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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: AllofUsAZ - YouTube

URL: https://www.youtube.com/channel/UCsiYqxMhL5B405zLErAW-wg/videos/

Collection: All of Us Research Program web archive

Description: Official YouTube page for the All of Us Program at The University of Arizona. Videos from the channel are mainly promotional videos for the All of Us Research Program. Some videos are in English, while others are in Spanish to represent the Latinx communities in Arizona and the surrounding states.

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Subject:   Engagement

Title: All of Us Research Program - YouTube

URL: https://www.youtube.com/c/AllofUsResearchProgram/

Collection: All of Us Research Program web archive

Description: Official YouTube page of the All of Us program that includes promotional videos, webinars, and other informational videos about the All of Us program.

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Subject:   General Sources

Title: All of Us Research Program Data User Code of Conduct

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_User_Code_of_Conduct_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "All of Us Research Program Data User Code of Conduct," that must be completed to become an authorized data user. The document states what authorized data users may and may not do with the data once they have access.

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Subject:   Ethics and Data Management

Title: Framework for Access to All of Us Data Resources v1.1

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/data&tools/data-access-use/AoU_Data_Access_Framework_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Framework for Access to All of Us Data Resources v1.1," which details information from the Data User Code of Conduct and details how data from the research program can be utilized. Information on failing to follow the DUCC is also present.

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Subject:   Ethics and Data Management

Title: Data User Appeals Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_User_Appeals_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data User Appeals Policy," which details how researchers can appeal any of their projects that the Resource Access Board has asserted as non-compliant with the Data User Code of Conduct.

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Subject:   Ethics and Data Management

Title: Policy on Stigmatizing Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Stigmatizing_Research_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Stigmatizing Research," which details issues that may arise from stigmatism and outlines rules of the program. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Publication and Presentation Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Publication_and_Presentation_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Publication and Presentation Policy," detailing how to publish research conducted via the All of Us Program, including submitting any publications/research to PubMed, which is hosted by the National Library of Medicine.

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Subject:   Ethics and Data Management

Title: Policy on Ethical Conduct of Research

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Ethical_Principles_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Policy on Ethical Conduct of Research," which details the rules that the All of Us Research Program follows in regards to research. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: Data and Statistics Dissemination Policy

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2020/05/AoU_Policy_Data_and_Statistics_Dissemination_508.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "Data and Statistics Dissemination Policy," detailing that no participant-level data will be published or taken from the workbench by downloading or screenshotting. A definitive policy statement is included at the end.

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Subject:   Ethics and Data Management

Title: All of Us Research Program Research Priorities Workshop

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2019/02/March%202018%20Research%20Priorities%20Workshop%20_Meeting%20Summary_.pdf

Collection: All of Us Research Program web archive

Description: Session summary, titled "All of Us Research Program Research Priorities Workshop," that gives an overview of the discussions held at the workshop. An overview of the program, goals of the workshop, panels, and keynote presentations were recorded in the summaries.

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Subject:   General Sources

Title: Research Priorities Workshop

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2019/02/AoU%20Use%20Cases%20-%20508%20Compliant.pdf

Collection: All of Us Research Program web archive

Description: Case report, titled "Research Priorities Workshop," detailing 1110 use cases that are categorized by nine health conditions. Within these nine health conditions, the cases are further organized by seven themes.

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Subject:   Research Projects Using Collected Data

Title: Spotlights

URL: https://www.researchallofus.org/spotlight/

Collection: All of Us Research Program web archive

Description: Website, titled "Spotlights," that links out to articles related to the All of Us Research Program. The articles are tagged as "Participant Data in Action," "Survey Insights," or "Meet the Researchers."

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Subject:   Research Projects Using Collected Data

Title: Research Projects Directory – All of Us Research Hub

URL: https://www.researchallofus.org/research-projects-directory/

Collection: All of Us Research Program web archive

Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.

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Subject:   Research Projects Using Collected Data

Title: Research Hub Updates

URL: https://www.researchallofus.org/research-hub-updates/

Collection: All of Us Research Program web archive

Description: Website, titled "Research Hub Updates," that links out to various newsletters and articles about the Research Hub, including the "Research Roundup."

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Subject:   General Sources

Title: All of Us Publications

URL: https://www.researchallofus.org/publications/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Publications," that links out to publications that are related to or utilized the All of Us data.

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Subject:   Research Projects Using Collected Data

Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Frequently Asked Questions

URL: https://www.researchallofus.org/frequently-asked-questions/

Collection: All of Us Research Program web archive

Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.

