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National Library of Medicine

Archive-It Partner Since: Mar, 2009

Organization Type: National Institutions

Organization URL: http://www.nlm.nih.gov/   

Description:

The National Library of Medicine (NLM), the world's largest medical library and a component of the National Institutes of Health, collects, preserves, and makes available to the public information about health, medicine, and the biomedical sciences. To continue fulfilling this mission, NLM is collecting and archiving related Web content, which also serves to document the histories of health and medicine. For questions about our web archiving program contact us at nlmwebcollecting@nlm.nih.gov.

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Title: infoSIDA | Información sobre el tratamiento y los ensayos clínicos del VIH/SIDA

URL: https://infosida.nih.gov/

Collection: HIV/AIDS web archive

Description: Website for information on HIV sponsored by the National Institute of Health (NIH) in Spanish.

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Title: Zika virus infection | Disease | Treatment | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program

URL: https://rarediseases.info.nih.gov/gard/12894/zika-virus-infection/resources/8

Collection: Global Health Events web archive

Description: Page on the National Institutes of Health (NIH) Genetic and Rare Diseases Information Center website dedicated to the Zika virus infection. The page features audio recordings.

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Title: Zika virus infection | Disease | Overview | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program

URL: https://rarediseases.info.nih.gov/gard/12894/zika-virus-infection/resources/1

Collection: Global Health Events web archive

Description: Page on the National Institutes of Health (NIH) Genetic and Rare Diseases Information Center website dedicated to the Zika virus infection. The page includes audio recordings.

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Title: Zika Virus Health Information Resources

URL: https://disasterinfo.nlm.nih.gov/dimrc/zikavirus.html

Collection: Global Health Events web archive

Description: Page on the US Department of Health and Human Services (HHS) Disaster Information Management Research Center website featuring a list of resources on the Zika virus.

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Title: Wisconsin | Join All of Us

URL: https://www.joinallofus.org/wisconsin/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Wisconsin," detailing the All of Us Research Program in Wisconsin, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Who Can Join? | Join All of Us

URL: https://www.joinallofus.org/who-can-join/

Collection: All of Us Research Program web archive

Description: Website, titled "Who Can Join?" describing who can participate in the All of Us Research Program.

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Subject:   General Sources

Title: What is Alzheimer's?

URL: http://nihseniorhealth.gov/alzheimersdisease/whatisalzheimersdisease/01.html

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: Web resource from the National Institutes of Health Senior Health Center that describes Alzheimer's, its causes and prevention, treatment and diagnosis, and other aspects of the disease.

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Title: What Participants Share | Join All of Us

URL: https://www.joinallofus.org/what-participants-share/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Share," detailing instructions on getting started with the All of Us Research Program, what the program requires from participants, and what they can expect to receive once their samples have been processed.

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Subject:   General Sources

Title: What Participants Receive | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/

Collection: All of Us Research Program web archive

Description: Website, titled "What Participants Receive," describing what participants will learn from donating their data, including but not limited to information about ones DNA, monetary compensation, and other future benefits.

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Subject:   General Sources

Title: What Are Genome Editing and CRISPR-Cas9?

URL: https://ghr.nlm.nih.gov/primer/genomicresearch/genomeediting/

Collection: Bioethics web archive

Description: Page on the Genetics Home Reference website maintained by the National Library of Medicine (NLM) dedicated to genome editing and CRISPR-Cas9.

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Title: Waianae Coast Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/waianae/

Collection: All of Us Research Program web archive

Description: Website, titled "Waianae Coast Comprehensive Health Center," detailing the Waianae Coast Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Waianae Coast Comprehensive Health Center.

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Subject:   General Sources

Title: Virtual Health Programs | All of Us

URL: https://allofus.nnlm.gov/vhp/

Collection: All of Us Research Program web archive

Description: Website, titled "Virtual Health Programs," that lists upcoming and previous virtual events organized by NNLM. These events are created and distributed to inform individuals about health information.

