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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: 2019 n-CoV, MERS & SARS | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/2019-n-cov/

Collection: Global Health Events web archive

Description: Page providing a brief summary of the origin of the novel coronavirus (2019-nCoV), the efforts of the CDC and the NIAID to develop diagnostic tests for the disease, and the known symptoms.

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Title: A Study to Evaluate the Safety, Reactogenicity, and Effectiveness of mRNA-1273 Vaccine in Adolescents 12 to <18 Years Old to Prevent COVID-19 - Full Text View - ClinicalTrials.gov

URL: https://clinicaltrials.gov/ct2/show/NCT04649151/

Collection: Global Health Events web archive

Description: Website from U.S. National Library of Medicine, regarding clinical trials for vaccines in adolescents 12 to 18 years old to prevent COVID-19

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Title: ACTIV-6: COVID-19 Study of Repurposed Medications - ClinicalTrials.gov

URL: https://clinicaltrials.gov/ct2/show/NCT04885530

Collection: Global Health Events web archive

Description: Webpage from the U.S. National Library of Medicine for Clinicaltrials.gov, a resource providing patients, families, professionals, and researchers access to publicly shared clinical trials. This page provides information about a COVID-19 study of repurposed medications used to reduce symptoms for those with mild to moderate cases of COVID-19.

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Title: ALL OUR VOICES: Conversations about Health & Wellness | All of Us

URL: https://allofus.nnlm.gov/storycorps/

Collection: All of Us Research Program web archive

Description: Website, titled "ALL OUR VOICES: Conversations about Health & Wellness," detailing the partnership between NNLM and StoryCorps that was created to support awareness of the All of Us Research Program. A tool kit with related materials on the ALL OUR VOICES project is available.

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Subject:   Engagement

Title: Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/achieving-principles-through-precision-medicine-initiative-data-security-policy-framework/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Achieving the Principles through a Precision Medicine Initiative Data Security Policy Framework." The page details how the All of Us Research Program's security program, including the five principles the program utilizes to maintain security: Identify, Protect, Detect, Respond, and Recover.

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Subject:   Ethics and Data Management

Title: Alcohol and COVID-19 | National Institute on Alcohol Abuse and Alcoholism (NIAAA)

URL: https://www.niaaa.nih.gov/alcohol-and-covid-19/

Collection: Global Health Events web archive

Description: Website from National Institutes of Health National Institute on Alcohol Abuse and Alcoholism regarding alcohol and COVID-19, links to alcohol treatment and physical distancing, telehealth, blogs, for clinicians, funding opportunities, etc.

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Title: All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM, National Library of Medicine

URL: https://nnlm.gov/civicrm-event/479/

Collection: All of Us Research Program web archive

Description: Event site, titled "All Our Voices: Conversations About Health & Wellness in Your Library with StoryCorps and NNLM," that provides details for a webinar class to help individuals learn about the ALL OUR VOICES tool kit. Contacts, details, and a brief overview on the ALL OUR VOICES program are readily available.

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Subject:   Engagement

Title: All of Us

URL: https://www.nnlm.gov/initiatives/all-of-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us," from the National Library of Medicine initiatives website. This page gives a brief overview of the All of Us Research Program and links to resources about the program.

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Subject:   General Sources

Title: All of Us Awardees: Media Contacts

URL: https://allofus.nih.gov/news-events/press-kit/all-us-awardees-media-contacts/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Awardees: Media Contacts," that lists organizations associated with the All of Us Research Program as well as contact information.

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Subject:   General Sources

Title: All of Us Data Browser

URL: https://databrowser.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "Data browser," that is part of the All of Us Research Program Hub. The Data browser allows for individuals to view publicly available data collected by the All of Us Research Program. Data collected is broken down into different subjects.

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Subject:   Ethics and Data Management

Title: All of Us Journey at El Mercadito de Memphis

URL: https://www.joinallofus.org/event/all-of-us-journey-at-el-mercadito-de-memphis/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at El Mercadito de Memphis," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Knoxville Zoo

URL: https://www.joinallofus.org/event/all-of-us-journey-at-knoxville-zoo/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Knoxville Zoo," detailing the All of Us traveling exhibit's stop in Knoxville. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Journey at Memphis Juneteenth Festival

URL: https://www.joinallofus.org/event/all-of-us-journey-at-memphis-juneteenth-festival/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Journey at Memphis Juneteenth Festival," detailing the All of Us traveling exhibit's stop in Memphis. General information, such as dates, times, and guidelines is present on the page.