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Subject:   General Sources

Title: COVID-19 Research Initiatives

URL: https://www.researchallofus.org/discover/covid-19-research-initiatives/

Collection: All of Us Research Program web archive

Description: Website, titled "COVID-19 Research Initiatives," spotlighting the All of Us Research Program's various research methods for COVID-19 including The COPE Survey, Electronic Health Record Data, COVID-19 Antibody study, and other support for COVID-19 research.

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Subject:   COVID-19

Title: Participant Surveys: The Basics

URL: https://www.researchallofus.org/data-tools/survey-explorer/the-basics-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: The Basics," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's basic information.

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Subject:   General Sources

Title: Participant Surveys: Personal Medical History

URL: https://www.researchallofus.org/data-tools/survey-explorer/personal-medical-history-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Personal Medical History," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's medical history.

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Subject:   General Sources

Title: Participant Surveys: Overall Health

URL: https://www.researchallofus.org/data-tools/survey-explorer/overall-health-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Overall Health," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's overall health and whether they view themselves as healthy individuals.

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Subject:   General Sources

Title: Participant Surveys: Lifestyle

URL: https://www.researchallofus.org/data-tools/survey-explorer/lifestyle-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Lifestyle," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's lifestyle including smoking habits and substance use.

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Subject:   General Sources

Title: Participant Surveys: Healthcare Access Utilization

URL: https://www.researchallofus.org/data-tools/survey-explorer/healthcare-access-utilization-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Healthcare Access Utilization ," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's healthcare decisions and how often they seek out healthcare professionals.

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Subject:   General Sources

Title: Participant Surveys: Family Medical History Survey

URL: https://www.researchallofus.org/data-tools/survey-explorer/family-medical-history-survey/

Collection: All of Us Research Program web archive

Description: Website, titled "Participant Surveys: Family Medical History Survey," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's family medical history.

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Subject:   General Sources

Title: COPE Survey - All of Us Research Hub

URL: https://www.researchallofus.org/data-tools/survey-explorer/cope-survey/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.

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Subject:   COVID-19

Title: Participant Surveys: The Basics

URL: https://www.researchallofus.org/data-tools/survey-explorer/

Collection: All of Us Research Program web archive

Description: Website, titled "Survey Explorer," that links out to seven All of Us surveys. These surveys include: The Basics, Lifestyle, Overall Health, Personal Medical History, Health Care Access & Utilization, Family Medical History, Covid-19 Participate Experience (COPE).

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Subject:   General Sources

Title: Data Methods

URL: https://www.researchallofus.org/data-tools/methods/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Methods," detailing the four different methodologies the All of Us Research Program uses to collect data. Links to other data protocols and methods are found at the bottom of the page.

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Subject:   General Sources

Title: Data Sources

URL: https://www.researchallofus.org/data-tools/data-sources/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Sources," detailing the various ways the All of Us Research Program collects data, including electronic health records, bio samples and bioassays, surveys, physical measurements, and wearables.

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Subject:   General Sources

Title: Data Access Tiers

URL: https://www.researchallofus.org/data-tools/data-access/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Access Tiers," that details the different accessibility options and lists data use policies for the research program.

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Subject:   Ethics and Data Management

Title: All of Us Research Hub

URL: https://www.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.

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Subject:   Research Projects Using Collected Data

Title: Marshfield Clinic Research Institute - All of Us Research Program

URL: https://www.marshfieldresearch.org/allofus

Collection: All of Us Research Program web archive

Description: Website, titled "Marshfield Clinic Research Institute: All of Us," dedicated to the All of Us partner in Wisconsin, Marshfield Clinic Research Institute. The site gives relevant information for individuals in Wisconsin wishing to join the All of Us program.

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Subject:   Participant Recruitment

Title: Wisconsin | Join All of Us

URL: https://www.joinallofus.org/wisconsin/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Wisconsin," detailing the All of Us Research Program in Wisconsin, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Who Can Join? | Join All of Us

URL: https://www.joinallofus.org/who-can-join/

Collection: All of Us Research Program web archive

Description: Website, titled "Who Can Join?" describing who can participate in the All of Us Research Program.

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Subject:   General Sources

Title: What Participants Share | Join All of Us

URL: https://www.joinallofus.org/what-participants-share/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Share," detailing instructions on getting started with the All of Us Research Program, what the program requires from participants, and what they can expect to receive once their samples have been processed.