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Subject:   Engagement

Title: VCU Wright Center for Clinical and Translational Research | Join All of Us

URL: https://www.joinallofus.org/vcu-wright-center-for-clinical-and-translational-research/

Collection: All of Us Research Program web archive

Description: Website, titled "VCU Wright Center for Clinical and Translational Research," detailing the VCU Wright Center for Clinical and Translational Research, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the VCU Wright Center for Clinical and Translational Research.

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Subject:   General Sources

Title: University of Arizona and Banner Health | Join All of Us

URL: https://www.joinallofus.org/university-of-arizona-and-banner-health/

Collection: All of Us Research Program web archive

Description: Website, titled "University of Arizona and Banner Health," detailing University of Arizona and Banner Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via University of Arizona and Banner Health.

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Subject:   General Sources

Title: Understanding Ebola/Marburg

URL: http://www.niaid.nih.gov/topics/ebolamarburg/understanding/

Collection: Global Health Events web archive

Description: Page on the National Institute of Allergy and Infectious Diseases (NIAID) website dedicated to Ebola and Marburg. The page links to pages providing more information on the virus, including an overview, causes of disease, how it is transmitted, symptoms, diagnosis, and treatment and prevention.

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Title: Understanding Ebola and Marburg | NIH: National Institute of Allergy and Infectious Diseases

URL: http://www.niaid.nih.gov/topics/ebolaMarburg/understandingEbola/

Collection: Global Health Events web archive

Description: Page on the National Institute of Allergy and Infectious Diseases (NIAID) website dedicated to Ebola and Marburg. The page links to pages providing more information on the virus, including an overview, causes of disease, how it is transmitted, symptoms, diagnosis, and treatment and prevention.

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Title: U.S. Department of Veterans Affairs

URL: https://www.joinallofus.org/va/

Collection: All of Us Research Program web archive

Description: Website, titled "U.S. Department of Veterans Affairs," detailing the U.S. Department of Veterans Affairs, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the U.S. Department of Veterans Affairs.

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Subject:   General Sources

Title: Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel

URL: https://allofus.nih.gov/about/who-we-are/all-us-research-program-advisory-panel/tribal-collaboration-working-group/

Collection: All of Us Research Program web archive

Description: Website, titled "Tribal Collaboration Working Group of the All of Us Research Program Advisory Panel," detailing the purpose of the Tribal Collaboration Working Group, its deliverables, and roster.

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Subject:   Engagement

Title: Trans America Consortium | Join All of Us

URL: https://www.joinallofus.org/trans-america-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Trans America Consortium," detailing the Trans American Consortium that includes health care systems in Idaho, Massachusetts, Michigan, Minnesota, North Dakota, Texas, and Wisconsin that are participating in the All of Us Research Program. Information on how to join and frequently asked questions are also located on the page.

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Subject:   General Sources

Title: Thirst for Knowledge and Data Drives Army Veteran to All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/thirst-knowledge-and-data-drives-army-veteran-all-us/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Thirst for Knowledge and Data Drives Army Veteran to All of Us," that includes an interview/ overview of Keisha Bellamy, a nurse for the All of Us Research Program and a veteran. The interview mentions Bellamy's life story, her experiences in the military, and her involvement in the All of Us research Program.

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Subject:   General Sources

Title: Therapeutics for Rare and Neglected Diseases (TRND) | National Center for Advancing Translational Sciences

URL: https://ncats.nih.gov/trnd

Collection: Rare Diseases web archive

Description: Website from National Center for Advancing Translational Sciences (NCATS) which is part of the U.S. Department of Health and Human Services through the National Institutes of Health. The mission of NCATS is to transform he translational process so that the new treatments and cures for disease can be delivered to patients faster.

