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Collection: All of Us Research Program web archive
Description: News article, titled "10,000 Fitbits Will Be Distributed as Part of an NIH-Funded Heath Study," detailing the distribution of Fitbits and how the Fitbits would aid the All of Us Research program.
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Subject: Ethics and Data Management
Creator: XTalks, Hand, Sarah
Language: English
Type: News article
Date: 2017-11-15
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 3: Older Adults & the All of Us Research Program," from NHMA and the All of Us Research Program. The third session of NHMA's Fireside Chat Series that discusses how the participation of older adults in clinical trials can impact the next generation.
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Subject: Engagement
Creator: National Hispanic Medical Association
Language: English
Type: Social media
Date: 2020-12-10
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Citizen Science and Data Literacy with All of Us California," of a webinar hosted by SciStarter. This event featured speakers from All of Us California that presented on and answer questions about data literacy, especially as it relates to the All of Us Research program, as well as a speaker from SciStarter who shared about citizen science and data literacy.
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Subject: Ethics and Data Management
Creator: SciStarter, Ramirez, Andrea, Guo, Yuqing, Satre, Zara Susan, Nickerson, Caroline
Language: English
Type: Social media
Date: 2022-05-09
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "OHRP Research Community Forum," hosted by ECU Research and Katherine Blizinsksy. The thirty minute video discusses the All of Us Program and precision medicine.
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Subject: Engagement
Creator: East Carolina University, Blizinsksy, Katherine
Language: English
Type: Social media
Date: 2018-11-28
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Mike from 95.5 learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video gives a brief detail of what people can expect by joining the program and why the All of Us Research Program wants access to Electronic Health Records (EHR).
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Dr. Darrius from WJLB learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video details how the All of Us Research Program protects data provided by participants and how long the program is aiming to last.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "All Our Voices: Record you Story," detailing the All Our Voices program and gave some examples from the program.
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Subject: Participant Recruitment
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Support Seed
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Subject: Engagement
Creator: NBCUSA H.O.P.E., Minor, Michael O., Williams, Lovoria
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "All of Us Med Research | Cronkite News," giving a brief overview of the All of Us Research Program in Arizona and how the program affects the medical field due to its diversity. The news video interviews participant Victor Avila, asking him why he decided to join the program.
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Subject: Public Response
Creator: Cronkite News
Language: English
Type: Social media
Date: 2022-04-19
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Creating New Knowledge Through the All of Us Researcher Workbench to Redress Health Disparities," of a webinar hosted by the National Minority Quality Forum. Panelists on the webinar included three doctors, one of which was part of the All of Us team while the other two utilized data sets from the All of Us Research Program, and a representative from the National Minority Quality Forum. The webinar discusses the necessity of the All of Us Research Program.
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Subject: General Sources
Creator: National Minority Quality Forum, Watson, Karriem, Actkins, Ky'Era, Moore, Scott Emory, Wartman, Gretchen Clark
Language: English
Type: Social media
Date: 2022-05-11
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Dataset Builder & Concept Sets," explaining to researchers how to use some of the different features, including the dataset builder and concept sets features, on the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Researcher Workbench, National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want samples?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses what how bio samples from participants can help the All of Us Research Program.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "About All Our Voices," detailing the All Our Voices program and gave some examples from the program.
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Subject: Participant Recruitment
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 1: Precision Medicine," from NHMA and the All of Us Research Program. The first session of NHMA's Fireside Chat Series that discusses diversity in clinical trials and how the All of Us program can benefit the Hispanic/Latino community.
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Subject: Engagement
Creator: National Hispanic Medical Association
Language: English
Type: Social media
Date: 2020-07-30
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Research Program Enrollment Journey," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish, how to join the program, and what joining the program looks like.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "5/2019 NACNR - NIH All of Us Research Program/ Precision Medicine Initiative," of the National Advisory Council of Nursing Research meeting where Dr. Stephanie Devany gave an update on the All of Us Research Program.