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Subject:   General Sources

Title: Medicine and Your DNA | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/medicine-and-your-dna/

Collection: All of Us Research Program web archive

Description: Website, titled "Medicine and Your DNA, "listing all of the genes that the All of Us Research Program looks at to give results about how DNA may affect how bodies processes medicine.

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Subject:   General Sources

Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Collection: All of Us Research Program web archive

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: What Participants Receive | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Receive," describing what participants will learn from donating their data, including but not limited to information about ones DNA, monetary compensation, and other future benefits.

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Subject:   General Sources

Title: Waianae Coast Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/waianae/

Collection: All of Us Research Program web archive

Description: Website, titled "Waianae Coast Comprehensive Health Center," detailing the Waianae Coast Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Waianae Coast Comprehensive Health Center.

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Subject:   General Sources

Title: VCU Wright Center for Clinical and Translational Research | Join All of Us

URL: https://www.joinallofus.org/vcu-wright-center-for-clinical-and-translational-research/

Collection: All of Us Research Program web archive

Description: Website, titled "VCU Wright Center for Clinical and Translational Research," detailing the VCU Wright Center for Clinical and Translational Research, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the VCU Wright Center for Clinical and Translational Research.

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Subject:   General Sources

Title: U.S. Department of Veterans Affairs

URL: https://www.joinallofus.org/va/

Collection: All of Us Research Program web archive

Description: Website, titled "U.S. Department of Veterans Affairs," detailing the U.S. Department of Veterans Affairs, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the U.S. Department of Veterans Affairs.

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Subject:   General Sources

Title: University of Arizona and Banner Health | Join All of Us

URL: https://www.joinallofus.org/university-of-arizona-and-banner-health/

Collection: All of Us Research Program web archive

Description: Website, titled "University of Arizona and Banner Health," detailing University of Arizona and Banner Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via University of Arizona and Banner Health.

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Subject:   General Sources

Title: Trans America Consortium | Join All of Us

URL: https://www.joinallofus.org/trans-america-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Trans America Consortium," detailing the Trans American Consortium that includes health care systems in Idaho, Massachusetts, Michigan, Minnesota, North Dakota, Texas, and Wisconsin that are participating in the All of Us Research Program. Information on how to join and frequently asked questions are also located on the page.

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Subject:   General Sources

Title: All of Us Research Program LGBTQ+ Data Privacy and Security

URL: https://www.joinallofus.org/themes/custom/jaou/etc/pdfs/data_privacy_infographic.pdf

Collection: All of Us Research Program web archive

Description: Infographic, titled "All of Us Research Program LGBTQ+ Data Privacy and Security," detailing who will use data collected in the All of Us Research Program, privacy and security practices of the program, and the core values of the program.

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Subject:   Ethics and Data Management

Title: The University of Texas Health Science Center at Tyler | Join All of Us

URL: https://www.joinallofus.org/the-university-of-texas-health-science-center-at-tyler/

Collection: All of Us Research Program web archive

Description: Website, titled "The University of Texas at Tyler Health Science Center," detailing The University of Texas at Tyler Health Science Center, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via The University of Texas at Tyler Health Science Center.

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Subject:   General Sources

Title: The Participant Center | Join All of Us

URL: https://www.joinallofus.org/the-participant-center/

Collection: All of Us Research Program web archive

Description: Website, titled "The Participant Center," listing partners that the All of Us Research Program works with if participants are not able to access the program through a health care provider in their area.

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Subject:   General Sources

Title: Sun River Health | Join All of Us

URL: https://www.joinallofus.org/sun-river-health/

Collection: All of Us Research Program web archive

Description: Website, titled "Sun River Health," detailing Sun River Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Sun River Health.

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Subject:   General Sources

Title: Stanford University School of Medicine | Join All of Us

URL: https://www.joinallofus.org/stanford-university-school-of-medicine/

Collection: All of Us Research Program web archive

Description: Website, titled "Stanford University School of Medicine," detailing the Stanford University School of Medicine's partnership with the All of Us Research Program including how to join, frequently asked questions, and researcher resources.