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Title: The University of Texas Health Science Center at Tyler | Join All of Us

URL: https://www.joinallofus.org/the-university-of-texas-health-science-center-at-tyler/

Collection: All of Us Research Program web archive

Description: Website, titled "The University of Texas at Tyler Health Science Center," detailing The University of Texas at Tyler Health Science Center, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via The University of Texas at Tyler Health Science Center.

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Subject:   General Sources

Title: The Participant Center | Join All of Us

URL: https://www.joinallofus.org/the-participant-center/

Collection: All of Us Research Program web archive

Description: Website, titled "The Participant Center," listing partners that the All of Us Research Program works with if participants are not able to access the program through a health care provider in their area.

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Subject:   General Sources

Title: The CoRonavIruS Health Impact Survey (CRISIS)

URL: http://www.crisissurvey.org/download/

Collection: Global Health Events web archive

Description: The CRISIS Survey is designed to enable researchers and care providers to examine the extent and impact of life changes induced by the COVID-19 epidemic on the mental health and behavior of individuals and families across diverse international settings. This data may enable the identification of pre-, peri, and post-COVID-19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID-19 and its sequelae. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Download surveys in PDF or Word Format, via GitHub, or via REDCap.

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Title: The All of Us Research Project has officially launched

URL: https://launch.joinallofus.org/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page is where individuals sign up to join the program.

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Subject:   Participant Recruitment

Title: Testimony on the Federal Response to the Opioid Crisis | National Institutes of Health (NIH)

URL: https://www.nih.gov/about-nih/who-we-are/nih-director/testimony-federal-response-opioid-crisis/

Collection: Opioid Epidemic web archive

Description: Testimony of the federal response to the opioid crisis before the U.S. Senate Health, Education, Labor, and Pensions (HELP) Committee on October 5, 2017. The testimony, published on the NIH Website, was given by Dr. Francis Collins, Director, National Institutes of Health (NIH); Dr. Elinore McCance-Katz, Assistant Secretary for Mental Health and Substance Use, Substance Abuse and Mental Health Services Administration (SAMHSA); Dr. Deborah Houry, Director, National Center for Injury Prevention and Control, Centers for Disease Control and Prevention (CDC); and Dr. Scott Gottlieb, Commissioner, Food and Drug Administration (FDA).

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Title: Sun River Health | Join All of Us

URL: https://www.joinallofus.org/sun-river-health/

Collection: All of Us Research Program web archive

Description: Website, titled "Sun River Health," detailing Sun River Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Sun River Health.

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Subject:   General Sources

Title: Stanford University School of Medicine | Join All of Us

URL: https://www.joinallofus.org/stanford-university-school-of-medicine/

Collection: All of Us Research Program web archive

Description: Website, titled "Stanford University School of Medicine," detailing the Stanford University School of Medicine's partnership with the All of Us Research Program including how to join, frequently asked questions, and researcher resources.

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Subject:   General Sources

Title: Southern | Join All of Us

URL: https://www.joinallofus.org/southern/

Collection: All of Us Research Program web archive

Description: Website, titled "Southern All of Us Network," detailing the Southern All of Us Network that includes health care systems in Alabama, Louisiana, and Mississippi that are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Southeast | Join All of Us

URL: https://www.joinallofus.org/southeast/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us South East Enrollment Center," detailing the All of Us South East Enrollment Center that includes the University of Miami Miller School of Medicine, University of Florida College of Medicine, Emory University, and Morehouse School of Medicine which are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Sexual & Gender Minority Research Office | DPCPSI

URL: https://dpcpsi.nih.gov/sgmro/

Collection: Women's Health web archive

Description: Website from National Institutes of Health Sexual and Gender Minority Research Office.

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Title: Say Yes! Covid Test - Say Yes! To Covid Test

URL: https://sayyescovidtest.org/

Collection: Global Health Events web archive

Description: Website called Say Yes to COVID Test, links to current communities and distribution of at-home COVID tests, list of completed communities where tests have ended

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Title: San Ysidro Health | Join All of Us

URL: https://www.joinallofus.org/san-ysidro-health/

Collection: All of Us Research Program web archive

Description: Website, titled "San Ysidro Health," detailing San Ysidro Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via San Ysidro Health.