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Subject: Public Response
Creator: National Institutes of Health (U.S.), National Institute of Nursing Research (U.S.)
Language: English
Type: Social media
Date: 2019-07-30
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Why Does the All of Us Research Program Want Physical Measurements?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program wants information such as height and weight.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Research Program Surveys" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses why the All of Us Research Program uses surveys to ask participants about their lifestyle.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Welcome to the All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video welcomes participants to the program and claims that the future of health starts with the viewer.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Notebooks & Code Snippets," explaining to researchers how to use some of the different features, including the notebooks and coding features, on the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Researcher Workbench, National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Introduction to the Researcher Workbench," detailing how to access and utilize the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Researcher Workbench, National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "Rachel from 95.5 learns more about All of Us Research Program," produced by the All of Us research Program at the Henry Ford Health Center. The video gives a brief detail of what the program is and when participants can expect results from the program.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 5: Women & the All of Us Research Program," from NHMA and the All of Us Research Program. The fourth session of NHMA's Fireside Chat Series that discusses the importance of diversity and inclusion in research and how researchers can utilize the All of Us Research Hub.
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Subject: Engagement
Creator: National Hispanic Medical Association, Temkin, Sarah M., Crespo-Fierro, Michele, Correa, Nereida, Lopez, Ana Marie
Language: English
Type: Social media
Date: 2021-02-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting," hosted by the U.S. Department of Health and Human Services and Augusta University. The hour long video details the program's core values, the building blocks of the program, the growing network of healthcare provider organizations, the program's approach to gaining diversity, the participant portal, the program's Electronic Health Record, smart phone apps being developed for the program, and the program's data security and privacy.
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Subject: Ethics and Data Management
Creator: U.S. Department of Health and Human Services, Rutter, Joni
Language: English
Type: Social media
Date: 2017-08-29
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "All of Us Hits the Road with Henry Pop-Ups," produced by the All of Us research Program at the Henry Ford Health Center. The video details what the All of Us Research Program is aiming to accomplish and how the program is keeping data secure. Henry, a bus used by the All of Us Research Program as a pop-up site, is shown throughout the video.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video recording, titled "What Is Health Research?" produced by the All of Us research Program at the Henry Ford Health Center. The video discusses how health research has been beneficial and how giving information to the All of Us Research Program can aid health research.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 4: Research & the All of Us Research Hub," from NHMA and the All of Us Research Program. The fourth session of NHMA's Fireside Chat Series that discusses the importance of diversity and inclusion in research and how researchers can utilize the All of Us Research Hub.
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Subject: Engagement
Creator: National Hispanic Medical Association, Wallin, Courtney, Roman, Adrienne, Simon, Melissa A., Lozano, Paula
Language: English
Type: Social media
Date: 2021-02-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Session 2: Enrolling Participants," from NHMA and the All of Us Research Program. The second session of NHMA's Fireside Chat Series that discusses ways participants can enroll into the All of Us Research Program and the benefits of enrollment.
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Subject: Engagement
Creator: National Hispanic Medical Association
Language: English
Type: Social media
Date: 2020-09-23
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video, titled "Genomics and Medicine: The Impact of Individualized Medicine," endorsed by Patients Like Me and the All of Us Research Program that discusses why and how to use genomic data to create personalized approaches for patients.
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Subject: Engagement
Creator: Christine Von Raesfeld, PatientsLikeME
Language: English
Type: Social media
Date: 2022-01-14
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Destined to Be," detailing the story of friends Sabrina and Shantay and their experience with the birth of Sabrina's premature daughter.
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Subject: Participant Recruitment
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube playlist for the "All Our Voices" program. Videos on the playlist detail the program, how to join, and the benefit of joining.
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Subject: Engagement
Creator: StoryCorps (Project)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official All of Us YouTube playlist from Henry Ford Health. The twelve videos in the playlist answer various questions prospective participants may have about the program and include short interviews with different members of the health community.