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Subject:   General Sources

Title: Southern | Join All of Us

URL: https://www.joinallofus.org/southern/

Collection: All of Us Research Program web archive

Description: Website, titled "Southern All of Us Network," detailing the Southern All of Us Network that includes health care systems in Alabama, Louisiana, and Mississippi that are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Southeast | Join All of Us

URL: https://www.joinallofus.org/southeast/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us South East Enrollment Center," detailing the All of Us South East Enrollment Center that includes the University of Miami Miller School of Medicine, University of Florida College of Medicine, Emory University, and Morehouse School of Medicine which are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: San Ysidro Health | Join All of Us

URL: https://www.joinallofus.org/san-ysidro-health/

Collection: All of Us Research Program web archive

Description: Website, titled "San Ysidro Health," detailing San Ysidro Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via San Ysidro Health.

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Subject:   General Sources

Title: Pennsylvania | Join All of Us

URL: https://www.joinallofus.org/pennsylvania/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Pennsylvania," detailing the All of Us Research Program in Pennsylvania, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Newsletters | Join All of Us

URL: https://www.joinallofus.org/newsletters/

Collection: All of Us Research Program web archive

Description: Newsletters page from the official All of Us website that give updates to the project. Newsletters found on this site are organized by date of publication.

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Subject:   General Sources

Title: New York City Consortium | Join All of Us

URL: https://www.joinallofus.org/new-york-city-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "New York City Consortium," detailing the New York City Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the New York City Consortium.

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Subject:   General Sources

Title: New England | Join All of Us

URL: https://www.joinallofus.org/new-england/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us New England," detailing the All of Us Research Program in New England, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: National Baptist Convention, USA, Inc.

URL: https://www.joinallofus.org/nbcusa/

Collection: All of Us Research Program web archive

Description: Website, titled "National Baptist Convention, USA, Inc.," detailing the National Baptist Convention, USA, Inc.'s partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: National Alliance for Hispanic Health (Alliance) | Join All of Us

URL: https://www.joinallofus.org/national-alliance-for-hispanic-health-alliance/

Collection: All of Us Research Program web archive

Description: Website, titled "National Alliance for Hispanic Health (Alliance)," detailing the National Alliance for Hispanic Health (Alliance)'s partnership with the All of Us Research Program including how to join and frequently asked questions.

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Subject:   General Sources

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: Journey and Events | Join All of Us

URL: https://www.joinallofus.org/journey-and-events/

Collection: All of Us Research Program web archive

Description: Website, titled "Journey and Events," that links out to future and past event pages.

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Subject:   Engagement

Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Collection: All of Us Research Program web archive

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: FiftyForward | Join All of Us

URL: https://www.joinallofus.org/fiftyforward/

Collection: All of Us Research Program web archive

Description: Website, titled "FiftyForward," detailing the FiftyForward's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: All of Us Journey at Memphis Juneteenth Festival

URL: https://www.joinallofus.org/event/all-of-us-journey-at-memphis-juneteenth-festival/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Memphis Juneteenth Festival," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Knoxville Zoo

URL: https://www.joinallofus.org/event/all-of-us-journey-at-knoxville-zoo/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Knoxville Zoo," detailing the All of Us traveling exhibit's stop in Knoxville. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at El Mercadito de Memphis

URL: https://www.joinallofus.org/event/all-of-us-journey-at-el-mercadito-de-memphis/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at El Mercadito de Memphis," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Programa Cientifico

URL: https://www.joinallofus.org/es/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Programa Cientifico," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This is the Spanish version of the main page is where individuals sign up to join the program.

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Subject:   General Sources

Title: Eau Claire Cooperative Health Center | Join All of Us

URL: https://www.joinallofus.org/eau-claire-cooperative-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Cooperative Health," detailing Cooperative Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cooperative Health.

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Subject:   General Sources

Title: Delta Research and Educational Foundation (DREF) | Join All of Us

URL: https://www.joinallofus.org/delta-research-and-educational-foundation-dref/

Collection: All of Us Research Program web archive

Description: Website, titled "Delta Research and Educational Foundation (DREF)," detailing the DREF's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Coronavirus | Join All of Us

URL: https://www.joinallofus.org/coronavirus/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Covid-19 and All of Us," detailing what the program is doing in response to Covid-19 and what data will be collected in regards to Covid-19.

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Subject:   COVID-19

Title: Community Health Center, Inc. | Join All of Us

URL: https://www.joinallofus.org/community-health-center-inc/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Health Center, Inc.," detailing Community Health Center, Inc., their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Community Health Center, Inc.

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Subject:   General Sources

Title: Community Engagement Partners | Join All of Us

URL: https://www.joinallofus.org/community-engagement-partners/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Engagement Partners," listing organizations that tell their communities what the All of Us Research Program is and how to join.