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Subject:   General Sources

Title: Resources to Help Your Patients with SUD During the COVID-19 Pandemic | National Institute on Drug Abuse (NIDA)

URL: https://www.drugabuse.gov/nidamed-medical-health-professionals/resources-to-help-your-patients-sud-during-covid-19-pandemic/

Collection: Global Health Events web archive

Description: Website for the National Institute on Drug Abuse's COVID-19 resources for physicians to help patients with SUD during the pandemic, as well as general information and updates.

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Title: Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities

URL: https://allofus.nih.gov/news-events/voices-all-us/billy-caceres-benchmarks-health-disparities/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities," that includes an interview/overview of Billy A. Caceres, a researcher for the All of Us Program. The interview delves into Caceres' life story, his research, and how his experiences have affected his research.

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Subject:   General Sources

Title: Research Projects Directory – All of Us Research Hub

URL: https://www.researchallofus.org/research-projects-directory/

Collection: All of Us Research Program web archive

Description: Website, titled, " Research Projects Directory," from the National Institutes of Health listing all of the projects that have utilized or plan to utilize data from the All of Us research program.

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Subject:   Research Projects Using Collected Data

Title: RECOVER: Researching COVID to Enhance Recovery

URL: https://recovercovid.org/

Collection: Global Health Events web archive

Description: Website from Recover regarding COVID-19 recovery, links to latest updates, links to resources

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Title: RADx | National Institutes of Health (NIH)

URL: https://www.nih.gov/research-training/medical-research-initiatives/radx/

Collection: Global Health Events web archive

Description: Website dedicated to the Rapid Acceleration of Diagnostics (RADx) programs from the National Institutes of Health. The project aims to "speed innovation in the development, commercialization, and implementation of technologies for COVID-19 testing." The page provides information about the initiative.

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Title: RADx - POCTRN - CIMIT

URL: https://www.poctrn.org/radx/

Collection: Global Health Events web archive

Description: A call for proposals related to COVID-19 test development and distribution, innovative technologies to increase U.S. capacity for testing. The project is being promoted and funded by the National Institutes of Health's Point of Care Technology Research Network (POCTRN) and National Institute of Biomedical Imaging and Bioengineering (NIBIB).

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Title: Public-Private Initiative to Address the Opioid Crisis

URL: https://www.nih.gov/opioid-crisis/

Collection: Opioid Epidemic web archive

Description: Page on the National Institutes of Health (NIH) Website dedicated to addressing the opioid crisis. In April 2018, NIH launched the HEAL (Helping to End Addiction Long-term) Initiative using the same URL.

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Title: Protecting Data and Privacy | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/protecting-data-and-privacy

Collection: All of Us Research Program web archive

Description: Website, titled " Protecting Data and Privacy," that details how the All of Us Program ensures data collected from participants will be safe.

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Subject:   Ethics and Data Management

Title: Precision Medicine Traveling Exhibit | All of Us

URL: https://allofus.nnlm.gov/precision-medicine-traveling-exhibit/

Collection: All of Us Research Program web archive

Description: Website, titled "Precision Medicine Traveling Exhibit," that details the traveling exhibit produced by Network of the National Library of Medicine to promote the All of Us Research Program.

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Subject:   Engagement

Title: Policy Issues in Genomics

URL: https://www.genome.gov/policyethics/

Collection: Bioethics web archive

Description: Page on the National Institutes of Health's (NIH) National Human Genome Research Institute website dedicated to policy, legal and ethical issues in genetic research. The page links to individual articles on this topic.

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Title: Policy Issues in Genomics

URL: https://www.genome.gov/about-genomics/policy-issues/

Collection: Bioethics web archive

Description: Page on the National Institutes of Health's (NIH) National Human Genome Research Institute website dedicated to policy issues in genomics. The page links to individual articles on this topic.