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Subject: Engagement
Creator: Henry Ford Health System
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page for the All of Us Program at Marshfield Clinic Research Institute. Videos from the channel discuss various topics, such as health issues that could be linked to DNA, mental health, etc.
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Subject: Engagement
Creator: Marshfield Clinic Research Institute
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "User Support Hub," explaining how to use the user support hub and other resources available to aid researchers in using the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: YouTube video, titled "Cohort Builder & Cohort Review," explaining to researchers how to use some of the different features, including the various cohort features, on the Researcher Workbench for the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: National Institutes of Health (U.S.)
Language: English
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official YouTube page for DREF that includes videos from All of Us events, news, and videos not related to All of Us, but related to DREF.
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Subject: Participant Recruitment
Creator: Delta Research and Educational Foundation
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page for the All of Us Program at The University of Arizona. Videos from the channel are mainly promotional videos for the All of Us Research Program. Some videos are in English, while others are in Spanish to represent the Latinx communities in Arizona and the surrounding states.
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Subject: Engagement
Creator: University of Arizona-Banner Health, All of Us Research Program
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: The official All of Us Pennsylvania YouTube. The majority of videos involve Dr. Mylynda Massart answering various questions about the program. Other videos on the channel include more promotional videos for the program including testimonials.
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Subject: Engagement
Creator: University of Pittsburgh Clinical and Translational Science Institute
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Official YouTube page of the All of Us program that includes promotional videos, webinars, and other informational videos about the All of Us program.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Type: Social media
Rights: The National Library of Medicine believes this item to be in the public domain.
Social Media Host: YouTube (Firm)
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News video, titled "Study would like your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience.
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Subject: Engagement
Creator: 4WWL-TV
Language: English
Type: Video recording
Date: 2019-04-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Tegna, Inc.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Local study seeks your DNA," from 4WWL-TV giving an introduction to the All of Us Research Program and precision medicine through two participants' experience. The transcript of the video is provided as well.
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Subject: Engagement
Creator: 4WWL-TV, Farris, Meg
Language: English
Type: News article
Date: 2019-04-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: Tegna, Inc.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "A biomedical research program in Lex this week focuses on those underrepresented among 'All of Us'," that mentions the All of Us Research Traveling Exhibition coming to Transy University. The article also mentions how the All of Us Research Program is diverse and that most research programs, historically, were not as diverse.
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Subject: Participant Recruitment
Creator: University of Kentucky, WUKY, Barnette, Arlo
Language: English
Type: News article
Date: 2022-05-11
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "The NIH Launches Its Ambitious Million-Person Genetic Survey," from Wired detailing the launch of the All of Us Research Program. The article calls into question the use of genetic data and how in an age of privacy, one could feel vulnerable donating their genetic data. the article also relays more information on the All of Us Research Program itself.
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Subject: Public Response
Creator: Wired, Monteni, Megan
Language: English
Type: News article
Date: 2018-05-06
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "A Geneticist’s Dilemma," detailing the Navajo's moratorium on genetic research due to religious reasons, the All of Us Research Program's attempts to recruit Native Americans, and a previous study where permission to use Native American data was not granted.
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Subject: Public Response
Creator: Nash Holdings, Washington Post, Schwartz, Oscar
Language: English
Type: News article
Date: 2020-11-23
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Vibrant Health to Launch Integrated Platform for Ancillary Studies in Large-Cohort Digital Health Research," detailing Vibrant Health's database and its use in NIH's All of Us Research Program. The Press release also gives a brief introduction to the company.
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Subject: Ethics and Data Management
Creator: Vibrant Health
Language: English
Type: Press release
Date: 2022-03-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Vibrant Health powers NIH precision nutrition research project to accelerate discoveries in food and dietary patterns," announcing Vibrant Health's involvement with the All of Us Program's dietary health component. This component of the All of Us program is meant to create precision nutrition for individuals. The Press release details how Vibrant Health's involvement will aid the All of Us Research Program with their data collection and engagement platform.