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Subject:   General Sources

Title: Cherokee Health Systems | Join All of Us

URL: https://www.joinallofus.org/cherokee-health-systems/

Collection: All of Us Research Program web archive

Description: Website, titled "Cherokee Health Systems," detailing Cherokee Health Systems, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cherokee Health Systems.

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Subject:   General Sources

Title: Champions | Join All of Us

URL: https://www.joinallofus.org/champions/

Collection: All of Us Research Program web archive

Description: Website, titled "Champions," listing the All of Us champions who support the mission and goals of the All of Us Research Program by sharing information on the program with their communities to help raise awareness.

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Subject:   General Sources

Title: California | Join All of Us

URL: https://www.joinallofus.org/california/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us California," detailing the All of Us Research Program in California, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Asian Health Coalition | Join All of Us

URL: https://www.joinallofus.org/asian-health-coalition/

Collection: All of Us Research Program web archive

Description: Website, titled "Asian Health Coalition," detailing the Asian Health Coalition's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: All of Us Research Program Tribal Consultation Report Summary | Join All of Us

URL: https://www.joinallofus.org/all-of-us-research-program-tribal-consultation-report-summary/

Collection: All of Us Research Program web archive

Description: Website, "All of Us Research Program Tribal Consultation Report Summary," detailing Tribal Sovereignty and Research Participation, Cultural Sensitivity, Data Access, Representation, Privacy, Publications and Partnerships, and what members of Tribal Communities should do in order to participate in the program.

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Subject:   Engagement

Title: Activities | Join All of Us

URL: https://www.joinallofus.org/activities/

Collection: All of Us Research Program web archive

Description: Activities website for the All of Us Research Program that includes three different games titled "Hearing," "I Spy," and "Your Unique Combination." The hearing game has the player pick five different sounds and place them in order of lowest to highest decibels. The message of the game is that everyday sounds can cause hearing damage if they are over a certain decibel. The vision game has users select a character and pick out prescription glasses based on various factors. The combination game has the player pick different factors that impact their health and put them into a jar to create their own unique combination.

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Subject:   Engagement

Title: American Association on Health and Disability | Join All of Us

URL: https://www.joinallofus.org/aahd/

Collection: All of Us Research Program web archive

Description: Website, titled "American Association on Health and Disability," detailing the American Association on Health and Disability's partnership with the All of Us Research Program including testimonials, how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Home | Join All of Us

URL: https://www.joinallofus.org/

Collection: All of Us Research Program web archive

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Title: All of Us: Center for Health Information Partnerships: Feinberg School of Medicine: Northwestern University

URL: https://www.feinberg.northwestern.edu/sites/chip/our-projects/projects/all-of-us.html

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us: Center for Health Information Partnerships," that gives a brief explanation of the All of Us Project and Northwestern Medicine's involvement.

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Subject:   Engagement

Title: All of Us Program at the University of California San Diego

URL: https://www.facebook.com/allofusucsd/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at the University of California San Diego. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at the University of California.

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Subject:   Engagement

Title: All of Us at the University of Miami - Facebook

URL: https://www.facebook.com/AllofUsUM/?ref=page_internal/

Collection: All of Us Research Program web archive

Description: Official Facebook page of the All of Us Research Program at University of Miami. Posts on the page mainly revolve around events hosted by the partner and encouragements to join the program.

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Subject:   Engagement

Title: All of Us - MCHS - Facebook

URL: https://www.facebook.com/AllofUsMCHS/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at Marshfield Clinic Research Institute. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Marshfield Clinic Research Institute.

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Subject:   Engagement

Title: All of Us - Gundersen - Facebook

URL: https://www.facebook.com/AllofUsGundersen/

Collection: All of Us Research Program web archive

Description: Official Facebook group for the All of Us Program at Gundersen Health System. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Gundersen Health System.

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Subject:   Engagement

Title: News & Events - Banner Health

URL: https://www.allofusaz.org/news-events/

Collection: All of Us Research Program web archive

Description: Website, titled "News & Events - Banner Health," that is part of the broader All of Us Website from the partner at the University of Arizona. This site is dedicated to events and news surrounding the All of Us Program at the University of Arizona.

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Subject:   Research Projects Using Collected Data

Title: Represent LGBTQ+

URL: https://www.allofusaz.org/en/lgbtq/

Collection: All of Us Research Program web archive

Description: Website, titled "Represent LGBTQ+," detailing the All of Us Research Program and it's inclusivity with the LGBTQ+ community. The site hosts numerous testimonials, details why individuals should join, and how the project is different.

