for All of Us.

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Subject:   Research Projects Using Collected Data

Title: Illinois Precision Medicine Consortium (IPMC)

URL: https://reporter.nih.gov/project-details/9534804/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Illinois Precision Medicine Consortium (IPMC).

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Subject:   Research Projects Using Collected Data

Title: Precision Approach to healthCARE enrollment Site (PA CARES)

URL: https://reporter.nih.gov/project-details/9529766/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Precision Approach to healthCARE enrollment Site (PA CARES).

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Subject:   Research Projects Using Collected Data

Title: Columbia/Cornell/Harlem Hospital Precision Medicine Initiative HPO

URL: https://reporter.nih.gov/project-details/9525197/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Columbia/Cornell/Harlem Hospital Precision Medicine Initiative HPO.

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Subject:   Research Projects Using Collected Data

Title: University of Arizona - Banner Health Precision Medicine Initiative Cohort Enrollment Center

URL: https://reporter.nih.gov/project-details/9525183/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the University of Arizona - Banner Health Precision Medicine Initiative Cohort Enrollment Center.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program in Wisconsin

URL: https://reporter.nih.gov/project-details/9512099/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the All of Us Research Program in Wisconsin.

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Subject:   Research Projects Using Collected Data

Title: SouthEast Enrollment Center (SEEC)

URL: https://reporter.nih.gov/project-details/9512092/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the South East Enrollment Center (SEEC).

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Subject:   Research Projects Using Collected Data

Title: Southern All of Us Network

URL: https://reporter.nih.gov/project-details/9512022/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Southern All of Us Network.

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Subject:   Research Projects Using Collected Data

Title: Todos Juntos: All of Us Research Program

URL: https://reporter.nih.gov/project-details/9507479/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Todos Juntos: All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: A New England Enrollment Center for PMI Cohort Program

URL: https://reporter.nih.gov/project-details/9453746/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for A New England Enrollment Center for PMI Cohort Program.

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Subject:   Research Projects Using Collected Data

Title: California Precision Medicine Consortium

URL: https://reporter.nih.gov/project-details/9453745/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the California Precision Medicine Consortium.

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Subject:   Research Projects Using Collected Data

Title: Trans-America Consortium of the Health Care Systems Research Network for the Precision Medicine Initiative Cohort Program

URL: https://reporter.nih.gov/project-details/9453744/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Trans-America Consortium of the Health Care Systems Research Network for the Precision Medicine Initiative Cohort Program.

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Subject:   Research Projects Using Collected Data

Title: Communications Design and Development for NIH Precision Medicine Initiative Research Projects

URL: https://reporter.nih.gov/project-details/9404498/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Communications Design and Development for NIH Precision Medicine Initiative Research Projects.

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Subject:   Research Projects Using Collected Data

Title: Technology to Empower Changes in Health (TECH) Network Participant Technologies Center

URL: https://reporter.nih.gov/project-details/9355302/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Technology to Empower Changes in Health (TECH) Network Participant Technologies Center.

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Subject:   Research Projects Using Collected Data

Title: Data and Research Support Center

URL: https://reporter.nih.gov/project-details/9312321/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Data and Research Support Center.

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Subject:   Research Projects Using Collected Data

Title: Adaptive Platform for Personalized Engagement

URL: https://reporter.nih.gov/project-details/9228561/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Adaptive Platform for Personalized Engagement.

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Subject:   Research Projects Using Collected Data

Title: Precision Medicine Initiative Cohort Program Biobank

URL: https://reporter.nih.gov/project-details/9213581/

Collection: All of Us Research Program web archive

Description: RePORTER Project report page for the Precision Medicine Initiative Cohort Program Biobank.

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Subject:   Research Projects Using Collected Data

Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Hub: Data Browser Tool

URL: https://player.vimeo.com/video/538837195

Collection: All of Us Research Program web archive

Description: Video recording for the Minority Student Research Symposium, titled "All of Us Research Hub: Data Browser Tool," detailing what the Data Browser Tool is and how researchers can use it.

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Subject:   Engagement

Title: Data Matters for All of Us

URL: https://player.vimeo.com/video/538836026

Collection: All of Us Research Program web archive

Description: Video recording for the Minority Student Research Symposium, titled "Data Matters for All of Us," discussing what health disparities are and how the All of Us Research Program can alleviate them. The video follows a data set through the All of Us Research Program and how the data set was used.

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Subject:   Engagement

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