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Subject:   Participant Recruitment

Title: All of Us Nursing Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-nursing-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Nursing Resources," from the All of Us Research Program that provides resources, such as pamphlets and brochures, for nurses and other medical providers to learn about the program.

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Subject:   Engagement

Title: All of Us Physician Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/all-us-provider-resources/all-us-physician-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Physician Resources," from the All of Us Research Program that provides printable resources, such as business cards and note pads, for physicians. Links to other resources can be found on the page.

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Subject:   Engagement

Title: All of Us Research Hub

URL: https://www.researchallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Hub," that stores the genetic research data from the All of Us program. The website includes data snapshot and news spotlights of the program. Researchers are able to utilize data found on the website after registering and research findings are available to everyone via the website's publications page. Other main components to the website are the Survey Explorer, the Data browser, and the Researcher Workbench.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program Backgrounder

URL: https://allofus.nih.gov/news-events/press-kit/all-us-research-program-backgrounder/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Research Program Backgrounder," hosted by the National Institutes of Health answering many frequently asked questions about the All of Us Research Program as well as giving some background information on the initiative.

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Subject:   General Sources

Title: All of Us Research Program Overview

URL: https://allofus.nih.gov/about/program-overview

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program Overview," detailing the All of Us Research Program at a glance and explaining what precision medicine is.

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Subject:   General Sources

Title: All of Us Research Program Tribal Consultation Report Summary | Join All of Us

URL: https://www.joinallofus.org/all-of-us-research-program-tribal-consultation-report-summary/

Collection: All of Us Research Program web archive

Description: Website, "All of Us Research Program Tribal Consultation Report Summary," detailing Tribal Sovereignty and Research Participation, Cultural Sensitivity, Data Access, Representation, Privacy, Publications and Partnerships, and what members of Tribal Communities should do in order to participate in the program.

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Subject:   Engagement

Title: All of Us Research Program | National Institutes of Health (NIH)

URL: https://allofus.nih.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "National Institute of Health All of Us Research Program," of the National Institute of Health's informational page on All of Us and their link to the main All of Us research page.

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Subject:   General Sources

Title: All of Us Sharable Resources

URL: https://allofus.nih.gov/news-and-events/sharable-resources/

Collection: All of Us Research Program web archive

Description: Webpage, titled "All of Us Sharable Resources," from the All of Us Research Program that houses free materials for the project. The majority of materials are for promotional purposes, such as images for Social media, fact sheets, and brochures. Most are available in English and Spanish with some other languages being represented as well.

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Subject:   Engagement

Title: All of Us Tribal Leader and Urban Indian Organization Letter

URL: https://allofus.nih.gov/about/diversity-and-inclusion/tribal-engagement/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Tribal Engagement," detailing the All of Us Research Program's collaboration with Tribal Nations including information on tribal consultation, key milestones, and funding opportunities.

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Subject:   Engagement

Title: Alzheimer's Disease Education and Referral Center: Treatment

URL: http://www.nia.nih.gov/alzheimers/topics/treatment/

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: This page from ADEAR (an NIH component) delves into various treatment and medication options, and includes numerous resources and fact sheets for referral.

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Title: American Association on Health and Disability | Join All of Us

URL: https://www.joinallofus.org/aahd/

Collection: All of Us Research Program web archive

Description: Website, titled "American Association on Health and Disability," detailing the American Association on Health and Disability's partnership with the All of Us Research Program including testimonials, how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study

URL: https://allofus.nih.gov/about/diversity-and-inclusion/tribal-engagement/american-indian-and-alaska-native-aian-inclusion-all-us-research-program-covid-19-serology-study/

Collection: All of Us Research Program web archive

Description: Website, "American Indian and Alaska Native (AI/AN) Inclusion in the All of Us Research Program COVID-19 Serology Study," detailing the All of Us Research Program's consultation with tribal leaders about including existing AI/AN participant samples in a COVID-19 Serology Study looking for SARS-CoV-2 antibodies. Responding to tribal concerns, All of Us has decided not to include these samples and will continue focusing on finalizing consultation about the main program.