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Subject: Research Projects Using Collected Data
Creator: Vibrant Health
Language: English
Type: Press release
Date: 2022-01-20
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Vibrant Health creates participant advisory board to advocate for participant experience, diversity and accessibility, supporting NIH’s All of Us research program," detailing the Participant Advisory Board in how it will help participants of the All of Us Research Program and who the member of the Participant Advisory Board are.
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Subject: Ethics and Data Management
Creator: Vibrant Health
Language: English
Type: Press release
Date: 2021-03-02
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "All of Us Research Program Releases Genomic Data to Researchers, Combined with Participant-Generated Data Collected on Vibrant Health’s Digital Health Research Platform," detailing past issues with genomic data collection, specifically in collecting within minorities. The Press release also details Vibrant Health's involvement with the All of Us Research Program, as well as giving some details on Vibrant Health.
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Subject: Ethics and Data Management
Creator: Vibrant Health
Language: English
Type: Press release
Date: 2022-03-18
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "National Institutes of Health wants 1 million to share their DNA and their health habits for science," detailing the launch of the All of Us Research Program, what the program is, and what the program aims to do. **SAME AS A PREVIOUS ARTICLE**
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Subject: Engagement
Creator: Gannett Company, USA Today (Firm), Neergaard, Lauran
Language: English
Type: News article
Date: 2018-05-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "National Institutes of Health’s ‘All of Us Journey’ comes to Transylvania from May 10-13," detailing the All of Us Research Program's traveling exhibit's stop in Kentucky, information on the All of Us Research Program, and Transylvania University's history of medical education.
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Subject: Participant Recruitment
Creator: Transylvania University, Communications Office
Language: English
Type: Press release
Date: 2022-05-03
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Video posted on TikTok from user "peridothedgehog" detailing their experience with the All of Us Research Program and how they believe it will be beneficial. The video also mentions how the user discovered the All of Us Research Program.
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Subject: Public Response
Creator: peridothedgehog
Language: English
Type: Social media
Date: 2021-07-26
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Social Media Host: TikTok
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Wearables are too expensive for groups underrepresented in medical research," detailing how a study found the majority of individuals using wearables are wealthy and/or Caucasian. The article relates the involvement of the All of Us Research Program in the study and how the main reason why minority participants did not use wearables was due to costs and lack of knowledge.
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Subject: Ethics and Data Management
Creator: Vox Media, The Verge, Wetsman, Nicole
Language: English
Type: News article
Date: 2022-04-26
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News Report, titled "Libraries working with All of Us to advance digital health literacy: Partnerships supporting US health" detailing how the All of Us research program partnered with libraries to release tools and information that would help individuals learn about digital health. The report briefly details the tools provided by the program and how these tools aid with digital health literacy.
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Subject: General Sources
Creator: The Nation's Health, Krisberg, Kim
Language: English
Type: News article
Date: 2021
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "New Evidence Shows COVID-19 Was in US Weeks Before Thought," detailing how the All of Us program tested samples for COVID-19 and found that some samples tested positive before the first official positive case.
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Subject: COVID-19
Creator: The Scientist, Olena, Abigail Frances
Language: English
Type: News article
Date: 2021-06-17
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Wearable device data need to represent all of us," that discusses the use of wearable devices in the All of Us Research Program. **ARTICLE BEHIND A PAYWALL**
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Subject: Ethics and Data Management
Creator: Boston Globe Media, STAT (Health and medicine news publisher), Sharma, Yashoda, Lunt, Chris
Language: English
Type: News article
Date: 2022-04-25
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled " I handed over my genetic data to the NIH. Here's why you should, too," written by the former Director of the All of Us Program, detailing his opinion on why people should participate in the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: STAT (Health and medicine news publisher), Dishman, Eric
Language: English
Type: News article
Date: 2018-06-13
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Article, titled "NIH opens nationwide enrollment for huge precision medicine initiative," detailing the nationwide launch of the All of Us Research Program. The article discusses the beta run of the project and how some people may be apprehensive towards given their genetic data to a government program.