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Title: Pennsylvania | Join All of Us

URL: https://www.joinallofus.org/pennsylvania/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Pennsylvania," detailing the All of Us Research Program in Pennsylvania, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Participant Technology Systems Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-technology-systems-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Technology Systems Center," hosted by the National Institutes of Health detailing what the Participant Technology Center is and what organizations host the center.

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Subject:   General Sources

Title: Participant Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-center/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Participant Center," hosted by the National Institutes of Health detailing what the Participant Center is and listing some of the locations.

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Subject:   General Sources

Title: Pain Consortium

URL: http://painconsortium.nih.gov/

Collection: Opioid Epidemic web archive

Description: Website for the National Institutes of Health's (NIH) Pain Consortium, which was established to enhance pain research and promote collaboration among researchers across the many NIH Institutes and Centers that have programs and activities addressing pain.

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Title: Opioids – Digital Press Kit | National Institutes of Health (NIH)

URL: http://www.nih.gov/news-events/opioids-digital-press-kit/

Collection: Opioid Epidemic web archive

Description: Page on the National Institutes of Health (NIH) Website dedicated to the Opioids Digital Press Kit. The site, last reviewed in December 2017, includes sections on NIH funding, the NIH Pain Consortium, images, and soundbites.

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Title: OpenData | COVID-19

URL: https://opendata.ncats.nih.gov/variant/about

Collection: Global Health Events web archive

Description: The National Center for Advancing Translational Services (NCATS) is generating a collection of datasets by screening a panel of SARS-CoV-2-related assays against all approved drugs. These datasets, as well as the assay protocols used to generate them, are being made immediately available to the scientific community on this site as these screens are completed.

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Title: Open-Access Data and Computational Resources to Address COVID-19 | Data Science at NIH

URL: https://datascience.nih.gov/covid-19-open-access-resources

Collection: Global Health Events web archive

Description: COVID-19 open-access data and computational resources are being provided by federal agencies, including the National Institutes of Health (NIH); public consortia; and private entities. These resources are freely available to researchers, and this web page will be updated as more information becomes available.

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Title: Office of AIDS Research OAR, National Institutes of Health

URL: https://www.oar.nih.gov/

Collection: HIV/AIDS web archive

Description: Website for the National Institute of Health's (NIH) Office of AIDS Research. The site features information on the office, links to resources for researchers, the office's research priorities, news and links to meetings and events.

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Title: News and Events | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events/

Collection: All of Us Research Program web archive

Description: The official NIH All of Us Research Program website for the program's "News and Events." The page hosts all of the program's announcements and lists events held. Videos, external news, testimonials, and the press kit are also available on this page.

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Subject:   General Sources

Title: New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/ysabel-abreu-perseverance-humanity/

Collection: All of Us Research Program web archive

Description: Webpage, titled "New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us," that includes an interview/ overview of Ysabel Aberu, a member of the Participant Advisory Board. The interview details her life experiences that led to her involvement with the All of Us Research Program and why she is proud to be a part of the initiative.

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Subject:   General Sources

Title: New York City Consortium | Join All of Us

URL: https://www.joinallofus.org/new-york-city-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "New York City Consortium," detailing the New York City Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the New York City Consortium.

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Subject:   General Sources

Title: New England | Join All of Us

URL: https://www.joinallofus.org/new-england/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us New England," detailing the All of Us Research Program in New England, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)

URL: https://grants.nih.gov/grants/guide/rfa-files/RFA-LM-21-002.html

Collection: All of Us Research Program web archive

Description: Website, titled "Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)," hosted by the Department of Health and Human Services that details the funding available for the All of Us Research Program and how to apply for it.