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Subject:   COVID-19

Title: Asian Health Coalition | Join All of Us

URL: https://www.joinallofus.org/asian-health-coalition/

Collection: All of Us Research Program web archive

Description: Website, titled "Asian Health Coalition," detailing the Asian Health Coalition's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research

URL: https://allofus.nih.gov/news-events/voices-all-us/survival-resilience-power-mentorship-research/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research," that includes an interview/overview of Atiya Shahid, a Minority Student Research Symposium Scholar. The interview mentions Shahid's life story, her research, and her experiences with the All of Us Research Program.

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Subject:   General Sources

Title: Biobank

URL: https://allofus.nih.gov/funding-and-program-partners/biobank/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Biobank," hosted by the National Institutes of Health detailing what a biobank is and who provides the biobank for the All of Us Research Program.

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Subject:   General Sources

Title: Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler

URL: https://allofus.nih.gov/news-events/voices-all-us/building-bridges-better-health-joyce-ann-bell-winkler/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler," that includes an interview/ overview of Joyce Ann Bell Winkler, a participant ambassador for the All of Us Research Program. The interview details Winkler's personal experiences, including her childhood, and her experience with the All of Us Research Program. Her testimony details what the program is like and why others should join the program.

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Subject:   General Sources

Title: COPE Survey - All of Us Research Hub

URL: https://www.researchallofus.org/data-tools/survey-explorer/cope-survey/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participants Surveys: COPE," with questions from a survey relating to Covid-19 and how it has affected participant's lives.

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Subject:   COVID-19

Title: COVID-19 Research Initiatives

URL: https://www.researchallofus.org/discover/covid-19-research-initiatives/

Collection: All of Us Research Program web archive

Description: Website, titled "COVID-19 Research Initiatives," spotlighting the All of Us Research Program's various research methods for COVID-19 including The COPE Survey, Electronic Health Record Data, COVID-19 Antibody study, and other support for COVID-19 research.

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Subject:   COVID-19

Title: COVID-19 Research in NIAID Labs | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/covid-19-research-niaid-labs/

Collection: Global Health Events web archive

Description: A web page titled, "COVID-19 Research in NIAID Labs" published by the National Institute of Allergy and Infectious Diseases (NIAID) which identifies the laboratories where the majority of the ongoing coronavirus research at NIAID occurs. The page also lists the research staff working at each lab.

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Title: COVID-19 Resources | National Institute on Drug Abuse (NIDA)

URL: https://www.drugabuse.gov/related-topics/covid-19-resources/

Collection: Global Health Events web archive

Description: Website of COVID-19 resources for the National Institute on Drug Abuse, with blog posts, news updates, and other resources.

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Title: COVID-19 Response | NIH 3D Print Exchange

URL: https://3dprint.nih.gov/collections/covid-19-response/

Collection: Global Health Events web archive

Description: This collection of designs was created to support the manufacturing of personal protective equipment (PPE) or other necessary medical devices that are in short supply due to the COVID-19 outbreak. While many can be printed with a 3D printer at home or a local Maker space, the National Institutes of Health, Food and Drug Administration, Veterans Administration, America Makes (in collaboration with NIH), and the contributing creators cannot ensure the quality, safety, and efficacy of these designs when manufactured without proper quality controls and processes.

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Title: COVID-19 Social Media Resources | National Institutes of Health (NIH)

URL: https://www.nih.gov/news-events/covid-19-social-media-resources/

Collection: Global Health Events web archive

Description: The National Institute of Health's web page of COVID-19 social media resources, with resources on a variety of related topics from both Twitter and Facebook.

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Title: COVID-19 and "Alternative" Treatments | NCCIH

URL: https://www.nccih.nih.gov/health/covid-19-and-alternative-treatments-what-you-need-to-know

Collection: Global Health Events web archive

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Title: COVID-19 | National Institute of Biomedical Imaging and Bioengineering

URL: https://www.nibib.nih.gov/covid-19/

Collection: Global Health Events web archive

Description: Website created by the National Institute of Biomedical Imaging and Bioengineering (NIBIB), part of the National Institutes of Health. The page provides resources related to NIBIB's mission to "accelerate research, translation, and commercialization of technologies that will provide solutions to the COVID-19 pandemic".