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Subject: General Sources
Creator: STAT (Health and medicine news publisher), Facher, Lev
Language: English
Type: News article
Date: 2018-05-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine," detailing the use of Fitbit devices within the All of Us Research Program.
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Subject: Ethics and Data Management
Creator: Scripps Research Institute
Language: English
Type: Press release
Date: 2021-02-24
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NIH's All of Us Research Program releases first genomic dataset of nearly 100,000 whole genome sequences," detailing a new set of data released with about 50 percent of the data coming from individuals who come from racial or ethnic groups that have previously been underrepresented in research.
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Subject: Research Projects Using Collected Data
Creator: Science Daily
Language: English
Type: News article
Date: 2022-03-17
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "New evidence of early SARS-CoV-2 infections in the United States," detailing how blood samples collected from All of Us participants prove that Covid-19 had infected people earlier than reported in some states.
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Subject: COVID-19
Creator: Science Daily
Language: English
Type: News article
Date: 2021-06-15
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Million-person U.S. study of genes and health stumbles over including Native American groups," detailing issues with collecting data from Native American groups mainly due to skepticism. The article mentions other criticisms of the All of Us Research Program.
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Subject: Public Response
Creator: Science.org, Kaiser, Jocelyn
Language: English
Type: News article
Date: 2019-05-29
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Chicago’s leading medical centers join the NIH for launch of the All of Us Research Program to advance precision medicine," that discusses the All of Us Research Program's launch in Chicago, what the program entails, and how the program will have an impact.
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Subject: Participant Recruitment
Creator: Rush University Medical Center
Language: English
Type: News article
Date: 2018-05-02
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Everybody’s Health Tells a Story. What’s Yours?," detailing precision medicine, the All of US Research Program, how to join, why to join, and answering frequently asked questions.
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Subject: Engagement
Creator: RocketCityMom.com
Language: English
Type: News article
Date: 2022-04-22
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2021-08-17
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Publication
Date: 2020-05-12
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Session summary, titled "All of Us Research Program Research Priorities Workshop," that gives an overview of the discussions held at the workshop. An overview of the program, goals of the workshop, panels, and keynote presentations were recorded in the summaries.
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Subject: General Sources
Creator: All of Us Research Program, Hamlet, Michelle, Collins, Francis S., Dishman, Eric, Simon, Greg, Patrick-Lake, Bray, Wei, Gina, Wheeler, Scott
Language: English
Type: Report
Date: 2018-03-21-23
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Case report, titled "Research Priorities Workshop," detailing 1110 use cases that are categorized by nine health conditions. Within these nine health conditions, the cases are further organized by seven themes.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Report
Date: 2018-10-08
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Spotlights," that links out to articles related to the All of Us Research Program. The articles are tagged as "Participant Data in Action," "Survey Insights," or "Meet the Researchers."
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.), All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Research Hub Updates," that links out to various newsletters and articles about the Research Hub, including the "Research Roundup."
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Publications," that links out to publications that are related to or utilized the All of Us data.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "COVID-19 Research Initiatives," spotlighting the All of Us Research Program's various research methods for COVID-19 including The COPE Survey, Electronic Health Record Data, COVID-19 Antibody study, and other support for COVID-19 research.
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Subject: COVID-19
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: The Basics," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's basic information.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Personal Medical History," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's medical history.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Overall Health," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's overall health and whether they view themselves as healthy individuals.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Lifestyle," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's lifestyle including smoking habits and substance use.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Healthcare Access Utilization ," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's healthcare decisions and how often they seek out healthcare professionals.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Participant Surveys: Family Medical History Survey," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's family medical history.
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Subject: General Sources
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.
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Subject: COVID-19
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Survey Explorer," that links out to seven All of Us surveys. These surveys include: The Basics, Lifestyle, Overall Health, Personal Medical History, Health Care Access & Utilization, Family Medical History, Covid-19 Participate Experience (COPE).