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Subject:   Engagement

Title: Banner Health | All of Us Research Program UArizona-Banner Health

URL: https://www.allofusaz.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Banner Health - All of Us Research Program," dedicated to the All of Us partner in Arizona, Banner Health at The University of Arizona. The site gives a brief overview of the All of Us Research Program and Banner Health's involvement. Locations of the All of Us program in Arizona and Colorado plus events are also present on the website. Information on how to get involve, stay involved, and what will be done with the research can be found.

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Subject:   Participant Recruitment

Title: Viruses & Vaccines

URL: https://virusinfo.joinallofus.org/

Collection: All of Us Research Program web archive

Description: Official All of Us Research Program website, titled "Viruses & Vaccines," detailing various viruses and vaccines. The page relates the biology of viruses and how to stop the spread of them.

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Subject:   COVID-19

Title: FAQ: Minority Student Research Symposium

URL: https://vepimg.b8cdn.com/uploads/vjfnew/6735/content/files/1642585851msrs-faq-1-pdf1642585851.pdf

Collection: All of Us Research Program web archive

Description: PDF, titled "FAQ: Minority Student Research Symposium," answering nineteen questions about the Minority Student Research Symposium.

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Subject:   General Sources

Title: The All of Us Research Program Webinar

URL: https://us02web.zoom.us/rec/play/AlKJQ5uwDpYEdEy4ZoI2J8aGPbDCfw2APX17mCvt6Xur0Ewansqe9blzJ6sOTbOFsQL72VBKMBpWQKF3.UBdgkjKrnhPVMKTa?continueMode=true&_x_zm_rtaid=PwdaHsMdS02D_hMBbaMyjQ.1642195816352.0f3fab3ec3feb1bf40e455f7405c8233&_x_zm_rhtaid=549/

Collection: All of Us Research Program web archive

Description: Video recording of the American Academy of HIV Medicine's All of Us Webinar from February 2021.

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Subject:   Engagement

Title: All of Us Program at the University of Miami

URL: https://twitter.com/allofusum/

Collection: All of Us Research Program web archive

Description: Official Twitter page for the All of Us Program at the University of Miami. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at the University of Miami.

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Subject:   Engagement

Title: All of Us Research Program Twitter

URL: https://twitter.com/AllofUsResearch/

Collection: All of Us Research Program web archive

Description: The official twitter for the All of Us Research Program that share information about the program, events taking place, and other health related information.

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Subject:   Engagement

Title: Marshfield Clinic Research Institute | Twitter

URL: https://twitter.com/AllofUsMCHS/

Collection: All of Us Research Program web archive

Description: Official Twitter page for the All of Us Program at Marshfield Clinic Research Institute. Posts from the page cover a variety of topics and includes information for events hosted by the All of Us Program at Marshfield Clinic Research Institute.

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Subject:   Engagement

Title: All of Us Research Program at Northwestern Medicine | The future of health begins with you

URL: https://sites.northwestern.edu/joinallofus/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program at Northwestern Medicine," of the All of Us partner in Illinois, Northwestern Medicine. The site includes information for individuals looking to join the All of Us program in Illinois. Locations, contact information, frequently asked questions, and how to join can be found on the website.

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Subject:   Participant Recruitment

Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: All of Us Pennsylvania

URL: https://joinallofuspa.org/

Collection: All of Us Research Program web archive

Description: The official All of Us Pennsylvania website. The website relays vital information for the All of Us Research Program in Pennsylvania, including locations, frequently asked questions, contact information, an overview of the program, and other promotional materials.

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Subject:   Participant Recruitment

Title: Go Angie | All of Us Research

URL: https://go.joinallofus.org/Angie/

Collection: All of Us Research Program web archive

Description: Website linking to the All of Us Research Program's app in the Google Play and Apple app stores.

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Subject:   Engagement

Title: All of Us Wisconsin | The future of health in Wisconsin begins with All of Us Badgers!

URL: https://allofus.wisc.edu/

Collection: All of Us Research Program web archive

Description: Website, titled " All of Us Research Program - Wisconsin: University of Wisconsin-Madison," of the Wisconsin partner for the All of Us Program. The website details how Wisconsinites can join, why they should join, and has other promotional materials.

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Subject:   Participant Recruitment

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