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Title: COVID-19, MERS & SARS | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/covid-19/

Collection: Global Health Events web archive

Description: Page on the National Institute of Allergy and Infectious Diseases (NIAID) website dedicated to information on the "COVID-19, MERS & SARS."

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Title: California | Join All of Us

URL: https://www.joinallofus.org/california/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us California," detailing the All of Us Research Program in California, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Champions | Join All of Us

URL: https://www.joinallofus.org/champions/

Collection: All of Us Research Program web archive

Description: Website, titled "Champions," listing the All of Us champions who support the mission and goals of the All of Us Research Program by sharing information on the program with their communities to help raise awareness.

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Subject:   General Sources

Title: Cherokee Health Systems | Join All of Us

URL: https://www.joinallofus.org/cherokee-health-systems/

Collection: All of Us Research Program web archive

Description: Website, titled "Cherokee Health Systems," detailing Cherokee Health Systems, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cherokee Health Systems.

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Subject:   General Sources

Title: Communications and Engagement Partners | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/funding-and-program-partners/communications-and-engagement-partners

Collection: All of Us Research Program web archive

Description: Website, titled "Communications and Engagement Partners," from the National Institutes of Health listing all of the partners in the All of Us program and along with funding information.

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Subject:   Participant Recruitment

Title: Community Engagement Partners | Join All of Us

URL: https://www.joinallofus.org/community-engagement-partners/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Engagement Partners," listing organizations that tell their communities what the All of Us Research Program is and how to join.

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Subject:   General Sources

Title: Community Health Center, Inc. | Join All of Us

URL: https://www.joinallofus.org/community-health-center-inc/

Collection: All of Us Research Program web archive

Description: Website, titled "Community Health Center, Inc.," detailing Community Health Center, Inc., their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Community Health Center, Inc.

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Subject:   General Sources

Title: Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark

URL: https://allofus.nih.gov/news-events/voices-all-us/connecting-social-environment-health-outcomes-to-pinpoint-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark," that includes an interview/ overview of Cheryl R. Clark, a researcher for the All of Us Research Program. The interview mentions Clark's personal experiences, her work with the All of Us Research Program, and how the two intersect.

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Subject:   General Sources

Title: Coronavirus Disease 2019 (COVID-19): Information for NIH Applicants and Recipients of NIH Funding | grants.nih.gov

URL: https://grants.nih.gov/policy/natural-disasters/corona-virus.htm

Collection: Global Health Events web archive

Description: Report from the National Institutes of Health (NIH) titled, "Coronavirus Disease 2019 (COVID-19): Information for NIH Applicants and Recipients of NIH Funding." The NIH is providing information and guidance for the grant funding recipients to help the continuation of research and facilitate grant funding.

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Title: Coronavirus Resources for Researchers | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/coronavirus-resources/

Collection: Global Health Events web archive

Description: A web page titled, "Coronavirus Resources for Researchers" published by the National Institute of Allergy and Infectious Diseases (NIAID). The NIAID provides resources for different stages of study including basic research, preclinical services, and clinical networks.

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Title: Coronavirus news and resources for global health researchers - 2019-nCoV, MERS-CoV, SARS-CoV - Fogarty International Center @ NIH

URL: https://www.fic.nih.gov/ResearchTopics/Pages/infectiousdiseases-coronavirus-cov.aspx

Collection: Global Health Events web archive

Description: Page on the Fogarty International Center website dedicated to Coronavirus news and resources for global health researchers.

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Title: Coronavirus | Join All of Us

URL: https://www.joinallofus.org/coronavirus/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Covid-19 and All of Us," detailing what the program is doing in response to Covid-19 and what data will be collected in regards to Covid-19.

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Subject:   COVID-19

Title: Coronavirus | National Institutes of Health (NIH)

URL: https://www.nih.gov/health-information/coronavirus/

Collection: Global Health Events web archive

Description: Page on the National Institutes of Health (NIH) website dedicated to information and NIH resources on the coronavirus (COVID-19).