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Subject: General Sources
Creator: All of Us Research Program
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Data Methods," detailing the four different methodologies the All of Us Research Program uses to collect data. Links to other data protocols and methods are found at the bottom of the page.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Data Sources," detailing the various ways the All of Us Research Program collects data, including electronic health records, bio samples and bioassays, surveys, physical measurements, and wearables.
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Subject: General Sources
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "Data Access Tiers," that details the different accessibility options and lists data use policies for the research program.
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Subject: Ethics and Data Management
Creator: All of Us Research Program
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.
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Subject: Research Projects Using Collected Data
Creator: All of Us Research Program, National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Indigenous People Grill NIH on All of Us Protections," detailing pervious studies conducted on Native populations, the impact the studies had, and includes an interview with the All of Us director, Eric Dishman, explaining how the program will involve Native Tribes while protecting their privacy.
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Subject: Public Response
Creator: Relias Media, Evans, Gary
Language: English
Type: News article
Date: 2019-09-01
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Website, titled "r/AllOfUsResearch," that is a community forum where participants in the All of Us Research Program can post thoughts, comments, discussion, and articles about the program.
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Subject: Public Response
Creator: Reddit
Language: English
Type: Social media
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Press release, titled "NIH's All of Us Research Program Restarts Nationwide Journey Tour after Two-Year Pandemic Pause; Enrolling New Participants for Historic Biomedical Database in Kentucky (5/3-5/13)," detailing the All of Us Research Program's traveling exhibit's stop in Kentucky, which includes location and event info.
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Subject: Participant Recruitment
Creator: Cision (Firm)
Language: English
Type: Press release
Date: 2022-05-02
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Will Personalized Diets Treat and Prevent Chronic Disease?," detailing the Nutrition for Precision Health, powered by the All of Us Research Program. The program is meant to be a step towards precision nutrition with the idea that this will in turn benefit precision medicine. The article delves into how the program will work and how it is funded by the NIH Common Fund.
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Subject: Research Projects Using Collected Data
Creator: Louisiana State University, Pennington Biomedical Research Center
Language: English
Type: News article
Date: 2022-01-20
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NYC Consortium Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine," that details the launch of the All of Us Research Program in New York and features some of the participating organizations. Basic information about the program, including goals of the program are mentioned throughout the article.
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Subject: Engagement
Creator: New York Presbyterian
Language: English
Type: News article
Date: 2018-05-03
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "Researchers Gather Health Data For 'All Of Us'," from NPR. The article details the All of Us program and goes in depth into the process behind reading and storing samples provided by participants. Other aspects, such as perceived benefits of the program are mentioned within the article.
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Subject: Public Response
Creator: National Public Radio, Harris, Richard
Language: English
Type: News article
Date: 2017-12-31
Rights: This item may be under copyright protection; contact the copyright owner for permission before re-use.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: Webpage, titled "All of Us," from the National Library of Medicine initiatives website. This page gives a brief overview of the All of Us Research Program and links to resources about the program.
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Subject: General Sources
Creator: National Library of Medicine (U.S.), National Institutes of Health (U.S.)
Language: English
Type: Website
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News release, titled "NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network," announcing the formation of the Working Group of the Advisory Committee to the NIH Director (ACD) and listing the individuals that comprise the team. Background information on the initiative is also present in the news release.
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Subject: General Sources
Creator: National Institutes of Health (U.S.)
Language: English
Type: News article
Date: 2015-06-30
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
Collection: All of Us Research Program web archive
Description: News article, titled "NIH awards $170 million for precision nutrition study," announcing new funding opportunities for a nutrition study hosted by the All of Us Research Program. Information about the NIH Common Fund, the All of Us Research Program, and the NIH as a whole is provided.
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Subject: Research Projects Using Collected Data
Creator: National Institutes of Health (U.S.)
Language: English
Type: News article
Date: 2022-01-20
Rights: The National Library of Medicine believes this item to be in the public domain.
Collector: National Library of Medicine (U.S.)
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