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Subject:   General Sources

Title: National Institute of Allergy and Infectious Diseases -- Monkeypox

URL: https://www.niaid.nih.gov/diseases-conditions/monkeypox

Collection: Global Health Events web archive

Description: Website portal for information & NIH response to monkeypox outbreak. Information regarding vaccines and treament also provided.

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Title: National COVID Cohort Collaborative (N3C) | National Center for Advancing Translational Sciences

URL: https://ncats.nih.gov/n3c/

Collection: Global Health Events web archive

Description: Website from National Institutes of Health National Center for Advancing Translational Sciences regarding National COVID Cohort Collaborative (N3C), gives links for additional resources, program FAQs, key metrics dashboard, etc.

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Title: National Baptist Convention, USA, Inc.

URL: https://www.joinallofus.org/nbcusa/

Collection: All of Us Research Program web archive

Description: Website, titled "National Baptist Convention, USA, Inc.," detailing the National Baptist Convention, USA, Inc.'s partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: National Alliance for Hispanic Health (Alliance) | Join All of Us

URL: https://www.joinallofus.org/national-alliance-for-hispanic-health-alliance/

Collection: All of Us Research Program web archive

Description: Website, titled "National Alliance for Hispanic Health (Alliance)," detailing the National Alliance for Hispanic Health (Alliance)'s partnership with the All of Us Research Program including how to join and frequently asked questions.

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Subject:   General Sources

Title: NNLM All of Us Community Engagement Network | All of Us

URL: https://allofus.nnlm.gov/nnlm-all-us-community-engagement-network/

Collection: All of Us Research Program web archive

Description: Website, titled "NNLM All of Us Community Engagement Network," detailing the NNLM community and what they do, how they do it, how individuals can get involved, and giving examples of some of the areas people can help in.

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Subject:   Engagement

Title: NIMH » Shareable Resources on Coping with COVID-19

URL: https://www.nimh.nih.gov/get-involved/education-awareness/shareable-resources-on-coping-with-covid-19

Collection: Global Health Events web archive

Description: Website from National Institutes of Health National Institute of Mental Health, links to digital shareables on coping with COVID-19, downloadable graphics for social media, links to mental health matters, telemental health, coping with COVID-19, helping children and adolescents, links to news stories and YouTube

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Title: NIH Clinical Center Department of Bioethics

URL: http://bioethics.nih.gov/

Collection: Bioethics web archive

Description: Website for the National Institutes of Health (NIH) Department of Bioethics. The site features the department's research, publications, and training materials, and provides information on staff and alumni, department services, fellowship opportunities and relevant resources.

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Title: NIH COVID-19 Communities Responding Together

URL: https://covid19community.nih.gov/

Collection: Global Health Events web archive

Description: Website from the National Institutes of Health, "Community Engagement Alliance (CEAL) Against COVID-19 Disparities", with information and resources for communities of color.

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Title: NIH All of Us Research Program Partnership

URL: https://nnlm.gov/workbook-allofus/

Collection: All of Us Research Program web archive

Description: Website, titled "NIH All of Us Research Program Partnership," that is designed to provide publicly available information about the partnership between NNLM and All of Us to assist in preparing the grant application for the Network of the National Library of Medicine (NNLM) All of Us Program Center (U24) cooperative agreement that posted on July 12, 202The NNLM All of Us National Program Center (NAPC) will serve as the coordinating center for the engagement, programs, partnerships, activities, and training offered by NNLM in support of the All of Us Research Program.

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Subject:   General Sources

Title: NIEHS's Health and Education: Autism page

URL: http://www.niehs.nih.gov/health/topics/conditions/autism/index.cfm

Collection: Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

Description: One of the potential causes of autism that is currently being heavily researched involves environmental factors and environmental health. The National Institute of Environment and Health Services has significant information about the work being done on its website.