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Title: Coronaviruses | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/coronaviruses/

Collection: Global Health Events web archive

Description: Website from the National Institute of Allergy and Infectious Diseases (NIAID) providing information about coronaviruses with many links to news and resources specifically related to COVID-19.

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Title: COVID-19

URL: https://tools.niehs.nih.gov/wetp/covid19worker/

Collection: Global Health Events web archive

Description: A web page curated by the National Institute of Environmental Health Sciences (NIEHS) which provides "health and safety resources for workers who may be at risk of exposure to COVID-19."

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Title: Data Methods

URL: https://www.researchallofus.org/data-tools/methods/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Methods," detailing the four different methodologies the All of Us Research Program uses to collect data. Links to other data protocols and methods are found at the bottom of the page.

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Subject:   General Sources

Title: Data Security Policy Principles

URL: https://allofus.nih.gov/protecting-data-and-privacy/precision-medicine-initiative-data-security-policy-principles-and-framework-overview/data-security-policy-principles/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "Data Security Policy Principles."

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Subject:   Ethics and Data Management

Title: Data Sources

URL: https://www.researchallofus.org/data-tools/data-sources/

Collection: All of Us Research Program web archive

Description: Website, titled "Data Sources," detailing the various ways the All of Us Research Program collects data, including electronic health records, bio samples and bioassays, surveys, physical measurements, and wearables.

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Subject:   General Sources

Title: Data and Research Center

URL: https://allofus.nih.gov/funding-and-program-partners/data-and-research-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Data and Research Center," hosted by the National Institutes of Health detailing what the data and research center is and who hosts the data and research center for the All of Us Research Program.

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Subject:   General Sources

Title: Database search results of the All of Us Research Program

URL: https://reporter.nih.gov/search/241kAtaCN06DT7hoxibUOw/projects/

Collection: All of Us Research Program web archive

Description: Database for the National Institute of Health's research project called RePORTER. Search results of the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Delta Research and Educational Foundation (DREF) | Join All of Us

URL: https://www.joinallofus.org/delta-research-and-educational-foundation-dref/

Collection: All of Us Research Program web archive

Description: Website, titled "Delta Research and Educational Foundation (DREF)," detailing the DREF's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Digital Health Literacy | All of Us

URL: https://allofus.nnlm.gov/digital-health-literacy/

Collection: All of Us Research Program web archive

Description: Website, titled "Digital Health Literacy," detailing what digital health literacy is and provides resources to learn about digital health and why it is important.

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Subject:   Engagement

Title: Dr. Anthony Fauci in the News

URL: https://www.niaid.nih.gov/news-events/director-in-the-news/

Collection: Global Health Events web archive

Description: Website of news resources with Dr. Anthony Fauci, the current director of the National Institute of Allergies and Infectious Diseases since 1984. Resources include web articles, videos, audio recordings, and more.

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Title: Eau Claire Cooperative Health Center | Join All of Us

URL: https://www.joinallofus.org/eau-claire-cooperative-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Cooperative Health," detailing Cooperative Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cooperative Health.

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Subject:   General Sources

Title: Ebola Outbreak 2014: Information Resources

URL: http://sis.nlm.nih.gov/dimrc/ebola_2014.html

Collection: Global Health Events web archive

Description: Page titled, "Ebola Outbreak 2014: Information Resources," on the US Department of Health and Human Services (HHS) Disaster Information Management Research Center website. The page features resources on the disease and the outbreak.

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Title: Ebola/Marburg Research

URL: http://www.niaid.nih.gov/topics/ebolamarburg/research/

Collection: Global Health Events web archive

Description: Page on the National Institute of Allergy and Infectious Diseases (NIAID) website dedicated to Ebola and Marburg. The page focuses on answering why studying the two viruses are priorities for NIAID and how the organization is addressing the topic. It also provides short summaries on the status of vaccine development, diagnostics, treatment, long-term health effects, featured research and the latest news.

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Title: Ebola/Marburg

URL: http://www.niaid.nih.gov/topics/ebolamarburg/

Collection: Global Health Events web archive

Description: Page titled, "Ebola/Marburg," on the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases (NIAID) website. The page provides basic information on Ebola as well as relevant research and news stories.

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Title: Engagement Resources Library | All of Us

URL: https://allofus.nnlm.gov/engagement-resources/

Collection: All of Us Research Program web archive

Description: Website, titled "Engagement Resource Library," that provides resources from NLM, NNLM, and All of Us that can be used by sub awardees and partner libraries to engage with their communities about digital literacy, health literacy, and the NIH All of Us Research Program.

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Subject:   Engagement

Title: Ethical, Legal and Social Implications Research Program

URL: https://www.genome.gov/Funded-Programs-Projects/ELSI-Research-Program-ethical-legal-social-implications/

Collection: Bioethics web archive

Description: Page on the National Human Genome Research Institute website dedicated to the Ethical, Legal and Social Implications (ESLI) Research Program. The ESLI Research Program was established as an integral part of the Human Genome Project (HGP) to foster basic and applied research on the ethical, legal, and social implications of genetic and genomic research.

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Title: FiftyForward | Join All of Us

URL: https://www.joinallofus.org/fiftyforward/

Collection: All of Us Research Program web archive

Description: Website, titled "FiftyForward," detailing the FiftyForward's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Frequently Asked Questions

URL: https://www.researchallofus.org/frequently-asked-questions/

Collection: All of Us Research Program web archive

Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.

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Subject:   General Sources

Title: Funding Opportunities

URL: https://allofus.nih.gov/funding-and-program-partners/funding-opportunities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Funding Opportunities," hosted by the National Institutes of Health that lists current and previous funding opportunities for researchers in the All of Us Research Program.

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Subject:   General Sources

Title: Genomics Partners

URL: https://allofus.nih.gov/funding-and-program-partners/genomics-partners/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics Partners," hosted by the National Institutes of Health detailing what the genome centers will accomplish in the All of Us Research Program and listing the organizations that act as the genomic partners for the program.

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Subject:   General Sources

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: Genomics: A Revolution in Health and Disease Discovery | All of Us

URL: https://allofus.nnlm.gov/genomics-book-reading-club-kit/

Collection: All of Us Research Program web archive

Description: Website, titled "Genomics: A Revolution in Health and Disease Discovery," detailing one a ready-to-use reading club kit curated by the Network of the National Library of Medicine. The kit contains materials related to "Genomics: A Revolution in Health and Disease Discovery," including a recorded talk with the authors. Additional films and resources are present on the page.

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Subject:   Engagement

Title: Go Angie | All of Us Research

URL: https://go.joinallofus.org/Angie/

Collection: All of Us Research Program web archive

Description: Website linking to the All of Us Research Program's app in the Google Play and Apple app stores.

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Subject:   Engagement

Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Collection: All of Us Research Program web archive

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: HEAL Initiative | National Institutes of Health (NIH)

URL: http://www.nih.gov/heal-initiative/

Collection: Opioid Epidemic web archive

Description: Page on the National Institutes of Health (NIH) Website dedicated to the Helping to End Addiction Long-Term (HEAL) Initiative. HEAL is an aggressive trans-agency effort launched in April 2018 to speed scientific solutions to help curb the opioid crisis using well-establish NIH research and working with public and private organizations. The site includes links to resources, past events, and news and announcements.

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Title: HIV/AIDS Clinical Trials | AIDSinfo

URL: http://aidsinfo.nih.gov/clinical-trials/

Collection: HIV/AIDS web archive

Description: Page on the AIDsInfo Website that connects patients with clinical trials in multiple areas of HIV/AIDS research.

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Title: HIVinfo | Information on HIV/AIDS Treatment, Prevention and Research | NIH

URL: https://hivinfo.nih.gov/

Collection: HIV/AIDS web archive

Description: Website from the NIH providing "an online resource offering up-to-date HIV/AIDS information to the general consumer, people with HIV/AIDS, people recently diagnosed and those who care for them."