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Title: NIAID COVID-19 Clinical Research | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/covid-19-clinical-research/

Collection: Global Health Events web archive

Description: A report from the National Institute of Allergy and Infectious Diseases (NIAID) titled, "NIAID COVID-19 Clinical Research." The report provides information about clinical research being conducted and supported by NIAID. "They include clinical trials evaluating therapeutics and vaccine candidates against SARS-CoV-2, the novel coronavirus that causes COVID-19, as well as studies of people who have recovered from infection."

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Title: Medicine and Your DNA | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/medicine-and-your-dna/

Collection: All of Us Research Program web archive

Description: Website, titled "Medicine and Your DNA, "listing all of the genes that the All of Us Research Program looks at to give results about how DNA may affect how bodies processes medicine.

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Subject:   General Sources

Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

Title: Long COVID and Multisystem Inflammatory Syndrome in Children (MIS-C) | NIH: National Institute of Allergy and Infectious Diseases

URL: https://www.niaid.nih.gov/diseases-conditions/long-covid-multisystem-inflammatory-syndrome-children-misc

Collection: Global Health Events web archive

Description: Website from National Institute of Allergy and Infectious Diseases regarding long COVID and Multisystem Inflammatory Syndrome in children

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Title: Learn Internet Skills | All of Us

URL: https://allofus.nnlm.gov/learn-internet-skills/

Collection: All of Us Research Program web archive

Description: Website, titled "Learn Internet Skills," from the All of Us Research Program's main website that teaches individuals how to use the internet safely.

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Subject:   Engagement

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Collection: All of Us Research Program web archive

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: Interagency Pain Research Coordinating Committee

URL: http://iprcc.nih.gov/

Collection: Opioid Epidemic web archive

Description: Website for the National Institutes of Health (NIH) Interagency Pain Research Coordinating Committee (IPRCC). It includes the latest news and links to the 2018 NIH Pain Consortium Symposium registration page. The IPRCC is a federal advisory committee created to enhance pain research efforts and promote collaboration across the government.

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Title: Institutional DURA Request for the All of Us Research Program Research Workbench

URL: https://redcap.pmi-ops.org/surveys/?s=7N7TA9AHAA

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional DUA Request for the All of Us Research Program Research Workbench," containing a form for institutions to fill out. The form asks what type of institution the user is affiliated with and how the user learned about the All of Us Research Program.

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Subject:   Research Projects Using Collected Data

Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Collection: All of Us Research Program web archive

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Information for Educators on Novel Coronavirus | Science Education Partnership Award

URL: https://nihsepa.org/news/information-for-educators-on-novel-coronavirus/

Collection: Global Health Events web archive

Description: Website from the Science Education and Partnership Award, supported by the National Institute of Health, of information and resources for educators on coronavirus.

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Title: In the News: Coronavirus and Alternative Treatments | NCCIH

URL: https://www.nccih.nih.gov/health/in-the-news-coronavirus-and-alternative-treatments/

Collection: Global Health Events web archive

Description: "In the News: Coronavirus and 'Alternative' Treatments" warning against untested, unproven, or dangerous "treatments" for COVID-19

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Title: In Their Own Words

URL: https://history.nih.gov/NIHInOwnWords/

Collection: HIV/AIDS web archive

Description: Website for the National Institute of Health (NIH) project, In Their Own Words. The site features a compilation of NIH Researchers' recollections on the early years of AIDS.

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Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Collection: All of Us Research Program web archive

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: Human Genetics Film Kits | All of Us

URL: https://allofus.nnlm.gov/human-genetics-film-kits/

Collection: All of Us Research Program web archive

Description: Website, titled "Human Genetics Film Kits," detailing the film kits curated by the Network of the National Library of Medicine and their contents. The film kits are designed to support public libraries in raising scientific literacy and awareness of precision medicine. Through attending screenings of the films and participating in related discussions, library patrons will learn about human genetics and the advance of precision medicine.