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Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Health Effects from the Collapse of the World Trade Center | NLM

URL: https://disasterinfo.nlm.nih.gov/wtc-hazards/

Collection: September 11: Health Effects and Policy web archive

Description: Web page, titled "Health Effects from the Collapse of the World Trade Center," prepared by the Disaster Information Management Research Center. The site contains links to federal disaster studies, health reports, health program sites, environmental analyses, bibliographies, and other resources.

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Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Collection: All of Us Research Program web archive

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: Home - Genetic and Rare Diseases Information Center

URL: https://rarediseases.info.nih.gov/

Collection: Rare Diseases web archive

Description: Website from Genetic and Rare Diseases Information Center (GARD) through the National Center for Advancing Translation Sciences. GARD is a database for rare diseases where you can browse by disease. There are also links to routine data updates and collaborative data.

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Title: Home - WhenToTest

URL: https://whentotest.org/about/

Collection: Global Health Events web archive

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Title: Home - You and Me Healthy

URL: https://youandmehealthy.org/

Collection: Global Health Events web archive

Description: Website from You and Me Healthy that is coordinated by the Duke Clinical Research Institute. You and Me Healthy is a community from across the US who aim to address health concerns, including COVID-19 and MPOX. The group provides informational resources and conduts a survey to further their research.

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Title: Home | NICHD - Eunice Kennedy Shriver National Institute of Child Health and Human Development

URL: https://www.nichd.nih.gov/ncmhep/

Collection: Women's Health web archive

Description: Website from Eunice Kennedy Shriver National Institute of Child Health and Human Development regarding National Child and Maternal Health Education Program.

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Title: Home | NIH COVID-19 Research

URL: https://covid19.nih.gov/

Collection: Global Health Events web archive

Description: Website from National Institutes of Health regarding finding effective treatments for SARS-CoV-2 variants

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Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Human Genetics Film Kits | All of Us

URL: https://allofus.nnlm.gov/human-genetics-film-kits/

Collection: All of Us Research Program web archive

Description: Website, titled "Human Genetics Film Kits," detailing the film kits curated by the Network of the National Library of Medicine and their contents. The film kits are designed to support public libraries in raising scientific literacy and awareness of precision medicine. Through attending screenings of the films and participating in related discussions, library patrons will learn about human genetics and the advance of precision medicine.

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Subject:   Engagement

Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: In Their Own Words

URL: https://history.nih.gov/NIHInOwnWords/

Collection: HIV/AIDS web archive

Description: Website for the National Institute of Health (NIH) project, In Their Own Words. The site features a compilation of NIH Researchers' recollections on the early years of AIDS.

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Title: In the News: Coronavirus and Alternative Treatments | NCCIH

URL: https://www.nccih.nih.gov/health/in-the-news-coronavirus-and-alternative-treatments/

Collection: Global Health Events web archive

Description: "In the News: Coronavirus and 'Alternative' Treatments" warning against untested, unproven, or dangerous "treatments" for COVID-19

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Title: Information for Educators on Novel Coronavirus | Science Education Partnership Award

URL: https://nihsepa.org/news/information-for-educators-on-novel-coronavirus/

Collection: Global Health Events web archive

Description: Website from the Science Education and Partnership Award, supported by the National Institute of Health, of information and resources for educators on coronavirus.

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Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Interagency Pain Research Coordinating Committee

URL: http://iprcc.nih.gov/

Collection: Opioid Epidemic web archive

Description: Website for the National Institutes of Health (NIH) Interagency Pain Research Coordinating Committee (IPRCC). It includes the latest news and links to the 2018 NIH Pain Consortium Symposium registration page. The IPRCC is a federal advisory committee created to enhance pain research efforts and promote collaboration across the government.

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Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: Learn Internet Skills | All of Us

URL: https://allofus.nnlm.gov/learn-internet-skills/

Collection: All of Us Research Program web archive

Description: Website, titled "Learn Internet Skills," from the All of Us Research Program's main website that teaches individuals how to use the internet safely.

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Subject:   Engagement

Title: Long COVID and Multisystem Inflammatory Syndrome in Children (MIS-C) | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/long-covid-multisystem-inflammatory-syndrome-children-misc

Collection: Global Health Events web archive

Description: Website from National Institute of Allergy and Infectious Diseases regarding long COVID and Multisystem Inflammatory Syndrome in children

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Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

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