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Subject:   Engagement

Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Collection: All of Us Research Program web archive

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Home | NIH COVID-19 Research

URL: https://covid19.nih.gov/

Collection: Global Health Events web archive

Description: Website from National Institutes of Health regarding finding effective treatments for SARS-CoV-2 variants

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Title: Home | NICHD - Eunice Kennedy Shriver National Institute of Child Health and Human Development

URL: https://www.nichd.nih.gov/ncmhep/

Collection: Women's Health web archive

Description: Website from Eunice Kennedy Shriver National Institute of Child Health and Human Development regarding National Child and Maternal Health Education Program.

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Title: Home - You and Me Healthy

URL: https://youandmehealthy.org/

Collection: Global Health Events web archive

Description: Website from You and Me Healthy that is coordinated by the Duke Clinical Research Institute. You and Me Healthy is a community from across the US who aim to address health concerns, including COVID-19 and MPOX. The group provides informational resources and conduts a survey to further their research.

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Title: Home - WhenToTest

URL: https://whentotest.org/about/

Collection: Global Health Events web archive

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Title: Home - Genetic and Rare Diseases Information Center

URL: https://rarediseases.info.nih.gov/

Collection: Rare Diseases web archive

Description: Website from Genetic and Rare Diseases Information Center (GARD) through the National Center for Advancing Translation Sciences. GARD is a database for rare diseases where you can browse by disease. There are also links to routine data updates and collaborative data.

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Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Collection: All of Us Research Program web archive

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: Health Effects from the Collapse of the World Trade Center | NLM

URL: https://disasterinfo.nlm.nih.gov/wtc-hazards/

Collection: September 11: Health Effects and Policy web archive

Description: Web page, titled "Health Effects from the Collapse of the World Trade Center," prepared by the Disaster Information Management Research Center. The site contains links to federal disaster studies, health reports, health program sites, environmental analyses, bibliographies, and other resources.

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Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: HIVinfo | Information on HIV/AIDS Treatment, Prevention and Research | NIH

URL: https://hivinfo.nih.gov/

Collection: HIV/AIDS web archive

Description: Website from the NIH providing "an online resource offering up-to-date HIV/AIDS information to the general consumer, people with HIV/AIDS, people recently diagnosed and those who care for them."

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Title: HIV/AIDS Clinical Trials | AIDSinfo

URL: http://aidsinfo.nih.gov/clinical-trials/

Collection: HIV/AIDS web archive

Description: Page on the AIDsInfo Website that connects patients with clinical trials in multiple areas of HIV/AIDS research.

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Title: HEAL Initiative | National Institutes of Health (NIH)

URL: http://www.nih.gov/heal-initiative/

Collection: Opioid Epidemic web archive

Description: Page on the National Institutes of Health (NIH) Website dedicated to the Helping to End Addiction Long-Term (HEAL) Initiative. HEAL is an aggressive trans-agency effort launched in April 2018 to speed scientific solutions to help curb the opioid crisis using well-establish NIH research and working with public and private organizations. The site includes links to resources, past events, and news and announcements.

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Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Collection: All of Us Research Program web archive

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: Gripe aviar

URL: http://www.nlm.nih.gov/medlineplus/spanish/birdflu.html

Collection: Avian Influenza A (H7N9) Virus web archive

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Title: Go Angie | All of Us Research

URL: https://go.joinallofus.org/Angie/

Collection: All of Us Research Program web archive

Description: Website linking to the All of Us Research Program's app in the Google Play and Apple app stores.

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Subject:   Engagement

Title: Genomics: A Revolution in Health and Disease Discovery | All of Us

URL: https://allofus.nnlm.gov/genomics-book-reading-club-kit/

Collection: All of Us Research Program web archive

Description: Website, titled "Genomics: A Revolution in Health and Disease Discovery," detailing one a ready-to-use reading club kit curated by the Network of the National Library of Medicine. The kit contains materials related to "Genomics: A Revolution in Health and Disease Discovery," including a recorded talk with the authors. Additional films and resources are present on the page.

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Subject:   Engagement

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Collection: All of Us Research Program web archive

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

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